Civic Intelligence

National Pku News

EIN 94-3098601 • 501(c)3 • Montclair, NJ

Profile

National PKU News primary purpose is to disseminate information regarding the disease PKU to patients and their families as well as health professional involved in the treatment of the disease.

PO Box 43552Montclair, NJ 07043

www.pkunews.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

63rd percentile

0.15x

Higher debt load relative to assets than 63% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

59th percentile

0.13x

Higher debt load relative to revenue than 59% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

74th percentile

22%

Higher net margin than 74% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

81st percentile

$143,625

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 8.1% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

89th percentile

47%

Faster asset growth than 89% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

97th percentile

378%

Faster revenue growth than 97% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets63rd percentile

Assets

Up

$1,494,592

Up $480,017 (+47%) from 2023

Liabilities

Up

$228,225

Up $73,952 (+48%) from 2023

Net Assets

Up

$1,266,367

Up $406,065 (+47%) from 2023

Operations
Liabilities / Revenue59th percentileNet Margin74th percentile

Revenue

Up

$1,768,667

Up $1,398,882 (+378%) from 2023

Expenses

Up

$1,387,351

Up $672,413 (+94%) from 2023

Net Income

Up

$381,316

Up $726,469 (+210%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth89th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2012: $136,042Liabilities 2012: $1,325Net Assets 2012: $134,7172012Assets 2013: $126,332Liabilities 2013: $0Net Assets 2013: $126,3322013Assets 2014: $117,200Liabilities 2014: $0Net Assets 2014: $117,2002014Assets 2015: $98,493Liabilities 2015: $0Net Assets 2015: $98,4932015Assets 2016: $95,507Liabilities 2016: $8982016Assets 2017: $152,816Liabilities 2017: $0Net Assets 2017: $152,8162017Assets 2018: $212,379Liabilities 2018: $0Net Assets 2018: $212,3792018Assets 2019: $333,825Liabilities 2019: $0Net Assets 2019: $333,8252019Assets 2020: $278,886Liabilities 2020: $1,846Net Assets 2020: $277,0402020Assets 2021: $696,740Liabilities 2021: $9,459Net Assets 2021: $687,2812021Assets 2022: $1,267,796Liabilities 2022: $55,929Net Assets 2022: $1,211,8672022Assets 2023: $1,014,575Liabilities 2023: $154,273Net Assets 2023: $860,3022023Assets 2024: $1,494,592Liabilities 2024: $228,225Net Assets 2024: $1,266,3672024

Highlighted filing

2024

Assets$1,494,592
Liabilities$228,225
Net Assets$1,266,367
Open 2024 Filing

Operations Trend

Revenue Growth97th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.0M$0-$1.0MRevenue 2012: $139,521Expenses 2012: $133,519Net Income 2012: $6,0022012Revenue 2013: $122,413Expenses 2013: $130,799Net Income 2013: -$8,3862013Revenue 2014: $110,852Expenses 2014: $116,333Net Income 2014: -$5,4812014Revenue 2015: $116,061Expenses 2015: $134,768Net Income 2015: -$18,7072015Revenue 2016: $160,995Expenses 2016: $161,940Net Income 2016: -$9452016Revenue 2017: $232,194Expenses 2017: $173,986Net Income 2017: $58,2082017Revenue 2018: $239,860Expenses 2018: $180,297Net Income 2018: $59,5632018Revenue 2019: $322,687Expenses 2019: $201,241Net Income 2019: $121,4462019Revenue 2020: $220,788Expenses 2020: $254,718Net Income 2020: -$33,9302020Revenue 2021: $697,122Expenses 2021: $294,262Net Income 2021: $402,8602021Revenue 2022: $844,372Expenses 2022: $290,195Net Income 2022: $554,1772022Revenue 2023: $369,785Expenses 2023: $714,938Net Income 2023: -$345,1532023Revenue 2024: $1,768,667Expenses 2024: $1,387,351Net Income 2024: $381,3162024

Highlighted filing

2024

Revenue$1,768,667
Expenses$1,387,351
Net Income$381,316
Open 2024 Filing

Filings

Most recent year

2024 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.

Open filing
Assets
$1,494,592
Liabilities
$228,225
Net assets
$1,266,367
Revenue
$1,768,667
Expenses
$1,387,351
Net income
$381,316
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.49$0.23$1.27$1.77$1.39$0.38
2023Summary only. Only limited summary data is available for this year.$1.01$0.15$0.86$0.37$0.71$0.35
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.27$0.06$1.21$0.84$0.29$0.55
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.70$0.01$0.69$0.70$0.29$0.40
2020Summary only. Only limited summary data is available for this year.$0.28$0.00$0.28$0.22$0.25$0.03
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.33$0.00$0.33$0.32$0.20$0.12
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.21$0.00$0.21$0.24$0.18$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.15$0.00$0.15$0.23$0.17$0.06
2016Summary only. Only limited summary data is available for this year.$0.10$0.00$0.16$0.16$0.00
2015Summary only. Only limited summary data is available for this year.$0.10$0.00$0.10$0.12$0.13$0.02
2014Summary only. Only limited summary data is available for this year.$0.12$0.00$0.12$0.11$0.12$0.01
2013Summary only. Only limited summary data is available for this year.$0.13$0.00$0.13$0.12$0.13$0.01
2012Summary only. Only limited summary data is available for this year.$0.14$0.00$0.13$0.14$0.13$0.01
Latest Detailed Filing

The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2022 below.

Jump To
Filing Snapshot
Filing Period
Apr 1, 2021 to Mar 31, 2022
Signed
Feb 14, 2023
Return Version
2021v4.1
Gross Receipts
$844,372
Mission and Program Overview

Mission

National PKU News primary purpose is to disseminate information regarding the disease PKU to patients and their families as well as health professional involved in the treatment of the disease.

National pku news' primary purpose is to disseminate information to patients and their families as well as to professionals involved in the treatment of the disease phenylketonuria (pku).

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$696,740$1,234,800▲ $538,060
Investments in Publicly Traded Securities-$31,214-
Prepaid Expenses and Deferred Charges-$1,782-
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$696,740$1,267,796▲ $571,056
Other Assets Total-$0-
Liabilities
Deferred Revenue-$52,639-
Accounts Payable and Accrued Expenses$9,459$3,290▼ $6,169
Total Liabilities$9,459$55,929▲ $46,470
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$687,281$1,111,487▲ $424,206
Net Assets With Donor Restrictions-$100,380-
Total Net Assets Fund Balance$687,281$1,211,867▲ $524,586
Total Liabilities and Net Assets / Fund Balance$696,740$1,267,796▲ $571,056
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseTotal
Sarah ChamberlinExecutive DirectorFT$97,470$97,470

Board Members and Trustees

NameTitle
Jeb HaberPresident
Ameya BhatawdekarBoard Member
Brenda WiniarskiBoard Member
Jacqueline KellishBoard Member
Jerry Elkins IiBoard Member
Kristen VanagsBoard Member
Laurie BernsteinBoard Member
Michelle M HobbsBoard Member
Virginia SchuettEmeritus
Adrian Alan MaysTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$720,712
Program Service Revenue
$123,071
Investment Income
$589
Other Revenue
$0
All Other Contributions
$720,712
Change in Net Assets
$554,177
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$209,116
Other Expenses$71,749
Grants and Similar Amounts Paid$9,330
Total Fundraising Expense$8,292
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$89,273$17,854$4,464$111,591
Other Salaries and Wages$72,823$8,826-$81,649
Fees for Services Other$39,000--$39,000
Payroll Taxes$13,335$2,223$318$15,876
Grants to Domestic Individuals$9,330--$9,330
All Other Expenses$5,058$819$321$6,198
Information Technology$3,220$779-$3,999
Other Expenses$3,828$3,273$1,957$3,273
Conferences and Meetings$1,967$300-$2,267
Advertising$1,103-$1,103$2,206
Travel$32$581-$613
Insurance$505$84$12$601
Total Functional Expenses$244,388$37,515$8,292$290,195
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“The form 990 is reviewed by the treasurer and executive director and a copy is provided to the full board prior to filing.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“No documents available to the public.”

Filing and Contact Details

Filer

Filer Name
National Pku News
EIN
94-3098601
Phone
9736199160
Address
PO BOX 43552, MONTCLAIR, NJ 07043

Signing Officer

Name
Adrian Alan Mays
Title
Treasurer
Signed
2023-02-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Sarah Chamberlin
Formed
1989
Legal Domicile
Wa
Voting Board Members
9
Independent Board Members
9
Employees
2

Preparer

Firm
Maureen a Leidl CPA
Address
223 LORRAINE AVE, MONTCLAIR, NJ 07043
Preparer
Maureen A Leidl CPA
Phone
9737832000
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4D: Other Program Services Description

“Other program services 4: pku news hosted a virtual camp in august 2021 to provide education, cooking demos, support and an opportunity to connect inline with the community. There is a plan and costs have been incurred for a live in-person camp event for august 2022.”

Raw XML AppendixShowing 400 of 470 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/ActivityOrMissionDesc0NATIONAL PKU NEWS' PRIMARY PURPOSE IS TO DISSEMINATE INFORMATION TO PATIENTS AND THEIR FAMILIES AS WELL AS TO PROFESSIONALS INVOLVED IN THE TREATMENT OF THE DISEASE PHENYLKETONURIA (PKU).
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IRS990/DepreciationDepletionGrp/TotalAmt00
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IRS990/Form990PartVIISectionAGrp/TitleTxt10Treasurer
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IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0779
IRS990/InformationTechnologyGrp/ProgramServicesAmt03220
IRS990/InformationTechnologyGrp/TotalAmt03999
IRS990/InsuranceGrp/FundraisingAmt012
IRS990/InsuranceGrp/ManagementAndGeneralAmt084
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IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0NATIONAL PKU NEWS' PRIMARY PURPOSE IS TO DISSEMINATE INFORMATION TO PATIENTS AND THEIR FAMILIES AS WELL AS TO PROFESSIONALS INVOLVED IN THE TREATMENT OF THE DISEASE PHENYLKETONURIA (PKU).
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IRS990/OtherExpensesGrp/Desc0Software
IRS990/OtherExpensesGrp/Desc1Bank Fees
IRS990/OtherExpensesGrp/Desc2Book Costs
IRS990/OtherExpensesGrp/Desc3Other expenses
IRS990/OtherExpensesGrp/FundraisingAmt0117
IRS990/OtherExpensesGrp/FundraisingAmt11957
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0819
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11957
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt23273
IRS990/OtherExpensesGrp/ProgramServicesAmt04914
IRS990/OtherExpensesGrp/ProgramServicesAmt13828
IRS990/OtherExpensesGrp/TotalAmt05850
IRS990/OtherExpensesGrp/TotalAmt13914
IRS990/OtherExpensesGrp/TotalAmt23828
IRS990/OtherExpensesGrp/TotalAmt33273
IRS990/OtherRevenueTotalAmt00
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IRS990/OtherSalariesAndWagesGrp/TotalAmt081649
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IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt02223
IRS990/PayrollTaxesGrp/ProgramServicesAmt013335
IRS990/PayrollTaxesGrp/TotalAmt015876
IRS990/PensionPlanContributionsGrp/TotalAmt00
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IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt01782
IRS990/PrincipalOfficerNm0SARAH CHAMBERLIN
IRS990/PriorPeriodAdjustmentsAmt0-36753
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/Desc0RESOURCE MATERIALS
IRS990/ProgramServiceRevenueGrp/Desc1SUBSCRIPTIONS AND SUPPORT
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt021447
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt1101624
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt021447
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1101624
IRS990/ProgSrvcAccomActy2Grp/Desc0RESPONDING TO COMMUNITY'S REQUESTS FOR SUPPORT ON SOCIAL MEDIA AND VIA EMAIL: INQUIRIES ABOUT HOW TO FIND CLINCIS, HOW TO WORK WITH FOOD COMPANIES, HOW TO FIND ADDITIONAL RESOURCES FOR PKU SUPPORT. 10-12 REQUESTS/WEEK FOR A TOTAL OF 500-750 PERSONS SERVED. ADMINISTATION OF THE GUTHRIE-KOCH SCHOLARSHIP PROGRAM AND ADVOCACY FOR THE COMMUNITY.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt087840
IRS990/ProgSrvcAccomActy3Grp/Desc0PKU NEWS HOSTED A VIRTUAL CAMP IN AUGUST 2021 TO PROVIDE EDUCATION, COOKING DEMOS, SUPPORT AND AN OPPORTUNITY TO CONNECT INLINE WITH THE COMMUNITY. THERE IS A PLAN AND COSTS HAVE BEEN INCURRED FOR A LIVE IN-PERSON CAMP EVENT FOR AUGUST 2022.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt037520
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IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt00
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IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0587
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt01176
IRS990ScheduleA/OtherIncome170Grp/TotalAmt00
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IRS990ScheduleA/PublicSupportTotal170Amt01687058
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IRS990ScheduleA/TotalSupportAmt01688234
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IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt08500
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt1830
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0Scholarship
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt1Food assistance grants
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IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0OTHER PROGRAM SERVICES 4: PKU NEWS HOSTED A VIRTUAL CAMP IN AUGUST 2021 TO PROVIDE EDUCATION, COOKING DEMOS, SUPPORT AND AN OPPORTUNITY TO CONNECT INLINE WITH THE COMMUNITY. THERE IS A PLAN AND COSTS HAVE BEEN INCURRED FOR A LIVE IN-PERSON CAMP EVENT FOR AUGUST 2022.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE FORM 990 IS REVIEWED BY THE TREASURER AND EXECUTIVE DIRECTOR AND A COPY IS PROVIDED TO THE FULL BOARD PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2No documents available to the public.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part III, Line 4d: Other Program Services Description
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Line 11b: Form 990 Review Process
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Line 19: Other Organization Documents Publicly Available
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IRS990/TotalAssetsGrp/BOYAmt0696740
IRS990/TotalAssetsGrp/EOYAmt01267796
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