Lambert-Eaton Lems Family Association

“Expenses 1,676 gift 615 office supplies 766 paypal fees 168 volunteer member recognition 290 software & apps 713 travel 12,396 business meals 1,069 show materials 18 show registration 1,600 directors & officers insuranc 734 total 20,045”

“Inventories for sale or use 698 0 total 698 0”

“The lambert-eaton lems family association is a 501(c)(3) nonprofit,dedicated to increasing the visibility and awareness of lems in the medical and research communities. We also encourage research with a dedicated lems patient registry, and foster a stronger community within the lems family of patients and caregivers.”

“The lambert-eaton lems family association increases awareness and understanding of lambert-eaton myasthenic syndrome (lems) in the medical community by exhibiting our information table at several medical,professional meetings a year. In 2024 these included the muscular dystrophy association clinical and science conference, the american neuromuscular association annual meeting, the american academy of neurology annual meeting, and the american association of neuromuscular & electrodiagnostic medicine annual meeting. We publicize, recruit for, and maintain a medical information rare disease, lems registry of patient health data in association with sanford cords research. To build community, understanding,and better wellbeing in the lems community we held monthly online meetings in 2024 with lems patients, and hosted an educational webinar on patient advocacy learning. We also provide a lems patient representative to londc, the late onset neuromuscular disorder consortium, and participate in their steering committee. The focus of this committee is currently to improve diagnostic outcomes and improved referrals to the correct medical specialties.”