Civic Intelligence

Lichen Sclerosus Support Network Aka Lssn

EIN 87-2172854 • 501(c)3 • Springfield, IL

Profile

To transform the journey of people affected by Lichen Sclerosus from isolating to empowering, by providing easy-to-understand, evidence-based education and compassionate support that gives people their lives back and allows them to thrive.

2501 Chatham Rd 8055Springfield, IL 62704

lssupportnetwork.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

60th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

62nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

78th percentile

24%

Higher net margin than 78% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

90th percentile

$32,000

Higher top officer pay than 90% of similar nonprofits.

Top officer pay equals 27.5% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2024

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2024

Balance Sheet
Liabilities / Assets60th percentile

Assets

$40,769

No earlier filing loaded for comparison.

Liabilities

$0

No earlier filing loaded for comparison.

Net Assets

$40,769

No earlier filing loaded for comparison.

Operations
Liabilities / Revenue62nd percentileNet Margin78th percentile

Revenue

$116,289

No earlier filing loaded for comparison.

Expenses

$87,896

No earlier filing loaded for comparison.

Net Income

$28,393

No earlier filing loaded for comparison.

Trend Graphs

Balance Sheet Trend

Asset GrowthScore unavailable

Grouped bars show assets, liabilities, and net assets across loaded filings.

$60K$40K$20K$0Assets 2024: $40,769Liabilities 2024: $0Net Assets 2024: $40,7692024

Highlighted filing

2024

Assets$40,769
Liabilities$0
Net Assets$40,769
Open 2024 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income by year, with the latest filing highlighted.

$150K$100K$50K$0Revenue 2024: $116,289Expenses 2024: $87,896Net Income 2024: $28,3932024

Highlighted filing

2024

Revenue$116,289
Expenses$87,896
Net Income$28,393
Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$40,769
Liabilities
$0
Net assets
$40,769
Revenue
$116,289
Expenses
$87,896
Net income
$28,393
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.41$0.00$0.41$1.16$0.88$0.28
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 11, 2025
Return Version
2024v5.0
Gross Receipts
$116,289
Mission and Program Overview

Mission

To transform the journey of people affected by Lichen Sclerosus from isolating to empowering, by providing easy-to-understand, evidence-based education and compassionate support that gives people their lives back and allows them to thrive.

Program Services

DescriptionGrantsExpenses
Core Program: Global Educational Thought Leadership and Patient Empowerment. LSSN serves as the trusted, empathetic guide for the global LS community, offering a safe haven for those seeking reliable answers in a condition often misunderstood. We provide evidence-based education and expert guidance, directly challenging misinformation that leads to confusion and fear. This program reached nearly 300,000 unique users with our accessible content. Key activities include the Wholistic Healing Summit, which received 96% positive reviews for content. Our work is effective: 94% of Summit attendees reported feeling more confident, and 92% reported feeling less isolated after the event, proving we enable patients to advocate for themselves and achieve self-acceptance and empowerment. LSSN actively bridges the gap in care by developing a Provider Continuing Education Program and advocating for better patient outcomes.$1,458$31,525
Program: Compassionate Community and Life-Changing Support. We replace profound isolation with a global community, offering compassionate support through thousands of interactions that lead to improved self-esteem and reduced anxiety. This program supported 1,412 individuals who actively participated in our virtual meetups and fostered a private member community of 150+ individuals, which serves as a vital lifeline. Our work mitigates the irreversible physical damage and vulvar cancer by keeping patients informed, educated, and supported in managing their condition. Strategically, LSSN maintains a searchable, reliable Provider Directory, which was accessed 11,783 times this year, directly helping patients find specialists and avoiding unnecessary, expensive alternatives. This activity provides peace of mind.$0$27,766
Compensation and Service Providers
Top Officer Pay90th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kathy Ruiz-CarterExecutive Director/ Unpaid Vice PresidentFT$32,000-$32,000
Pam CobbChairman-$0--
Jaclyn LanthierSecretary-$0--
Christine MyersBoard Officer-$0--
Lauren ConnellyBoard Officer-$0--
Suzanne WeberBoard Officer-$0--
Mamawah BourqueBoard Officer-$0--
Filing and Contact Details

Filer

Filer Name
LICHEN SCLEROSUS SUPPORT NETWORK aka LSSN
EIN
87-2172854
Phone
2172073291
Address
2501 Chatham Rd 8055, Springfield, IL 62704

Signing Officer

Name
Kathy Ruiz-carter
Title
Vice President
Phone
7178294318
Signed
2025-11-11
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 16

“Description;Amount^Digital Ads Fees;509|Bank Charges;70|Online Fundraising Platform and Service Fees;3068|Coalition for Skin Diseases Membership Fee;250|Liability Insurance;1800|Registered Agent Statutory Compliance Fee;159|Virtual Office Mail Service;302|Website Hosting and Content Delivery;698|Email Marketing Software;536|Accounting Software;274|Google Workspace and Admin Tools;1048|Automation Platform Subscription Zapier;530|Website Translation Plugin;400|Provider Directory Plugin;169|Patient Wellness and Support Activities;539|Program Materials and Giveaways;414|Tax Filing Platform Submission Fee;50|Webshop Platform and Transaction Fees;82|Volunteer Reimbursements;355|Administrative Training;89^Total;11342^”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990-EZ, Part I, Line 16
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/PersonNm0KATHY RUIZ-CARTER
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0VICE PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum07178294318
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-11-11
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0LICHEN SCLEROSUS SUPPORT NETWORK aka LSSN
ReturnHeader/Filer/BusinessNameControlTxt0LICH
ReturnHeader/Filer/EIN0872172854
ReturnHeader/Filer/PhoneNum02172073291
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ReturnHeader/Filer/USAddress/ZIPCd062704
ReturnHeader/IRSResponsiblePrtyInfoCurrInd01
ReturnHeader/ReturnTs02025-11-12T15:02:34-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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