Civic Intelligence

Fanconi Cancer Foundation

EIN 93-0995453 • 501(c)3 • Eugene, OR

Profile

To find effective treatments and a cure for fanconi anemia and to provide education and support services to families worldwide.

360 East 10th Ave Suite 201Eugene, OR 97401

fanconi.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

51st percentile

0.13x

Higher debt load relative to assets than 51% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

55th percentile

0.19x

Higher debt load relative to revenue than 55% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

10th percentile

-28%

Higher net margin than 10% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

85th percentile

$277,287

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 6.5% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Asset Growth

9th percentile

-15%

Faster asset growth than 9% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

71st percentile

22%

Faster revenue growth than 71% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets51st percentile

Assets

Down

$6,443,578

Down $1,112,180 (-15%) from 2023

Liabilities

Down

$822,113

Down $68,342 (-7.7%) from 2023

Net Assets

Down

$5,621,465

Down $1,043,838 (-16%) from 2023

Operations
Liabilities / Revenue55th percentileNet Margin10th percentile

Revenue

Up

$4,270,829

Up $777,191 (+22%) from 2023

Expenses

Up

$5,488,004

Up $1,300,034 (+31%) from 2023

Net Income

Down

-$1,217,175

Down $522,843 (-75%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth9th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$10M$5.0M$0Assets 2010: $5,044,440Liabilities 2010: $444,895Net Assets 2010: $4,599,5452010Assets 2011: $6,468,934Liabilities 2011: $334,739Net Assets 2011: $6,134,1952011Assets 2012: $5,802,617Liabilities 2012: $1,026,901Net Assets 2012: $4,775,7162012Assets 2013: $5,325,551Liabilities 2013: $960,302Net Assets 2013: $4,365,2492013Assets 2014: $4,946,640Liabilities 2014: $808,957Net Assets 2014: $4,137,6832014Assets 2015: $6,111,920Liabilities 2015: $973,275Net Assets 2015: $5,138,6452015Assets 2016: $7,077,435Liabilities 2016: $1,903,126Net Assets 2016: $5,174,3092016Assets 2017: $7,712,637Liabilities 2017: $1,132,939Net Assets 2017: $6,579,6982017Assets 2018: $6,843,919Liabilities 2018: $1,391,661Net Assets 2018: $5,452,2582018Assets 2019: $7,856,802Liabilities 2019: $2,006,127Net Assets 2019: $5,850,6752019Assets 2020: $8,601,390Liabilities 2020: $655,795Net Assets 2020: $7,945,5952020Assets 2021: $9,115,039Liabilities 2021: $210,291Net Assets 2021: $8,904,7482021Assets 2022: $7,540,304Liabilities 2022: $629,031Net Assets 2022: $6,911,2732022Assets 2023: $7,555,758Liabilities 2023: $890,455Net Assets 2023: $6,665,3032023Assets 2024: $6,443,578Liabilities 2024: $822,113Net Assets 2024: $5,621,4652024

Highlighted filing

2024

Assets$6,443,578
Liabilities$822,113
Net Assets$5,621,465
Open 2024 Filing

Operations Trend

Revenue Growth71st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $1,366,0492010Expenses 2011: $1,461,6202011Expenses 2012: $3,009,8532012Revenue 2013: $1,923,877Expenses 2013: $2,334,344Net Income 2013: -$410,4672013Revenue 2014: $1,769,808Expenses 2014: $1,972,294Net Income 2014: -$202,4862014Revenue 2015: $3,408,713Expenses 2015: $2,349,715Net Income 2015: $1,058,9982015Revenue 2016: $3,202,614Expenses 2016: $3,278,768Net Income 2016: -$76,1542016Revenue 2017: $3,465,927Expenses 2017: $2,512,535Net Income 2017: $953,3922017Revenue 2018: $2,784,743Expenses 2018: $3,659,543Net Income 2018: -$874,8002018Revenue 2019: $3,450,068Expenses 2019: $3,723,835Net Income 2019: -$273,7672019Revenue 2020: $4,056,234Expenses 2020: $1,986,709Net Income 2020: $2,069,5252020Revenue 2021: $3,598,784Expenses 2021: $3,029,333Net Income 2021: $569,4512021Revenue 2022: $3,171,988Expenses 2022: $3,923,102Net Income 2022: -$751,1142022Revenue 2023: $3,493,638Expenses 2023: $4,187,970Net Income 2023: -$694,3322023Revenue 2024: $4,270,829Expenses 2024: $5,488,004Net Income 2024: -$1,217,1752024

Highlighted filing

2024

Revenue$4,270,829
Expenses$5,488,004
Net Income-$1,217,175
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$6,443,578
Liabilities
$822,113
Net assets
$5,621,465
Revenue
$4,270,829
Expenses
$5,488,004
Net income
-$1,217,175
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$6.44$0.82$5.62$4.27$5.49$1.22
2023Detailed filing. Detailed filing data is available for this year.$7.56$0.89$6.67$3.49$4.19$0.69
2022Detailed filing. Detailed filing data is available for this year.$7.54$0.63$6.91$3.17$3.92$0.75
2021Detailed filing. Detailed filing data is available for this year.$9.12$0.21$8.90$3.60$3.03$0.57
2020Detailed filing. Detailed filing data is available for this year.$8.60$0.66$7.95$4.06$1.99$2.07
2019Detailed filing. Detailed filing data is available for this year.$7.86$2.01$5.85$3.45$3.72$0.27
2018Detailed filing. Detailed filing data is available for this year.$6.84$1.39$5.45$2.78$3.66$0.87
2017Detailed filing. Detailed filing data is available for this year.$7.71$1.13$6.58$3.47$2.51$0.95
2016Detailed filing. Detailed filing data is available for this year.$7.08$1.90$5.17$3.20$3.28$0.08
2015Detailed filing. Detailed filing data is available for this year.$6.11$0.97$5.14$3.41$2.35$1.06
2014Detailed filing. Detailed filing data is available for this year.$4.95$0.81$4.14$1.77$1.97$0.20
2013Detailed filing. Detailed filing data is available for this year.$5.33$0.96$4.37$1.92$2.33$0.41
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.80$1.03$4.78$3.01
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.47$0.33$6.13$1.46
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.04$0.44$4.60$1.37
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 15, 2025
Return Version
2024v5.0
Gross Receipts
$6,133,069
Mission and Program Overview

Mission

To find effective treatments and a cure for fanconi anemia and to provide education and support services to affected families worldwide

Our mission is to improve the lives of people affected by fanconi anemia and associated cancers worldwide by funding exceptional research and empowering our community.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$5,309,235$3,963,127▼ $1,346,108
Cash and Non-Interest-Bearing Accounts$1,681,246$1,896,840▲ $215,594
Prepaid Expenses and Deferred Charges$54,933$121,347▲ $66,414
Land, Buildings, and Equipment, Net$0--
Total Assets$7,555,758$6,443,578▼ $1,112,180
Other Assets Total$510,344$462,264▼ $48,080
Liabilities
Other Liabilities$388,177$331,594▼ $56,583
Accounts Payable and Accrued Expenses$149,010$263,696▲ $114,686
Grants Payable$353,268$226,823▼ $126,445
Total Liabilities$890,455$822,113▼ $68,342
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$6,665,303$5,621,465▼ $1,043,838
Net Assets With Donor Restrictions$0$0→ $0
Total Net Assets Fund Balance$6,665,303$5,621,465▼ $1,043,838
Total Liabilities and Net Assets / Fund Balance$7,555,758$6,443,578▼ $1,112,180

Asset Categories

AssetBook ValueDepreciationBasis
Other Assets Org$149,690--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$142,713$0▲ $12,765$0$149,690
2023$128,196$0▲ $21,103$0$142,713
2022$165,877$0▼ $31,193$0$128,196
2021$150,681$0▲ $21,457$0$165,877
2020$133,887$700▲ $21,533$0$150,681
Compensation and Service Providers
Top Officer Pay85th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Mark QuinlanExecutive DirectorFT$199,779$77,508$277,287
Isis SrokaChief Scientific OfficerFT$136,013$12,620$148,633
Lauren KennedyHighest Compensated EmployeeFT$115,479$8,188$123,667
Sherri Van RavenhorstHighest Compensated EmployeeFT$103,233$5,475$108,708

Board Members and Trustees

NameTitle
Lisa MingoPresident
Win GouldinVice President
Adam BeckerBoard Member
Carmem BonfimBoard Member
Henekke TakkenbergBoard Member
Jasmine BennetsenBoard Member
John WagnerBoard Member
Lynn FrohnmayerBoard Member
Tracy StrimlingBoard Member
William BloxomBoard Member
Zariel ToolanBoard Member
John ConnellySecretary
Pedro RaveloTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$3,928,443
Program Service Revenue
$43,514
Investment Income
$298,642
Other Revenue
$230
All Other Contributions
$3,928,443
Change in Net Assets
$-1,217,175

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,246,423
Revenue Not Reported on Financial Statements
$24,406
Revenue Not Reported on Form 990
$201,224
Other Revenue Adjustments
$0
Total Revenue per Audited Statements
$4,447,647
Total Revenue per Form 990
$4,270,829
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,783,861
Salaries, Compensation, and Employee Benefits$1,371,638
Other Expenses$1,332,505
Total Fundraising Expense$412,362
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,991,399--$1,991,399
Other Salaries and Wages$446,367$191,406$150,055$787,828
Foreign Grants$782,312--$782,312
Current Officers, Directors, Trustees, and Key Employees$197,371$83,242$67,799$348,412
Fees for Services Other$28,892$149,358$36,709$214,959
Travel$125,116$3,059$7,012$135,187
Other Employee Benefits$64,320$14,999$34,718$114,037
Payroll Taxes$56,289$24,527$16,496$97,312
Information Technology$23,688$44,977$7,484$76,149
Office Expenses$16,091$44,585$12,435$73,111
Occupancy-$72,584-$72,584
Fees for Services Accounting-$63,571-$63,571
Conferences and Meetings$37,079-$6,929$44,008
Pension Plan Contributions$12,997$3,830$7,222$24,049
Insurance-$10,327-$10,327
Grants to Domestic Individuals$10,150--$10,150
Fees for Services Legal-$3,023-$3,023
Other Expenses$0$0$1,448$1,448
Total Functional Expenses$4,214,548$861,094$412,362$5,488,004

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$5,491,488
Expenses per Audited Statements$5,488,004
Total Expenses per Form 990$5,488,004
Expenses Not Reported on Form 990$3,484
Expenses Not Reported on Financial Statements$0
Other Expense Adjustments$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Stand Up to CancerLos Angeles, CA501c3-$375,000
National Cancer InstituteBethesda, MD501c3-$369,154
Stanford UniversityPalo Alto, CA501c3-$229,461
American Association for Cancer Research (aacr)Philadelphia, PA501c3-$164,000
Regents of the University of MinnesotaMinneapolis, MN501c3-$120,000
The Trustees of Columbia University in the City of New YorkNew York, NY501c3-$117,501
University of ChicagoChicago, IL501c3-$105,320
Fred Hutchinson Cancer Research CenterSeattle, WA501c3-$105,000
The Broad Institute IncCambridge, MA501c3-$105,000
The Rockefeller UniversityNew York, NY501c3-$64,492
Georgetown University (kupfer)Washington, DC501c3-$62,500
University of WashingtonSeattle, WA501c3-$62,500
Yale University (burtness)New Haven, CT501c3-$62,500
The Regents of the University of CaliforniaSan Francisco, CA501c3-$50,000
Oregon State UniversityPortland, OR501c3-$49,248

International Summary

Offices
0
Employees
0
Spending
$782,313

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland and Greenland)Program ServicesResearch and International Support Grants00$491,533
North America (including Canada and Mexico, but not the United States)Program ServicesResearch Grants00$163,934
East Asia and the PacificProgram ServicesResearch and International Support Grants00$126,846
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$331,594
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed at a regular meeting of the board of directors.”

Form 990, Part VI, Section B, Line 12C

“The executive director reviews the policy annually at the annual leadership meeting.”

Form 990, Part VI, Section B, Line 15

“Excutive director compensation is set by the board president after reviewing self-conducted market research. Employee compensation is evaluated by collecting comparable data from non-profit, state, and county sources, as well as a wage analysis review by independent persons which is then used to formulate wages by the executive director.”

Form 990, Part VI, Section C, Line 19

“When governing documents or the conflict of interest policy are requested a copy is mailed to the requesting party. The annual form 990 and audit report are on the organizations website and copies are also issued when requested. Form 990s can be accessed also via websites: guidestar.org and irs.gov.”

Filing and Contact Details

Filer

Filer Name
Fanconi Cancer Foundation
EIN
93-0995453
Phone
5416874658
Address
360 EAST 10TH AVE SUITE 201, EUGENE, OR 97401

Signing Officer

Name
Isis Sroka
Title
CEO
Phone
5416874658
Signed
2025-11-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mark Quinlan
Formed
1989
Legal Domicile
Or
Voting Board Members
13
Independent Board Members
13
Employees
14
Volunteers
125

Preparer

Firm
Easy Office Dba Jitasa
Address
1120 S RACKHAM WAY SUITE 300, MERIDIAN, ID 83642
Preparer
Jeremy Cork
Phone
2082874777
Supplemental Narrative

Financial Statement Notes

Schedule D, Part V, Line 4

“The endowment fund was set up to fund the amy winn and christopher byrd award that is presented annually to someone who is striving to to make a difference and has set high goals for him/herself. In addition to funding the award, the endowment is scheduled to fund the travel cost of the award winner to the annual meeting for adults with fanconi anemia. All funds within the endowment fund were invested in the social impact pool with the oregon community foundation (ocf). Investments within this fund are subjected to an environmental, social and governance screening. Distributions out of the endowment fund are subject to ocf discretion. Distributions are based on the grant percentage payout policy for permanent funds which is periodically updated by the board of directors of ocf.”

Schedule D, Part X, Line 2

“The organization is organized as an oregon nonprofit corporation and has been recognized by the irs as exempt from federal income taxes under irc section 501(a) as an organization described in irc section 501(c)(3), qualifies for the charitable contribution deduction under irc sections 170(b)(1)(a)(vi) and (viii), and has been determined not to be a private foundation under irc sections 509(a)(1) and (3), respectively. The organization is annually required to file a return of organization exempt from income tax (form 990) with the irs and reports in other states where the organization has activities. In addition, the organization is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. We have determined that the organization is not subject to unrelated business income tax and have not filed an exempt organization business income tax return (form 990-t) with the irs.”

Schedule D, Part XI, Line 2D

“INVESTMENT FEES”

Schedule D, Part XII, Line 2D

“Prior period adjustment and rounding differences”

Raw XML AppendixShowing 400 of 876 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0OUR MISSION IS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY FANCONI ANEMIA AND ASSOCIATED CANCERS WORLDWIDE BY FUNDING EXCEPTIONAL RESEARCH AND EMPOWERING OUR COMMUNITY.
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt28188
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt35475
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/PersonNm0MARK QUINLAN
IRS990/Form990PartVIISectionAGrp/PersonNm1ISIS SROKA
IRS990/Form990PartVIISectionAGrp/PersonNm2LAUREN KENNEDY
IRS990/Form990PartVIISectionAGrp/PersonNm3SHERRI VAN RAVENHORST
IRS990/Form990PartVIISectionAGrp/PersonNm4LISA MINGO
IRS990/Form990PartVIISectionAGrp/PersonNm5JOHN CONNELLY
IRS990/Form990PartVIISectionAGrp/PersonNm6WIN GOULDIN
IRS990/Form990PartVIISectionAGrp/PersonNm7PEDRO RAVELO
IRS990/Form990PartVIISectionAGrp/PersonNm8LYNN FROHNMAYER
IRS990/Form990PartVIISectionAGrp/PersonNm9ADAM BECKER
IRS990/Form990PartVIISectionAGrp/PersonNm10WILLIAM BLOXOM
IRS990/Form990PartVIISectionAGrp/PersonNm11JOHN WAGNER
IRS990/Form990PartVIISectionAGrp/PersonNm12TRACY STRIMLING
IRS990/Form990PartVIISectionAGrp/PersonNm13JASMINE BENNETSEN
IRS990/Form990PartVIISectionAGrp/PersonNm14HENEKKE TAKKENBERG
IRS990/Form990PartVIISectionAGrp/PersonNm15CARMEM BONFIM
IRS990/Form990PartVIISectionAGrp/PersonNm16ZARIEL TOOLAN
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/TitleTxt0EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHIEF SCIENTIFIC OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt2HIGHEST COMPENSATED EMPLOYEE
IRS990/Form990PartVIISectionAGrp/TitleTxt3HIGHEST COMPENSATED EMPLOYEE
IRS990/Form990PartVIISectionAGrp/TitleTxt4PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt5SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt6VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt7TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16BOARD MEMBER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01989
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/FundraisingAmt00
IRS990/GainOrLossGrp/OtherAmt00
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IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt013
IRS990/GovernmentGrantsAmt00
IRS990/GrantAmt02734561
IRS990/GrantsPayableGrp/BOYAmt0353268
IRS990/GrantsPayableGrp/EOYAmt0226823
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IRS990/GrantsToDomesticOrgsGrp/TotalAmt01991399
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/OtherAmt00
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IRS990/IndependentAuditFinclStmtInd01
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IRS990/IndoorTanningServicesInd00
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IRS990/InformationTechnologyGrp/FundraisingAmt07484
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt044977
IRS990/InformationTechnologyGrp/ProgramServicesAmt023688
IRS990/InformationTechnologyGrp/TotalAmt076149
IRS990/InsuranceGrp/ManagementAndGeneralAmt010327
IRS990/InsuranceGrp/TotalAmt010327
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IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
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IRS990/MissionDesc0OUR MISSION IS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY FANCONI ANEMIA AND ASSOCIATED CANCERS WORLDWIDE BY FUNDING EXCEPTIONAL RESEARCH AND EMPOWERING OUR COMMUNITY.
IRS990/MoreThan5000KToIndividualsInd01
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IRS990/NoncashContributionsAmt01448
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt072584
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IRS990/OfficeExpensesGrp/FundraisingAmt012435
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt044585
IRS990/OfficeExpensesGrp/ProgramServicesAmt016091
IRS990/OfficeExpensesGrp/TotalAmt073111
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IRS990/OtherEmployeeBenefitsGrp/TotalAmt0114037
IRS990/OtherExpensesGrp/Desc0VENUE RENTAL
IRS990/OtherExpensesGrp/Desc1FAMILY FUNDRAISING EXPENSES
IRS990/OtherExpensesGrp/Desc2BANK CHARGES AND PROCESSING FEES
IRS990/OtherExpensesGrp/Desc3IN-KIND DONATED GOODS EXPENSE
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IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt03830
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IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0121347
IRS990/PrincipalOfficerNm0MARK QUINLAN
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IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0PROGRAM SERVICE FEES
IRS990/ProgramServiceRevenueGrp/ExclusionAmt00
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt043514
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IRS990/ProgSrvcAccomActy2Grp/Desc0EVENTS - ANNUAL PLANNING MEETING, ANNUAL FAMILY RETREAT, SCIENTIFIC, SYMPOSIUM, ADULT FA RETREAT, INTERNATIONAL SUMMIT, SUPPORT FOR SPARKS AND FA CONNECT.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0676152
IRS990/ProgSrvcAccomActy2Grp/GrantAmt01000
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt043514
IRS990/ProgSrvcAccomActy3Grp/Desc0COMMUNITY PROGRAMS AND SUPPORT - ONBOARDS NEWLY DIAGNOSED FAMILIES, MANAGES ADULT COUNCIL, MANAGES WINN/BYRD AWARD, MANAGES INTERNATIONAL SUPPORT GRANT PROGRAM, MANAGES BEREAVEMENT SUPPORT, MANAGES CAREGIVER SUPPORT, MANAGES PEER SUPPORT, CONVENES FA CONNECT SESSIONS, MANAGES ADVOCACY AND ENGAGEMENT PROGRAM.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0557360
IRS990/ProgSrvcAccomActy3Grp/GrantAmt048300
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt00
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IRS990/PYRevenuesLessExpensesAmt0-694332
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IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt03493638
IRS990/QuidProQuoContributionsInd00
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