3Q29 Foundation

“Lindsey bordon director director married michael merley married”

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“The goals of the organization's research are to identify which genes cause dysfunction, understand the cause of chromosome 3q29 disorders, and discover treatment, prevention, and ways to improve the functionality of these genes. In addition to supporting specific research projects, the organization will work to develop a network of leading scientists and industry partners to increase transparency and facilitate shared resources creating economies of scale on all conditions of chromosome 3q29 disorders. In addition to supporting research activities, the organization also seeks to create a community among chromosome 3q29 disorder patient families. The organization believes that each is a resource for the others and only by sharing information can the greater goal of treatment be achieved. Increasing the number of participants and details on medical history should greatly increase the likelihood of treatment for all those with a chromosome 3q29 disorder. Finally, the organization is committed to creating a roadmap for families to navigate any rare diagnosis so that best practices are shared in all areas of diagnosis and prognosis, daily management, medical intervention, nutrition, resources, and cultivating a knowledgeable community. The organization's aim is to be the global, central repository of efficient and intelligent data on chromosome 3q29 disorders.”

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