Civic Intelligence

Alagille Syndrome Alliance

EIN 93-1243619 • 501(c)3 • Washington, DC

Profile

Mobilize resources, facilitate connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people living with alagille syndrome.

1012 14th Street NW Suite 500Washington, DC 20005

alagille.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

47th percentile

0.01x

Higher debt load relative to assets than 47% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

46th percentile

0.01x

Higher debt load relative to revenue than 46% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

74th percentile

21%

Higher net margin than 74% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

92nd percentile

$130,744

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 20.2% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

81st percentile

28%

Faster asset growth than 81% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

59th percentile

13%

Faster revenue growth than 59% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets47th percentile

Assets

Up

$640,163

Up $138,612 (+28%) from 2023

Liabilities

Up

$6,036

Up $3,256 (+117%) from 2023

Net Assets

Up

$634,127

Up $135,356 (+27%) from 2023

Operations
Liabilities / Revenue46th percentileNet Margin74th percentile

Revenue

Up

$647,970

Up $76,325 (+13%) from 2023

Expenses

Down

$512,614

Down $27,056 (-5.0%) from 2023

Net Income

Up

$135,356

Up $103,381 (+323%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth81st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2011: $220,204Liabilities 2011: $6352011Assets 2012: $260,171Liabilities 2012: $2132012Assets 2013: $253,212Liabilities 2013: $5722013Assets 2014: $265,624Liabilities 2014: $1,3732014Assets 2015: $350,713Liabilities 2015: $1,1912015Assets 2016: $300,098Liabilities 2016: $1,789Net Assets 2016: $298,3092016Assets 2017: $310,855Liabilities 2017: $5,399Net Assets 2017: $305,4562017Assets 2018: $214,024Liabilities 2018: $10,092Net Assets 2018: $203,9322018Assets 2019: $251,504Liabilities 2019: $708Net Assets 2019: $250,7962019Assets 2020: $286,569Liabilities 2020: $10,000Net Assets 2020: $276,5692020Assets 2021: $436,833Liabilities 2021: $638Net Assets 2021: $436,1952021Assets 2022: $468,720Liabilities 2022: $1,924Net Assets 2022: $466,7962022Assets 2023: $501,551Liabilities 2023: $2,780Net Assets 2023: $498,7712023Assets 2024: $640,163Liabilities 2024: $6,036Net Assets 2024: $634,1272024

Highlighted filing

2024

Assets$640,163
Liabilities$6,036
Net Assets$634,127
Open 2024 Filing

Operations Trend

Revenue Growth59th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2011: $132,358Expenses 2011: $72,278Net Income 2011: $60,0802011Revenue 2012: $69,992Expenses 2012: $30,873Net Income 2012: $39,1192012Revenue 2013: $72,638Expenses 2013: $79,956Net Income 2013: -$7,3182013Revenue 2014: $158,034Expenses 2014: $146,345Net Income 2014: $11,6892014Revenue 2015: $168,871Expenses 2015: $83,600Net Income 2015: $85,2712015Revenue 2016: $260,784Expenses 2016: $311,972Net Income 2016: -$51,1882016Revenue 2017: $185,391Expenses 2017: $116,756Net Income 2017: $68,6352017Revenue 2018: $169,326Expenses 2018: $231,156Net Income 2018: -$61,8302018Revenue 2019: $344,094Expenses 2019: $292,715Net Income 2019: $51,3792019Revenue 2020: $258,130Expenses 2020: $234,277Net Income 2020: $23,8532020Revenue 2021: $414,469Expenses 2021: $276,866Net Income 2021: $137,6032021Revenue 2022: $585,146Expenses 2022: $554,545Net Income 2022: $30,6012022Revenue 2023: $571,645Expenses 2023: $539,670Net Income 2023: $31,9752023Revenue 2024: $647,970Expenses 2024: $512,614Net Income 2024: $135,3562024

Highlighted filing

2024

Revenue$647,970
Expenses$512,614
Net Income$135,356
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$640,163
Liabilities
$6,036
Net assets
$634,127
Revenue
$647,970
Expenses
$512,614
Net income
$135,356
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.40$0.06$6.34$6.48$5.13$1.35
2023Summary only. Only limited summary data is available for this year.$5.02$0.03$4.99$5.72$5.40$0.32
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.69$0.02$4.67$5.85$5.55$0.31
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.37$0.01$4.36$4.14$2.77$1.38
2020Summary only. Only limited summary data is available for this year.$2.87$0.10$2.77$2.58$2.34$0.24
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.52$0.01$2.51$3.44$2.93$0.51
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.14$0.10$2.04$1.69$2.31$0.62
2017Summary only. Only limited summary data is available for this year.$3.11$0.05$3.05$1.85$1.17$0.69
2016Summary only. Only limited summary data is available for this year.$3.00$0.02$2.98$2.61$3.12$0.51
2015Summary only. Only limited summary data is available for this year.$3.51$0.01$1.69$0.84$0.85
2014Summary only. Only limited summary data is available for this year.$2.66$0.01$1.58$1.46$0.12
2013Summary only. Only limited summary data is available for this year.$2.53$0.01$0.73$0.80$0.07
2012Summary only. Only limited summary data is available for this year.$2.60$0.00$0.70$0.31$0.39
2011Summary only. Only limited summary data is available for this year.$2.20$0.01$1.32$0.72$0.60
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 7, 2025
Return Version
2024v5.0
Gross Receipts
$647,970
Mission and Program Overview

Mission

Mobilize resources, facilitate connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people living with alagille syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$350,066$418,456▲ $68,390
Investments in Publicly Traded Securities$69,421$203,328▲ $133,907
Prepaid Expenses and Deferred Charges-$15,876-
Cash and Non-Interest-Bearing Accounts$82,064$2,503▼ $79,561
Total Assets$501,551$640,163▲ $138,612
Liabilities
Accounts Payable and Accrued Expenses$2,780$4,588▲ $1,808
Deferred Revenue-$1,448-
Total Liabilities$2,780$6,036▲ $3,256
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$470,334$605,690▲ $135,356
Net Assets With Donor Restrictions$28,437$28,437→ $0
Total Net Assets Fund Balance$498,771$634,127▲ $135,356
Total Liabilities and Net Assets / Fund Balance$501,551$640,163▲ $138,612
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Roberta SmithPresidentFT$130,744$130,744

Board Members and Trustees

NameTitle
Julia BirdChairman
Mike LarosaDirector
Sean KellyDirector
Shamy RavishankarDirector
Todd AllenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$604,567
Program Service Revenue
$0
Investment Income
$43,403
Other Revenue
$0
All Other Contributions
$604,567
Change in Net Assets
$135,356
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$303,202
Other Expenses$157,409
Total Fundraising Expense$56,668
Grants and Similar Amounts Paid$52,003
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$198,169$56,644$30,020$284,833
Grants to Domestic Individuals$52,003--$52,003
All Other Expenses$16,772$12,554$4,148$33,474
Payroll Taxes$11,475$4,598$2,296$18,369
Fees for Services Accounting-$14,000-$14,000
Other Expenses$120$7,396$4,188$11,704
Advertising$9,509$666$355$10,530
Office Expenses-$3,293-$3,293
Insurance-$2,408-$2,408
Total Functional Expenses$354,387$101,559$56,668$512,614
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“990 is reviewed by the president of the organization prior to submission to the irs.”

Form 990, Page 6, Part VI, Line 12C

“Regular conflict discussions in board meetings.”

Form 990, Page 6, Part VI, Line 15A

“Determined through legal consultation with organization's legal office and then by board approval by vote.”

Form 990, Page 6, Part VI, Line 17

“Kentucky, louisiana, maine, maryland, massachusetts, michigan, minnesota, mississippi, missouri, nevada, new hampshire, new jersey, new mexico, new york, north carolina, north dakota, ohio, oklahoma, oregon, pennsylvania, rhode island, south carolina, tennessee, texas, utah, virginia, washington, west virginia, wisconsin”

Form 990, Page 6, Part VI, Line 19

“UPON REQUEST.”

Filing and Contact Details

Filer

Filer Name
Alagille Syndrome Alliance
EIN
93-1243619
Phone
9012868869
Address
PO BOX 22, COLLIERVILLE, TN 38027
Doing Business As
Algsa

Signing Officer

Name
Roberta Smith
Title
President
Phone
9897505489
Signed
2025-05-07
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Roberta Smith
Formed
1997
Legal Domicile
Tn
Voting Board Members
6
Independent Board Members
6
Employees
3
Volunteers
15

Preparer

Firm
Stephenson & Company Pc
Address
PO BOX 592, EAST TAWAS, MI 48730-0592
Preparer
Robert J Morand CPA
Phone
9893624491
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4D

“VARIOUS OTHER PROGRAMS”

Raw XML Appendix397 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt02780
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt04588
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0MOBILIZE RESOURCES, FACILITATE CONNECTIONS, PROMOTING UNITY, AND ADVOCATING FOR A CURE TO INSPIRE, EMPOWER, AND ENRICH THE LIVES OF PEOPLE LIVING WITH ALAGILLE SYNDROME.
IRS990/AdvertisingGrp/FundraisingAmt0355
IRS990/AdvertisingGrp/ManagementAndGeneralAmt0666
IRS990/AdvertisingGrp/ProgramServicesAmt09509
IRS990/AdvertisingGrp/TotalAmt010530
IRS990/AllOtherContributionsAmt0604567
IRS990/AllOtherExpensesGrp/FundraisingAmt04148
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt012554
IRS990/AllOtherExpensesGrp/ProgramServicesAmt016772
IRS990/AllOtherExpensesGrp/TotalAmt033474
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BooksInCareOfDetail/PersonNm0ROBERTA SMITH
IRS990/BooksInCareOfDetail/PhoneNum09897505489
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0613 E LINCOLN ST
IRS990/BooksInCareOfDetail/USAddress/CityNm0EAST TAWAS
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MI
IRS990/BooksInCareOfDetail/USAddress/ZIPCd048730
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt082064
IRS990/CashNonInterestBearingGrp/EOYAmt02503
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0false
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0604567
IRS990/CYGrantsAndSimilarPaidAmt052003
IRS990/CYInvestmentIncomeAmt043403
IRS990/CYOtherExpensesAmt0157409
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0135356
IRS990/CYSalariesCompEmpBnftPaidAmt0303202
IRS990/CYTotalExpensesAmt0512614
IRS990/CYTotalFundraisingExpenseAmt056668
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0647970
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DeferredRevenueGrp/EOYAmt01448
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0ALGSA AND SCIENCE
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DoingBusinessAsName/BusinessNameLine1Txt0ALGSA
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt028437
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt028437
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt03
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt083500
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt014000
IRS990/FeesForServicesAccountingGrp/TotalAmt014000
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt22.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt32.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt410.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/PersonNm0ROBERTA SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm1SEAN KELLY
IRS990/Form990PartVIISectionAGrp/PersonNm2MIKE LAROSA
IRS990/Form990PartVIISectionAGrp/PersonNm3SHAMY RAVISHANKAR
IRS990/Form990PartVIISectionAGrp/PersonNm4TODD ALLEN
IRS990/Form990PartVIISectionAGrp/PersonNm5JULIA BIRD
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0130744
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt5CHAIRMAN
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr01997
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt06
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt052003
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt052003
IRS990/GrantsToIndividualsInd0true
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0647970
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt06
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InsuranceGrp/ManagementAndGeneralAmt02408
IRS990/InsuranceGrp/TotalAmt02408
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt043403
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt043403
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsPubTradedSecGrp/BOYAmt069421
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0203328
IRS990/IRPDocumentCnt01
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0TN
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingOtherInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0MOBILIZE RESOURCES, FACILITATE CONNECTIONS, PROMOTING UNITY, AND ADVOCATING FOR A CURE TO INSPIRE, EMPOWER, AND ENRICH THE LIVES OF PEOPLE LIVING WITH ALAGILLE SYNDROME.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0498771
IRS990/NetAssetsOrFundBalancesEOYAmt0634127
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0470334
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0605690
IRS990/NondeductibleContributionsInd0false
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt03293
IRS990/OfficeExpensesGrp/TotalAmt03293
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherExpensesGrp/Desc0OTHER EVENT EXPENSES
IRS990/OtherExpensesGrp/Desc1OTHER PROGRAM EXPENSES
IRS990/OtherExpensesGrp/Desc2TAXES, LICENSES & REG
IRS990/OtherExpensesGrp/Desc3SOFTWARE
IRS990/OtherExpensesGrp/FundraisingAmt0850
IRS990/OtherExpensesGrp/FundraisingAmt114811
IRS990/OtherExpensesGrp/FundraisingAmt24188
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt07396
IRS990/OtherExpensesGrp/ProgramServicesAmt037779
IRS990/OtherExpensesGrp/ProgramServicesAmt128560
IRS990/OtherExpensesGrp/ProgramServicesAmt2120
IRS990/OtherExpensesGrp/TotalAmt038629
IRS990/OtherExpensesGrp/TotalAmt128560
IRS990/OtherExpensesGrp/TotalAmt214811
IRS990/OtherExpensesGrp/TotalAmt311704
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt030020
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt056644
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0198169
IRS990/OtherSalariesAndWagesGrp/TotalAmt0284833
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt02296
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04598
IRS990/PayrollTaxesGrp/ProgramServicesAmt011475
IRS990/PayrollTaxesGrp/TotalAmt018369
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt015876
IRS990/PrincipalOfficerNm0ROBERTA SMITH
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0ALGSA ASSISTANCE
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt052829
IRS990/ProgSrvcAccomActy3Grp/Desc0ALGSA ASSURANCE
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt030491
IRS990/ProgSrvcAccomActyOtherGrp/Desc0VARIOUS OTHER PROGRAMS
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt0187567
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0554643
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0134757
IRS990/PYInvestmentIncomeAmt016252
IRS990/PYOtherExpensesAmt0174046
IRS990/PYProgramServiceRevenueAmt0750
IRS990/PYRevenuesLessExpensesAmt031975
IRS990/PYSalariesCompEmpBnftPaidAmt0230867
IRS990/PYTotalExpensesAmt0539670
IRS990/PYTotalRevenueAmt0571645
IRS990/ReconcilationRevenueExpnssAmt0135356
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0350066
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0418456
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0604567
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0554643
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0569751
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0398036
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0258130
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02385127
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt043403
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt016252
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt010522
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt01989
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt072166
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt081711
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.97060
IRS990ScheduleA/PublicSupportPY170Pct00.98300
IRS990ScheduleA/PublicSupportTotal170Amt02385127
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0604567
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0554643
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0569751
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0398036
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0258130
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02385127
IRS990ScheduleA/TotalSupportAmt02457293
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt052003
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0FAMILY ASSISTANCE
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt063
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0VARIOUS OTHER PROGRAMS
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1990 IS REVIEWED BY THE PRESIDENT OF THE ORGANIZATION PRIOR TO SUBMISSION TO THE IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2REGULAR CONFLICT DISCUSSIONS IN BOARD MEETINGS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3DETERMINED THROUGH LEGAL CONSULTATION WITH ORGANIZATION'S LEGAL OFFICE AND THEN BY BOARD APPROVAL BY VOTE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4KENTUCKY, LOUISIANA, MAINE, MARYLAND, MASSACHUSETTS, MICHIGAN, MINNESOTA, MISSISSIPPI, MISSOURI, NEVADA, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEW YORK, NORTH CAROLINA, NORTH DAKOTA, OHIO, OKLAHOMA, OREGON, PENNSYLVANIA, RHODE ISLAND, SOUTH CAROLINA, TENNESSEE, TEXAS, UTAH, VIRGINIA, WASHINGTON, WEST VIRGINIA, WISCONSIN
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 2, PART III, LINE 4D
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 17
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PAGE 6, PART VI, LINE 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0AL
IRS990/StatesWhereCopyOfReturnIsFldCd1AK
IRS990/StatesWhereCopyOfReturnIsFldCd2AR
IRS990/StatesWhereCopyOfReturnIsFldCd3AZ
IRS990/StatesWhereCopyOfReturnIsFldCd4CA
IRS990/StatesWhereCopyOfReturnIsFldCd5CO
IRS990/StatesWhereCopyOfReturnIsFldCd6CT
IRS990/StatesWhereCopyOfReturnIsFldCd7DC
IRS990/StatesWhereCopyOfReturnIsFldCd8FL
IRS990/StatesWhereCopyOfReturnIsFldCd9GA
IRS990/StatesWhereCopyOfReturnIsFldCd10HI
IRS990/StatesWhereCopyOfReturnIsFldCd11IL
IRS990/StatesWhereCopyOfReturnIsFldCd12KS
IRS990/StatesWhereCopyOfReturnIsFldCd13KY
IRS990/StatesWhereCopyOfReturnIsFldCd14LA
IRS990/StatesWhereCopyOfReturnIsFldCd15ME
IRS990/StatesWhereCopyOfReturnIsFldCd16MD
IRS990/StatesWhereCopyOfReturnIsFldCd17MA
IRS990/StatesWhereCopyOfReturnIsFldCd18MI
IRS990/StatesWhereCopyOfReturnIsFldCd19MN
IRS990/StatesWhereCopyOfReturnIsFldCd20MS
IRS990/StatesWhereCopyOfReturnIsFldCd21MO
IRS990/StatesWhereCopyOfReturnIsFldCd22NV
IRS990/StatesWhereCopyOfReturnIsFldCd23NH
IRS990/StatesWhereCopyOfReturnIsFldCd24NJ
IRS990/StatesWhereCopyOfReturnIsFldCd25NM
IRS990/StatesWhereCopyOfReturnIsFldCd26NY
IRS990/StatesWhereCopyOfReturnIsFldCd27NC
IRS990/StatesWhereCopyOfReturnIsFldCd28ND
IRS990/StatesWhereCopyOfReturnIsFldCd29OH
IRS990/StatesWhereCopyOfReturnIsFldCd30OK
IRS990/StatesWhereCopyOfReturnIsFldCd31OR
IRS990/StatesWhereCopyOfReturnIsFldCd32PA
IRS990/StatesWhereCopyOfReturnIsFldCd33RI
IRS990/StatesWhereCopyOfReturnIsFldCd34SC
IRS990/StatesWhereCopyOfReturnIsFldCd35TN
IRS990/StatesWhereCopyOfReturnIsFldCd36TX
IRS990/StatesWhereCopyOfReturnIsFldCd37UT
IRS990/StatesWhereCopyOfReturnIsFldCd38VA
IRS990/StatesWhereCopyOfReturnIsFldCd39WA
IRS990/StatesWhereCopyOfReturnIsFldCd40WV
IRS990/StatesWhereCopyOfReturnIsFldCd41WI
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0501551
IRS990/TotalAssetsEOYAmt0640163
IRS990/TotalAssetsGrp/BOYAmt0501551
IRS990/TotalAssetsGrp/EOYAmt0640163
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0604567
IRS990/TotalEmployeeCnt03
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt056668
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt0101559
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0354387
IRS990/TotalFunctionalExpensesGrp/TotalAmt0512614
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt02780
IRS990/TotalLiabilitiesEOYAmt06036
IRS990/TotalLiabilitiesGrp/BOYAmt02780
IRS990/TotalLiabilitiesGrp/EOYAmt06036
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0498771
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0634127
IRS990/TotalOtherProgSrvcExpenseAmt0187567
IRS990/TotalProgramServiceExpensesAmt0354387
IRS990/TotalReportableCompFromOrgAmt0130744
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt043403
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0647970
IRS990/TotalVolunteersCnt015
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0501551
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0640163
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0613 E LINCOLN STREET
IRS990/USAddress/CityNm0EAST TAWAS
IRS990/USAddress/StateAbbreviationCd0MI
IRS990/USAddress/ZIPCd048730
IRS990/VotingMembersGoverningBodyCnt06
IRS990/VotingMembersIndependentCnt06
IRS990/WebsiteAddressTxt0ALAGILLE.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0ROBERTA SMITH
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum09897505489
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-05-07
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0ALAGILLE SYNDROME ALLIANCE
ReturnHeader/Filer/BusinessNameControlTxt0ALAG
ReturnHeader/Filer/EIN0931243619
ReturnHeader/Filer/PhoneNum09012868869
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO BOX 22
ReturnHeader/Filer/USAddress/CityNm0COLLIERVILLE
ReturnHeader/Filer/USAddress/StateAbbreviationCd0TN
ReturnHeader/Filer/USAddress/ZIPCd038027
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0383372824
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0STEPHENSON & COMPANY PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0PO BOX 592
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0EAST TAWAS
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MI
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0487300592
ReturnHeader/PreparerPersonGrp/PhoneNum09893624491
ReturnHeader/PreparerPersonGrp/PreparationDt02025-05-07
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0ROBERT J MORAND CPA
ReturnHeader/ReturnTs02025-05-14T11:10:09-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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