Civic Intelligence

Spondylitis Association of America

EIN 95-3890767 • 501(c)3 • Encino, CA

Profile

Advancing research, accelerated diagnosis, optimum treatment and public and health care professional education in spondyloarthritis.

16430 Ventura Blvd 300Encino, CA 91436

www.spondylitis.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

37th percentile

0.05x

Higher debt load relative to assets than 37% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Liabilities / Revenue

56th percentile

0.20x

Higher debt load relative to revenue than 56% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Net Margin

12th percentile

-22%

Higher net margin than 12% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Top Officer Pay

84th percentile

$262,486

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 13.0% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Asset Growth

18th percentile

-5.7%

Faster asset growth than 18% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2024 to 2025

Revenue Growth

11th percentile

-27%

Faster revenue growth than 11% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets37th percentile

Assets

Down

$7,621,545

Down $463,461 (-5.7%) from 2024

Liabilities

Up

$414,701

Up $32,939 (+8.6%) from 2024

Net Assets

Down

$7,206,844

Down $496,400 (-6.4%) from 2024

Operations
Liabilities / Revenue56th percentileNet Margin12th percentile

Revenue

Down

$2,024,097

Down $757,451 (-27%) from 2024

Expenses

Down

$2,463,539

Down $152,244 (-5.8%) from 2024

Net Income

Down

-$439,442

Down $605,207 (-365%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth18th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$10M$5.0M$0Assets 2011: $1,845,502Liabilities 2011: $49,695Net Assets 2011: $1,795,8072011Assets 2012: $1,736,365Liabilities 2012: $49,503Net Assets 2012: $1,686,8622012Assets 2013: $1,820,835Liabilities 2013: $34,555Net Assets 2013: $1,786,2802013Assets 2014: $1,968,387Liabilities 2014: $274,276Net Assets 2014: $1,694,1112014Assets 2015: $2,234,186Liabilities 2015: $32,896Net Assets 2015: $2,201,2902015Assets 2016: $2,309,459Liabilities 2016: $92,508Net Assets 2016: $2,216,9512016Assets 2017: $2,780,357Liabilities 2017: $108,351Net Assets 2017: $2,672,0062017Assets 2018: $3,559,276Liabilities 2018: $54,813Net Assets 2018: $3,504,4632018Assets 2019: $3,526,569Liabilities 2019: $69,711Net Assets 2019: $3,456,8582019Assets 2020: $4,049,261Liabilities 2020: $387,069Net Assets 2020: $3,662,1922020Assets 2021: $4,942,936Liabilities 2021: $225,104Net Assets 2021: $4,717,8322021Assets 2022: $7,928,906Liabilities 2022: $582,891Net Assets 2022: $7,346,0152022Assets 2023: $7,830,002Liabilities 2023: $413,366Net Assets 2023: $7,416,6362023Assets 2024: $8,085,006Liabilities 2024: $381,762Net Assets 2024: $7,703,2442024Assets 2025: $7,621,545Liabilities 2025: $414,701Net Assets 2025: $7,206,8442025

Highlighted filing

2025

Assets$7,621,545
Liabilities$414,701
Net Assets$7,206,844
Open 2025 Filing

Operations Trend

Revenue Growth11th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $1,082,353Expenses 2011: $1,227,551Net Income 2011: -$145,1982011Revenue 2012: $1,121,406Expenses 2012: $1,229,758Net Income 2012: -$108,3522012Revenue 2013: $1,343,959Expenses 2013: $1,256,425Net Income 2013: $87,5342013Revenue 2014: $1,351,959Expenses 2014: $1,219,092Net Income 2014: $132,8672014Revenue 2015: $1,811,703Expenses 2015: $1,306,914Net Income 2015: $504,7892015Revenue 2016: $1,367,756Expenses 2016: $1,356,084Net Income 2016: $11,6722016Revenue 2017: $1,707,740Expenses 2017: $1,301,054Net Income 2017: $406,6862017Revenue 2018: $2,682,420Expenses 2018: $1,835,227Net Income 2018: $847,1932018Revenue 2019: $2,028,110Expenses 2019: $2,105,060Net Income 2019: -$76,9502019Revenue 2020: $2,212,287Expenses 2020: $2,048,010Net Income 2020: $164,2772020Revenue 2021: $3,059,287Expenses 2021: $2,029,757Net Income 2021: $1,029,5302021Revenue 2022: $5,570,571Expenses 2022: $2,773,309Net Income 2022: $2,797,2622022Revenue 2023: $2,348,536Expenses 2023: $2,273,938Net Income 2023: $74,5982023Revenue 2024: $2,781,548Expenses 2024: $2,615,783Net Income 2024: $165,7652024Revenue 2025: $2,024,097Expenses 2025: $2,463,539Net Income 2025: -$439,4422025

Highlighted filing

2025

Revenue$2,024,097
Expenses$2,463,539
Net Income-$439,442
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$7,621,545
Liabilities
$414,701
Net assets
$7,206,844
Revenue
$2,024,097
Expenses
$2,463,539
Net income
-$439,442
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.62$0.41$7.21$2.02$2.46$0.44
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.09$0.38$7.70$2.78$2.62$0.17
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.83$0.41$7.42$2.35$2.27$0.07
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.93$0.58$7.35$5.57$2.77$2.80
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.94$0.23$4.72$3.06$2.03$1.03
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.05$0.39$3.66$2.21$2.05$0.16
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.53$0.07$3.46$2.03$2.11$0.08
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.56$0.05$3.50$2.68$1.84$0.85
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.78$0.11$2.67$1.71$1.30$0.41
2016Detailed filing. Detailed filing data is available for this year.$2.31$0.09$2.22$1.37$1.36$0.01
2015Detailed filing. Detailed filing data is available for this year.$2.23$0.03$2.20$1.81$1.31$0.50
2014Detailed filing. Detailed filing data is available for this year.$1.97$0.27$1.69$1.35$1.22$0.13
2013Summary only. Only limited summary data is available for this year.$1.82$0.03$1.79$1.34$1.26$0.09
2012Summary only. Only limited summary data is available for this year.$1.74$0.05$1.69$1.12$1.23$0.11
2011Summary only. Only limited summary data is available for this year.$1.85$0.05$1.80$1.08$1.23$0.15
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Oct 15, 2025
Return Version
2024v5.2
Gross Receipts
$3,281,070
Mission and Program Overview

Mission

Advancing and directly sponsoring axial spondyloarthritis research, accelerating diagnosis, supporting optimum treatment for the individual, advancing awareness, and public and health care professional education in axial spondyloarthritis.

Advancing research, accelerated diagnosis, optimum treatment, public awareness and health care professional education in spondyloarthritis

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$7,157,125$6,880,996▼ $276,129
Investments in Publicly Traded Securities$315,825$320,327▲ $4,502
Cash and Non-Interest-Bearing Accounts$266,538$182,551▼ $83,987
Accounts Receivable$103,031$53,250▼ $49,781
Land, Buildings, and Equipment, Net$14,506$21,938▲ $7,432
Intangible Assets$9,862--
Prepaid Expenses and Deferred Charges$20,033$8,990▼ $11,043
Total Assets$8,085,006$7,621,545▼ $463,461
Other Assets Total$198,086$153,493▼ $44,593
Liabilities
Accounts Payable and Accrued Expenses$184,796$260,497▲ $75,701
Other Liabilities$196,966$154,204▼ $42,762
Total Liabilities$381,762$414,701▲ $32,939
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$4,642,591$4,379,051▼ $263,540
Net Assets With Donor Restrictions$3,060,653$2,827,793▼ $232,860
Total Net Assets Fund Balance$7,703,244$7,206,844▼ $496,400
Total Liabilities and Net Assets / Fund Balance$8,085,006$7,621,545▼ $463,461

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$21,105$25,333$46,438
Other Land Buildings$833$10,260$11,093

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$335,682-▲ $34,352-$341,548
2023$304,143-▲ $31,539-$335,682
2022$275,277-▲ $28,866-$304,143
2021$320,692-▼ $45,415-$275,277
2020$263,428-▲ $57,264-$320,692
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Cassie ShaferChief Executive OfficerFT$238,637$23,849$262,486
Richard HowardChief Mission Delivery OffFT$145,211$19,979$165,190
Diann PetersonChief Philanthropy OfficerFT$136,026$18,835$154,861
Jason BlackwellDirector, Brand Experience & Public AffairsFT$104,646$13,762$118,408

Board Members and Trustees

NameTitle
Michael PianinBoard Chair
Paula OlsiewskiVice Chair
Arnold M PodolskyDirector
Craig GimbelDirector
Erin ArnoldDirector
James RosenbaumDirector
Jill MillerDirector
John D ReveilleDirector
Ellen CarrollSecretary
Eric GoldsteinTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,602,575
Program Service Revenue
$6,469
Investment Income
$415,053
Other Revenue
$0
All Other Contributions
$1,602,575
Change in Net Assets
$-439,442

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,024,097
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-56,958
Total Revenue per Audited Statements
$1,967,139
Total Revenue per Form 990
$2,024,097
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,611,842
Other Expenses$653,847
Grants and Similar Amounts Paid$197,850
Total Fundraising Expense$118,615
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$864,992$177,668$45,747$1,088,407
Current Officers, Directors, Trustees, and Key Employees$188,073$53,735$26,868$268,676
Grants to Domestic Orgs$197,850--$197,850
Other Employee Benefits$101,801$19,536$5,609$126,946
Office Expenses$77,108$34,876$1,553$113,537
Payroll Taxes$76,328$16,534$5,122$97,984
Fees for Services Other$96,882--$96,882
Fees for Services Accounting-$76,792$12,648$89,440
Travel$57,322-$11,798$69,120
Conferences and Meetings$56,690--$56,690
Occupancy$37,635$12,540$3,175$53,350
Information Technology$45,287$3,750$2,350$51,387
Pension Plan Contributions$23,774$4,998$1,057$29,829
Depreciation Depletion$13,587$2,680$1,385$17,652
Other Expenses$4,877$8,641$1,288$4,877
Total Functional Expenses$1,916,392$428,532$118,615$2,463,539

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,463,539
Total Expenses per Audited Statements$2,463,539
Total Expenses per Form 990$2,463,539
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Colorado School of MedicineAurora, CO501c(3)Licensing of Gut-trafficked T Cells$105,828
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA501c(3)Early Life Exposures Risk Factors$32,022
University of WashingtonSeattle, WA501c(3)Rachael Stoval Eci Award$30,000
Vanderbilt University Medical CenterNashville, TN501c(3)Paras Karmacharya Eci Award$30,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liability$154,204
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The audit committee reviews the document prior to its distribution to the entire board for review.”

Form 990, Part VI, Section B, Line 12C

“All directors and senior employees are required to complete and sign a disclosure form listing any potential conflicts of interest by september 30, annually.”

Form 990, Part VI, Section B, Line 15

“The organization utilizes current compensation data published by the national health council and the american society of association executives, and other factors in order to determine compensation.”

Form 990, Part VI, Section C, Line 19

“The organization produces an annual report that is published on its website”

Filing and Contact Details

Filer

Filer Name
Spondylitis Association of America
EIN
95-3890767
Phone
8188921616
Address
16430 VENTURA BLVD 300, ENCINO, CA 91436

Signing Officer

Name
Cassie Shafer
Title
Chief Executive Officer
Phone
8188921616
Signed
2025-10-15

Organization Details

Principal Officer
Cassie Shafer
Formed
1983
Legal Domicile
CA
Voting Board Members
10
Independent Board Members
10
Employees
14
Volunteers
204

Preparer

Firm
Quigley & Miron
Address
3580 WILSHIRE BLVD 1755, LOS ANGELES, CA 90010
Preparer
Armen Grigorian
Phone
2136393550
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“The organization's audit committee has responsibility for the oversight of the audit of its financial statements and selection of the independent auditor, subject to the approval of the board of directors. This responsibility is unchanged from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“Accounting standards require an organization to evaluate its tax positions and provide for a liability for any positions that would not be considered 'more likely than not' to be upheld under a tax authority examination. Management has evaluated its tax positions and has concluded that a provision for a tax liability is not necessary at june 30, 2025. Generally, the organization's information returns remain open for examination for a period of three (federal) or four (state of california) years from the date of filing.”

Raw XML AppendixShowing 400 of 619 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0ADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT, PUBLIC AWARENESS AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS
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IRS990/Desc0PATIENT EDUCATIONAL SEMINARS, WEBINARS, AND HEALTH EDUCATION CONTENT, ALONG WITH PATIENT SUPPORT PROGRAMS ARE DELIVERED VIA VARIOUS DIGITAL OUTLETS. SAA'S INTERACTIVE WEBSITE, LOCATED AT SPONDYLITIS.ORG, CONTAINS THOUSANDS OF PAGES OF SPONDYLOARTHRITIS INFORMATION, AND SERVES ALMOST 605,000 UNIQUE VISITORS EACH YEAR.PATIENT EDUCATIONAL SEMINARS WERE HELD VIRTUALLY UTILIZING A ROBUST AND INTERACTIVE VIRTUAL CONFERENCE PLATFORM. THE PLATFORM FEATURED AN ANIMATED AND INTERACTIVE LOBBY TO ACCESS DIFFERENT PARTS OF THE CONFERENCE HALL, INCLUDING THE EXHIBIT HALL, ACTIVITY LOUNGE, SPA RESOURCES HUB, AND PRESENTATION HALL, WHERE ATTENDEES ACCESSED THE SPEAKERS' LIVE PRESENTATIONS AND TOOK PART IN MODERATED Q&A SESSIONS. IN ADDITION, "FACEBOOK LIVE" BROADCASTS WERE ALSO CONDUCTED. THESE BROADCASTS ARE RECORDED AND AVAILABLE FOR FUTURE USE THROUGH THE SAA WEBSITE.PATIENT EDUCATION PUBLICATIONS INCLUDE A COLLECTION OF 12 UPDATED (AND PHYSICIAN VETTED) ENGLISH LANGUAGE SPONDYLOARTHRITIS EDUCATIONAL BROCHURES, AND 10 SPANISH LANGUAGE BROCHURES.SPONDYLITIS PLUS MAGAZINE - SAA MEMBERS RECEIVE QUARTERLY ISSUES OF THE ORGANIZATION'S PREMIERE PRINT PUBLICATION. SPONDYLITIS PLUS PROVIDES IN-DEPTH COVERAGE OF ISSUES SUCH AS PAIN, FATIGUE, AND OTHER COMPLICATIONS, DISCUSSES THE LATEST RESEARCH AND TREATMENT INFORMATION - OFTEN PRESENTED BY PROMINENT RHEUMATOLOGISTS AND RESEARCHERS, FEATURES MOVING AND UNIQUE PERSONAL STORIES FROM OTHERS WITH SPONDYLOARTHRITIS, AND MUCH MORE. OVER 4,500 COPIES ARE DISTRIBUTED QUARTERLY.STRAIGHT TALK ON SPONDYLOARTHRITIS BOOK - THE 4TH EDITION OF THIS LEGACY PUBLICATION WAS FULLY RE-WRITTEN AND REDESIGNED. RELEASED IN DECEMBER OF 2023, THIS FULL COLOR EDITION FEATURES 12 NEW CHAPTERS, WRITTEN BY VARIOUS CONTENT EXPERTS, AND RECEIVED A FULL REDESIGN.ESUN - MORE THAN 45,000 PEOPLE SUBSCRIBE TO AND RECEIVE SAA'S ESUN EACH MONTH. ESUN, THE ELECTRONIC SPONDYLOARTHRITIS UPDATE NEWSLETTER, CONTAINS A VARIETY OF SPONDYLOARTHRITIS-RELATED CONTENT, SUCH AS NEWS, RESEARCH OPPORTUNITIES, UPCOMING SAA PROGRAMS AND OPPORTUNITIES, STORIES FROM THOSE LIVING WITH SPONDYLOARTHRITIS, AND MORE.SPONDYCAST PODCAST SERIES - SAA LAUNCHED A NEW WEEKLY PODCAST CALLED SPONDYCAST IN MARCH 2023, WITH AN ADDITIONAL 45 EPISODES RELEASED IN FY25. BOARD MEMBER AND HOST JILL MILLER INTERVIEWS WORLD-RENOWNED SPECIALISTS IN VARIOUS FIELDS INCLUDING MEDICINE, PSYCHOLOGY, DIET AND NUTRITION, AND FITNESS. SPONDYCAST IS AVAILABLE ON A VARIETY OF PLATFORMS INCLUDING SPOTIFY, APPLE, IHEART RADIO, PANDORA, AMAZON MUSIC, AND MORE. "LIFE AFTER DIAGNOSIS" VIDEO SERIES-THIS PATIENT-FOCUSED EDUCATIONAL PROGRAM ADDRESSES THE UNMET NEED OF A SYSTEMATIC PATH TO UNDERSTANDING THE DIAGNOSIS, TREATMENTS, AND MANAGEMENT OF ANKYLOSING SPONDYLITIS (AS). THE PROJECT IS COMPRISED OF A SERIES OF SEVEN VIDEOS; EACH DELIVERED THROUGH AN EMAIL CONTAINING ADDITIONAL RESOURCES RELATED TO THE TOPIC AT HAND. THE CONTENT WAS DEVELOPED IN CLOSE COLLABORATION WITH LEADING HEALTH PROFESSIONALS AS WELL AS PATIENTS LIVING WITH AS. OVER 2,400 PARTICIPANTS HAVE ENROLLED IN THIS PROGRAM. ANIMATED VIDEO: WHAT IS NR-AXSPA?-SAA WORKED WITH A DIGITAL MEDIA PRODUCTION COMPANY TO SCRIPT AND DEVELOP OUR NEWEST ANIMATED EDUCATIONAL VIDEO, "WHAT IS NR-AXSPA?" THIS PIECE DISCUSSES COMMON SIGNS AND SYMPTOMS OF NR-AXSPA AND SHARES HELPFUL INFORMATION AND RESOURCES FOR THOSE IMPACTED (WHETHER DIAGNOSED ORNOT.)HEALTHY LIVING WITH AXSPA - THANKS TO THE SPONSORSHIP OF UCB, SAA CREATED A 2-PART VIDEO SERIES CALLED HEALTHY LIVING WITH AXSPA. THE FIRST VIDEO IN THIS UNIQUE SERIES, HEALTH LIVING WITH AXSPA: COOKING WITH KEVIN GILLESPIE, FEATURES A COOKING DEMONSTRATION TO EDUCATE AND INSPIRE PEOPLE TO EMBRACE AN ANTI-INFLAMMATORY DIET FOR IMPROVED HEALTH OUTCOMES. IN THE SECOND VIDEO OF THE SERIES, HEALTHY LIVING WITH AXSPA: MANAGING MENTAL AND EMOTIONAL HEALTH, RHEUMATOLOGIST HILLARY NORTON AND LICENSED PSYCHOLOGIST DR. JANA LOMAX DISCUSS THE IMPACT OF SPONDYLOARTHRITIS ON MENTAL HEALTH AND PROVIDE TIPS THAT
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IRS990/ProgSrvcAccomActy2Grp/Desc0BACK 2 SPA BASICS PROGRAM - IN ITS 2ND YEAR, THIS PROGRAM WAS CREATED TO RAISE SPA AWARENESS AND EDUCATE PRIMARY CARE PROVIDERS AND OTHER HEALTHCARE PROFESSIONALS WITHIN A HOSPITAL'S HEALTHCARE SYSTEM USING MEDICAL RESIDENTS AS TRAINERS. RESIDENTS WHO COMPLETED THEIR CORE CLINICAL TRAINING IN INTERNAL MEDICINE AND HAVE CHOSEN RHEUMATOLOGY AS A SPECIALTY PARTICIPATED IN A SERIES OF 3 TRAININGS ABOUT SPA CONDUCTED VIRTUALLY VIA ZOOM. ONCE THESE RESIDENTS COMPLETE THE "TRAIN-THE-TRAINER" CURRICULUM, THEY SET UP PRESENTATIONS AT THEIR LOCAL HOSPITALS TO PROVIDE EDUCATION AND INCREASE AWARENESS OF SPA. DURING FY25, SAA HAD 23 RESIDENTS ENROLL WHO THEN GAVE PRESENTATIONS ON SPA TO OVER 200 MEDICAL PROFESSIONALS WITHIN THEIR MEDICAL INSTITUTIONS. ACCREDITED ONLINE EDUCATION FOR FIRST RESPONDERS - SAA'S COURSE FOR FIRST RESPONDERS, "EMS PITFALLS: ANKYLOSING SPONDYLITIS" WAS REACCREDITED IN DECEMBER 2022 AND CONTINUES TO PROVIDE 1 CE CREDIT FOR FIRST RESPONDERS. STANDARD EMS TREATMENT PROTOCOLS CAN CAUSE INJURY, DISABILITY, AND EVEN DEATH IN PATIENTS WITH ANKYLOSING SPONDYLITIS (AS). THIS COURSE PROVIDES TOOLS TO RECOGNIZE AS, AND SAFELY AND PROPERLY MANAGE IT IN EMERGENCY SITUATIONS. ANESTHESIOLOGY AND AIRWAY MANAGEMENT MODULE- THE SPONDYLITIS ASSOCIATION OF AMERICA LAUNCHED THE ONLINE ACCREDITED COURSE FOR ANESTHESIOLOGISTS IN EARLY FEBRUARY 2023. THIS COLLABORATION WITH HENRY FORD HEALTH AIMS TO PROVIDE A COMPREHENSIVE AND PRACTICAL LEARNING EXPERIENCE FOR HEALTHCARE PROFESSIONALS TO ENHANCE THEIR SKILLS IN AIRWAY MANAGEMENT FOR PATIENTS WITH ANKYLOSING SPONDYLITIS. THIS ACTIVITY IS GUARANTEED TO HAVE A MINIMUM OF 600 LEARNERS. CASE BASED MRI EDUCATIONAL TOOL FOR AXIAL SPONDYLOARTHRITIS-SAA SUPPORTED THE ENHANCEMENT BY CARE ARTHRITIS OF A MOBILE APP, LAUNCHED IN 2023, WHICH HOSTS AND DELIVERS MRI CASE STUDIES GEARED TO RHEUMATOLOGISTS AND RADIOLOGISTS. THE PROGRAM AIMS TO ADDRESS A TOP-RANKED UNMET EDUCATIONAL NEED IN THE FIELD OF SPONDYLOARTHRITIS, NAMELY, THE APPROPRIATE INTERPRETATION OF MRI BY RHEUMATOLOGISTS AND RADIOLOGISTS FOR EARLY DIAGNOSIS OF SPA. THE APP STREAMING CONTENT IS CASE-BASED AND INCLUDES BOTH CLINICAL AND IMAGING COMPONENTS. RHEUM TO DIAGNOSE- THE GOAL OF "RHEUM TO DIAGNOSE" IS TO ADDRESS REAL WORLD BARRIERS TO AN ACCURATE AND EXPEDIENT DIAGNOSIS OF NRAXSPA IN THE RHEUMATOLOGY SETTING. THE PHYSICIAN-FACING CONTENT OF RHEUM TO DIAGNOSE INCLUDES A TOTAL OF SIX PRESENTATIONS FEATURING EXPERTS IN SPONDYLOARTHRITIS, GEARED TO TWO DISTINCT AUDIENCES: RHEUMATOLOGY FELLOWS, AND MEDICAL STUDENTS. ALL SIX PRESENTATIONS (THREE FOR RHEUMATOLOGY FELLOWS, AND THREE FOR MEDICAL STUDENTS) ALONG WITH A PROMOTIONAL TRAILER, ARE AVAILABLE ON SAA'S WEBSITE.
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IRS990/ProgSrvcAccomActy3Grp/Desc0EARLY CAREER INVESTIGATOR AWARDS (ECI)TWO OF THESE PRESTIGIOUS JANE BRUCKEL EARLY CAREER INVESTIGATOR AWARDS WERE PUBLICLY PRESENTED DURING THE AMERICAN COLLEGE OF RHEUMATOLOGY ANNUAL CONFERENCE THIS FISCAL YEAR. EACH RECEIVED $30,000 TO CONDUCT SPONDYLOARTHRITIS RESEARCH THIS YEAR. -DR. PARAS KARMACHARYA, MD, MS, ASSISTANT PROFESSOR OF MEDICINE IN THE DIVISION OF RHEUMATOLOGY AND IMMUNOLOGY AT VANDERBILT UNIVERSITY MEDICAL CENTER.DURING HIS INTERNAL MEDICINE RESIDENCY, DR. KARMACHARYA FOCUSED ON CLINICAL RESEARCH AND EPIDEMIOLOGICAL STUDIES USING NATIONAL DATABASES. AS A RHEUMATOLOGY FELLOW AT MAYO CLINIC, HE INVESTIGATED THE EPIDEMIOLOGY OF PSORIATIC ARTHRITIS (PSA) AND THE COMORBIDITIES ASSOCIATED WITH SPA. HIS RESEARCH HAS BEEN PUBLISHED IN LEADING RHEUMATOLOGY JOURNALS, INCLUDING ANNALS OF THE RHEUMATIC DISEASES, ARTHRITIS CARE & RESEARCH, AND ACR OPEN RHEUMATOLOGY. IN RECOGNITION OF HIS CONTRIBUTIONS, HE RECEIVED THE 2020 PHILIP S. HENCH AWARD FOR EXCELLENCE AS A SUBSPECIALTY FELLOW IN RHEUMATOLOGY.- DR. RACHAEL STOVALL, MD, MAS, IS AN ACTING ASSISTANT PROFESSOR I THE DIVISION OF RHEUMATOLOGY AT THE UNIVERSIY OF WASHINGTON, SPECIALIZING IN AXIAL SPONDYLOARTHRITIS (AXSPA). DR. STOVALL COMPLETED A RESEARCH-FOCUSED RHEUMATOLOGY FELLOWSHIP AT THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO (UCSF), WHERE SHE ALSO EARNED A MASTER OF ADVANCED STUDIES IN CLINICAL AND EPIDEMIOLOGICAL RESEARCH. HER RESEARCH BEGAN DURING HER INTERNAL MEDICINE RESIDENCY AT BOSTON UNIVERSITY MEDICAL CENTER, WHERE SHE STUDIED THE IMPACT OF TUMOR NECROSIS FACTOR INHIBITORS AND OTHER THERAPIES ON SPA PATIENTS. HER FINDINGS ON FRACTURE RISK, OPIOID USE, AND SEX DIFFERENCES IN FUNCTIONAL OUTCOMES IN AXSPA HAVE BEEN PUBLISHED IN ARTHRITIS CARE & RESEARCH AND NATURE REVIEWS RHEUMATOLOGY.IN ADDITION TO FUNDING ECI AWARDS, SAA RECEIVES FUNDING REQUESTS FROM OUTSIDE SOURCES TO SUPPORT RESEARCH RELATED TO SPONDYLOARTHRITIS. THE ORGANIZATION CONSIDERS IT IMPERATIVE THAT ANY RESEARCH PROPOSALS MAKE OPTIMAL USE OF THESE LIMITED RESOURCES. THE FOLLOWING SAA FUNDED RESEARCH GRANTS WERE CONDUCTED DURING THIS FISCAL YEAR:" JOERG ERMANN, MD AT THE BRIGHAM AND WOMEN'S HOSPITAL HARVARD MEDICAL SCHOOL. STUDY ""DECODING AXIAL SPONDYLOARTHRITIS THROUGH TISSUE ANALYSIS."" KRISTINE KUHN, MD, PHD AT THE UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS. STUDY ""LICENSING OF GUT-TRAFFICKED T CELLS BY EPITHELIAL MHC CLASS II."" SUSAN MURPHY, SCD OTR AT THE UNIVERSITY OF MICHIGAN HEALTH SYSTEM. STUDY "RENEW SPONDYLOARTHRITIS:FEASIBILITY, ACCEPTABILITY, AND PRELIMINARY EFFICACY OF A PEER HEALTH COACHED RESILIENCE-BUILDING ENERGYMANAGEMENT INTERVENTION TO ENHANCE WELLBEING AND FATIGUE."
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt014851193
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0388355
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0222426
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0142607
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt051298
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt061787
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0866473
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt032810
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.50750
IRS990ScheduleA/PublicSupportPY170Pct00.50820
IRS990ScheduleA/PublicSupportTotal170Amt07976231
IRS990ScheduleA/SubstantialContributorsTotAmt06874962
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01602575
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt02545839
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt02200809
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt05505466
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt02996504
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt014851193
IRS990ScheduleA/TotalSupportAmt015717666
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/BoardDesignatedBalanceEOYPct01.00000
IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt0335682
IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt0341548
IRS990ScheduleD/CYEndwmtFundGrp/GrantsOrScholarshipsAmt028486
IRS990ScheduleD/CYEndwmtFundGrp/InvestmentEarningsOrLossesAmt034352
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt0304143
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt0335682
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt031539
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/BeginningYearBalanceAmt0275277
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt0304143
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt028866
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/BeginningYearBalanceAmt0320692
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/EndYearBalanceAmt0275277
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt0-45415
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/BeginningYearBalanceAmt0263428
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/EndYearBalanceAmt0320692
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt057264
IRS990ScheduleD/EndowmentsHeldRelatedOrgInd00
IRS990ScheduleD/EndowmentsHeldUnrelatedOrgInd00
IRS990ScheduleD/EquipmentGrp/BookValueAmt021105
IRS990ScheduleD/EquipmentGrp/DepreciationAmt025333

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