Civic Intelligence

Timothy Syndrome Alliance Inc

EIN 86-2676717 • 501(c)3 • Bear River City, UT

Profile

Form 990-ez, part iii, primary exempt purpose - our mission is to improve the diagnosis, treatment and care of individuals with cacna1c-related disorders, including timothy syndrome and longqt8, and to support the families and carers of those diagnosed.

PO Box 163Bear River City, UT 84301

timothysyndromefoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

70th percentile

0.02x

Higher debt load relative to assets than 70% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

75th percentile

0.03x

Higher debt load relative to revenue than 75% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

39th percentile

-2.9%

Higher net margin than 39% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

83rd percentile

$3,697

Higher top officer pay than 83% of similar nonprofits.

Top officer pay equals 4.2% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

55th percentile

0.0%

Faster asset growth than 55% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

85th percentile

54%

Faster revenue growth than 85% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets70th percentile

Assets

Up

$137,614

Up $13 (+0.0%) from 2023

Liabilities

$2,609

No earlier filing loaded for comparison.

Net Assets

Down

$135,005

Down $2,596 (-1.9%) from 2023

Operations
Liabilities / Revenue75th percentileNet Margin39th percentile

Revenue

Up

$88,663

Up $31,147 (+54%) from 2023

Expenses

Up

$91,259

Up $56,888 (+166%) from 2023

Net Income

Down

-$2,596

Down $25,741 (-111%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth55th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$150K$100K$50K$0Assets 2022: $114,456Liabilities 2022: $0Net Assets 2022: $114,4562022Assets 2023: $137,601Net Assets 2023: $137,6012023Assets 2024: $137,614Liabilities 2024: $2,609Net Assets 2024: $135,0052024

Highlighted filing

2024

Assets$137,614
Liabilities$2,609
Net Assets$135,005
Open 2024 Filing

Operations Trend

Revenue Growth85th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$150K$100K$50K$0-$50KRevenue 2022: $146,942Expenses 2022: $34,551Net Income 2022: $112,3912022Revenue 2023: $57,516Expenses 2023: $34,371Net Income 2023: $23,1452023Revenue 2024: $88,663Expenses 2024: $91,259Net Income 2024: -$2,5962024

Highlighted filing

2024

Revenue$88,663
Expenses$91,259
Net Income-$2,596
Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$137,614
Liabilities
$2,609
Net assets
$135,005
Revenue
$88,663
Expenses
$91,259
Net income
-$2,596
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.38$0.03$1.35$0.89$0.91$0.03
2023Detailed filing. Detailed filing data is available for this year.$1.38$1.38$0.58$0.34$0.23
2022Detailed filing. Detailed filing data is available for this year.$1.14$0.00$1.14$1.47$0.35$1.12
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 10, 2025
Return Version
2024v5.1
Gross Receipts
$88,663
Mission and Program Overview

Mission

Form 990-ez, part iii, primary exempt purpose - our mission is to improve the diagnosis, treatment and care of individuals with cacna1c-related disorders, including timothy syndrome and longqt8, and to support the families and carers of those diagnosed.

Program Services

DescriptionGrantsExpenses
DURING THE YEAR, TIMOTHY SYNDROME FOUNDATION HOSTED FAMILY SUPPORT CONFERENCES IN SEPTEMBER AND OCTOBER. THE ORGANIZATION BROUGHT TOGETHER APPROXIMATELY 25 FAMILIES ALONG WITH SEVERAL PHYSICIAN AND RESEARCHER SPEAKERS. THESE CONFERENCES PROVIDED A VALUABLE OPPORTUNITY FOR FAMILIES TO HEAR DIRECTLY FROM MEDICAL PROFESSIONALS ABOUT THE LATEST DEVELOPMENTS IN TREATMENT OPTIONS AND EMERGING AREAS OF RESEARCH. FAMILIES ALSO HAD THE OPPORTUNITY TO SPEND TIME WITH EACH OTHER TO TALK AND PROVIDE EMOTIONAL SUPPORT. THE CHILDREN HAD A CHANCE TO SPEND TIME WITH OTHERS LIKE THEMSELVES AND FORM MEANINGFUL BONDS. AS PART OF ITS COMMITMENT TO EQUITABLE ACCESS, THE ORGANIZATION COVERED TRAVEL EXPENSES FOR SEVERAL FAMILIES, INCLUDING INTERNATIONAL TRAVEL, TO ENSURE PARTICIPATION WAS NOT LIMITED BY FINANCIAL OR GEOGRAPHIC BARRIERS.-$72,779
THE ORGANIZATION ALSO PROVIDED ONGOING SUPPORT THROUGH: THE DISTRIBUTION OF BROCHURES AND EDUCATIONAL RESOURCES TO HELP FAMILIES BETTER UNDERSTAND AND MANAGE TIMOTHY SYNDROME, RECOMMENDATIONS AND GUIDANCE FROM MEDICAL ADVISORS TAILORED TO FAMILY NEEDS, AND THE PROVISION OF SAFETY DEVICES SUCH AS HEART RATE AND OXYGEN MONITORS TO PROMOTE AT-HOME MONITORING AND EARLY INTERVENTION-$885
Compensation and Service Providers
Top Officer Pay83rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
MARY ANN CICIARELLIDirectorPT$3,697-$3,697
KATHERINE TIMOTHYPresident-$0--
LINSLEY GENTILESecretary-$0--
Kathryn DamonTreasurer-$0--
Joy CraftDirector-$0--
MATTHEW WILSONDirector-$0--
Justin HillDirector-$0--
Chistine BadameDirector-$0--
Filing and Contact Details

Filer

Filer Name
Timothy Syndrome Alliance Inc
EIN
86-2676717
Phone
4433648185
Address
PO Box 163, Bear River City, UT 84301

Signing Officer

Name
Katherine Timothy
Title
President
Signed
2025-05-10
Discuss with paid preparer
Yes

Preparer

Firm
Godley CPA LLC
Address
248 S Homestead Drive, Landisville, PA 17538
Preparer
Godley CPA LLC
Phone
4842011253
Supplemental Narrative

Additional Explanations

Other Expenses.1001

“Advertising and Promotion $99”

Other Expenses.1007

“Conferences, Conventions, and Meetings $72779”

Other Expenses.1012

“Insurance $938”

Other Expenses.1

“Fundraising Expenses $3958”

Other Expenses.2

“Charitable Registration $2609”

Other Expenses.3

“WEBSITE $1625”

Other Expenses.4

“Office supplies and expenses $1269”

Other Expenses.5

“Annual Fees $549”

Total Liabilities.1001

“Accounts Payable and Accrued Expenses - Beginning $0 Accounts Payable and Accrued Expenses - Ending $2609”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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ReturnHeader/BuildTS02025-03-06 01:10:19Z
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ReturnHeader/Filer/EIN0862676717
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