Civic Intelligence

Coalition to Cure Calpain 3

EIN 90-0616879 • 501(c)3 • Westport, CT

Profile

Coalition to cure calpain 3 funds and supports research efforts focused on understanding the biology of and finding a cure for limb girdle muscular dystrophy type 2a (lgmd2a)/calpainopathy and raises awareness of the disease among both the scientific community and the general public.

15 Compo ParkwayWestport, CT 06880

www.curecalpain3.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

92nd percentile

0.90x

Higher debt load relative to assets than 92% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

82nd percentile

0.30x

Higher debt load relative to revenue than 82% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

80th percentile

29%

Higher net margin than 80% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

55th percentile

$0

Higher top officer pay than 55% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

17th percentile

-14%

Faster asset growth than 17% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

27th percentile

-9.3%

Faster revenue growth than 27% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Assets

Down

$216,629

Down $35,419 (-14%) from 2023

Liabilities

Down

$194,686

Down $225,661 (-54%) from 2023

Net Assets

Up

$21,943

Up $190,242 (+113%) from 2023

Revenue

Down

$645,979

Down $65,943 (-9.3%) from 2023

Expenses

Down

$455,737

Down $314,722 (-41%) from 2023

Net Income

Up

$190,242

Up $248,779 (+425%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0-$200K-$400KAssets 2011: $65,446Liabilities 2011: $1402011Assets 2012: $54,547Liabilities 2012: $1582012Assets 2013: $79,762Liabilities 2013: $664Net Assets 2013: $79,0982013Assets 2014: $69,227Liabilities 2014: $7982014Assets 2015: $106,298Liabilities 2015: $182Net Assets 2015: $106,1162015Assets 2016: $207,574Liabilities 2016: $341Net Assets 2016: $207,2332016Assets 2017: $193,324Liabilities 2017: $2,130Net Assets 2017: $191,1942017Assets 2018: $75,223Liabilities 2018: $294,482Net Assets 2018: -$219,2592018Assets 2019: $210,054Liabilities 2019: $175,921Net Assets 2019: $34,1332019Assets 2020: $175,549Liabilities 2020: $181,081Net Assets 2020: -$5,5322020Assets 2021: $275,345Liabilities 2021: $170,425Net Assets 2021: $104,9202021Assets 2022: $151,536Liabilities 2022: $261,298Net Assets 2022: -$109,7622022Assets 2023: $252,048Liabilities 2023: $420,347Net Assets 2023: -$168,2992023Assets 2024: $216,629Liabilities 2024: $194,686Net Assets 2024: $21,9432024

Highlighted filing

2024

Assets$216,629
Liabilities$194,686
Net Assets$21,943

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2011: $97,226Expenses 2011: $31,920Net Income 2011: $65,3062011Revenue 2012: $178,906Expenses 2012: $189,823Net Income 2012: -$10,9172012Revenue 2013: $355,291Expenses 2013: $330,582Net Income 2013: $24,7092013Revenue 2014: $69,060Expenses 2014: $79,729Net Income 2014: -$10,6692014Revenue 2015: $64,720Expenses 2015: $27,033Net Income 2015: $37,6872015Revenue 2016: $252,275Expenses 2016: $151,158Net Income 2016: $101,1172016Revenue 2017: $303,435Expenses 2017: $319,474Net Income 2017: -$16,0392017Revenue 2018: $495,751Expenses 2018: $475,477Net Income 2018: $20,2742018Revenue 2019: $599,915Expenses 2019: $345,957Net Income 2019: $253,9582019Revenue 2020: $299,509Expenses 2020: $339,174Net Income 2020: -$39,6652020Revenue 2021: $469,236Expenses 2021: $358,784Net Income 2021: $110,4522021Revenue 2022: $410,173Expenses 2022: $624,980Net Income 2022: -$214,8072022Revenue 2023: $711,922Expenses 2023: $770,459Net Income 2023: -$58,5372023Revenue 2024: $645,979Expenses 2024: $455,737Net Income 2024: $190,2422024

Highlighted filing

2024

Revenue$645,979
Expenses$455,737
Net Income$190,242

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$1.95$0.22$6.46$4.56$1.90
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.52$4.20$1.68$7.12$7.70$0.59
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.52$2.61$1.10$4.10$6.25$2.15
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.75$1.70$1.05$4.69$3.59$1.10
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.76$1.81$0.06$3.00$3.39$0.40
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.10$1.76$0.34$6.00$3.46$2.54
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.75$2.94$2.19$4.96$4.75$0.20
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.93$0.02$1.91$3.03$3.19$0.16
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.08$0.00$2.07$2.52$1.51$1.01
2015Detailed filing. Detailed filing data is available for this year.$1.06$0.00$1.06$0.65$0.27$0.38
2014Summary only. Only limited summary data is available for this year.$0.69$0.01$0.69$0.80$0.11
2013Summary only. Only limited summary data is available for this year.$0.80$0.01$0.79$3.55$3.31$0.25
2012Summary only. Only limited summary data is available for this year.$0.55$0.00$1.79$1.90$0.11
2011Summary only. Only limited summary data is available for this year.$0.65$0.00$0.97$0.32$0.65
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jul 23, 2025
Return Version
2024v5.2
Gross Receipts
$645,979
Mission and Program Overview

Mission

Coalition to cure calpain 3 funds and supports research efforts focused on understanding the biology of and finding a cure for limb girdle muscular dystrophy type 2a (lgmd2a/r1), a form of calpainopathy and raises awareness of the disease among both the scientific community and the general public.

The organization's mission is to fund research to cure or treat lgmd2a/r1 (calpainopathy).

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$209,344$170,713▼ $38,631
Land, Buildings, and Equipment, Net$1,081$901▼ $180
Prepaid Expenses and Deferred Charges$356$356→ $0
Total Assets$252,048$216,629▼ $35,419
Other Assets Total$41,267$44,659▲ $3,392
Liabilities
Grants Payable$417,111$182,315▼ $234,796
Accounts Payable and Accrued Expenses-$8,500-
Other Liabilities$3,236$3,871▲ $635
Total Liabilities$420,347$194,686▼ $225,661
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$-168,299$21,943▲ $190,242
Total Net Assets Fund Balance$-168,299$21,943▲ $190,242
Total Liabilities and Net Assets / Fund Balance$252,048$216,629▼ $35,419

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$901$900$1,801
Other Assets Org$44,659--
Compensation and Service Providers

Board Members and Trustees

NameTitle
Jordan BoslegoPresident
Michele WrubelSenior Vice President
Alberto NobregaDirector
Carol AbrahamDirector
Demosthenes Madureira De PinhoDirector
Lee WrubelTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$645,979
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$645,979
Change in Net Assets
$190,242

Audited Revenue Reconciliation

Revenue per Audited Statements
$645,979
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$645,979
Total Revenue per Form 990
$645,979
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$162,293
Salaries, Compensation, and Employee Benefits$155,762
Grants and Similar Amounts Paid$137,682
Total Fundraising Expense$2,795
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$139,085--$139,085
Grants to Domestic Orgs$137,682--$137,682
Fees for Services Accounting-$25,239-$25,239
All Other Expenses$9,233$1,679$2,795$13,707
Other Expenses$12,000--$12,000
Travel$11,365--$11,365
Payroll Taxes$10,902--$10,902
Fees for Services Legal-$7,556-$7,556
Pension Plan Contributions$5,775--$5,775
Information Technology-$3,589-$3,589
Insurance-$2,215-$2,215
Advertising$661--$661
Office Expenses-$648-$648
Depreciation Depletion-$180-$180
Total Functional Expenses$411,836$41,106$2,795$455,737

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$455,737
Total Expenses per Audited Statements$455,737
Total Expenses per Form 990$455,737
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Florida Elizabeth BartonGainesville, FL-Research$87,682
UCLA Melissa SpencerLos Angeles, CA-Research$50,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Credit Card Payable$3,871
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

The organization distributes the 990 to each board member before submitting

Form 990, Part VI, Section C, line 19

The organization distributes the 990 and audited financials to board members before filing.

Filing and Contact Details

Filer

Filer Name
Coalition to Cure Calpain 3
EIN
90-0616879
Phone
2038299656
Address
15 COMPO PARKWAY, WESTPORT, CT 06880

Signing Officer

Name
Michele Wrubel
Title
Co-founder
Phone
2038299656
Signed
2025-07-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Michele Wrubel
Formed
2011
Legal Domicile
Ct
Voting Board Members
6
Independent Board Members
6
Employees
1
Volunteers
0

Preparer

Firm
James Oliveri CPA PC
Address
1525 KINGS HIGHWAY SUITE 211, FAIRFIELD, CT 06824
Preparer
James Oliveri
Phone
3472482195
Raw XML Appendix384 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm2LEE WRUBEL
IRS990/Form990PartVIISectionAGrp/PersonNm3DEMOSTHENES MADUREIRA DE PINHO
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IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd01
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0645979
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0711922
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0410173
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0469236
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0299509
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02536819
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct01.00000
IRS990ScheduleA/PublicSupportPY170Pct01.00000
IRS990ScheduleA/PublicSupportTotal170Amt02536819
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0645979
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0711922
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0410173
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0469236
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0299509
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02536819
IRS990ScheduleA/TotalSupportAmt02536819
IRS990/ScheduleBRequiredInd00
IRS990ScheduleD/EquipmentGrp/BookValueAmt0901
IRS990ScheduleD/EquipmentGrp/DepreciationAmt0900
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt01801
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0455737
IRS990ScheduleD/OtherAssetsOrgGrp/BookValueAmt044659
IRS990ScheduleD/OtherAssetsOrgGrp/Desc0UNDEPOSITED FUNDS
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt03871
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0CREDIT CARD PAYABLE
IRS990ScheduleD/RevenueNotReportedAmt00
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0645979
IRS990ScheduleD/TotalBookValueLandBuildingsAmt0901
IRS990ScheduleD/TotalBookValueOtherAssetsAmt044659
IRS990ScheduleD/TotalExpensesPerForm990Amt0455737
IRS990ScheduleD/TotalLiabilityAmt03871
IRS990ScheduleD/TotalRevenuePerForm990Amt0645979
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0645979
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0455737
IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990ScheduleI/RecipientTable/CashGrantAmt087682
IRS990ScheduleI/RecipientTable/CashGrantAmt150000
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0University of Florida Elizabeth Barton
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1UCLA Melissa Spencer
IRS990ScheduleI/RecipientTable/RecipientEIN0596002052
IRS990ScheduleI/RecipientTable/RecipientEIN1956006143
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0300 SW 13TH ST
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1405 HILGARD AVE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0GAINESVILLE
IRS990ScheduleI/RecipientTable/USAddress/CityNm1LOS ANGELES
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0FL
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1CA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd032611
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd190095
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION DISTRIBUTES THE 990 TO EACH BOARD MEMBER BEFORE SUBMITTING
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION DISTRIBUTES THE 990 AND AUDITED FINANCIALS TO BOARD MEMBERS BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section B, line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section C, line 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0IL
IRS990/StatesWhereCopyOfReturnIsFldCd1CT
IRS990/StatesWhereCopyOfReturnIsFldCd2MI
IRS990/StatesWhereCopyOfReturnIsFldCd3FL
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0252048
IRS990/TotalAssetsEOYAmt0216629
IRS990/TotalAssetsGrp/BOYAmt0252048
IRS990/TotalAssetsGrp/EOYAmt0216629
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0645979
IRS990/TotalEmployeeCnt01
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt02795
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt041106
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0411836
IRS990/TotalFunctionalExpensesGrp/TotalAmt0455737
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt0420347
IRS990/TotalLiabilitiesEOYAmt0194686
IRS990/TotalLiabilitiesGrp/BOYAmt0420347
IRS990/TotalLiabilitiesGrp/EOYAmt0194686
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0-168299
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt021943
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0411836
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0645979
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt00
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0252048
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0216629
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ProgramServicesAmt011365
IRS990/TravelGrp/TotalAmt011365
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt015 COMPO PARKWAY
IRS990/USAddress/CityNm0WESTPORT
IRS990/USAddress/StateAbbreviationCd0CT
IRS990/USAddress/ZIPCd006880
IRS990/VotingMembersGoverningBodyCnt06
IRS990/VotingMembersIndependentCnt06
IRS990/WebsiteAddressTxt0WWW.CURECALPAIN3.ORG
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0MICHELE WRUBEL
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0CO-FOUNDER
ReturnHeader/BusinessOfficerGrp/PhoneNum02038299656
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-07-23
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0COALITION TO CURE CALPAIN 3
ReturnHeader/Filer/BusinessNameControlTxt0COAL
ReturnHeader/Filer/EIN0900616879
ReturnHeader/Filer/PhoneNum02038299656
ReturnHeader/Filer/USAddress/AddressLine1Txt015 COMPO PARKWAY
ReturnHeader/Filer/USAddress/CityNm0WESTPORT
ReturnHeader/Filer/USAddress/StateAbbreviationCd0CT
ReturnHeader/Filer/USAddress/ZIPCd006880
ReturnHeader/IRSResponsiblePrtyInfoCurrInd00
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0874031192
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0James Oliveri CPA PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt01525 KINGS HIGHWAY SUITE 211
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0FAIRFIELD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CT
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd006824
ReturnHeader/PreparerPersonGrp/PhoneNum03472482195
ReturnHeader/PreparerPersonGrp/PreparationDt02025-07-23
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0JAMES OLIVERI
ReturnHeader/ReturnTs02025-07-23T07:49:06-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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