Liabilities / Assets
59th percentile
Tied with the lowest-debt nonprofits in its peer group.
EIN 95-4720469 • 501(c)3 • Winter Garden, FL
Profile
Education of the public on periodic paralysis and relation channelopathies including explanation of diseases latesttherapies and reaseach opportunities
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
59th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
61st percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
35th percentile
Higher net margin than 35% of similar nonprofits.
Top Officer Pay
84th percentile
Higher top officer pay than 84% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
59th percentile
Faster asset growth than 59% of similar nonprofits.
Revenue Growth
22nd percentile
Faster revenue growth than 22% of similar nonprofits.
Assets
Down$163,572
Down $42,892 (-21%) from 2023
Liabilities
Flat$0
Flat from 2023
Net Assets
Down$163,572
Down $42,892 (-21%) from 2023
Revenue
Down$31,135
Down $71,644 (-70%) from 2023
Expenses
Down$32,896
Down $18,163 (-36%) from 2023
Net Income
Down-$1,761
Down $53,481 (-103%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
Education of the public on periodic paralysis and relation channelopathies including explanation of diseases latesttherapies and reaseach opportunities
Education of the public on periodic paralysis and relationchannelopathies including explanation of diseases latesttherapies and reaseach opportunities
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $176,234 | $163,572 | ▼ $12,662 |
| Savings and Temporary Cash Investments | $30,230 | - | - |
| Total Assets | $206,464 | $163,572 | ▼ $42,892 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $206,464 | $163,572 | ▼ $42,892 |
| Total Net Assets Fund Balance | $206,464 | $163,572 | ▼ $42,892 |
| Total Liabilities and Net Assets / Fund Balance | $206,464 | $163,572 | ▼ $42,892 |
| Name | Title |
|---|---|
| Cienna Ditri | President |
| Christine C Staskiewis | Board Member |
| Evelyn Black | Board Member |
| Holly Benson | Board Member |
| Jared Harr | Board Member |
| Mason Alley | Board Member |
| Paul Willis | Board Member |
| Teresa Cochran | Secretary |
| Heidi Ditri | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $32,896 |
| Total Fundraising Expense | $6,117 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $22,183 | - | - | $22,183 |
| Advertising | - | - | $6,117 | $6,117 |
| Office Expenses | - | $4,502 | - | $4,502 |
| Fees for Services Accounting | - | $94 | - | $94 |
| Total Functional Expenses | $22,183 | $4,596 | $6,117 | $32,896 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Governing body reviewed the 990 prior to its filing”
“Client has a written conflict of interest policy”
“The general public is welcome to a copy of the full 990 upon written request and the proivsion of the cost of mailing.”
“Since the amount on line 11g, part ix is greater than 10% of the total on line 25 there is an attached staement breaking down these expenes in the 990.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
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| IRS990/AdvertisingGrp/TotalAmt | 0 | 6117 |
| IRS990/AllOtherContributionsAmt | 0 | 31135 |
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| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 48113 |
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| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
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| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 163572 |
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| IRS990/CollectionsOfArtInd | 0 | false |
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| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
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| IRS990/CreditCounselingInd | 0 | false |
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| IRS990/CYContributionsGrantsAmt | 0 | 31135 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
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| IRS990/CYTotalRevenueAmt | 0 | 31135 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 36.92 |
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| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
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| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | JARED HARR |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | BOARD MEMBER |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | TREASURER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1998 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 9 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 31135 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | FL |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | EDUCATION OF THE PUBLIC ON PERIODIC PARALYSIS AND RELATIONCHANNELOPATHIES INCLUDING EXPLANATION OF DISEASES LATESTTHERAPIES AND REASEACH OPPORTUNITIES |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 206464 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 163572 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 206464 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 163572 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
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| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 4502 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
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| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
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| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 141144 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 26089 |
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| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00000 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 1.00000 |
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| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 0 |
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| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 26089 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 376292 |
| IRS990/ScheduleBRequiredInd | 0 | false |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | GOVERNING BODY REVIEWED THE 990 PRIOR TO ITS FILING |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | CLIENT HAS A WRITTEN CONFLICT OF INTEREST POLICY |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE GENERAL PUBLIC IS WELCOME TO A COPY OF THE FULL 990 UPON WRITTEN REQUEST AND THE PROIVSION OF THE COST OF MAILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | SINCE THE AMOUNT ON LINE 11G, PART IX IS GREATER THAN 10% OF THE TOTAL ON LINE 25 THERE IS AN ATTACHED STAEMENT BREAKING DOWN THESE EXPENES IN THE 990. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990 governing body review Part VI line 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Conflict of interest policy compliance Part VI line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Governing documents etc available to public Part VI line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | List of other fees for services expenses Part IX line 11g |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
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| IRS990/SubjectToProxyTaxInd | 0 | false |
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| IRS990/TaxableDistributionsInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
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| IRS990/TerminateOperationsInd | 0 | false |
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| IRS990/TotalAssetsGrp/EOYAmt | 0 | 163572 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 31135 |
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| IRS990/TotalVolunteersCnt | 0 | 5 |
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| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 3119 HIDDEN COVE COURT |
| IRS990/USAddress/CityNm | 0 | Ann Arbor |
| IRS990/USAddress/StateAbbreviationCd | 0 | MI |
| IRS990/USAddress/ZIPCd | 0 | 48113 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 9 |
| IRS990/VotingMembersIndependentCnt | 0 | 9 |
| IRS990/WebsiteAddressTxt | 0 | N/A |
| IRS990/WhistleblowerPolicyInd | 0 | true |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | false |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | CIENNA DITRI |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | PRESIDENT |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 3522237969 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-11-04 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | PERIODIC PARALYSIS ASSOCIATION |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | PERI |
| ReturnHeader/Filer/EIN | 0 | 954720469 |
| ReturnHeader/Filer/InCareOfNm | 0 | % CIENNA DITRI |
| ReturnHeader/Filer/PhoneNum | 0 | 3522237969 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 744 LAKE BRIM DRIVE |
| ReturnHeader/Filer/USAddress/CityNm | 0 | WINTER GARDEN |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | FL |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 34787 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | true |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 592320859 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | BSI Financial Servics Inc |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 510 Savona Court |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | Altamonte Springs |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | FL |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 32701 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 4078340337 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2025-11-17 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | W BRUCE WOODARD |
| ReturnHeader/ReturnTs | 0 | 2025-11-17T08:56:48-05:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
| ReturnHeader/TaxYr | 0 | 2024 |
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