Civic Intelligence

Dion Foundation for Children with Rare Diseases Inc

EIN 92-2280592 • 501(c)3 • Marshfield, MA

Profile

The mission is to increase awareness of rare and ultra-rare diseases that affect children with the intention of raising and allocating funds for research and development of treatments and cures.

188 Quail RunMarshfield, MA 02050-2077

www.thedionfund.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

49th percentile

0.01x

Higher debt load relative to assets than 49% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

40th percentile

0.00x

Higher debt load relative to revenue than 40% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

15th percentile

-21%

Higher net margin than 15% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

55th percentile

$0

Higher top officer pay than 55% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

6th percentile

-48%

Faster asset growth than 6% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

86th percentile

66%

Faster revenue growth than 86% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Assets

Down

$173,506

Down $161,336 (-48%) from 2023

Liabilities

Up

$2,400

Up $2,400 from 2023

Net Assets

Down

$171,106

Down $163,736 (-49%) from 2023

Revenue

Up

$776,008

Up $307,841 (+66%) from 2023

Expenses

Up

$937,344

Up $804,019 (+603%) from 2023

Net Income

Down

-$161,336

Down $496,178 (-148%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$400K$300K$200K$100K$0Assets 2023: $334,842Liabilities 2023: $0Net Assets 2023: $334,8422023Assets 2024: $173,506Liabilities 2024: $2,400Net Assets 2024: $171,1062024

Highlighted filing

2024

Assets$173,506
Liabilities$2,400
Net Assets$171,106

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2023: $468,167Expenses 2023: $133,325Net Income 2023: $334,8422023Revenue 2024: $776,008Expenses 2024: $937,344Net Income 2024: -$161,3362024

Highlighted filing

2024

Revenue$776,008
Expenses$937,344
Net Income-$161,336

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.2
Gross Receipts
$776,008
Mission and Program Overview

Mission

The mission is to increase awareness of rare and ultra-rare diseases that affect children with the intention of raising and allocating funds for research and development of treatments and cures.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$334,842$171,106▼ $163,736
Cash and Non-Interest-Bearing Accounts$334,842$168,901▼ $165,941
Land, Buildings, and Equipment, Net-$4,605-
Total Assets$334,842$173,506▼ $161,336
Liabilities
Accounts Payable and Accrued Expenses-$2,400-
Total Liabilities$0$2,400▲ $2,400
Net Assets / Fund Balance
Total Net Assets Fund Balance$334,842$171,106▼ $163,736
Total Liabilities and Net Assets / Fund Balance$334,842$173,506▼ $161,336

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$4,605$708-
Compensation and Service Providers

Board Members and Trustees

NameTitle
ChrisBurgoyne
Courtney PDion
Joseph NDion
SarahOBrien
JuliaRyan
MargaretRyan
SamanthaRyan
LeahSanto
Revenue and Support

Revenue Composition

Contributions and Grants
$776,008
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$604,710
Change in Net Assets
$-161,336
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$853,150
Other Expenses$84,194
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$853,150--$853,150
Fees for Services Legal$0$26,147$0$26,147
Travel$7,882$0$0$7,882
Advertising$0$2,657$0$2,657
All Other Expenses$1,570$0$0$1,570
Conferences and Meetings$0$1,298$0$1,298
Depreciation Depletion$0$708$0$708
Other Expenses$0$340$0$340
Total Functional Expenses$906,035$31,309$0$937,344
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Atamyo TherapeuticsEvry, Fr-Research$850,150
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
Dion Foundation for Children with Rare Diseases Inc
EIN
92-2280592
Phone
6172242384
Address
188 Quail Run, Marshfield, MA 02050-2077

Signing Officer

Name
Courtney P Dion
Title
President
Phone
6172242384
Signed
2025-11-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Courtney P Dion
Formed
2023
Legal Domicile
Ma
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
15

Preparer

Firm
Armen G Derderian CPA MTax MBA CGMA
Address
18 Haymeadow Rd, Methuen, MA 01844
Preparer
Armen G Derderian CPA
Phone
9787949200
Supplemental Narrative

Additional Explanations

Pt VI, Line 7A

The founding members elect the officers and board of directors.

Pt VI, Line 2

The President and Treasuer are husband and wife. Several officers and/or directors are blood related. Efforts are underway to add five additonal diversified board members.

Pt VI, Line 11B

Form 990 is drafted by the Treasurer and reviewed by the board of directors.

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/USAddress/StateAbbreviationCd0MA
IRS990/USAddress/ZIPCd0020502077
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt08
IRS990/WebsiteAddressTxt0www.thedionfund.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Courtney P Dion
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/PhoneNum06172242384
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-11-17
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Dion Foundation for Children with Rare Diseases Inc
ReturnHeader/Filer/BusinessNameControlTxt0DION
ReturnHeader/Filer/EIN0922280592
ReturnHeader/Filer/PhoneNum06172242384
ReturnHeader/Filer/USAddress/AddressLine1Txt0188 Quail Run
ReturnHeader/Filer/USAddress/CityNm0Marshfield
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MA
ReturnHeader/Filer/USAddress/ZIPCd0020502077
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0301185592
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Armen G Derderian CPA MTax MBA CGMA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt018 Haymeadow Rd
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Methuen
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd001844
ReturnHeader/PreparerPersonGrp/PhoneNum09787949200
ReturnHeader/PreparerPersonGrp/PreparationDt02025-11-17
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Armen G Derderian CPA
ReturnHeader/ReturnTs02025-11-17T17:22:06-08:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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