The Jansen De Vries Syndrome Foundation

EIN 85-4064822 • 501(c)3 • Natick, MA

Profile

The foundation is focused on providing education and resources to both families and medical professionals. Its goal is to raise awareness about this rare genetic condition and unite families, researchers, and medical professionals through the facilitation of a patient registry program.

PO Box 14Natick, MA 01760

jansen-devries.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

-92%

Higher net margin than 10% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

-42%

Faster asset growth than 22% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

-63%

Faster revenue growth than 14% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet

Liabilities / Assets60th percentile

Assets

Down

$49,392

Down $35,649 (-42%) from 2023

Liabilities

Flat

Flat from 2023

Net Assets

Down

$49,392

Down $35,649 (-42%) from 2023

Operations

Liabilities / Revenue62nd percentile Net Margin10th percentile

Revenue

Down

$38,593

Down $65,902 (-63%) from 2023

Expenses

$74,242

Up $13,415 (+22%) from 2023

Net Income

Down

-$35,649

Down $79,317 (-182%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth22nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

Highlighted filing

2024

Assets$49,392

Liabilities$0

Net Assets$49,392

Open 2024 Filing

Operations Trend

Revenue Growth14th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

Highlighted filing

2024

Revenue$38,593

Expenses$74,242

Net Income-$35,649

Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing

Assets: $49,392
Liabilities: $0
Net assets: $49,392
Revenue: $38,593
Expenses: $74,242
Net income: -$35,649

	Balance Sheet			Operations
Year	Assets	Liabilities	Net Assets	Revenue	Expenses	Net Income
2024Detailed filing. Detailed filing data is available for this year.	$0.49	$0.00	$0.49	$0.39	$0.74	$0.36
2023Detailed filing. Detailed filing data is available for this year.	$0.85	$0.00	$0.85	$1.04	$0.61	$0.44
2022Detailed filing. Detailed filing data is available for this year.	$0.41	$0.00	$0.41	$0.26	$0.04	$0.22
2021Detailed filing. Detailed filing data is available for this year.	$0.20	$0.00	$0.20	$0.22	$0.03	$0.19

Latest Filing Detail

Jump To

Filing Snapshot

Filing Period: Jan 1, 2024 to Dec 31, 2024
Signed: Nov 10, 2025
Return Version: 2024v5.2
Gross Receipts: $38,593

Mission and Program Overview

Mission

Program Services

Description	Grants	Expenses
THROUGH FUNDRAISING AND GRANT EFFORTS, THE FOUNDATION WORKS TO PROVIDE RESEARCHERS THE RESOURCES NECESSARY TO GAIN A BETTER UNDERSTANDING OF THE PPM1D MUTATION AND DEVELOP POTENTIAL TREATMENTS AND THERAPIES TO ULTIMATELY IMPROVE THE LIVES OF THOSE LIVING WITH THIS RARE GENETIC CONDITION.	$55,400	$74,242

Compensation and Service Providers

Top Officer Pay81st percentile

Employees

Name	Title	Full / Part Time	Base	Other	Total
KARA KILROY	President/Director	PT	$0	-	-
RACHEL HORNE	Secretary/Vice President	PT	$0	-	-
MARINDA DU TOIT	Treasurer	PT	$0	-	-

Filing and Contact Details

Filer

Filer Name: The Jansen De Vries Syndrome Foundation
EIN: 85-4064822
Phone: 4133643310
Address: PO BOX 14, NATICK, MA 01760

Signing Officer

Name: Kara Kilroy
Title: President/director
Phone: 4133643310
Signed: 2025-11-10
Discuss with paid preparer: Yes

Preparer

Firm: Mp Pc
Address: ONE MONARCH PLACE, SPRINGFIELD, MA 01144
Preparer: Patrick Leary
Phone: 4137391800

Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 8 - Other Revenue

“Description: credit card refund. Amount: 972.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: research. Grantee name: stichting radbound fonds. Grantee address: postbus 9102 nijmegan, netherlands 6500 hc. Date of gift: 08/26/24. Amount given: 50,000.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: therapy. Grantee name: keira calliope whitmore. Grantee address: 6111 w. Berenice ave chicago, il 60634. Date of gift: 01/01/24. Amount given: 500.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: support. Grantee name: tomas zhunio. Grantee address: 8 2nd ave. Ossining, ny 10562. Date of gift: 01/01/24. Amount given: 300.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: support. Grantee name: finn perry. Grantee address: 144 shrapnel road cannon hill, queensland, australia. Date of gift: 01/01/24. Amount given: 200.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: therapy. Grantee name: mason moore. Grantee address: 3413 durello circle rancho cordova, ca 95670. Date of gift: 01/01/24. Amount given: 300.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: support. Grantee name: aries larimer. Grantee address: 22 ballman road etna, oh 43068. Date of gift: 01/01/24. Amount given: 500.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: therapy. Grantee name: maria skrashchuk. Grantee address: tolbuhina street, 7-1-164 moscow, russia. Date of gift: 01/01/24. Amount given: 500.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: therapy. Grantee name: raf haenen. Grantee address: achterschouffert 3 eygelshoven, limburg, netherlands. Date of gift: 01/01/24. Amount given: 500.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: therapy. Grantee name: eloise watkins. Grantee address: 2286 east pasture drive st. George, ut 84790. Date of gift: 01/01/24. Amount given: 500.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: support. Grantee name: uzziah yniguez. Grantee address: 886 w. Hawes ave fresno, ca 93706. Date of gift: 01/01/24. Amount given: 500.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: support. Grantee name: freya campbell. Grantee address: 50 wellington street6411 pierless ave hertford, hertfordshire, united kingdom. Date of gift: 01/01/24. Amount given: 200.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: support. Grantee name: joshua coronado. Grantee address: 6411 pierless ave sugar hill, ga 30518. Date of gift: 01/01/24. Amount given: 300.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: support. Grantee name: george hynes. Grantee address: 8 chase drive ellesmere port, united kingdom. Date of gift: 01/01/24. Amount given: 200.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: support. Grantee name: blake hawthorne. Grantee address: 4028 w leisa springfield, mo 65802. Date of gift: 01/01/24. Amount given: 300.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: support. Grantee name: samuele marturano. Grantee address: via alessandro luzio 24 roma, italy. Date of gift: 01/01/24. Amount given: 300.”

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: therapy. Grantee name: dionisios donos. Grantee address: 6 koutsafta street athens, greece. Date of gift: 01/01/24. Amount given: 300. Total included on form 990-ez, line 10: 55,400.”

Form 990-ez, Part I, Line 16 - Other Expenses

“Description: office expense. Amount: 1,466. Description: website costs. Amount: 158. Description: gifts. Amount: 27. Description: software subscriptions. Amount: 1,146. Description: insurance. Amount: 1,968. Description: travel. Amount: 9,592. Description: service fee. Amount: 185. Description: global genes subscription. Amount: 1,950. Description: office of massachusetts. Amount: 36. Total to form 990-ez, line 16: 16,528.”

Raw XML Appendix186 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path	#	Value
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IRS990EZ/BooksInCareOfDetail/PersonNm	0	MARINDA DU TOIT
IRS990EZ/BooksInCareOfDetail/PhoneNum	0	6613310877
IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt	0	9224 CONEY ISLAND DRIVE
IRS990EZ/BooksInCareOfDetail/USAddress/CityNm	0	BAKERSFIELD
IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd	0	CA
IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd	0	93311
IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt	0	43667
IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt	0	49392
IRS990EZ/ChgMadeToOrgnzngDocNotRptInd	0	0
IRS990EZ/ContributionsGiftsGrantsEtcAmt	0	37621
IRS990EZ/DirectIndirectPltclExpendAmt	0	0
IRS990EZ/DonorAdvisedFndsInd	0	0
IRS990EZ/EngagedInExcessBenefitTransInd	0	0
IRS990EZ/ExcessOrDeficitForYearAmt	0	-35649
IRS990EZ/FeesAndOtherPymtToIndCntrctAmt	0	2074
IRS990EZ/FiledScheduleAInd	0	1
IRS990EZ/ForeignFinancialAccountInd	0	0
IRS990EZ/ForeignOfficeInd	0	0
IRS990EZ/Form990TotalAssetsGrp/BOYAmt	0	85041
IRS990EZ/Form990TotalAssetsGrp/EOYAmt	0	49392
IRS990EZ/GrantsAndSimilarAmountsPaidAmt	0	55400
IRS990EZ/GrossReceiptsAmt	0	38593
IRS990EZ/InfoInScheduleOPartIIIInd	0	X
IRS990EZ/InfoInScheduleOPartIInd	0	X
IRS990EZ/InfoInScheduleOPartVInd	0	X
IRS990EZ/LobbyingActivitiesInd	0	0
IRS990EZ/MadeLoansToFromOfficersInd	0	0
IRS990EZ/MethodOfAccountingCashInd	0	X
IRS990EZ/NetAssetsOrFundBalancesBOYAmt	0	85041
IRS990EZ/NetAssetsOrFundBalancesEOYAmt	0	49392
IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt	0	85041
IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt	0	49392
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	0	8.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	1	8.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	2	8.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	0	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	1	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	2	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt	0	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt	1	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt	2	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt	0	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt	1	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt	2	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	0	KARA KILROY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	1	RACHEL HORNE
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	2	MARINDA DU TOIT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	0	PRESIDENT/DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	1	SECRETARY/VICE PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	2	TREASURER
IRS990EZ/OperateHospitalInd	0	0
IRS990EZ/Organization501c3Ind	0	X
IRS990EZ/OrganizationDissolvedEtcInd	0	0
IRS990EZ/OrganizationHadUBIInd	0	0
IRS990EZ/OtherChangesInNetAssetsAmt	0	0
IRS990EZ/OtherExpensesTotalAmt	0	16528
IRS990EZ/OtherRevenueTotalAmt	0	972
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt	0	NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt	0	NONE
IRS990EZ/PoliticalCampaignActyInd	0	0
IRS990EZ/PrimaryExemptPurposeTxt	0	THE FOUNDATION IS FOCUSED ON PROVIDING EDUCATION AND RESOURCES TO BOTH FAMILIES AND MEDICAL PROFESSIONALS. ITS GOAL IS TO RAISE AWARENESS ABOUT THIS RARE GENETIC CONDITION AND UNITE FAMILIES, RESEARCHERS, AND MEDICAL PROFESSIONALS THROUGH THE FACILITATION OF A PATIENT REGISTRY PROGRAM.
IRS990EZ/PrintingPublicationsPostageAmt	0	240
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt	0	THROUGH FUNDRAISING AND GRANT EFFORTS, THE FOUNDATION WORKS TO PROVIDE RESEARCHERS THE RESOURCES NECESSARY TO GAIN A BETTER UNDERSTANDING OF THE PPM1D MUTATION AND DEVELOP POTENTIAL TREATMENTS AND THERAPIES TO ULTIMATELY IMPROVE THE LIVES OF THOSE LIVING WITH THIS RARE GENETIC CONDITION.
IRS990EZ/ProgramSrvcAccomplishmentGrp/ForeignGrantsInd	0	X
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt	0	55400
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt	0	74242
IRS990EZ/ProhibitedTaxShelterTransInd	0	0
IRS990EZ/RelatedOrganizationCtrlEntInd	0	0
IRS990EZ/SchoolOperatingInd	0	0
IRS990EZ/StatesWhereCopyOfReturnIsFldCd	0	MA
IRS990EZ/SubjectToProxyTaxInd	0	0
IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt	0	0
IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt	0	0
IRS990EZ/TanningServicesProvidedInd	0	0
IRS990EZ/TaxImposedOnOrganizationMgrAmt	0	0
IRS990EZ/TaxImposedUnderIRC4911Amt	0	0
IRS990EZ/TaxImposedUnderIRC4912Amt	0	0
IRS990EZ/TaxImposedUnderIRC4955Amt	0	0
IRS990EZ/TaxReimbursedByOrganizationAmt	0	0
IRS990EZ/TotalExpensesAmt	0	74242
IRS990EZ/TotalProgramServiceExpensesAmt	0	74242
IRS990EZ/TotalRevenueAmt	0	38593
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd	0	0
IRS990EZ/TypeOfOrganizationCorpInd	0	X
IRS990EZ/WebsiteAddressTxt	0	JANSEN-DEVRIES.ORG
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt	0	0
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt	0	37621
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt	0	108548
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt	0	24737
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt	0	22428
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt	0	193334
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt	0	834
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt	0	834
IRS990ScheduleA/InvestmentIncomeCYPct	0	0.00000
IRS990ScheduleA/PubliclySupportedOrg509a2Ind	0	X
IRS990ScheduleA/PublicSupportCY509Pct	0	1.00000
IRS990ScheduleA/PublicSupportPY509Pct	0	1.00000
IRS990ScheduleA/PublicSupportTotal509Amt	0	194168
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt	0	0
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt	0	0
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind	0	X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt	0	37621
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt	0	108548
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt	0	24737
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt	0	23262
IRS990ScheduleA/Total509Grp/TotalAmt	0	194168
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt	0	37621
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt	0	108548
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt	0	24737
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt	0	23262
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt	0	194168
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt	0	RESTRICTED
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	0	DESCRIPTION: CREDIT CARD REFUND. AMOUNT: 972.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	1	ACTIVITY CLASSIFICATION: RESEARCH. GRANTEE NAME: STICHTING RADBOUND FONDS. GRANTEE ADDRESS: POSTBUS 9102 NIJMEGAN, NETHERLANDS 6500 HC. DATE OF GIFT: 08/26/24. AMOUNT GIVEN: 50,000.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	2	ACTIVITY CLASSIFICATION: THERAPY. GRANTEE NAME: KEIRA CALLIOPE WHITMORE. GRANTEE ADDRESS: 6111 W. BERENICE AVE CHICAGO, IL 60634. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 500.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	3	ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: TOMAS ZHUNIO. GRANTEE ADDRESS: 8 2ND AVE. OSSINING, NY 10562. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 300.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	4	ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: FINN PERRY. GRANTEE ADDRESS: 144 SHRAPNEL ROAD CANNON HILL, QUEENSLAND, AUSTRALIA. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 200.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	5	ACTIVITY CLASSIFICATION: THERAPY. GRANTEE NAME: MASON MOORE. GRANTEE ADDRESS: 3413 DURELLO CIRCLE RANCHO CORDOVA, CA 95670. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 300.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	6	ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: ARIES LARIMER. GRANTEE ADDRESS: 22 BALLMAN ROAD ETNA, OH 43068. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 500.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	7	ACTIVITY CLASSIFICATION: THERAPY. GRANTEE NAME: MARIA SKRASHCHUK. GRANTEE ADDRESS: TOLBUHINA STREET, 7-1-164 MOSCOW, RUSSIA. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 500.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	8	ACTIVITY CLASSIFICATION: THERAPY. GRANTEE NAME: RAF HAENEN. GRANTEE ADDRESS: ACHTERSCHOUFFERT 3 EYGELSHOVEN, LIMBURG, NETHERLANDS. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 500.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	9	ACTIVITY CLASSIFICATION: THERAPY. GRANTEE NAME: ELOISE WATKINS. GRANTEE ADDRESS: 2286 EAST PASTURE DRIVE ST. GEORGE, UT 84790. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 500.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	10	ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: UZZIAH YNIGUEZ. GRANTEE ADDRESS: 886 W. HAWES AVE FRESNO, CA 93706. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 500.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	11	ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: FREYA CAMPBELL. GRANTEE ADDRESS: 50 WELLINGTON STREET6411 PIERLESS AVE HERTFORD, HERTFORDSHIRE, UNITED KINGDOM. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 200.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	12	ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: JOSHUA CORONADO. GRANTEE ADDRESS: 6411 PIERLESS AVE SUGAR HILL, GA 30518. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 300.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	13	ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: GEORGE HYNES. GRANTEE ADDRESS: 8 CHASE DRIVE ELLESMERE PORT, UNITED KINGDOM. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 200.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	14	ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: BLAKE HAWTHORNE. GRANTEE ADDRESS: 4028 W LEISA SPRINGFIELD, MO 65802. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 300.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	15	ACTIVITY CLASSIFICATION: SUPPORT. GRANTEE NAME: SAMUELE MARTURANO. GRANTEE ADDRESS: VIA ALESSANDRO LUZIO 24 ROMA, ITALY. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 300.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	16	ACTIVITY CLASSIFICATION: THERAPY. GRANTEE NAME: DIONISIOS DONOS. GRANTEE ADDRESS: 6 KOUTSAFTA STREET ATHENS, GREECE. DATE OF GIFT: 01/01/24. AMOUNT GIVEN: 300. TOTAL INCLUDED ON FORM 990-EZ, LINE 10: 55,400.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	17	DESCRIPTION: OFFICE EXPENSE. AMOUNT: 1,466. DESCRIPTION: WEBSITE COSTS. AMOUNT: 158. DESCRIPTION: GIFTS. AMOUNT: 27. DESCRIPTION: SOFTWARE SUBSCRIPTIONS. AMOUNT: 1,146. DESCRIPTION: INSURANCE. AMOUNT: 1,968. DESCRIPTION: TRAVEL. AMOUNT: 9,592. DESCRIPTION: SERVICE FEE. AMOUNT: 185. DESCRIPTION: GLOBAL GENES SUBSCRIPTION. AMOUNT: 1,950. DESCRIPTION: OFFICE OF MASSACHUSETTS. AMOUNT: 36. TOTAL TO FORM 990-EZ, LINE 16: 16,528.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	0	FORM 990-EZ, PART I, LINE 8 - OTHER REVENUE
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	1	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	2	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	3	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	4	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	5	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	6	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	7	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	8	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	9	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	10	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	11	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	12	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	13	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	14	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	15	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	16	FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	17	FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES
TransferPrsnlBnftContractsDecl/DeclarationDesc	0	THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
ReturnHeader/BuildTS	0	2025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd	0	1
ReturnHeader/BusinessOfficerGrp/PersonNm	0	KARA KILROY
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt	0	PRESIDENT/DIRECTOR
ReturnHeader/BusinessOfficerGrp/PhoneNum	0	4133643310
ReturnHeader/BusinessOfficerGrp/SignatureDt	0	2025-11-10
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt	0	THE JANSEN DE VRIES SYNDROME FOUNDATION
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt	0	INC
ReturnHeader/Filer/BusinessNameControlTxt	0	JANS
ReturnHeader/Filer/EIN	0	854064822
ReturnHeader/Filer/PhoneNum	0	4133643310
ReturnHeader/Filer/USAddress/AddressLine1Txt	0	PO BOX 14
ReturnHeader/Filer/USAddress/CityNm	0	NATICK
ReturnHeader/Filer/USAddress/StateAbbreviationCd	0	MA
ReturnHeader/Filer/USAddress/ZIPCd	0	01760
ReturnHeader/IRSResponsiblePrtyInfoCurrInd	0	1
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN	0	043191789
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt	0	MP PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt	0	ONE MONARCH PLACE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm	0	SPRINGFIELD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd	0	MA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd	0	01144
ReturnHeader/PreparerPersonGrp/PhoneNum	0	4137391800
ReturnHeader/PreparerPersonGrp/PreparerPersonNm	0	PATRICK LEARY
ReturnHeader/ReturnTs	0	2025-11-14T11:21:54-06:00
ReturnHeader/ReturnTypeCd	0	990EZ
ReturnHeader/TaxPeriodBeginDt	0	2024-01-01
ReturnHeader/TaxPeriodEndDt	0	2024-12-31
ReturnHeader/TaxYr	0	2024

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