Civic Intelligence

Foundation for Rare Disease Research Inc

EIN 92-0534021 • 501(c)3 • Silver Spring, MD

Profile

Discover, pursue and support the development of clinical diagnostics tools that can lead to cures for rare and orphan diseases by contributing to the advancement in research and development.

12501 Prosperity Dr 340Silver Spring, MD 20904

n/A

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

19th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

20th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

3rd percentile

-129%

Higher net margin than 3% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

40th percentile

$0

Higher top officer pay than 40% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

7th percentile

-29%

Faster asset growth than 7% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

6th percentile

-49%

Faster revenue growth than 6% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets19th percentile

Assets

Down

$2,132,807

Down $864,612 (-29%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Down

$2,132,807

Down $864,612 (-29%) from 2023

Operations
Liabilities / Revenue20th percentileNet Margin3rd percentile

Revenue

Down

$668,532

Down $651,267 (-49%) from 2023

Expenses

Up

$1,533,144

Up $1,530,764 (+64318%) from 2023

Net Income

Down

-$864,612

Down $2,182,031 (-166%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth7th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2022: $1,680,000Liabilities 2022: $0Net Assets 2022: $1,680,0002022Assets 2023: $2,997,419Liabilities 2023: $0Net Assets 2023: $2,997,4192023Assets 2024: $2,132,807Liabilities 2024: $0Net Assets 2024: $2,132,8072024

Highlighted filing

2024

Assets$2,132,807
Liabilities$0
Net Assets$2,132,807
Open 2024 Filing

Operations Trend

Revenue Growth6th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.0M$0-$1.0MRevenue 2022: $1,680,000Expenses 2022: $0Net Income 2022: $1,680,0002022Revenue 2023: $1,319,799Expenses 2023: $2,380Net Income 2023: $1,317,4192023Revenue 2024: $668,532Expenses 2024: $1,533,144Net Income 2024: -$864,6122024

Highlighted filing

2024

Revenue$668,532
Expenses$1,533,144
Net Income-$864,612
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$2,132,807
Liabilities
$0
Net assets
$2,132,807
Revenue
$668,532
Expenses
$1,533,144
Net income
-$864,612
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.13$0.00$2.13$0.67$1.53$0.86
2023Detailed filing. Detailed filing data is available for this year.$3.00$0.00$3.00$1.32$0.00$1.32
2022Detailed filing. Detailed filing data is available for this year.$1.68$0.00$1.68$1.68$0.00$1.68
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 16, 2025
Return Version
2024v5.2
Gross Receipts
$668,532
Mission and Program Overview

Mission

Discover, pursue and support the development of clinical diagnostics tools that can lead to cures for rare and orphan diseases by contributing to the advancement in research and development.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$2,659,521$1,728,096▼ $931,425
Savings and Temporary Cash Investments-$328,135-
Cash and Non-Interest-Bearing Accounts$337,898$76,576▼ $261,322
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$2,997,419$2,132,807▼ $864,612
Other Assets Total-$0-
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,997,419$2,132,807▼ $864,612
Total Net Assets Fund Balance$2,997,419$2,132,807▼ $864,612
Total Liabilities and Net Assets / Fund Balance$2,997,419$2,132,807▼ $864,612
Compensation and Service Providers
Top Officer Pay40th percentile

Board Members and Trustees

NameTitle
Huamin LiPresident
Joseph ChiaoSecretary
Juan YuTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$366,000
Program Service Revenue
$0
Investment Income
$302,532
Other Revenue
$0
All Other Contributions
$316,000
Change in Net Assets
$-864,612
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,533,144
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Expenses$30--$30
Total Functional Expenses$1,533,144$0$0$1,533,144
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Huamin li and juan yu are related.”

Form 990, Part VI, Section B, Line 11B

“A complete copy of Form 990 was provided to all members of the governing body for review prior to filing. Board members were given the opportunity to ask questions and provide comments before the return was submitted.”

Form 990, Part VI, Section B, Line 12C

“The organization monitors compliance with its conflict of interest policy through annual disclosure statements completed by officers and directors. Any potential conflicts are reviewed by the board, and appropriate steps are taken to address them.”

Form 990, Part VI, Section C, Line 19

“The organization governing documents, conflict of interest policy, and financial statements are available to the public upon request. The Form 990 is also made available upon request.”

Filing and Contact Details

Filer

Filer Name
Foundation for Rare Disease Research Inc
EIN
92-0534021
Phone
2407360795
Address
12501 PROSPERITY DR 340, SILVER SPRING, MD 20904

Signing Officer

Name
Juan Yu
Title
Treasurer
Signed
2025-11-16
Discuss with paid preparer
Yes

Organization Details

Formed
2022
Voting Board Members
6
Independent Board Members
6
Employees
0

Preparer

Firm
Elizabeth Ye Zang CPA LLC
Address
18 RITCHFIELD COURT, ROCKVILLE, MD 20850
Preparer
Ye Zang
Phone
2405955196
Supplemental Narrative

Additional Explanations

Form 990 Part IX Program Service Expenses Explanation

“All program service expenses consisted of payments to independent research service providers and laboratories for scientific testing, biomarker measurement, and related research activities in support of the organization exempt purpose. No grants to individuals or organizations were made.”

Raw XML Appendix336 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0HUAMIN LI AND JUAN YU ARE RELATED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1A complete copy of Form 990 was provided to all members of the governing body for review prior to filing. Board members were given the opportunity to ask questions and provide comments before the return was submitted.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The organization monitors compliance with its conflict of interest policy through annual disclosure statements completed by officers and directors. Any potential conflicts are reviewed by the board, and appropriate steps are taken to address them.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The organization governing documents, conflict of interest policy, and financial statements are available to the public upon request. The Form 990 is also made available upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4All program service expenses consisted of payments to independent research service providers and laboratories for scientific testing, biomarker measurement, and related research activities in support of the organization exempt purpose. No grants to individuals or organizations were made.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, Line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section C, Line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990 Part IX Program Service Expenses Explanation
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IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0668532
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt02997419
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt02132807
IRS990/TravelGrp/TotalAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt012501 PROSPERITY DR 340
IRS990/USAddress/CityNm0SILVER SPRING
IRS990/USAddress/StateAbbreviationCd0MD
IRS990/USAddress/ZIPCd020904
IRS990/VotingMembersGoverningBodyCnt06
IRS990/VotingMembersIndependentCnt06
IRS990/WebsiteAddressTxt0ffrdr.org
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0JUAN YU
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Treasurer
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-11-16
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0FOUNDATION FOR RARE DISEASE RESEARCH INC
ReturnHeader/Filer/BusinessNameControlTxt0FOUN
ReturnHeader/Filer/EIN0920534021
ReturnHeader/Filer/PhoneNum02407360795
ReturnHeader/Filer/USAddress/AddressLine1Txt012501 PROSPERITY DR 340
ReturnHeader/Filer/USAddress/CityNm0SILVER SPRING
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MD
ReturnHeader/Filer/USAddress/ZIPCd020904
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0300892938
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0ELIZABETH YE ZANG CPA LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt018 RITCHFIELD COURT
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0ROCKVILLE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd020850
ReturnHeader/PreparerPersonGrp/PhoneNum02405955196
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0YE ZANG
ReturnHeader/ReturnTs02025-11-16T18:02:37-08:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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