Form 990-EZ, Part I, Line 16
“Description;Amount^Website annual fee;303|Conference display supplies;172|Form 1023 EZ submission fee;275|TN state SOS Annual RP;21|Conference fees;528|Airfare to Conference;679^Total;1978^”
Sca27B Ataxia Foundation
EIN 93-1451051 • 501(c)3 • Murfreesboro, TN
NTEE Y99
Profile
Our mission is to improve the quality of life of individuals and families affected by SCA27b while promoting research and treatments for Ataxia. We bring awareness, education, and resources to individuals and families affected by SCA27b. The foundation actively connects patients to Ataxia experts and researchers to accelerate solutions for SCA27b.
Siviq Scores
Scores are not available for this record yet.
Balance Sheet
Assets
Up$30,937
Up $25,914 (+516%) from 2023
Liabilities
Flat$0
Flat from 2023
Net Assets
Up$30,937
Up $25,914 (+516%) from 2023
Operations
Revenue
Up$26,343
Up $20,442 (+346%) from 2023
Expenses
Up$2,423
Up $2,295 (+1793%) from 2023
Net Income
Up$23,920
Up $18,147 (+314%) from 2023
Trend Graphs
Filings
Most recent year
2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $30,937
- Liabilities
- $0
- Net assets
- $30,937
- Revenue
- $26,343
- Expenses
- $2,423
- Net income
- $23,920
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2024 to Dec 31, 2024
- Signed
- Apr 23, 2025
- Return Version
- 2024v5.0
- Gross Receipts
- $26,343
Mission and Program Overview
Mission
Our mission is to improve the quality of life of individuals and families affected by SCA27b while promoting research and treatments for Ataxia. We bring awareness, education, and resources to individuals and families affected by SCA27b. The foundation actively connects patients to Ataxia experts and researchers to accelerate solutions for SCA27b.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| 1. Sent SCA27B info brochures to multiple ataxia research centers, 2. Became part of the Ataxia Global Initiative, 3. Started a SCA27B neuronal stem cell line at St Jude, 4. Joined the International SCA27B Study Group, 5. Coordinated genetic testing for patients around the world, 6. Recruited SCA27B patients into many research studies, 7. Gave presentations at Euro Ataxia and the National Ataxia Foundation conferences, 8. Distributed educational material at 3 ataxia conferences, 9. Created visuals for ataxia short films, 10. Coordinated creation of short ataxia advocacy videos with Bill Nye, 11. Ran a Facebook discussion group & maintain a Facebook SCA27B Foundation page, 12. Raising money for specific SCA27B research, 13. Hosted monthly Zoom discussion groups and invited guest speakers, 14. Actively responded to emails from patients, healthcare providers, genetic counselors, researchers, and collaborators, 15. Maintained a very educational website, 16. Our foundation now has about 600 members who benefit directly from our foundation, 17. Thousands of other non-members benefit from the educational material provided | $0 | $2,423 |
| 1) June 24, 2023: We hosted a SCA27B event for 80 people in Northern Virginia that included blood draws for genetic research on familial SCAB research through the University of Michigan, speech tests for SCA27B research through Rendenlab (Melbourne), neurology and genetic consults with an on-site neurologist and geneticist, patient support discussions, and filming for collaborative educational videos with Bill Nye, Structure Films, and the National Ataxia Foundation. The host site, food, and lodging were provided by participating members and researchers. The only expense that was billed to the SCA27b Ataxia Foundation was the rental of two large outdoor tents and chairs for 70 people. This rental cost $750. | $0 | $750 |
| 2) June 2023: We developed and launched our website at sca27b.org just prior to obtaining our EIN with the IRS and nonprofit status with the state of Tennessee. The effort and costs of establishing this website were absorbed by the executive director and not charged to the foundation. | $0 | $0 |
| 3) FEB 14, 2023: We formed a private discussion group on FaceBook one month after the genetic discovery of SCA27B. It is for individuals and families affected by SCA27B and we also have included two ataxia experts in the group to answer neurologic and genetic questions. There are 70 members in this group. | $0 | $0 |
| 4) Our foundation has been providing free online support group meetings, Facebook SCA27b group discussions, consult on requesting genetic testing, informative emails to patients and their healthcare providers, phone conversations with patients and healthcare providers with questions about SCA27B, and referrals to ataxia centers, research studies and clinical trials. This has benefitted approximately 100 individuals. | $0 | $0 |
| 5) Participated in collaborative grant writing for SCA27B research with research institutions, academic institutions, and other ataxia foundations (National Ataxia Foundation and Ataxia Global Initiative). These grants, if awarded, would benefit the 1000+ individuals currently identified as having SCA27B. | $0 | $0 |
| 6) We post all current research publications about SCA27B on our website to serve as a reference to patients and healthcare providers. We also post webinars about SCA27B or related symptoms, treatments, etc. on the website. Our website is accessed around the world by patients, healthcare providers, and researchers of this very rare and newly identified neurodegenerative disease. | $0 | $0 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Mary Hogan | Executive Director | PT | $0 | - | - |
| Jennifer Austin | President Of The Board Of Directors | - | $0 | - | - |
| Eric Legg | Board Member | - | $0 | - | - |
| Jack Barile | Board Member | - | $0 | - | - |
| Corinna Hogan | Secretary | - | $0 | - | - |
| Andy Nye | Facebook Discussion Group Admin | - | $0 | - | - |
| Sarah Ying | Medical Advisor | - | $0 | - | - |
| Margit Burmeister | Genetics Advisor | - | $0 | - | - |
| Bill Nye | Scientific Advisor | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- Sca27b Ataxia Foundation
- EIN
- 93-1451051
- Phone
- 6159000234
- Address
- PO Box 10816, Murfreesboro, TN 37129
Signing Officer
- Name
- Mary Hogan
- Title
- Executive Director
- Phone
- 6159000234
- Signed
- 2025-04-23
Supplemental Narrative
Additional Explanations
Form 990-EZ, Part I, Line 20
“$302.91 - Website annual fee, $678.94 - Conference airfare, $527.98 - Conference fees, $172.37 - Display supplies, $275.00 - Form 1023-EZ submission, $20.95 - TN state SOS Annual RP, $16.00 - Bank fee, total = $1994”
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | Our mission is to improve the quality of life of individuals and families affected by SCA27b while promoting research and treatments for Ataxia. We bring awareness, education, and resources to individuals and families affected by SCA27b. The foundation actively connects patients to Ataxia experts and researchers to accelerate solutions for SCA27b. |
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| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | 1) June 24, 2023: We hosted a SCA27B event for 80 people in Northern Virginia that included blood draws for genetic research on familial SCAB research through the University of Michigan, speech tests for SCA27B research through Rendenlab (Melbourne), neurology and genetic consults with an on-site neurologist and geneticist, patient support discussions, and filming for collaborative educational videos with Bill Nye, Structure Films, and the National Ataxia Foundation. The host site, food, and lodging were provided by participating members and researchers. The only expense that was billed to the SCA27b Ataxia Foundation was the rental of two large outdoor tents and chairs for 70 people. This rental cost $750. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 1 | 2) June 2023: We developed and launched our website at sca27b.org just prior to obtaining our EIN with the IRS and nonprofit status with the state of Tennessee. The effort and costs of establishing this website were absorbed by the executive director and not charged to the foundation. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 2 | 3) FEB 14, 2023: We formed a private discussion group on FaceBook one month after the genetic discovery of SCA27B. It is for individuals and families affected by SCA27B and we also have included two ataxia experts in the group to answer neurologic and genetic questions. There are 70 members in this group. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 3 | 4) Our foundation has been providing free online support group meetings, Facebook SCA27b group discussions, consult on requesting genetic testing, informative emails to patients and their healthcare providers, phone conversations with patients and healthcare providers with questions about SCA27B, and referrals to ataxia centers, research studies and clinical trials. This has benefitted approximately 100 individuals. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 4 | 5) Participated in collaborative grant writing for SCA27B research with research institutions, academic institutions, and other ataxia foundations (National Ataxia Foundation and Ataxia Global Initiative). These grants, if awarded, would benefit the 1000+ individuals currently identified as having SCA27B. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 5 | 6) We post all current research publications about SCA27B on our website to serve as a reference to patients and healthcare providers. We also post webinars about SCA27B or related symptoms, treatments, etc. on the website. Our website is accessed around the world by patients, healthcare providers, and researchers of this very rare and newly identified neurodegenerative disease. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 6 | 1. Sent SCA27B info brochures to multiple ataxia research centers, 2. Became part of the Ataxia Global Initiative, 3. Started a SCA27B neuronal stem cell line at St Jude, 4. Joined the International SCA27B Study Group, 5. Coordinated genetic testing for patients around the world, 6. Recruited SCA27B patients into many research studies, 7. Gave presentations at Euro Ataxia and the National Ataxia Foundation conferences, 8. Distributed educational material at 3 ataxia conferences, 9. Created visuals for ataxia short films, 10. Coordinated creation of short ataxia advocacy videos with Bill Nye, 11. Ran a Facebook discussion group & maintain a Facebook SCA27B Foundation page, 12. Raising money for specific SCA27B research, 13. Hosted monthly Zoom discussion groups and invited guest speakers, 14. Actively responded to emails from patients, healthcare providers, genetic counselors, researchers, and collaborators, 15. Maintained a very educational website, 16. Our foundation now has about 600 members who benefit directly from our foundation, 17. Thousands of other non-members benefit from the educational material provided |
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| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearAmt | 0 | 0 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus1YearAmt | 0 | 0 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 0 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/CurrentTaxYearAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 1 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 1 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 32244 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 0 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 0 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 0 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus2YearsAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/CurrentTaxYearAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/CurrentTaxYearMinus1YearAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 26343 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 5901 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 0 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 32244 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 26343 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 5901 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 0 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 32244 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Description;Amount^Website annual fee;303|Conference display supplies;172|Form 1023 EZ submission fee;275|TN state SOS Annual RP;21|Conference fees;528|Airfare to Conference;679^Total;1978^ |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | $302.91 - Website annual fee, $678.94 - Conference airfare, $527.98 - Conference fees, $172.37 - Display supplies, $275.00 - Form 1023-EZ submission, $20.95 - TN state SOS Annual RP, $16.00 - Bank fee, total = $1994 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990-EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990-EZ, Part I, Line 20 |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Mary Hogan |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Executive Director |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 6159000234 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-04-23 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | SCA27B ATAXIA FOUNDATION |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | SCA2 |
| ReturnHeader/Filer/EIN | 0 | 931451051 |
| ReturnHeader/Filer/PhoneNum | 0 | 6159000234 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | PO Box 10816 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Murfreesboro |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | TN |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 37129 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | 1 |
| ReturnHeader/ReturnTs | 0 | 2025-04-24T14:58:35-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
| ReturnHeader/TaxYr | 0 | 2024 |
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