Civic Intelligence

Cure Mapt Ftd

EIN 93-2513996 • Denver, CO

Pub. 78 Eligible990-N Coverage

Profile

Cure MAPT FTD increases awareness of the brain disease commonly known as frontotemporal dementia (FTD), of the importance of genetic testing, and specifically of the disease caused by a mutation of the MAPT (microtubule-associated protein tau) gene. Through regular meetings with our volunteer Scientific Advisory Board and active members, we ensure open communication, strong advocacy, and unwavering support for the MAPT community in an effort to find a cure. We actively participate in medical and scientific conferences that are focused on the genetics of FTD and dementia-related issues. Cure MAPT FTD advocates for MAPT-specific trials and access to other FTD gene-specific trials. Currently there are no interventional, drug or gene therapy trials that are available for MAPT patients, regardless of symptom status. We actively participate in key scientific conferences worldwide, building vital connections with researchers and fostering collaboration.

4035 E 18th AveDenver, CO 80220

www.curemaptftd.org

Siviq Scores

Scores are not available for this record yet.

Balance Sheet

Assets

$15,927

No earlier filing loaded for comparison.

Liabilities

$0

No earlier filing loaded for comparison.

Net Assets

$15,927

No earlier filing loaded for comparison.

Operations

Revenue

$44,297

No earlier filing loaded for comparison.

Expenses

$30,751

No earlier filing loaded for comparison.

Net Income

$13,546

No earlier filing loaded for comparison.

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$20K$15K$10K$5.0K$0Assets 2025: $15,927Liabilities 2025: $0Net Assets 2025: $15,9272025

Highlighted filing

2025

Assets$15,927
Liabilities$0
Net Assets$15,927
Open 2025 Filing

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$60K$40K$20K$0Revenue 2025: $44,297Expenses 2025: $30,751Net Income 2025: $13,5462025

Highlighted filing

2025

Revenue$44,297
Expenses$30,751
Net Income$13,546
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$15,927
Liabilities
$0
Net assets
$15,927
Revenue
$44,297
Expenses
$30,751
Net income
$13,546
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$15.9$0.00$15.9$44.3$30.8$13.5
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2025 to Dec 31, 2025
Signed
May 14, 2026
Return Version
2025v4.0
Gross Receipts
$44,297
Mission and Program Overview

Mission

Cure MAPT FTD increases awareness of the brain disease commonly known as frontotemporal dementia (FTD), of the importance of genetic testing, and specifically of the disease caused by a mutation of the MAPT (microtubule-associated protein tau) gene. Through regular meetings with our volunteer Scientific Advisory Board and active members, we ensure open communication, strong advocacy, and unwavering support for the MAPT community in an effort to find a cure. We actively participate in medical and scientific conferences that are focused on the genetics of FTD and dementia-related issues. Cure MAPT FTD advocates for MAPT-specific trials and access to other FTD gene-specific trials. Currently there are no interventional, drug or gene therapy trials that are available for MAPT patients, regardless of symptom status. We actively participate in key scientific conferences worldwide, building vital connections with researchers and fostering collaboration.

The ultimate mission of Cure MAPT FTD is to help and support finding a cure for all MAPT FTD genetic mutations.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$2,381$15,927▲ $13,546
Cap Stk Tr Prin Current Funds$2,381$15,927▲ $13,546
Savings and Temporary Cash Investments$0$0→ $0
Accounts Receivable$0$0→ $0
Other Notes and Loans Receivable, Net$0$0→ $0
Pledges and Grants Receivable$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Investments in Publicly Traded Securities$0$0→ $0
Land, Buildings, and Equipment, Net$0--
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Rtn Earn Endowment Incm Other Fnds$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Prepaid Expenses and Deferred Charges$0$0→ $0
Total Assets$2,381$15,927▲ $13,546
Other Assets Total$0$0→ $0
Liabilities
Accounts Payable and Accrued Expenses$0$0→ $0
Grants Payable$0$0→ $0
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Other Liabilities$0--
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$2,381$15,927▲ $13,546
Total Liabilities and Net Assets / Fund Balance$2,381$15,927▲ $13,546
Compensation and Service Providers

Board Members and Trustees

NameTitle
Barbara FrommellChair
Barbara DawsonVice Chair
Tanya SteelOperations and Communications Director
David FrommellSecretary
Michael KingTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$44,297
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$44,297
Change in Net Assets
$13,546
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$30,751
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Information Technology$9,720$4,698$0$14,418
Travel$10,581$0$0$10,581
Advertising$0$2,787$0$2,787
Conferences and Meetings$2,265$0$0$2,265
Fees for Services Management$0$515$0$515
Office Expenses$0$135$0$135
Fees for Services Legal$0$50$0$50
Total Functional Expenses$22,566$8,185$0$30,751
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Gaming Direct Expenses$0
Gaming Gross Income$0
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
Yes
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“The Chair of the organization, Barbara Frommell, is married to the Secretary of the organization, David Frommell.”

Form 990, Part VI, Section A, Line 4

“The original Articles of Incorporation were amended, and the Bylaws of the organization were also amended.”

Form 990, Part VI, Section B, Line 11B

“All board members were provided a draft copy of the return for review and comment prior to filing the return.”

Form 990, Part VI, Section C, Line 19

“IRS Form 1023, IRS Form 990, governing documents, and conflict of interest policy are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Cure Mapt Ftd
EIN
93-2513996
Phone
7204321352
Address
4035 E 18th Ave, Denver, CO 80220

Signing Officer

Name
Michael King
Title
Treasurer
Phone
7204321352
Signed
2026-05-14

Organization Details

Principal Officer
Barbara Frommell
Formed
2023
Legal Domicile
Co
Voting Board Members
5
Independent Board Members
5
Employees
0
Volunteers
47
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IRS990/Form990PartVIISectionAGrp/PersonNm0Barbara Frommell
IRS990/Form990PartVIISectionAGrp/PersonNm1Barbara Dawson
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IRS990/MissionDesc0Cure MAPT FTD increases awareness of the brain disease commonly known as frontotemporal dementia (FTD), of the importance of genetic testing, and specifically of the disease caused by a mutation of the MAPT (microtubule-associated protein tau) gene. Through regular meetings with our volunteer Scientific Advisory Board and active members, we ensure open communication, strong advocacy, and unwavering support for the MAPT community in an effort to find a cure. We actively participate in medical and scientific conferences that are focused on the genetics of FTD and dementia-related issues. Cure MAPT FTD advocates for MAPT-specific trials and access to other FTD gene-specific trials. Currently there are no interventional, drug or gene therapy trials that are available for MAPT patients, regardless of symptom status. We actively participate in key scientific conferences worldwide, building vital connections with researchers and fostering collaboration.
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IRS990/PrincipalOfficerNm0Barbara Frommell
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IRS990/ProgSrvcAccomActy2Grp/Desc0We participated in a FDA Patient Listening Session in May 2025 which gave MAPT FTD persons and caregivers a direct platform to share their lived experiences with federal regulators and the research community. We advocated at the session, as well as at conferences, and throughout the year with the global scientific and pharma community, for MAPT-specific trials and access to other FTD gene-and tau-specific trials. To accelerate this progress, we've launched a global survey and HIPPA compliant database of individuals with MAPT mutations, making it easier for scientists to identify potential participants for clinical trials.
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IRS990/ProgSrvcAccomActy3Grp/Desc0As part of our mission, we provided both personal and organizational support to FTD patients and their families. This included support-group meetings, educational materials, genetic testing information, conference reimbursement, and opportunities to interface with the broader scientific community.
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