Civic Intelligence

Thrive with Pyruvate Kinase Deficiency Organization

EIN 87-1365230 • 501(c)3 • Bloomington, MN

Profile

The organizations mission is to advocate educate and connect those with Pyruvate Kinase Deficiency a disorder that affects the red blood cells. This disease is very rare our organization provides resources to those affected by it by connecting patients with doctors who understand how to treat this rare disease.

7801 95th St WBloomington, MN 55438

https: thrivewithpkd.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on the latest valid filing.

Source year 2024

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on the latest valid filing.

Source year 2024

Net Margin

26th percentile

-16%

Higher net margin than 26% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

84th percentile

$0

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

87th percentile

50%

Faster asset growth than 87% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2024

Revenue Growth

35th percentile

-15%

Faster revenue growth than 35% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2024

Assets

Up

$20,534

Up $11,454 (+126%) from 2022

Liabilities

-

No earlier filing loaded for comparison.

Net Assets

Up

$20,534

Up $21,454 (+2332%) from 2022

Revenue

Down

$104,752

Down $40,043 (-28%) from 2022

Expenses

Down

$121,587

Down $38,628 (-24%) from 2022

Net Income

Down

-$16,835

Down $1,415 (-9.2%) from 2022

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$30K$20K$10K$0-$10KAssets 2022: $9,080Liabilities 2022: $10,000Net Assets 2022: -$9202022Assets 2024: $20,534Net Assets 2024: $20,5342024

Highlighted filing

2024

Assets$20,534
Liabilities-
Net Assets$20,534

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$200K$150K$100K$50K$0-$50KRevenue 2022: $144,795Expenses 2022: $160,215Net Income 2022: -$15,4202022Revenue 2024: $104,752Expenses 2024: $121,587Net Income 2024: -$16,8352024

Highlighted filing

2024

Revenue$104,752
Expenses$121,587
Net Income-$16,835

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.1
Gross Receipts
$104,752
Mission and Program Overview

Mission

The organizations mission is to advocate educate and connect those with Pyruvate Kinase Deficiency a disorder that affects the red blood cells. This disease is very rare our organization provides resources to those affected by it by connecting patients with doctors who understand how to treat this rare disease.

Program Services

DescriptionGrantsExpenses
Thrive with PKD hosted a conference jointly with the Pyruvate Kinase Deficiency Foundation in 2024. The goal was to bring together people affected by PKD and doctors who are experts in the area. Thrive with PKD gave travel and lodging grants to eligible attendees to the conference making sure that as many people who needed to come were able to attend. This included some attendees from other countries U.K. Canada Australia Mexico. The large majority of attendees were from the United States.$37,989$37,989
Thrive with PKD has been attending several medical conferences as well as sponsoring certain representatives of various communities to attend said conferences.$1,145$1,145
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Tamara SchryverPresidentPT$0--
Carl LanderInternational Collaboration Coordinator And Record Keeper-$0--
Conor StoebnerTreasurer-$0--
Filing and Contact Details

Filer

Filer Name
Thrive With Pyruvate Kinase Deficiency Organization
EIN
87-1365230
Address
7801 95th St W, Bloomington, MN 55438

Signing Officer

Name
Conor Stoebner
Title
Treasurer
Phone
6124017436
Signed
2025-11-17
Supplemental Narrative

Additional Explanations

Part I, line 10

| Grants And Similar Amounts Paid:, Amount:| In July of 2024 Thrive with PKD held a joint conference with the Pyruvate Kinase Deficiency Foundation. Thrive with PKD gave lodging grants to eligible attendees to learn about managing this chronic illness for themselves and others., $21005| In July of 2024 Thrive with PKD held a joint conference with the Pyruvate Kinase Deficiency Foundation. Thrive with PKD gave travel grants airfare and mileage to eligible attendees to learn about managing this chronic illness for themselves and others., $16984| Thrive with PKD will send representatives who are not on the board to conferences to learn and advocate about PKD. In this case a representative was sent to a conference held by NORD. This grant covered travel related expenses airfare lodging meals., $1145|

Part I, line 16

| Other Expenses:, Amount:| Conference: Food. Thrive with PKD held a conference in Minneapolis to bring together people with PKD and experts to help those with this chronic illness. This is the food expense incurred during the conference including private dinning area for all attendees., $47807| Conference: Misc.. Thrive with PKD held a conference in Minneapolis to bring together people with PKD and experts to help those with this chronic illness. These expenses were related to some small decorations and branding., $335| Conference: Speakers Fees. Thrive with PKD held a conference in Minneapolis to bring together people with PKD and experts to help those with this chronic illness. These are the speaker fees the organization incurred to bring high quality experts to the conference., $2199| Event Registration. Our president attended a conference held by Sickle Cell Disease Association of America. This was the registration fee., $125| Bank fees & service charges. These fees were incurred for using wire and direct deposit transfer services., $299| Filing Fees. This fee was incurred by using a service to file our 2023 990., $101| Memberships & subscriptions. These fees were incurred from services related to stock photos email and other subscription services., $593| Office supplies. These expenses were incurred by purchasing supplies such as pencils paper markers etc., $171| Software Subscription. These expenses are related to bookkeeping software contract signing software electronic distribution software digital design software and social media management software., $2488| Webhosting. This is the cost of running our two websites the second being https: pkdguidelines.org ., $1146| Organization Membership Dues. Credentialing fee from Academy of Nutrition and Dietetics., $234| Airfare. Board member travel to conference in Minneapolis., $1971| Lodging. Hotel stayed in by president for RAIN conference in Romania., $303| Website Building and Maintenance. Built website https: pkdguidelines.org to help those affected PKD manage their illness., $6013| Conference: Audio Visual. Thrive with PKD held a conference in Minneapolis to bring together people with PKD and experts to help those with this chronic illness. This expense was related to audio visual equipment purchased for conference., $1063|

Part II, line 24

| Explanation:, BOYAmount:, EOYAmount:| Other assets: Website built for Thrive with PKD, $2667, $2667|

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0| Grants And Similar Amounts Paid:, Amount:| In July of 2024 Thrive with PKD held a joint conference with the Pyruvate Kinase Deficiency Foundation. Thrive with PKD gave lodging grants to eligible attendees to learn about managing this chronic illness for themselves and others., $21005| In July of 2024 Thrive with PKD held a joint conference with the Pyruvate Kinase Deficiency Foundation. Thrive with PKD gave travel grants airfare and mileage to eligible attendees to learn about managing this chronic illness for themselves and others., $16984| Thrive with PKD will send representatives who are not on the board to conferences to learn and advocate about PKD. In this case a representative was sent to a conference held by NORD. This grant covered travel related expenses airfare lodging meals., $1145|
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1| Other Expenses:, Amount:| Conference: Food. Thrive with PKD held a conference in Minneapolis to bring together people with PKD and experts to help those with this chronic illness. This is the food expense incurred during the conference including private dinning area for all attendees., $47807| Conference: Misc.. Thrive with PKD held a conference in Minneapolis to bring together people with PKD and experts to help those with this chronic illness. These expenses were related to some small decorations and branding., $335| Conference: Speakers Fees. Thrive with PKD held a conference in Minneapolis to bring together people with PKD and experts to help those with this chronic illness. These are the speaker fees the organization incurred to bring high quality experts to the conference., $2199| Event Registration. Our president attended a conference held by Sickle Cell Disease Association of America. This was the registration fee., $125| Bank fees & service charges. These fees were incurred for using wire and direct deposit transfer services., $299| Filing Fees. This fee was incurred by using a service to file our 2023 990., $101| Memberships & subscriptions. These fees were incurred from services related to stock photos email and other subscription services., $593| Office supplies. These expenses were incurred by purchasing supplies such as pencils paper markers etc., $171| Software Subscription. These expenses are related to bookkeeping software contract signing software electronic distribution software digital design software and social media management software., $2488| Webhosting. This is the cost of running our two websites the second being https: pkdguidelines.org ., $1146| Organization Membership Dues. Credentialing fee from Academy of Nutrition and Dietetics., $234| Airfare. Board member travel to conference in Minneapolis., $1971| Lodging. Hotel stayed in by president for RAIN conference in Romania., $303| Website Building and Maintenance. Built website https: pkdguidelines.org to help those affected PKD manage their illness., $6013| Conference: Audio Visual. Thrive with PKD held a conference in Minneapolis to bring together people with PKD and experts to help those with this chronic illness. This expense was related to audio visual equipment purchased for conference., $1063|
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2| Explanation:, BOYAmount:, EOYAmount:| Other assets: Website built for Thrive with PKD, $2667, $2667|
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