Civic Intelligence

Cure Kcnh1 Foundation

EIN 87-2041980 • 501(c)3 • Encinitas, CA

Profile

Our mission is to urgently improve the lives of individuals and families affected by KCNH1-Related Disorders by accelerating research toward the development of effective treatments and a cure building connections within the KCNH1 patient and professional community raising awareness about KCNH1-related disorders and advocating for the needs of families affected by rare diseases.

1928 Wandering RdEncinitas, CA 92024

1928 wandering rd.

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2022

Liabilities / Revenue

61st percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2022

Net Margin

89th percentile

49%

Higher net margin than 89% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2022

Top Officer Pay

84th percentile

$0

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2022

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2022

Balance Sheet
Liabilities / Assets59th percentile

Assets

Up

$219,501

Up $105,327 (+92%) from 2023

Liabilities

-

No earlier filing loaded for comparison.

Net Assets

Up

$219,501

Up $105,327 (+92%) from 2023

Operations
Liabilities / Revenue61st percentileNet Margin89th percentile

Revenue

Up

$189,964

Up $137,776 (+264%) from 2023

Expenses

Up

$84,637

Up $7,783 (+10%) from 2023

Net Income

Up

$105,327

Up $129,993 (+527%) from 2023

Trend Graphs

Balance Sheet Trend

Asset GrowthScore unavailable

Grouped bars show assets, liabilities, and net assets across loaded filings.

$300K$200K$100K$0Assets 2022: $138,840Liabilities 2022: $0Net Assets 2022: $138,8402022Assets 2023: $114,174Liabilities 2023: $0Net Assets 2023: $114,1742023Assets 2024: $219,501Net Assets 2024: $219,5012024

Highlighted filing

2024

Assets$219,501
Liabilities-
Net Assets$219,501
Open 2024 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income by year, with the latest filing highlighted.

$300K$200K$100K$0-$100KRevenue 2022: $277,279Expenses 2022: $142,439Net Income 2022: $134,8402022Revenue 2023: $52,188Expenses 2023: $76,854Net Income 2023: -$24,6662023Revenue 2024: $189,964Expenses 2024: $84,637Net Income 2024: $105,3272024

Highlighted filing

2024

Revenue$189,964
Expenses$84,637
Net Income$105,327
Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$219,501
Liabilities
-
Net assets
$219,501
Revenue
$189,964
Expenses
$84,637
Net income
$105,327
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.20$2.20$1.90$0.85$1.05
2023Detailed filing. Detailed filing data is available for this year.$1.14$0.00$1.14$0.52$0.77$0.25
2022Detailed filing. Detailed filing data is available for this year.$1.39$0.00$1.39$2.77$1.42$1.35
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 15, 2025
Return Version
2024v5.1
Gross Receipts
$193,403
Mission and Program Overview

Mission

Cure KCNH1 Foundation is a patient advocacy organization dedicated to raising awareness about KCNH1 genetic disorders and improving the lives of children and families by advancing research in the search for better treatment options and a cure.

Our mission is to urgently improve the lives of individuals and families affected by KCNH1-Related Disorders by accelerating research toward the development of effective treatments and a cure building connections within the KCNH1 patient and professional community raising awareness about KCNH1-related disorders and advocating for the needs of families affected by rare diseases.

Program Services

DescriptionGrantsExpenses
Research - Improving the lives of individuals and families affected by KCNH1-Related Disorders by accelerating research toward the development of effective treatments and a cure; benefits the entire KCNH1 community of approximately 100 currently contactable patients along with their families.$0$67,736
Patient Engagement - Organizing the KCNH1 patient community in order to better support the families inform the research and prepare for future clinical trials. Hosted the first-ever in-person KCNH1 patient family and researcher conference; attended by over thirty patients caregivers family researchers in Los Angeles.$0$7,869
Advocacy - Raising awareness about KCNH1-related disorders and advocating for the needs of families affected by rare diseases.$0$3,212
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Michaelle JinnettePresidentFT$0--
Noreen HaiderDirectorPT$0--
Kevin WittDirectorPT$0--
James PearsonSecretaryPT$0--
Joshua YelseyTreasurerPT$0--
Amy FinniganDirectorPT$0--
Meg Stacker KingDirectorPT$0--
Filing and Contact Details

Filer

Filer Name
Cure KCNH1 Foundation
EIN
87-2041980
In Care Of
% Michaelle Jinnette
Address
1928 Wandering Rd, Encinitas, CA 92024

Signing Officer

Name
Kevin Witt
Title
Director
Signed
2025-05-15
Supplemental Narrative

Additional Explanations

Part I, line 16

“| Other Expenses:, Amount:| Advocacy - Payments made toward increasing KCNH1 patient advocacy and public awareness for KCNH1-related genetic disorders., $3212| Administration - This includes accounting software donation processing website CRM business software apps teleconferencing software etc., $5820| Patient Engagement Conference - Payments made to host first-ever in-person KCNH1 conference for patients families care-givers and researchers in December 2024., $7869| Research - Payments made to laboratories and a patient registry platform in order to advance research on KCNH1-Related Disorders and the development of effective treatments and a cure., $67736|”

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