Renal Support Network

“A copy of proposed form 990 and associated schedules was e mailed to president for review prior to filing of tax return and was discussed at a board meeting.”

“AVAILABLE UPON REQUEST”

“RENAL SUPPORT NETWORK2022 FORM 99095-4672679QUALIFYING AS PUBLICLY SUPPORTEDRSN is the leader in engaging people who have kidney disease with the most prolific library of patient experience.Renal Support Network's(RSN) offers programs to support people with kidney disease and their families at all stages of the condition, from early diagnosis to transplant recovery. Founded in 1993 by Lori Hartwell, RSN offers a variety of programs to help people at different stages of kidney disease, from those newly diagnosed to those undergoing dialysis or who have had a kidney transplant. She has lived with kidney disease since the age of 2 and knows first-hand what patients' needs are.RSN's efforts reached hundreds of thousands of people in 2024, providing resources and a platform for patient experiences.Chronic kidney diesase (CKD) affects over 35.5 million U.S. adults, with higher risks for those with diabetes or high blood pressure. Many remain undiagnosed due to lack of early symptoms. CKD can progress to end-stage kidney disease (ESKD), impacting around 808,000 people who rely on dialysis or transplants. In 2024, there were 27,332 kidney transplants, with over 90,000 people waiting for one.RSN advocates for quality care, diverse treatment options, and patient voices in policy discussions. It emphasizes organ donation and living donor initiatives. Emotional support is key, as CKD patients often face higher anxiety and depression levels. RSN provides resources to help them manage and navigate care. RSN empowers patients through education, peer connections, and hope. Patients gain control over their illness and find comfort in shared experiences, making kindey disease more manageable.KidneyTalk Bi-annual News Magazine: This publication offers patient-driven content that includes personal stories, tips for managing kidney disease, and updates on medical advancements. It covers a wide array of topics relevant to kidney patients, such as nutrition, coping strategies, and navigating healthcare systems. The magazine serves as a vital resource for keeping patients informed and engaged. Created in 2004.KidneyTalk Podcast Radio Show: The podcast provides in-depth interviews with a variety of guests ranging from nephrologists to dietitians and kidney disease advocates. Listeners can gain practical advice and inspiration from these episodes, which address both medical and lifestyle topics pertinent to kidney disease management. The show has amassed a dedicated following due to its engaging and informative content. Created in 2006 and hosted by Lori Hartwell.Annual Patient Essay Contest: This contest invites kidney patients to share their personal narratives about living with kidney disease. Winning essays are published and often shared at RSN events, giving participants a platform to express their challenges, joys, and insights. The contest promotes storytelling as a therapeutic exercise and can inspire both writers and readers alike. Hosted annually since 2002.HopeWeek: Hosted virtually, HopeWeek includes webinars, Q&A sessions, and workshops. These events are led by healthcare professionals and patient advocates who cover diverse topics from treatment options and mental health to innovations in kidney care. The event aims to empower patients with knowledge and foster a supportive community. Hosted annually since 1993.24th Annual Renal Teen Prom: This one-of-kind event offers teens with kidney disease a traditional prom experience, complete with music, dancing, and dinner. It provides a joyful atmosphere where participants can bond over shared experiences, form friendships, and build self-esteem. Since 1999, this prom has recerived attention for its positive impact on young attendees' social lives. Hosted annually since 1999.Advocacy and Patient Outreach: RSN plays an active role in advocating for policy changes that benefit kidney patients. They participate in legislative meetings, provide testimony, and collaborate with other organizations to”