Liabilities / Assets
60th percentile
Tied with the lowest-debt nonprofits in its peer group.
Rare Disease Advocates
EIN 99-3548319 • 501(c)3 • Los Angeles, CA
Profile
At rare disease advocates organization, our mission is to empower and uplift individuals impacted by rare diseases. Rare disease advocates is a non-profit organization dedicated to raising provider awareness, providing patient support, and advocating for better resources and research for those living with rare medical conditions.we serve health care providers around the country but primarily focusing on southern california by conducting educational seminars and providing financial support to rare disease patients. There are over ten thousand rare diseases. Rare diseases are estimated to affect more than thirty million people in the united states. Each disease may be rare individually, but people with rare diseases often face similar challenges. These challenges may include accessing information, getting a diagnosis, and finding resources.our organization's three primary objectives:raise awareness, provide support and advocate for change
Siviq Scores
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
0.00x
Liabilities / Revenue
62nd percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
58th percentile
Higher net margin than 58% of similar nonprofits.
Top Officer Pay
92nd percentile
Higher top officer pay than 92% of similar nonprofits.
Top officer pay equals 31.8% of source-year revenue.
Asset Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Balance Sheet
Assets
$7,225
No earlier filing loaded for comparison.
Liabilities
$0
No earlier filing loaded for comparison.
Net Assets
$7,225
No earlier filing loaded for comparison.
Revenue
$123,833
No earlier filing loaded for comparison.
Expenses
$116,608
No earlier filing loaded for comparison.
Net Income
$7,225
No earlier filing loaded for comparison.
Trend Graphs
Filings
Most recent year
2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $7,225
- Liabilities
- $0
- Net assets
- $7,225
- Revenue
- $123,833
- Expenses
- $116,608
- Net income
- $7,225
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2024 to Dec 31, 2024
- Signed
- Oct 4, 2025
- Return Version
- 2024v5.2
- Gross Receipts
- $123,833
Mission and Program Overview
Mission
At rare disease advocates organization, our mission is to empower and uplift individuals impacted by rare diseases. Rare disease advocates is a non-profit organization dedicated to raising provider awareness, providing patient support, and advocating for better resources and research for those living with rare medical conditions.we serve health care providers around the country but primarily focusing on southern california by conducting educational seminars and providing financial support to rare disease patients. There are over ten thousand rare diseases. Rare diseases are estimated to affect more than thirty million people in the united states. Each disease may be rare individually, but people with rare diseases often face similar challenges. These challenges may include accessing information, getting a diagnosis, and finding resources.our organization's three primary objectives:raise awareness, provide support and advocate for change
Program Services
| Description | Grants | Expenses |
|---|---|---|
| EDUCATIONAL CONFERENCE SERIES ON PNH AND MDS: FROM AUGUST TO NOVEMBER 2024, RARE DISEASE ADVOCATES LAUNCHED A SERIES OF EDUCATIONAL SEMINARSFOCUSED ON PAROXYSMAL NOCTURNAL HEMOGLOBINURIA (PNH) AND MYELODYSPLASTIC SYNDROMES (MDS). EACHEVENT FEATURED A CLINICAL PRESENTATION LED BY A PHARMD AND MD TEAM, DELIVERED TO A TARGETED AUDIENCE OFHEALTHCARE PROFESSIONALS INCLUDING PHYSICIANS, FELLOWS, NURSE PRACTITIONERS, AND PHARMACISTS. THESESESSIONS EMPHASIZED DIAGNOSTIC CHALLENGES, DISEASE PROGRESSION, AND EMERGING TREATMENT STRATEGIES TOIMPROVE AWARENESS AND CLINICAL OUTCOMES FOR THESE RARE HEMATOLOGIC CONDITIONS. NOTABLY, FOLLOWING TWOOF THESE SESSIONS, ATTENDING PHYSICIANS REPORTED DIAGNOSING PATIENTS WITH ONE OF THE DISCUSSED RAREDISEASES, HIGHLIGHTING THE DIRECT CLINICAL IMPACT OF THE EDUCATION PROVIDED. | $87,314 | $80,186 |
| EDUCATIONAL CONFERENCE SERIES ON MYELOFIBROSIS, AML, AND BPDCN: THE FINAL EDUCATIONAL EVENT IN DECEMBER 2024 FOCUSED ON MYELOFIBROSIS (MF), ACUTE MYELOID LEUKEMIA(AML), AND BLASTIC PLASMACYTOID DENDRITIC CELL NEOPLASM (BPDCN). LIKE PRIOR CONFERENCES, THE SESSION WAS PRESENTED BY A PHARMD AND MD TEAM TO A TARGETED AUDIENCE OF HEALTHCARE PROFESSIONALS INCLUDING PHYSICIANS, FELLOWS, NURSE PRACTITIONERS, AND PHARMACISTS. THE GOAL WAS TO PROVIDE EDUCATION ON THE LATEST TREATMENT STRATEGIES, IMPROVE DISEASE RECOGNITION, AND HIGHLIGHT PATIENT CARE CONSIDERATIONS SPECIFIC TO THESE RARE HEMATOLOGIC MALIGNANCIES. | $32,768 | $19,657 |
| ORGANIZATIONAL INFRASTRUCTURE DEVELOPMENT: IN ITS FOUNDATIONAL YEAR, RARE DISEASE ADVOCATES FOCUSED ON ESTABLISHING THE INTERNAL INFRASTRUCTUREREQUIRED TO SUPPORT LONG-TERM, MISSION-ALIGNED PROGRAMMING. THIS INCLUDED DEVELOPING AND LAUNCHINGTHE ORGANIZATION'S OFFICIAL WEBSITE, SETTING UP A DONATION PORTAL AND NONPROFIT BANK ACCOUNT, AND INITIATING PARTNERSHIPS WITH SEVERAL PHARMACEUTICAL SPONSORS. THESE EFFORTS LAID A STRONG GROUNDWORK FOROPERATIONAL EFFICIENCY, DONOR ENGAGEMENT, AND STRATEGIC GROWTH IN THE RARE DISEASE ADVOCACY SPACE. | $0 | $9,956 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| GEORGE YAGHMOUR | CEO/Director | FT | $39,375 | - | $39,375 |
Filing and Contact Details
Filer
- Filer Name
- Rare Disease Advocates
- EIN
- 99-3548319
- Phone
- 8778295500
- Address
- PO BOX 65731 3950 EAGLE ROCK BLVD, LOS ANGELES, CA 90065
Signing Officer
- Name
- George Yaghmour
- Title
- CEO
- Phone
- 8776549688
- Signed
- 2025-10-04
Preparer
- Firm
- Foumberg Juneja Rocher & Co Pc
- Address
- 16311 VENTURA BLVD SUITE 1180, ENCINO, CA 91436
- Preparer
- Daniel Choi CPA
- Phone
- 8189816100
Supplemental Narrative
Additional Explanations
Form 990-ez, Part I, Line 16 - Other Expenses
“Description: advertising & marketing. Amount: 617. Description: contractors. Amount: 45,876. Description: event/conference . Amount: 23,439. Description: office supplies & software . Amount: 170. Description: bank charge . Amount: 145. Description: other office expense . Amount: 1,200. Description: qb payments fees. Amount: 1,287. Description: travel. Amount: 1,499. Total to form 990-ez, line 16: 74,233.”
Form 990-ez, Part II, Line 24 - Other Assets
“Description: credit card overpayment . Beg. Of year amount: 0. End of year amount: 1,061.”
Raw XML Appendix129 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | AT RARE DISEASE ADVOCATES ORGANIZATION, OUR MISSION IS TO EMPOWER AND UPLIFT INDIVIDUALS IMPACTED BY RARE DISEASES. RARE DISEASE ADVOCATES IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING PROVIDER AWARENESS, PROVIDING PATIENT SUPPORT, AND ADVOCATING FOR BETTER RESOURCES AND RESEARCH FOR THOSE LIVING WITH RARE MEDICAL CONDITIONS.WE SERVE HEALTH CARE PROVIDERS AROUND THE COUNTRY BUT PRIMARILY FOCUSING ON SOUTHERN CALIFORNIA BY CONDUCTING EDUCATIONAL SEMINARS AND PROVIDING FINANCIAL SUPPORT TO RARE DISEASE PATIENTS. THERE ARE OVER TEN THOUSAND RARE DISEASES. RARE DISEASES ARE ESTIMATED TO AFFECT MORE THAN THIRTY MILLION PEOPLE IN THE UNITED STATES. EACH DISEASE MAY BE RARE INDIVIDUALLY, BUT PEOPLE WITH RARE DISEASES OFTEN FACE SIMILAR CHALLENGES. THESE CHALLENGES MAY INCLUDE ACCESSING INFORMATION, GETTING A DIAGNOSIS, AND FINDING RESOURCES.OUR ORGANIZATION'S THREE PRIMARY OBJECTIVES:RAISE AWARENESS, PROVIDE SUPPORT AND ADVOCATE FOR CHANGE |
| IRS990EZ/ProgramServiceRevenueAmt | 0 | 120083 |
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| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 2 | ORGANIZATIONAL INFRASTRUCTURE DEVELOPMENT: IN ITS FOUNDATIONAL YEAR, RARE DISEASE ADVOCATES FOCUSED ON ESTABLISHING THE INTERNAL INFRASTRUCTUREREQUIRED TO SUPPORT LONG-TERM, MISSION-ALIGNED PROGRAMMING. THIS INCLUDED DEVELOPING AND LAUNCHINGTHE ORGANIZATION'S OFFICIAL WEBSITE, SETTING UP A DONATION PORTAL AND NONPROFIT BANK ACCOUNT, AND INITIATING PARTNERSHIPS WITH SEVERAL PHARMACEUTICAL SPONSORS. THESE EFFORTS LAID A STRONG GROUNDWORK FOROPERATIONAL EFFICIENCY, DONOR ENGAGEMENT, AND STRATEGIC GROWTH IN THE RARE DISEASE ADVOCACY SPACE. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | DESCRIPTION: ADVERTISING & MARKETING. AMOUNT: 617. DESCRIPTION: CONTRACTORS. AMOUNT: 45,876. DESCRIPTION: EVENT/CONFERENCE . AMOUNT: 23,439. DESCRIPTION: OFFICE SUPPLIES & SOFTWARE . AMOUNT: 170. DESCRIPTION: BANK CHARGE . AMOUNT: 145. DESCRIPTION: OTHER OFFICE EXPENSE . AMOUNT: 1,200. DESCRIPTION: QB PAYMENTS FEES. AMOUNT: 1,287. DESCRIPTION: TRAVEL. AMOUNT: 1,499. TOTAL TO FORM 990-EZ, LINE 16: 74,233. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | DESCRIPTION: CREDIT CARD OVERPAYMENT . BEG. OF YEAR AMOUNT: 0. END OF YEAR AMOUNT: 1,061. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990-EZ, PART II, LINE 24 - OTHER ASSETS |
| TransferPrsnlBnftContractsDecl/DeclarationDesc | 0 | THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT. |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | GEORGE YAGHMOUR |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | CEO |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 8776549688 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-10-04 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | RARE DISEASE ADVOCATES |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | RARE |
| ReturnHeader/Filer/EIN | 0 | 993548319 |
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| ReturnHeader/Filer/USAddress/CityNm | 0 | LOS ANGELES |
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| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 90065 |
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| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | FOUMBERG JUNEJA ROCHER & CO PC |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 16311 VENTURA BLVD SUITE 1180 |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | ENCINO |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | CA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 91436 |
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| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2025-10-04 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | DANIEL CHOI CPA |
| ReturnHeader/ReturnTs | 0 | 2025-10-04T13:15:12-05:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
| ReturnHeader/TaxYr | 0 | 2024 |
Document Assets
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