Civic Intelligence

International Pemphigus Pemphigoid

EIN 94-3207871 • 501(c)3 • Roseville, CA

Profile

Medical information, awareness, research, and patient support for an orphan disease.

915 Highland Pointe Dr Ste 250Roseville, CA 95678

www.pemphigus.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

42nd percentile

0.01x

Higher debt load relative to assets than 42% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

42nd percentile

0.01x

Higher debt load relative to revenue than 42% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

13th percentile

-27%

Higher net margin than 13% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

13th percentile

-19%

Faster asset growth than 13% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

12th percentile

-28%

Faster revenue growth than 12% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets42nd percentile

Assets

Down

$565,703

Down $131,157 (-19%) from 2023

Liabilities

Down

$2,831

Down $9,441 (-77%) from 2023

Net Assets

Down

$562,872

Down $121,716 (-18%) from 2023

Operations
Liabilities / Revenue42nd percentileNet Margin13th percentile

Revenue

Down

$447,927

Down $178,124 (-28%) from 2023

Expenses

Up

$569,643

Up $29,889 (+5.5%) from 2023

Net Income

Down

-$121,716

Down $208,013 (-241%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth13th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2010: $174,839Liabilities 2010: $33,197Net Assets 2010: $141,6422010Assets 2011: $122,224Liabilities 2011: $2,186Net Assets 2011: $120,0382011Assets 2012: $156,419Liabilities 2012: $1,550Net Assets 2012: $154,8692012Assets 2013: $559,622Liabilities 2013: $2,045Net Assets 2013: $557,5772013Assets 2014: $520,608Liabilities 2014: $1,777Net Assets 2014: $518,8312014Assets 2015: $447,683Liabilities 2015: $5,128Net Assets 2015: $442,5552015Assets 2016: $642,491Liabilities 2016: $11,154Net Assets 2016: $631,3372016Assets 2017: $342,130Liabilities 2017: $9,315Net Assets 2017: $332,8152017Assets 2018: $150,942Liabilities 2018: $7,247Net Assets 2018: $143,6952018Assets 2019: $209,922Liabilities 2019: $61,734Net Assets 2019: $148,1882019Assets 2020: $362,066Liabilities 2020: $3,493Net Assets 2020: $358,5732020Assets 2021: $476,461Liabilities 2021: $1,629Net Assets 2021: $474,8322021Assets 2022: $602,948Liabilities 2022: $4,657Net Assets 2022: $598,2912022Assets 2023: $696,860Liabilities 2023: $12,272Net Assets 2023: $684,5882023Assets 2024: $565,703Liabilities 2024: $2,831Net Assets 2024: $562,8722024

Highlighted filing

2024

Assets$565,703
Liabilities$2,831
Net Assets$562,872
Open 2024 Filing

Operations Trend

Revenue Growth12th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2010: $198,925Expenses 2010: $377,171Net Income 2010: -$178,2462010Expenses 2011: $289,1892011Expenses 2012: $245,8112012Revenue 2013: $664,735Expenses 2013: $262,027Net Income 2013: $402,7082013Revenue 2014: $382,858Expenses 2014: $421,604Net Income 2014: -$38,7462014Revenue 2015: $407,515Expenses 2015: $483,791Net Income 2015: -$76,2762015Revenue 2016: $734,169Expenses 2016: $546,195Net Income 2016: $187,9742016Revenue 2017: $462,254Expenses 2017: $765,068Net Income 2017: -$302,8142017Revenue 2018: $605,552Expenses 2018: $798,038Net Income 2018: -$192,4862018Revenue 2019: $626,547Expenses 2019: $622,054Net Income 2019: $4,4932019Revenue 2020: $672,214Expenses 2020: $461,829Net Income 2020: $210,3852020Revenue 2021: $639,755Expenses 2021: $523,496Net Income 2021: $116,2592021Revenue 2022: $558,222Expenses 2022: $434,763Net Income 2022: $123,4592022Revenue 2023: $626,051Expenses 2023: $539,754Net Income 2023: $86,2972023Revenue 2024: $447,927Expenses 2024: $569,643Net Income 2024: -$121,7162024

Highlighted filing

2024

Revenue$447,927
Expenses$569,643
Net Income-$121,716
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$565,703
Liabilities
$2,831
Net assets
$562,872
Revenue
$447,927
Expenses
$569,643
Net income
-$121,716
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$5.66$0.03$5.63$4.48$5.70$1.22
2023Detailed filing. Detailed filing data is available for this year.$6.97$0.12$6.85$6.26$5.40$0.86
2022Detailed filing. Detailed filing data is available for this year.$6.03$0.05$5.98$5.58$4.35$1.23
2021Detailed filing. Detailed filing data is available for this year.$4.76$0.02$4.75$6.40$5.23$1.16
2020Detailed filing. Detailed filing data is available for this year.$3.62$0.03$3.59$6.72$4.62$2.10
2019Detailed filing. Detailed filing data is available for this year.$2.10$0.62$1.48$6.27$6.22$0.04
2018Detailed filing. Detailed filing data is available for this year.$1.51$0.07$1.44$6.06$7.98$1.92
2017Detailed filing. Detailed filing data is available for this year.$3.42$0.09$3.33$4.62$7.65$3.03
2016Detailed filing. Detailed filing data is available for this year.$6.42$0.11$6.31$7.34$5.46$1.88
2015Detailed filing. Detailed filing data is available for this year.$4.48$0.05$4.43$4.08$4.84$0.76
2014Detailed filing. Detailed filing data is available for this year.$5.21$0.02$5.19$3.83$4.22$0.39
2013Detailed filing. Detailed filing data is available for this year.$5.60$0.02$5.58$6.65$2.62$4.03
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.56$0.02$1.55$2.46
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.22$0.02$1.20$2.89
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.75$0.33$1.42$1.99$3.77$1.78
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.2
Gross Receipts
$447,927
Mission and Program Overview

Mission

Medical information, awareness, research, and patient support for an orphan disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$596,675$565,703▼ $30,972
Savings and Temporary Cash Investments$100,185$0▼ $100,185
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$696,860$565,703▼ $131,157
Other Assets Total-$0-
Liabilities
Accounts Payable and Accrued Expenses$12,272$2,831▼ $9,441
Total Liabilities$12,272$2,831▼ $9,441
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$554,588$432,872▼ $121,716
Net Assets With Donor Restrictions$130,000$130,000→ $0
Total Net Assets Fund Balance$684,588$562,872▼ $121,716
Total Liabilities and Net Assets / Fund Balance$696,860$565,703▼ $131,157
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
Staci WhitePresident
Badri RengarajanDirector
Laurence GalluDirector
Michael RigasDirector
Mindy UngerDirector
Ramesh SwamyDirector
Sonia TramelTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$447,831
Program Service Revenue
$0
Investment Income
$96
Other Revenue
$0
All Other Contributions
$431,309
Change in Net Assets
$-121,716
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$350,303
Other Expenses$219,340
Total Fundraising Expense$40,437
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$203,394$48,389$32,462$284,245
Other Employee Benefits$25,131$12,255$5,099$42,485
All Other Expenses$22,530$4,658-$27,188
Payroll Taxes$17,003$3,936$2,634$23,573
Insurance-$8,278-$8,278
Other Expenses$7,520$1,061$145$7,665
Occupancy-$3,713-$3,713
Fees for Services Accounting-$3,217-$3,217
Fees for Services Other-$3,180-$3,180
Office Expenses$51$834$97$982
Total Functional Expenses$432,959$96,247$40,437$569,643
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Copies of Financial Statements and Forms 990, 199, and RRF-1 are placed in a cloud based storage folder for all Board Members and the Executive Director to review prior to filing. Authority to sign the tax return is assigned to the Board of Director treasurer.”

Form 990, Part VI, Section B, Line 12C

“Board members shall not engage in any transaction or arrangement or undertake positions with other organizations that involve a conflict of interest, or the appearance of a conflict. If the Board has reasonable cause to believe that a Board member has failed to comply with this Policy, the Board may make such further investigation as may be warranted in the circumstances. If the Board determines that the Board member has in fact failed to comply with this Policy, it shall take appropriate action in accordance with law and the IPPF's Certificate of Incorporation and Bylaws, which may include removal from office.”

Form 990, Part VI, Section B, Line 15B

“For all new hires the Board discusses reasonable compensation and affirmatively votes.”

Form 990, Part VI, Section C, Line 19

“Financial Statements and IRS Form 990 and CA FTB Form 199 are available upon request through the organization's website and administrative office.”

Filing and Contact Details

Filer

Filer Name
International Pemphigus Pemphigoid
EIN
94-3207871
Phone
7707144684
Address
915 Highland Pointe Dr Ste 250, Roseville, CA 95678

Signing Officer

Name
Sonia Tramel
Title
Treasurer
Signed
2025-11-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Staci White
Formed
1994
Legal Domicile
CA
Voting Board Members
7
Independent Board Members
7
Employees
7
Volunteers
50

Preparer

Firm
Tramel Tax & Accounting Inc
Address
6475 Pacific Coast Hwy 244, Long Beach, CA 90803
Preparer
Susan T Patterson
Phone
5628050829
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IRS990/OtherExpensesGrp/Desc3Media & Marketing
IRS990/OtherExpensesGrp/FundraisingAmt0145
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt06726
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11061
IRS990/OtherExpensesGrp/ProgramServicesAmt0140732
IRS990/OtherExpensesGrp/ProgramServicesAmt19740
IRS990/OtherExpensesGrp/ProgramServicesAmt26858
IRS990/OtherExpensesGrp/ProgramServicesAmt37520
IRS990/OtherExpensesGrp/TotalAmt0140732
IRS990/OtherExpensesGrp/TotalAmt116466
IRS990/OtherExpensesGrp/TotalAmt27919
IRS990/OtherExpensesGrp/TotalAmt37665
IRS990/OtherRevenueTotalAmt00
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IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt048389
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IRS990/OtherSalariesAndWagesGrp/TotalAmt0284245
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IRS990/PayrollTaxesGrp/FundraisingAmt02634
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03936
IRS990/PayrollTaxesGrp/ProgramServicesAmt017003
IRS990/PayrollTaxesGrp/TotalAmt023573
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliciesReferenceChaptersInd0false
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/PrincipalOfficerNm0Staci White
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0Research - By leveraging the strength of this community, the IPPF actively encourages research to better understand pemphigus and pemphigoid. Through decades of building relationships with those diagnosing and treating these diseases, the IPPF is in a unique position to represent the patient voice to researchers and pharmaceutical companies searching for new treatments and therapies.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt092309
IRS990/ProgSrvcAccomActy3Grp/Desc0Education for Healthcare Professionals - Through professional and student education, we create a broader awareness and deeper understanding of the patient journey among healthcare professionals. This directly addresses problems of delayed diagnosis and unclear treatment protocols, with the goal of improving patient outcomes and quality of life.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt049074
IRS990/ProgSrvcAccomActyOtherGrp/Desc0Policy and Advocacy - Active community engagement creates a unified voice of the patient that cannot be ignored by legislators, decision-makers, and other partners in the rare disease space. The IPPF amplifies this voice to advocate for relevant policies and initiatives that will improve the quality of life for people affected by pemphigus and pemphigoid.
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IRS990/ProhibitedTaxShelterTransInd0false
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IRS990/PYExcessBenefitTransInd0false
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IRS990/PYOtherExpensesAmt0182817
IRS990/PYRevenuesLessExpensesAmt086297
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IRS990/PYTotalExpensesAmt0539754
IRS990/PYTotalRevenueAmt0626051
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0621609
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0558099
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0639722
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0672191
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IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0123
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt033
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt023
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IRS990ScheduleA/OtherIncome170Grp/TotalAmt00
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IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02939452
IRS990ScheduleA/TotalSupportAmt02944169
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
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IRS990/ScheduleBRequiredInd0true
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Copies of Financial Statements and Forms 990, 199, and RRF-1 are placed in a cloud based storage folder for all Board Members and the Executive Director to review prior to filing. Authority to sign the tax return is assigned to the Board of Director treasurer.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Board members shall not engage in any transaction or arrangement or undertake positions with other organizations that involve a conflict of interest, or the appearance of a conflict. If the Board has reasonable cause to believe that a Board member has failed to comply with this Policy, the Board may make such further investigation as may be warranted in the circumstances. If the Board determines that the Board member has in fact failed to comply with this Policy, it shall take appropriate action in accordance with law and the IPPF's Certificate of Incorporation and Bylaws, which may include removal from office.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2For all new hires the Board discusses reasonable compensation and affirmatively votes.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Financial Statements and IRS Form 990 and CA FTB Form 199 are available upon request through the organization's website and administrative office.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, Line 15b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section C, Line 19
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IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
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IRS990/TotalAssetsEOYAmt0565703
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IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0447831
IRS990/TotalEmployeeCnt07
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt040437
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt096247
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0432959
IRS990/TotalFunctionalExpensesGrp/TotalAmt0569643
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt012272
IRS990/TotalLiabilitiesEOYAmt02831
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IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0562872
IRS990/TotalOtherProgSrvcExpenseAmt030038
IRS990/TotalProgramServiceExpensesAmt0432959
IRS990/TotalProgramServiceRevenueAmt00
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IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0447927
IRS990/TotalVolunteersCnt050
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IRS990/TravelGrp/TotalAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0915 Highland Pointe Dr Ste 250
IRS990/USAddress/CityNm0Roseville
IRS990/USAddress/StateAbbreviationCd0CA
IRS990/USAddress/ZIPCd095678
IRS990/VotingMembersGoverningBodyCnt07
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IRS990/WebsiteAddressTxt0www.pemphigus.org
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Sonia Tramel
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Treasurer
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-11-17
ReturnHeader/DisasterReliefTxt0Los Angeles County Fire
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0International Pemphigus Pemphigoid
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0Foundation
ReturnHeader/Filer/BusinessNameControlTxt0INTE
ReturnHeader/Filer/EIN0943207871
ReturnHeader/Filer/PhoneNum07707144684
ReturnHeader/Filer/USAddress/AddressLine1Txt0915 Highland Pointe Dr Ste 250

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