Civic Intelligence

Utah Hemophilia Foundation

EIN 87-6127162 • 501(c)3 • Salt Lake City, UT

Profile

Providing education and support services for individuals and families with bleeding disorders and empowering them to live healthier and more self- sufficient lives.

772 E 3300 S Ste 205Salt Lake City, UT 84106-4602

hemophiliautah.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

18th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

19th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

55th percentile

7.1%

Higher net margin than 55% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

46th percentile

2.6%

Faster asset growth than 46% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

16th percentile

-17%

Faster revenue growth than 16% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets18th percentile

Assets

Up

$1,143,420

Up $28,987 (+2.6%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$1,143,420

Up $28,987 (+2.6%) from 2023

Operations
Liabilities / Revenue19th percentileNet Margin55th percentile

Revenue

Down

$410,136

Down $83,306 (-17%) from 2023

Expenses

Up

$381,149

Up $61,679 (+19%) from 2023

Net Income

Down

$28,987

Down $144,985 (-83%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth46th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2011: $289,152Liabilities 2011: $12,898Net Assets 2011: $276,2542011Assets 2012: $321,511Liabilities 2012: $12,915Net Assets 2012: $308,5962012Assets 2013: $382,711Liabilities 2013: $1,840Net Assets 2013: $380,8712013Assets 2014: $456,212Liabilities 2014: $4,828Net Assets 2014: $451,3842014Assets 2015: $540,781Liabilities 2015: $5,044Net Assets 2015: $535,7372015Assets 2016: $611,352Liabilities 2016: $5,044Net Assets 2016: $606,3082016Assets 2017: $633,825Liabilities 2017: $6,691Net Assets 2017: $627,1342017Assets 2018: $711,814Liabilities 2018: $8,392Net Assets 2018: $703,4222018Assets 2019: $809,883Liabilities 2019: $0Net Assets 2019: $809,8832019Assets 2020: $789,277Liabilities 2020: $28,200Net Assets 2020: $761,0772020Assets 2021: $870,590Liabilities 2021: $88Net Assets 2021: $870,5022021Assets 2022: $940,461Liabilities 2022: $0Net Assets 2022: $940,4612022Assets 2023: $1,114,433Liabilities 2023: $0Net Assets 2023: $1,114,4332023Assets 2024: $1,143,420Liabilities 2024: $0Net Assets 2024: $1,143,4202024

Highlighted filing

2024

Assets$1,143,420
Liabilities$0
Net Assets$1,143,420
Open 2024 Filing

Operations Trend

Revenue Growth16th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KRevenue 2011: $435,943Expenses 2011: $464,508Net Income 2011: -$28,5652011Revenue 2012: $447,546Expenses 2012: $415,364Net Income 2012: $32,1822012Revenue 2013: $520,419Expenses 2013: $458,008Net Income 2013: $62,4112013Revenue 2014: $445,320Expenses 2014: $374,807Net Income 2014: $70,5132014Revenue 2015: $434,352Expenses 2015: $349,999Net Income 2015: $84,3532015Revenue 2016: $396,458Expenses 2016: $325,887Net Income 2016: $70,5712016Revenue 2017: $370,445Expenses 2017: $347,097Net Income 2017: $23,3482017Revenue 2018: $402,392Expenses 2018: $324,842Net Income 2018: $77,5502018Revenue 2019: $375,388Expenses 2019: $277,332Net Income 2019: $98,0562019Revenue 2020: $256,078Expenses 2020: $304,884Net Income 2020: -$48,8062020Revenue 2021: $367,861Expenses 2021: $258,436Net Income 2021: $109,4252021Revenue 2022: $350,196Expenses 2022: $280,237Net Income 2022: $69,9592022Revenue 2023: $493,442Expenses 2023: $319,470Net Income 2023: $173,9722023Revenue 2024: $410,136Expenses 2024: $381,149Net Income 2024: $28,9872024

Highlighted filing

2024

Revenue$410,136
Expenses$381,149
Net Income$28,987
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,143,420
Liabilities
$0
Net assets
$1,143,420
Revenue
$410,136
Expenses
$381,149
Net income
$28,987
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.14$0.00$1.14$0.41$0.38$0.03
2023Detailed filing. Detailed filing data is available for this year.$1.11$0.00$1.11$0.49$0.32$0.17
2022Detailed filing. Detailed filing data is available for this year.$0.94$0.00$0.94$0.35$0.28$0.07
2021Detailed filing. Detailed filing data is available for this year.$0.87$0.00$0.87$0.37$0.26$0.11
2020Detailed filing. Detailed filing data is available for this year.$0.79$0.03$0.76$0.26$0.30$0.05
2019Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.38$0.28$0.10
2018Detailed filing. Detailed filing data is available for this year.$0.71$0.01$0.70$0.40$0.32$0.08
2017Detailed filing. Detailed filing data is available for this year.$0.63$0.01$0.63$0.37$0.35$0.02
2016Detailed filing. Detailed filing data is available for this year.$0.61$0.01$0.61$0.40$0.33$0.07
2015Detailed filing. Detailed filing data is available for this year.$0.54$0.01$0.54$0.43$0.35$0.08
2014Summary only. Only limited summary data is available for this year.$0.46$0.00$0.45$0.45$0.37$0.07
2013Summary only. Only limited summary data is available for this year.$0.38$0.00$0.38$0.52$0.46$0.06
2012Summary only. Only limited summary data is available for this year.$0.32$0.01$0.31$0.45$0.42$0.03
2011Summary only. Only limited summary data is available for this year.$0.29$0.01$0.28$0.44$0.46$0.03
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 16, 2025
Return Version
2024v5.0
Gross Receipts
$446,669
Mission and Program Overview

Mission

Providing education and support services for individuals and families with bleeding disorders and empowering them to live healthier and more self- sufficient lives.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,114,439$1,054,119▼ $60,320
Cash and Non-Interest-Bearing Accounts$-6$89,301▲ $89,307
Total Assets$1,114,433$1,143,420▲ $28,987
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,114,433$1,143,420▲ $28,987
Total Net Assets Fund Balance$1,114,433$1,143,420▲ $28,987
Total Liabilities and Net Assets / Fund Balance$1,114,433$1,143,420▲ $28,987

Asset Categories

AssetBook ValueDepreciationBasis
Equipment-$13,082$13,082
Other Land Buildings-$6,036$6,036
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Jan WesternExecutive DiFT$75,000$75,000

Board Members and Trustees

NameTitle
Kari WoolfPresident
Angela KouriTrustee
Bonnie WebbTrustee
Craig ThurgoodTrustee
David WalshTrustee
George Rodgers MdTrustee
Krisdee NelsonTrustee
Ron WebbTrustee
Shannon HowellTrustee
Tabitha AllredTrustee
Zac RedfordTrustee
Patty EastinIndustry Adv
Tyler MertlichSecretary
Kim NmeziTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$371,579
Program Service Revenue
$0
Investment Income
$38,557
Other Revenue
$0
All Other Contributions
$252,576
Change in Net Assets
$28,987

Audited Revenue Reconciliation

Revenue per Audited Statements
$410,136
Revenue Not Reported on Form 990
$84,928
Total Revenue per Audited Statements
$495,064
Total Revenue per Form 990
$410,136
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$266,645
Salaries, Compensation, and Employee Benefits$114,504
Total Fundraising Expense$17,145
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$47,686$5,365$6,557$59,608
Other Salaries and Wages$26,310$2,484$3,036$31,830
Fees for Services Other$28,768$144$176$29,088
Payroll Taxes$18,453$2,076$2,537$23,066
Occupancy$15,555$945$1,155$17,655
All Other Expenses$9,245$3,156$2,298$14,699
Other Expenses$7,923--$7,923
Information Technology$4,820$543$663$6,026
Conferences and Meetings$5,011--$5,011
Office Expenses$2,470$279$723$3,472
Fees for Services Accounting-$2,820-$2,820
Insurance-$2,391-$2,391
Total Functional Expenses$343,801$20,203$17,145$381,149

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$466,077
Expenses per Audited Statements$381,149
Total Expenses per Form 990$381,149
Expenses Not Reported on Form 990$84,928
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$36,533
Fundraising Gross Income$36,533
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fore a Cure$84,928$36,533$900$35,633
Total Events$84,928$36,533$36,533-
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“Upon submittal to the foundation's office manager, the office manager reviews and then submits the return to the president, executive committee, and director of the foundation for their review and approval prior to filing.”

Form 990, Page 6, Part VI, Line 12C

“The conflict of interest policy is consisently monitored and enforced through annual disclosures by officers and directors.”

Form 990, Page 6, Part VI, Line 19

“Governing documents are available at the organization's office by request.”

Filing and Contact Details

Filer

Filer Name
Utah Hemophilia Foundation
EIN
87-6127162
Phone
8014840325
Address
772 E 3300 S STE 205, SALT LAKE CITY, UT 84106-4602

Signing Officer

Name
Jan Western
Title
Executive Director
Phone
8014840325
Signed
2025-10-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jan Western
Formed
1959
Legal Domicile
Ut
Voting Board Members
15
Independent Board Members
15
Employees
2
Volunteers
68

Preparer

Firm
Bountiful Peak Advisors
Address
1564 SOUTH 500 WEST SUITE 201, BOUNTIFUL, UT 84010-7400
Preparer
Justin R Shaw CPA Cfe Cgma
Phone
8012943155
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4A

“Community education: camp valor - 48 campers attended. For the children in utah's bleeding disorders community, camp valor represents the foundation for effective life-long management of a bleeding disorder. It is at this camp that children first learn to self-infuse. Campers, also, learn the basics of self-care required for the treatment and management of their disease state. Because of the severity of the condition from which they suffer, children with hemophilia seldom have the opportunity to enjoy many of the same physical activities that their unaffected peers do. Camp valor, allows children with bleeding disorders to spend time outdoors, recreating under the constant care and supervision of a full complement of medical professionals. For most of these children, it is the only time that they can just be kids. Everybody's here - 120 people attended. A program that brings together the uhf, industry partners, the hemophilia treatment center staff, and the bleeding disorders community. It is an evening of networking, information, and peer support. Informational exhibits are provided by pharmaceutical manufacturers and home care companies, which disseminate the latest information on the management and care of bleeding disorders. Community members are able to associate and learn from one another's shared experiences. Family fest & resource fair - 224 people attended. Pharmaceutical manufacturers and home care company representatives exhibit with information about the latest tools & techniques in managing bleeding disorders. Available information includes: latest treatments and medications, insurance co-payment assistance programs, home health services, uhf program services and resources, and more. Females & bleeding disorders (fab) conference - 56 people attended. Just for women in the bleeding disorders community, ages 12 and older, including those with von willebrand disease, carriers, moms of affected children, wives of affected men, and caregivers. Participants enjoy workshops and information specifically focused on the unique issues associated with women and bleeding disorders. Teen support group - 55 teens attended. Activities for teens with bleeding disorders and their siblings, ages 13- 19 that includes interactive education workshops, discussion groups, and recreational activities. Miscellaneous support groups - 152 people attended. Provides an opportunity for people with bleeding disorders to interact and learn from others in the group.”

Form 990, Part XI, Line 9

“Special events expenses 84,928 special events expenses -84,928”

Financial Statement Notes

Schedule D, Page 4, Part XI, Line 2D

“Special events expenses 84,928”

Schedule D, Page 4, Part XII, Line 2D

“Special events expenses 84,928”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgSrvcAccomActy2Grp/Desc0FINANCIAL ASSISTANCE PROGRAMS: LIFELINE - A FUND THROUGH WHICH INDIVIDUALS WITH BLEEDING DISORDERS CAN RECEIVE FINANCIAL ASSISTANCE WITH HIGH INSURANCE PREMIUMS, COBRA PAYMENTS, AND OUT OF POCKET MEDICAL EXPENSES ASSOCIATED WITH THE DIAGNOSIS AND TREATMENT OF BLEEDING DISORDER. 10 PEOPLE WERE SERVED THROUGH THIS PROGRAM. HOLIDAY ASSISTANCE (SUB FOR SANTA) - 7 FAMILIES WERE SERVED. FAMILIES WITHIN THE BLEEDING DISORDERS COMMUNITY MAY NEED SOME EXTRA FINANCIAL ASSISTANCE TO SUPPORT THEIR FAMILY THROUGH THE HOLIDAY SEASON. THE UHF PARTNERED WITH A LOCAL BUSINESS TO PROVIDE FOOD, CLOTHING AND TOYS FOR FAMILIES DETERMINED TO BE MOST IN NEED.
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0SPECIAL EVENTS EXPENSES 84,928
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IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 4, PART XI, LINE 2D
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0COMMUNITY EDUCATION: CAMP VALOR - 48 CAMPERS ATTENDED. FOR THE CHILDREN IN UTAH'S BLEEDING DISORDERS COMMUNITY, CAMP VALOR REPRESENTS THE FOUNDATION FOR EFFECTIVE LIFE-LONG MANAGEMENT OF A BLEEDING DISORDER. IT IS AT THIS CAMP THAT CHILDREN FIRST LEARN TO SELF-INFUSE. CAMPERS, ALSO, LEARN THE BASICS OF SELF-CARE REQUIRED FOR THE TREATMENT AND MANAGEMENT OF THEIR DISEASE STATE. BECAUSE OF THE SEVERITY OF THE CONDITION FROM WHICH THEY SUFFER, CHILDREN WITH HEMOPHILIA SELDOM HAVE THE OPPORTUNITY TO ENJOY MANY OF THE SAME PHYSICAL ACTIVITIES THAT THEIR UNAFFECTED PEERS DO. CAMP VALOR, ALLOWS CHILDREN WITH BLEEDING DISORDERS TO SPEND TIME OUTDOORS, RECREATING UNDER THE CONSTANT CARE AND SUPERVISION OF A FULL COMPLEMENT OF MEDICAL PROFESSIONALS. FOR MOST OF THESE CHILDREN, IT IS THE ONLY TIME THAT THEY CAN JUST BE KIDS. EVERYBODY'S HERE - 120 PEOPLE ATTENDED. A PROGRAM THAT BRINGS TOGETHER THE UHF, INDUSTRY PARTNERS, THE HEMOPHILIA TREATMENT CENTER STAFF, AND THE BLEEDING DISORDERS COMMUNITY. IT IS AN EVENING OF NETWORKING, INFORMATION, AND PEER SUPPORT. INFORMATIONAL EXHIBITS ARE PROVIDED BY PHARMACEUTICAL MANUFACTURERS AND HOME CARE COMPANIES, WHICH DISSEMINATE THE LATEST INFORMATION ON THE MANAGEMENT AND CARE OF BLEEDING DISORDERS. COMMUNITY MEMBERS ARE ABLE TO ASSOCIATE AND LEARN FROM ONE ANOTHER'S SHARED EXPERIENCES. FAMILY FEST & RESOURCE FAIR - 224 PEOPLE ATTENDED. PHARMACEUTICAL MANUFACTURERS AND HOME CARE COMPANY REPRESENTATIVES EXHIBIT WITH INFORMATION ABOUT THE LATEST TOOLS & TECHNIQUES IN MANAGING BLEEDING DISORDERS. AVAILABLE INFORMATION INCLUDES: LATEST TREATMENTS AND MEDICATIONS, INSURANCE CO-PAYMENT ASSISTANCE PROGRAMS, HOME HEALTH SERVICES, UHF PROGRAM SERVICES AND RESOURCES, AND MORE. FEMALES & BLEEDING DISORDERS (FAB) CONFERENCE - 56 PEOPLE ATTENDED. JUST FOR WOMEN IN THE BLEEDING DISORDERS COMMUNITY, AGES 12 AND OLDER, INCLUDING THOSE WITH VON WILLEBRAND DISEASE, CARRIERS, MOMS OF AFFECTED CHILDREN, WIVES OF AFFECTED MEN, AND CAREGIVERS. PARTICIPANTS ENJOY WORKSHOPS AND INFORMATION SPECIFICALLY FOCUSED ON THE UNIQUE ISSUES ASSOCIATED WITH WOMEN AND BLEEDING DISORDERS. TEEN SUPPORT GROUP - 55 TEENS ATTENDED. ACTIVITIES FOR TEENS WITH BLEEDING DISORDERS AND THEIR SIBLINGS, AGES 13- 19 THAT INCLUDES INTERACTIVE EDUCATION WORKSHOPS, DISCUSSION GROUPS, AND RECREATIONAL ACTIVITIES. MISCELLANEOUS SUPPORT GROUPS - 152 PEOPLE ATTENDED. PROVIDES AN OPPORTUNITY FOR PEOPLE WITH BLEEDING DISORDERS TO INTERACT AND LEARN FROM OTHERS IN THE GROUP.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1UPON SUBMITTAL TO THE FOUNDATION'S OFFICE MANAGER, THE OFFICE MANAGER REVIEWS AND THEN SUBMITS THE RETURN TO THE PRESIDENT, EXECUTIVE COMMITTEE, AND DIRECTOR OF THE FOUNDATION FOR THEIR REVIEW AND APPROVAL PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE CONFLICT OF INTEREST POLICY IS CONSISENTLY MONITORED AND ENFORCED THROUGH ANNUAL DISCLOSURES BY OFFICERS AND DIRECTORS.

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