Civic Intelligence

Epilepsy Foundation of Greater Los Angeles

EIN 95-2046033 • 501(c)3 • Los Angeles, CA

Profile

See form 990, part i, line 1 for explanation of mission statement.

5777 W Century Blvd 820Los Angeles, CA 90045

www.endepilepsy.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on the latest valid filing.

Source year 2018

Liabilities / Revenue

19th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

69th percentile

16%

Higher net margin than 69% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

2nd percentile

-100%

Faster asset growth than 2% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Revenue Growth

40th percentile

2.3%

Faster revenue growth than 40% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Assets

Down

$0

Down $5,002,690 (-100%) from 2017

Liabilities

Down

$0

Down $167,429 (-100%) from 2017

Net Assets

Down

$0

Down $4,835,261 (-100%) from 2017

Revenue

Up

$1,841,660

Up $42,225 (+2.3%) from 2017

Expenses

Down

$1,550,620

Down $145,077 (-8.6%) from 2017

Net Income

Up

$291,040

Up $187,302 (+181%) from 2017

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0Assets 2010: $3,639,124Liabilities 2010: $92,998Net Assets 2010: $3,546,1262010Assets 2011: $3,744,007Liabilities 2011: $73,647Net Assets 2011: $3,670,3602011Assets 2012: $3,768,201Liabilities 2012: $134,877Net Assets 2012: $3,633,3242012Assets 2013: $3,596,488Liabilities 2013: $108,623Net Assets 2013: $3,487,8652013Assets 2014: $3,750,875Liabilities 2014: $134,463Net Assets 2014: $3,616,4122014Assets 2015: $4,025,350Liabilities 2015: $185,578Net Assets 2015: $3,839,7722015Assets 2016: $4,911,450Liabilities 2016: $297,927Net Assets 2016: $4,613,5232016Assets 2017: $5,002,690Liabilities 2017: $167,429Net Assets 2017: $4,835,2612017Assets 2018: $0Liabilities 2018: $0Net Assets 2018: $02018

Highlighted filing

2018

Assets$0
Liabilities$0
Net Assets$0

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $697,3672010Revenue 2011: $1,157,419Expenses 2011: $813,185Net Income 2011: $344,2342011Revenue 2012: $1,006,392Expenses 2012: $963,428Net Income 2012: $42,9642012Revenue 2013: $1,083,443Expenses 2013: $1,308,902Net Income 2013: -$225,4592013Revenue 2014: $1,428,741Expenses 2014: $1,200,194Net Income 2014: $228,5472014Revenue 2015: $1,635,606Expenses 2015: $1,442,246Net Income 2015: $193,3602015Revenue 2016: $2,523,837Expenses 2016: $1,870,086Net Income 2016: $653,7512016Revenue 2017: $1,799,435Expenses 2017: $1,695,697Net Income 2017: $103,7382017Revenue 2018: $1,841,660Expenses 2018: $1,550,620Net Income 2018: $291,0402018

Highlighted filing

2018

Revenue$1,841,660
Expenses$1,550,620
Net Income$291,040

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2017 to Jun 30, 2018
Signed
Dec 10, 2018
Return Version
2017v2.3
Gross Receipts
$2,373,442
Mission and Program Overview

Mission

See form 990, part i, line 1 for explanation of mission statement.

The mission of our nationwide epilepsy foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives. The epilepsy foundation of greater los angeles fulfills this mission by leading the fight to end epilepsy through care, advocacy, research and education.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$2,932,040$0▼ $2,932,040
Cash and Non-Interest-Bearing Accounts$256,835$0▼ $256,835
Accounts Receivable$128,516$0▼ $128,516
Prepaid Expenses and Deferred Charges$32,050$0▼ $32,050
Land, Buildings, and Equipment, Net$17,869$0▼ $17,869
Pledges and Grants Receivable$5,830$0▼ $5,830
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$5,002,690$0▼ $5,002,690
Other Assets Total$1,629,550$0▼ $1,629,550
Liabilities
Accounts Payable and Accrued Expenses$99,554--
Grants Payable$67,875--
Total Liabilities$167,429$0▼ $167,429
Net Assets / Fund Balance
Unrestricted Net Assets$2,560,903$0▼ $2,560,903
Permanently Rstr Net Assets$1,669,000$0▼ $1,669,000
Temporarily Rstr Net Assets$605,358$0▼ $605,358
Total Net Assets Fund Balance$4,835,261$0▼ $4,835,261
Total Liabilities and Net Assets / Fund Balance$5,002,690$0▼ $5,002,690

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2017$41,000-▲ $26$26-
2016$41,000-▲ $26$26$41,000
2015$41,000-▲ $77$77$41,000
2014$41,000-▲ $26$26$41,000
2013$41,000-▲ $81$81$41,000
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Susan Pietsch-escuetaExecutive DirectorFT$142,130$12,007$154,137
Donald NoseChief Development OfficerFT$129,808$23,703$153,511
Rebekkah HalliwellInterim Executive DirectorFT$83,870$8,404$92,274

Board Members and Trustees

NameTitle
Azita Karimkhany FathereePresident
Loren ZitomerskyVice President
Andrew GumpertTrustee
Bethany StevensTrustee
David ParkerTrustee
Diane Crea HamiltonTrustee
Ellen GreenfieldTrustee
Jolie NelsonTrustee
Mark BormanTrustee
Martha HaightTrustee
Samuel KohTrustee
Shannon AbdulwahabTrustee
Steve BaumTrustee
Steve SmithTrustee
Thomas MinahanTrustee
Tracy Estrada-hiettTrustee
Brad BoyerTrustee (term Date 06/30/18)
Adam KallerAsst Secretary
Matt EdelmanSecretary
Matthew HowleyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,966,532
Program Service Revenue
$0
Investment Income
$12,050
Other Revenue
$-136,922
All Other Contributions
$562,297
Change in Net Assets
$291,040

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,046,787
Revenue Not Reported on Financial Statements
$-205,127
Revenue Not Reported on Form 990
$171,434
Other Revenue Adjustments
$-205,127
Total Revenue per Audited Statements
$2,218,221
Total Revenue per Form 990
$1,841,660
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$749,763
Grants and Similar Amounts Paid$537,319
Other Expenses$263,538
Total Fundraising Expense$95,320
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$537,319--$537,319
Other Salaries and Wages$346,110$63,439$44,349$453,898
Current Officers, Directors, Trustees, and Key Employees$137,124$25,134$17,570$179,828
Other Employee Benefits$67,946$2,458$5,903$76,307
Occupancy$39,140$7,122$4,454$50,716
Fees for Services Other$29,127$7,722$1,223$38,072
Payroll Taxes$23,662$3,929$3,916$31,507
Travel$25,968$3,699$1,122$30,789
Office Expenses$16,560$2,227$1,652$20,439
Fees for Services Accounting-$18,200-$18,200
Insurance$7,605$1,456$841$9,902
Pension Plan Contributions$-2,492$10,661$54$8,223
Depreciation Depletion$6,053$1,300$362$7,715
Information Technology$3,756$221$900$4,877
Other Expenses$1,281$580$3,112$1,861
Total Functional Expenses$1,301,139$154,161$95,320$1,550,620

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,755,747
Expenses per Audited Statements$1,550,620
Total Expenses per Form 990$1,550,620
Expenses Not Reported on Form 990$205,127
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
CHILDREN'S HOSPITAL LOS ANGELESLos Angeles, CA-Pediatric Neurology Residents$266,000
University of Southern CaliforniaLos Angeles, CA-Eeg/epilepsy Fellow$87,500
University of California IrvineOrange, VA-Eeg/ Epilepsy Fellow$85,000
Regents of the University of CaliforniaLos Angeles, CA-Pediatric Epilepsy Fellows$59,561
Epilepsy Foundation NationalLandover, MD-Pediatric Epilepsy Research$33,333
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$531,782
Fundraising Gross Income$317,360
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
La Care and Cure Dinner$1,037,610$106,750$149,910$-43,160
Walk to End Epilepsy$570,725$97,350$179,556$-82,206
Total Events$1,721,595$317,360$531,782$-214,422
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

Form 990 is reviewed by the executive director and the finance director and approved by the treasurer before filing. The completed form will be sent to entire former board for their review before filing.

Form 990, Part VI, Section B, Line 12C

All officers, directors and employees are required to annually sign a conflict of interest statement. This is monitored by the executive director who has a list of all who are required to complete and sign a conflict of interest statement and assures that everyone fulfills this duty. The executive director reviews the conflict of interest statements for exceptions.

Form 990, Part VI, Section B, Line 15

Determination of executive director compensation is addressed through the annual review and approval of the operating budget and a fiscal year-end meeting between the executive committee of the board and the executive director (alone) and together with the finance director.

Form 990, Part VI, Section C, Line 19

Financial statements, governing documents and the conflict of interest policy are available upon request.

Filing and Contact Details

Filer

Filer Name
Epilepsy Foundation of Greater
EIN
95-2046033
Phone
3106702870
Address
5777 W CENTURY BLVD 820, LOS ANGELES, CA 90045

Signing Officer

Name
Matthew Howley
Title
Treasurer
Phone
3106702870
Signed
2018-12-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Rebekkah Halliwell
Formed
1957
Legal Domicile
CA
Voting Board Members
20
Independent Board Members
20
Employees
14
Volunteers
400

Preparer

Firm
Cliftonlarsonallen Llp
Address
301 N LAKE AVE SUITE 900, PASADENA, CA 91101
Preparer
Karen Lo
Phone
6267933600
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 3

In november 2017, the efgla board voted for approval to merge with the epilepsy foundation of america ( efa) to operate as the greater los angeles chapter of efa ( la chapter) . Effective june 30, 2018, the final merger agreement was approved by the california state attorney general. Accordingly, all assets, liabilities and net assets of efgla were recorded by efa as of june 30, 2018 and the separate legal efgla corporation ceased to exist. Three efgla board members were identified and accepted to the board of efa effective as of the merger date. All program services will continue to be implemented from the the la chapter or implemented from efa in partnership with the la chapter

FORM 990, PART XI, LINE 9:

Change in value of perpetual trust 171,433. Transfer of assets -5,297,734.

Part XII Line 2C

No changes were made in governance oversight of audit and independent accountant selection.

Financial Statement Notes

PART V, LINE 4:

The foundation's endowment consists of the bodenstein endowment fund.

PART X, LINE 2:

Generally accepted accounting principles provide accounting and disclosure guidance about positions taken by an organization in its tax returns that might be uncertain. Management has considered its tax positions and believes all of the positions taken by the foundation are more likely than not to be sustained upon examination.

PART XI, LINE 4B - OTHER ADJUSTMENTS:

Direct fundraising expenses -205,127.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Direct fundraising expenses 205,127.

Raw XML AppendixShowing 400 of 782 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE MISSION OF OUR NATIONWIDE EPILEPSY FOUNDATION IS TO LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES AND SAVE LIVES. THE EPILEPSY FOUNDATION OF GREATER LOS ANGELES FULFILLS THIS MISSION BY LEADING THE FIGHT TO END EPILEPSY THROUGH CARE, ADVOCACY, RESEARCH AND EDUCATION.
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IRS990/Desc0CARE: SPECIALTY CARE - IMPROVE ACCESS TO AND QUALITY OF SPECIALTY CARE TO IMPROVE OUTCOMES FOR CHILDREN WITH EPILEPSY. DURING THE YEAR ENDING JUNE 30, 2018, THE EFGLA CONTINUED OUR CARE+CURE INITIATIVES TO SUPPORT THE TRAINING OF SPECIALISTS AT MEDICAL EPILEPSY CENTERS IN OUR REGION: (A) UNIVERSITY OF CALIFORNIA LOS ANGELES (UCLA) MATTEL CHILDREN'S HOSPITAL [1 PEDIATRIC EPILEPSY FELLOWS IN YEAR 2 OF TRAINING,] (B) LOS ANGELES COUNTY AND UNIVERSITY OF SOUTHERN CALIFORNIA MEDICAL CENTERS (LAC+USC) [1 EPILEPSY/EEG FELLOW], (C) UNIVERSITY OF CALIFORNIA, IRVINE (UCI) 1 PEDIATRIC EPILEPSY FELLOW AND (D) CHILDREN'S HOSPITAL LOS ANGELES (CHLA) [1 PEDIATRIC NEUROLOGY FELLOW]. EFGLA SIGNED A STATEMENT OF INTENT TO ESTABLISH A PEDIATRIC EPILEPSY FELLOW ENDOWMENT OVER A PERIOD OF 6 YEARS FOR A TOTAL GIFT INTENT OF $1.6 MILLION AND, DURING FY18, GIFTS TOTALING $266,000 WERE GIVEN FOR THIS ENDOWMENT. (NOTE: THE STATEMENT OF INTENT EXPIRES ANNUALLY ON 6/30 AND THE EFGLA INTENDS TO EXECUTE A NEW STATEMENT OF INTENT ON AN ANNUAL BASIS UNTIL SUCH TIME AS THE ENTIRETY OF THE GIFT INTENT IS FULFILLED. HOWEVER, IF THE EFGLA DOES NOT RENEW, EFGLA HAS NO FURTHER FINANCIAL OBLIGATION AND THE ENDOWMENT WILL STAY INTACT SUPPORTING ITS INTENDED PURPOSE.) SUPPORTIVE CARE - CONNECT PEOPLE AFFECTED BY EPILEPSY TO EACH OTHER AND TO INFORMATION IN ORDER TO EMPOWER THEM AND SO THEY FEEL LESS ALONE IN THEIR FIGHT TO END EPILEPSY. THE EFGLA OFFERED VARIOUS SUPPORTIVE CARE PROGRAMS -- FAMILY CAMP, FAMILY HOLIDAY PARTY, SOCIAL EVENTS, ADULT/FAMILY THERAPY GROUP, ART THERAPY, COLLEGE SCHOLARSHIPS, ASSISTANCE FUND, AND SCHOLARSHIPS FOR PROGRAMS.
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IRS990/Form990PartVIISectionAGrp/PersonNm2MATT EDELMAN
IRS990/Form990PartVIISectionAGrp/PersonNm3MATTHEW HOWLEY
IRS990/Form990PartVIISectionAGrp/PersonNm4SHANNON ABDULWAHAB
IRS990/Form990PartVIISectionAGrp/PersonNm5ADAM KALLER
IRS990/Form990PartVIISectionAGrp/PersonNm6DIANE CREA HAMILTON
IRS990/Form990PartVIISectionAGrp/PersonNm7STEVE BAUM
IRS990/Form990PartVIISectionAGrp/PersonNm8ELLEN GREENFIELD
IRS990/Form990PartVIISectionAGrp/PersonNm9ANDREW GUMPERT
IRS990/Form990PartVIISectionAGrp/PersonNm10STEVE SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm11JOLIE NELSON
IRS990/Form990PartVIISectionAGrp/PersonNm12MARK BORMAN
IRS990/Form990PartVIISectionAGrp/PersonNm13SAMUEL KOH
IRS990/Form990PartVIISectionAGrp/PersonNm14THOMAS MINAHAN
IRS990/Form990PartVIISectionAGrp/PersonNm15BETHANY STEVENS
IRS990/Form990PartVIISectionAGrp/PersonNm16MARTHA HAIGHT
IRS990/Form990PartVIISectionAGrp/PersonNm17DAVID PARKER
IRS990/Form990PartVIISectionAGrp/PersonNm18TRACY ESTRADA-HIETT
IRS990/Form990PartVIISectionAGrp/PersonNm19BRAD BOYER
IRS990/Form990PartVIISectionAGrp/PersonNm20SUSAN PIETSCH-ESCUETA
IRS990/Form990PartVIISectionAGrp/PersonNm21REBEKKAH HALLIWELL
IRS990/Form990PartVIISectionAGrp/PersonNm22DONALD NOSE
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22129808
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IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt5ASST SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt6TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt7TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt8TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt9TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt10TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt11TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt12TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt13TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt14TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt15TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt16TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt17TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt18TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt19TRUSTEE (TERM DATE 06/30/18)
IRS990/Form990PartVIISectionAGrp/TitleTxt20EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21INTERIM EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22CHIEF DEVELOPMENT OFFICER
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IRS990/FormationYr01957
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IRS990/FSAuditedInd01
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IRS990/FundraisingAmt01404235
IRS990/FundraisingDirectExpensesAmt0531782
IRS990/FundraisingGrossIncomeAmt0317360
IRS990/GamingActivitiesInd00
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IRS990/GrantAmt0503986
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IRS990/GrantsToOrganizationsInd01
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IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0221
IRS990/InformationTechnologyGrp/ProgramServicesAmt03756
IRS990/InformationTechnologyGrp/TotalAmt04877
IRS990/InsuranceGrp/FundraisingAmt0841
IRS990/InsuranceGrp/ManagementAndGeneralAmt01456
IRS990/InsuranceGrp/ProgramServicesAmt07605
IRS990/InsuranceGrp/TotalAmt09902
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IRS990/LandBldgEquipCostOrOtherBssAmt00
IRS990/LegalDomicileStateCd0CA
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IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
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IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
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IRS990/MissionDesc0SEE FORM 990, PART I, LINE 1 FOR EXPLANATION OF MISSION STATEMENT.
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IRS990/MoreThan5000KToOrgInd00
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IRS990/OccupancyGrp/TotalAmt050716
IRS990/OfficeExpensesGrp/FundraisingAmt01652
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IRS990/OfficeExpensesGrp/TotalAmt020439
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IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt02458
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IRS990/OtherEmployeeBenefitsGrp/TotalAmt076307
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IRS990/OtherExpensesGrp/Desc1DUES AND SUBSCRIPTIONS
IRS990/OtherExpensesGrp/Desc2PRINT, POSTAGE, DELIVER
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IRS990/OtherSalariesAndWagesGrp/TotalAmt0453898
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IRS990/PayrollTaxesGrp/ProgramServicesAmt023662
IRS990/PayrollTaxesGrp/TotalAmt031507
IRS990/PensionPlanContributionsGrp/FundraisingAmt054
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt010661
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt0-2492
IRS990/PensionPlanContributionsGrp/TotalAmt08223
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IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt032050
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IRS990/PrincipalOfficerNm0REBEKKAH HALLIWELL
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0ADVOCACY, AWARENESS & RESEARCH - PROMOTE UNDERSTANDING, FAIRNESS, ACCESS AND JUSTICE FOR THOSE WITH EPILEPSY. PROMOTED AWARENESS ABOUT EPILEPSY AND EFGLA THROUGH OUR COMMUNITY EVENTS, WEBSITES AND SOCIAL MEDIA SO THAT MORE PEOPLE ARE INFORMED AND INSPIRED TO JOIN THE FIGHT TO END EPILEPSY. PROMOTED AWARENESS TO GROW THE NUMBER OF GRASSROOTS ADVOCATES. AS PART OF EPILEPSY CALIFORNIA, WE EDUCATED LEGISLATORS, ADVOCATED FOR MEASURES THAT BENEFIT PEOPLE WITH EPILEPSY, AND CONTINUED INVOLVEMENT WITH ADVOCACY COALITIONS. IN CONJUNCTION WITH THE EPILEPSY FOUNDATION, WE PARTICIPATED IN NATIONWIDE ADVOCACY THROUGH THE PUBLIC POLICY INSTITUTE AND TEENS SPEAK-UP TO ADVOCATE FOR MORE FUNDING FOR EPILEPSY RESEARCH AND PUBLIC HEALTH PROGRAMS AND ENGAGE YOUNG PEOPLE AS ADVOCATES. WE CONTINUED TO DONATE TO EPILEPSY RESEARCH.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0178595
IRS990/ProgSrvcAccomActy2Grp/GrantAmt033333
IRS990/ProgSrvcAccomActy3Grp/Desc0EDUCATION & OUTREACH - PROMOTE SEIZURE FREEDOM AND SAFETY AND TO IMPROVE AND SAVE LIVES. ORGANIZED AND OFFERED A VARIETY OF FORUMS AND OPPORTUNITIES TO DISSEMINATE INFORMATION AND UPDATES ON EPILEPSY AND EPILEPSY TREATMENT. WE CONDUCTED EPILEPSY & SEIZURE FIRST AID TRAINING IN THE COMMUNITY, TRAINING AND KITS ON MANAGING STUDENTS WITH SEIZURES FOR SCHOOL NURSES AND SCHOOL PERSONNEL, AND USED OUR BIG BRAIN EXHIBIT TO PROMOTE BRAIN CARE AND SEIZURE FIRST AID EDUCATION IN SCHOOLS. ORGANIZED EPILEPSY WORKSHOP AND SESSIONS FOR THE CALIFORNIA SCHOOL NURSES ORGANIZATION ANNUAL MEETING. ORGANIZED AND HOSTED FULL-DAY AND HALF-DAY WORKSHOPS IN PARTNERSHIP WITH SOME OF THE EPILEPSY CENTERS IN OUR REGION. THESE WORKSHOPS FEATURED EPILEPSY SPECIALISTS SPEAKING ON TOPICS SUCH AS SUDEP, RESEARCH, DIAGNOSIS AND NEW THERAPIES. IN ADDITION TO THESE SPECIAL WORKSHOPS, OUR HELPLINE AND ONLINE RESOURCES PROVIDED INFORMATION YEAR-ROUND.
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IRS990/PYOtherRevenueAmt0-401301
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0103738
IRS990/PYSalariesCompEmpBnftPaidAmt0672850

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