Form 990, Page 6, Part VI, Line 2
“Tracie pretak bailey pretak 1st vp board member mother / daughter”
Foundation for Ichthyosis and Related Skin Types
990 • Fiscal year 2021 • EIN 94-2738019
Siviq Scores
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Balance Sheet
Assets
Up$2,615,715
Up $313,374 (+14%) from 2020
Net Assets
Up$2,585,630
Up $401,314 (+18%) from 2020
Liabilities
Down$30,085
Down $87,940 (-75%) from 2020
Revenue And Expenses
Revenue
Up$1,013,506
Up $422,077 (+71%) from 2020
Expenses
Down$626,277
Down $27,674 (-4.2%) from 2020
Net Income
Up$387,229
Up $449,751 (+719%) from 2020
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Oct 1, 2020 to Sep 30, 2021
- Signed
- Aug 15, 2022
- Return Version
- 2020v4.0
- Gross Receipts
- $2,484,809
Mission and Program Overview
Mission
To improve the lives and seek cures for those affected by ichthyosis and related skin types.
To improve lives and seek cures for those affected by ichthyosis and related skin types.
Balance Sheet Detail
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $2,069,051 | $2,357,549 | ▲ $288,498 |
| Cash and Non-Interest-Bearing Accounts | $141,422 | $179,817 | ▲ $38,395 |
| Land, Buildings, and Equipment, Net | $39,111 | $32,766 | ▼ $6,345 |
| Prepaid Expenses and Deferred Charges | $1,965 | $1,831 | ▼ $134 |
| Total Assets | $2,302,341 | $2,615,715 | ▲ $313,374 |
| Other Assets Total | $50,792 | $43,752 | ▼ $7,040 |
| Liabilities | |||
| Other Liabilities | $45,951 | - | - |
| Accounts Payable and Accrued Expenses | $72,074 | $30,085 | ▼ $41,989 |
| Total Liabilities | $118,025 | $30,085 | ▼ $87,940 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,316,120 | $1,565,576 | ▲ $249,456 |
| Net Assets With Donor Restrictions | $868,196 | $1,020,054 | ▲ $151,858 |
| Total Net Assets Fund Balance | $2,184,316 | $2,585,630 | ▲ $401,314 |
| Total Liabilities and Net Assets / Fund Balance | $2,302,341 | $2,615,715 | ▲ $313,374 |
Asset Categories
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $29,606 | $42,837 | $72,443 |
| Equipment | $3,160 | $3,962 | $7,122 |
Endowment Activity
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2020 | $110,013 | - | - | - | - |
| 2019 | $110,013 | - | - | - | - |
| 2018 | $119,617 | - | - | - | - |
| 2017 | $119,617 | - | - | - | - |
| 2016 | $120,856 | - | ▲ $291 | $1,530 | - |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Christopher Boynton | Chief Exec. | FT | $177,346 | $177,346 |
| Christopher Boynton | Chief Exec. Officer | - | $177,346 | $177,346 |
Board Members and Trustees
| Name | Title |
|---|---|
| Mark Evans | Co-president |
| Tracie Pretak | Co-president |
| Bailey Pretak | Board Member |
| Brittany Craiglow Md | Board Member |
| Denise Benedetto | Board Member |
| Gabriele Richard Md | Board Member |
| Jolie Cina | Board Member |
| Keith Choate Md Phd | Board Member |
| Latanya Benjamin Md | Board Member |
| Lowell Wright | Board Member |
| Brian Stern | 1st Vice Pre |
| Beth Hampshire | 2nd Vice Pre |
| Sean Mcternan | CFO |
| Jason Thogmartin | Secretary |
Revenue and Support
Revenue Composition
- Contributions and Grants
- $602,335
- Program Service Revenue
- $0
- Investment Income
- $315,221
- Other Revenue
- $95,950
- All Other Contributions
- $600,006
- Change in Net Assets
- $387,229
Audited Revenue Reconciliation
- Revenue per Audited Statements
- $1,013,506
- Revenue Not Reported on Form 990
- $14,085
- Total Revenue per Audited Statements
- $1,027,591
- Total Revenue per Form 990
- $1,013,506
Expenses and Functional Allocation
Major Expense Lines
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $313,729 |
| Other Expenses | $248,992 |
| Grants and Similar Amounts Paid | $63,556 |
| Total Fundraising Expense | $46,617 |
| Professional Fundraising Fees | $0 |
Functional Expense Allocation
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Current Officers, Directors, Trustees, and Key Employees | $143,650 | $21,282 | $12,414 | $177,346 |
| Other Salaries and Wages | $91,647 | $13,577 | $7,920 | $113,144 |
| Fees for Services Other | $46,475 | $5,467 | $2,734 | $54,676 |
| Fees for Services Accounting | $34,176 | $7,834 | $8,280 | $50,290 |
| Office Expenses | $33,506 | $5,513 | $5,661 | $44,680 |
| Insurance | $19,758 | $3,451 | $2,225 | $25,434 |
| Foreign Grants | $25,000 | - | - | $25,000 |
| Grants to Domestic Orgs | $25,000 | - | - | $25,000 |
| Payroll Taxes | $18,824 | $2,789 | $1,626 | $23,239 |
| Information Technology | $14,252 | $1,218 | $1,190 | $16,660 |
| Grants to Domestic Individuals | $13,556 | - | - | $13,556 |
| Depreciation Depletion | $10,149 | $1,269 | $1,268 | $12,686 |
| Fees for Service Investment Mgmnt Fees | - | $11,687 | - | $11,687 |
| Occupancy | $2,324 | $290 | $290 | $2,904 |
| Conferences and Meetings | $1,841 | $572 | $455 | $2,868 |
| Other Expenses | $1,815 | $565 | $448 | $2,828 |
| All Other Expenses | $2,075 | $332 | $389 | $2,796 |
| Travel | $1,413 | - | - | $1,413 |
| Total Functional Expenses | $501,703 | $77,957 | $46,617 | $626,277 |
Audited Expense Reconciliation
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $626,277 |
| Total Expenses per Audited Statements | $626,277 |
| Total Expenses per Form 990 | $626,277 |
International Activity
Grant and Assistance Recipients
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Yale University | New Haven, CT | (c)(3) | Research Grant | $25,000 |
International Compliance
- Activity in boycott countries
- No
- Foreign corporation ownership
- No
- Foreign partnership interest
- No
- Interest in foreign trust
- No
- Passive foreign investment company interest
- No
- Transfers to foreign corporations
- No
Fundraising, Events, and Gaming
- Fundraising activities
- No
- Gaming activities
- No
- Professional fundraiser used
- No
Fundraising and Gaming Totals
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
Political and Lobbying Activity
- Political campaign activity
- No
- Lobbying activity
- No
- Subject to proxy tax
- No
Governance and Compliance
Governance Checklist
- Compiled or reviewed by an accountant
- No
- Annual disclosure for covered persons
- Yes
- Audit committee
- Yes
- Backup withholding compliance
- No
- Business relationship with 35% controlled entity
- No
- Business relationship with family members
- No
- Business relationship with organization members
- No
- Material changes to governing documents
- No
- Compensation from other sources disclosed
- No
- CEO compensation reviewed
- Yes
- Other officer compensation reviewed
- Yes
- Conflict-of-interest policy
- Yes
- Audited financial statements prepared
- No
- Key decisions subject to board approval
- No
- Management duties delegated
- No
Governance Explanations
Form 990, Page 6, Part VI, Line 11B
“Once prepared a copy of the 990 is sent to the chief executive officer. The chief executive officer reviews, comments, and asks questions before the 990 is submitted to the irs.”
Form 990, Page 6, Part VI, Line 12C
“The board reviews the conflict of interest policy on an annual basis. The policy requires board members to recuse themselves from discussion or voting if the topic represents a conflict of interest.”
Form 990, Page 6, Part VI, Line 15A
“Local organizations, search firms, and employment agencies are polled to obtain a sense of appropriate compensation. A more detailed analysis of market rates has been performed to establish compensation is commensurate with responsibilities and performance.”
Form 990, Page 6, Part VI, Line 15B
“A detailed analysis of market rates has been performed to establish compensation is commensurate with responsibilities and performance.”
Form 990, Page 6, Part VI, Line 17
“Mississippi, north carolina, new hampshire, new jersey, new mexico, new york, ohio, oklahoma, oregon, pennsylvania, rhode island, south carolina, tennessee, utah, virginia, washington, wisconsin, west virginia, north dakota”
Form 990, Page 6, Part VI, Line 19
“Governing documents and conflict of interest policy are available upon request. Financial statements are published on our website and available through other websites such as guidestar and charity navigator.”
Filing and Contact Details
Filer
- Filer Name
- Foundation for Ichthyosis and
- EIN
- 94-2738019
- Phone
- 2159779400
- Address
- PO BOX 1067, LANSDALE, PA 19446
- Doing Business As
- First
Signing Officer
- Name
- Christopher Boynton
- Title
- Chief Exec. Officer
- Phone
- 2159779400
- Signed
- 2022-08-15
- Discuss with paid preparer
- Yes
Organization Details
- Principal Officer
- Christopher Boynton
- Formed
- 1981
- Legal Domicile
- Pa
- Voting Board Members
- 14
- Independent Board Members
- 14
- Employees
- 3
- Volunteers
- 80
Preparer
- Firm
- Francis S Infurchia & Company LLC
- Address
- 45 EAST AVENUE, NORWALK, CT 06851
- Preparer
- Francis S Infurchia CPA
- Phone
- 2038527088
Supplemental Narrative
Additional Explanations
Form 990
“The ichthyosis and related skin types are a set of rare skin diseases with numerous serious medical complications as well as psychosocial issues due to the physical appearances of chronic scaling, cracking, thickened, blistering, and extremely red skin. Access to accurate medical information and emotional support is invaluable. In today's world of technology, first's website and digital program services are closing the gap between members, families, caregivers, physicians, and researchers. First administers and funds four individual grant and scholarship programs for its members. Scholorship funds are available for affected students to advance their post-secondary education. Two funds are available for small grants to help members with the purchase of new creams, lotions, or other products to help their skin routine and appearance. Scholarships are also available for families to attend the national conference every other year by waiving the registration fees and providing overnight accomodations.”
Financial Statement Notes
Schedule D, Page 2, Part V, Line 4
“Corpus of the endowment asset is held in perpetuity for the edna and myron curl endowment and the jane bukaty membership assistance fund based on donor-restriction. The endowment asset is invested in a mix of equity and fixed income securities. Investment earnings on the edna and myron curl endowment are appropriated to research and will be spent when the organization's board of directors determine enough interest has accumulated to a level that will enable them to provide research grants. Earnings on the jane bukaty membership assistance fund are used to provide financial assistance to families with one or more affectred individuals whose financial and reimbursement circumstances make obtaining adequate care and treatment difficult or impossible.”
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHIEF EXEC. |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | CO-PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | 2ND VICE PRE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | CFO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | CO-PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | 1ST VICE PRE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | false |
| IRS990/FormationYr | 0 | 1981 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 243579 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 14 |
| IRS990/GrantAmt | 0 | 13556 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 13556 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 13556 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 25000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 25000 |
| IRS990/GrantsToIndividualsInd | 0 | true |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 1714882 |
| IRS990/GrossReceiptsAmt | 0 | 2484809 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 14 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 1190 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 1218 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 14252 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 16660 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 2225 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 3451 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 19758 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 25434 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 71642 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 71642 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 2069051 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 2357549 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 46799 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 39111 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 32766 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 79565 |
| IRS990/LegalDomicileStateCd | 0 | PA |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 1471303 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO IMPROVE THE LIVES AND SEEK CURES FOR THOSE AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 2184316 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 2585630 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 243579 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 243579 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 14085 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1316120 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1565576 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 290 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 290 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 2324 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 2904 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 5661 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 5513 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 33506 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 44680 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 50792 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 43752 |
| IRS990/OtherExpensesGrp/Desc | 0 | LICENSES |
| IRS990/OtherExpensesGrp/Desc | 1 | WEBSITE MANAGEMENT |
| IRS990/OtherExpensesGrp/Desc | 2 | OTHER PAYROLL COSTS |
| IRS990/OtherExpensesGrp/Desc | 3 | DUES & SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 780 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 606 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 331 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 448 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 780 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 763 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 568 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 565 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 6238 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 6173 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 3831 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 1815 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 7798 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 7542 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 4730 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2828 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 45951 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | SBA PPP LOAN FORGIVENESS |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 95950 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 95950 |
| IRS990/OtherRevenueTotalAmt | 0 | 95950 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 7920 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 13577 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 91647 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 113144 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 1626 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2789 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 18824 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 23239 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 1965 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 1831 |
| IRS990/PrincipalOfficerNm | 0 | CHRISTOPHER BOYNTON |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | ONE OF THE CORNERSTONES OF FIRST IS ITS EMPHASIS ON RESEARCH AND ITS SUPPORT OF ORGANIZATIONS THAT CONDUCT RESEARCH TO UNDERSTAND, TREAT, AND CURE ICHTHYOSIS AND RELATED SKIN TYPES. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 50000 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 50000 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 675158 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 70561 |
| IRS990/PYInvestmentIncomeAmt | 0 | 95539 |
| IRS990/PYOtherExpensesAmt | 0 | 362892 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 116746 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 220498 |
| IRS990/PYTotalExpensesAmt | 0 | 653951 |
| IRS990/PYTotalRevenueAmt | 0 | 770697 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 387229 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | OTHER INCOME 3,220 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | PART II, LINE 10 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 602335 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 675158 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 527211 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 595765 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 595647 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 2996116 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 71642 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 60113 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 68780 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 64651 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 49196 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 314382 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 95950 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 168 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 3052 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 99170 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.87740 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.90010 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 2996116 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 602335 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 675158 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 527211 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 595765 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 595647 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 2996116 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 3414768 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 5100 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 5100 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 110013 |
| IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 110013 |
| IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 119617 |
| IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 119617 |
| IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 120856 |
| IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt | 0 | 291 |
| IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/OtherExpendituresAmt | 0 | 1530 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.
- Assets
- $2,615,715
- Liabilities
- $30,085
- Net assets
- $2,585,630
- Revenue
- $1,013,506
- Expenses
- $626,277
- Net income
- $387,229