Civic Intelligence

The Rare Life

EIN 88-4412307 • 501(c)3 • Bountiful, UT

Pub. 78 Eligible990-N Coverage

Profile

The rare life's mission is to provide emotional support for parents of children with medical complexities and disabilities.

598 E 1650 SBountiful, UT 84010

therarelife.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

77th percentile

0.07x

Higher debt load relative to assets than 77% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

77th percentile

0.04x

Higher debt load relative to revenue than 77% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

84th percentile

35%

Higher net margin than 84% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

88th percentile

$23,040

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 33.6% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

92nd percentile

100%

Faster asset growth than 92% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

89th percentile

79%

Faster revenue growth than 89% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Assets

Up

$37,800

Up $18,943 (+100%) from 2023

Liabilities

Down

$2,576

Down $4,512 (-64%) from 2023

Net Assets

Up

$35,224

Up $23,455 (+199%) from 2023

Revenue

Up

$68,571

Up $30,160 (+79%) from 2023

Expenses

Up

$44,417

Up $17,775 (+67%) from 2023

Net Income

Up

$24,154

Up $12,385 (+105%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$40K$30K$20K$10K$0Assets 2023: $18,857Liabilities 2023: $7,088Net Assets 2023: $11,7692023Assets 2024: $37,800Liabilities 2024: $2,576Net Assets 2024: $35,2242024

Highlighted filing

2024

Assets$37,800
Liabilities$2,576
Net Assets$35,224

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$80K$60K$40K$20K$0Revenue 2023: $38,411Expenses 2023: $26,642Net Income 2023: $11,7692023Revenue 2024: $68,571Expenses 2024: $44,417Net Income 2024: $24,1542024

Highlighted filing

2024

Revenue$68,571
Expenses$44,417
Net Income$24,154

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 12, 2025
Return Version
2024v5.0
Gross Receipts
$68,571
Mission and Program Overview

Mission

The rare life's mission is to provide emotional support for parents of children with medical complexities and disabilities.

Program Services

DescriptionGrantsExpenses
PODCASTS THE ORGANIZATION CREATES THE WELL-LOVED PODCAST--THE RARE LIFE. GUESTS INCLUDE OTHER PARENTS IN THE COMMUNITY AND EXPERTS IN THE FIELD OF DISABILITY. THE RARE LIFE PODCAST IS COMPRISED OF TWO THEMED SEASONS PER CALENDAR YEAR, EACH EPISODE RELEASED WEEKLY. THE RARE LIFE EPISODES WERE LISTENED TO 95,154 TIMES OVER THE YEAR OF 2024, WITH 50 EPISODES.-$32,786
DISCUSSION GROUPS THE ORGANIZATION HOSTS DISCUSSION GROUPS ON A REGULAR BASIS. THESE GROUPS ARE HELD VIRTUALLY AND ARE FACILITATED BY VOLUNTEER PARENT-LISTENERS. THESE DISCUSSION GROUPS PROVIDE A SAFE SPACE FOR LISTENERS TO SHARE THEIR THOUGHTS ON THE MOST RECENT EPISODES AND CREATE FRIENDSHIPS WITH OTHERS IN THE COMMUNITY. WE HOSTED AND FACILITATED APPROXIMATELY 40 DISCUSSION GROUPS HELD VIRTUALLY.-$506
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
MADELINE CHENEYExecutive DiPT$23,040-$23,040
JUSTON CHENEYCIO-$0--
BRITTANY STEITZPresident/Tr-$0--
AMANDA GRIFFITH-ATKINSSecretary-$0--
KARI HARBATHBoard Member-$0--
CINDY REINHARDBoard Member-$0--
SARAH RIPPYBoard Member-$0--
ASHLEY BOUCHERBoard Member-$0--
CAROLINA QUIJADABoard Member-$0--
Filing and Contact Details

Filer

Filer Name
The Rare Life
EIN
88-4412307
Phone
2082841715
Address
598 E 1650 S, BOUNTIFUL, UT 84010

Signing Officer

Name
Madeline Cheney
Title
Executive Director
Phone
2082841715
Signed
2025-11-12
Discuss with paid preparer
Yes

Preparer

Firm
Bountiful Peak Advisors
Address
1564 SOUTH 500 WEST SUITE 201, BOUNTIFUL, UT 84010-7400
Preparer
Shalaun T Howell CPA
Phone
8012943155
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 16

Expenses marketing 188 office 106 information technology 976 bank and merchant fees 849 license & dues 152 total 2,271

Form 990-ez, Part I, Line 20

Prior period adjustment -699

Form 990-ez, Part II, Line 24

Accounts receivable 34 89 total 34 89

Form 990-ez, Part II, Line 26

Accounts payable and accrued expenses 7,088 2,576

Form 990-ez, Part III

The rare life's mission is to provide emotional support for parents of children with medical complexities and disabilities.

Form 990-ez, Part III, Line 28

Podcasts the organization creates the well-loved podcast--the rare life. Guests include other parents in the community and experts in the field of disability. The rare life podcast is comprised of two themed seasons per calendar year, each episode released weekly. The rare life episodes were listened to 95,154 times over the year of 2024, with 50 episodes.

Form 990-ez, Part III, Line 29

Discussion groups the organization hosts discussion groups on a regular basis. These groups are held virtually and are facilitated by volunteer parent-listeners. These discussion groups provide a safe space for listeners to share their thoughts on the most recent episodes and create friendships with others in the community. We hosted and facilitated approximately 40 discussion groups held virtually.

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0EXPENSES MARKETING 188 OFFICE 106 INFORMATION TECHNOLOGY 976 BANK AND MERCHANT FEES 849 LICENSE & DUES 152 TOTAL 2,271
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