Liabilities / Assets
79th percentile
Higher debt load relative to assets than 79% of similar nonprofits.
EIN 85-4057370 • 501(c)3 • Naperville, IL
Profile
a. The encouragement and support of medical research into causes of CHD2-related disorders, to strive for effective treatment of its physical, intellectual, and emotional manifestations; b. Providing assistance (other than monetary), information, and understanding for and among people with CHD2-related disorders, their families and other concerned individuals and groups; c. Promoting public awareness regarding the nature of the disease and its effects on those affected, their families, and society in general.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
79th percentile
Higher debt load relative to assets than 79% of similar nonprofits.
Liabilities / Revenue
83rd percentile
Higher debt load relative to revenue than 83% of similar nonprofits.
Net Margin
84th percentile
Higher net margin than 84% of similar nonprofits.
Top Officer Pay
Score unavailable
No filing with officer rows is available for this organization yet.
Asset Growth
78th percentile
Faster asset growth than 78% of similar nonprofits.
Revenue Growth
86th percentile
Faster revenue growth than 86% of similar nonprofits.
Assets
Up$269,857
Up $48,819 (+22%) from 2023
Liabilities
$27,543
No earlier filing loaded for comparison.
Net Assets
Up$242,314
Up $21,276 (+9.6%) from 2023
Revenue
Up$250,057
Up $88,169 (+54%) from 2023
Expenses
Up$162,303
Up $65,368 (+67%) from 2023
Net Income
Up$87,754
Up $22,801 (+35%) from 2023
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
unding research and awareness for a rare disease, a mutation in the CHD2 gene.
Our mission is to improve the lives of those affected by CHD2-related disorders by funding research necessary for uncovering a cure
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Rtn Earn Endowment Incm Other Fnds | $154,561 | $242,314 | ▲ $87,753 |
| Investments in Publicly Traded Securities | - | $165,761 | - |
| Savings and Temporary Cash Investments | $164,687 | $93,849 | ▼ $70,838 |
| Cash and Non-Interest-Bearing Accounts | $44,874 | $10,247 | ▼ $34,627 |
| Pd in Cap Srpls Land Bldg Eqp Fund | $0 | $0 | → $0 |
| Cap Stk Tr Prin Current Funds | $0 | $0 | → $0 |
| Total Assets | $209,561 | $269,857 | ▲ $60,296 |
| Liabilities | |||
| Grants Payable | $55,000 | $25,000 | ▼ $30,000 |
| Accounts Payable and Accrued Expenses | - | $2,543 | - |
| Total Liabilities | $55,000 | $27,543 | ▼ $27,457 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $154,561 | $242,314 | ▲ $87,753 |
| Total Liabilities and Net Assets / Fund Balance | $209,561 | $269,857 | ▲ $60,296 |
| Name | Title |
|---|---|
| Brian Broadbent | Co-President and Director |
| Marni Warren | Co-President and Director |
| Carolyn Aronson | Director |
| Christina SanInocencio | Director |
| Stephanie Prince | Director |
| Mike Fasolo | Secretary and Director |
| Christopher Huff | Treasurer and Director |
| Line Item | Amount |
|---|---|
| Other Expenses | $157,303 |
| Total Fundraising Expense | $33,852 |
| Grants and Similar Amounts Paid | $5,000 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Management | $33,333 | $33,333 | $33,334 | $100,000 |
| Travel | $41,876 | - | - | $41,876 |
| Conferences and Meetings | $8,012 | - | - | $8,012 |
| Grants to Domestic Orgs | $5,000 | - | - | $5,000 |
| Office Expenses | - | $4,509 | - | $4,509 |
| Interest | - | $815 | - | $815 |
| Other Expenses | $0 | $374 | $0 | $374 |
| Insurance | - | $314 | - | $314 |
| Total Functional Expenses | $88,221 | $40,230 | $33,852 | $162,303 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“The organization's Form 990 is prepared by the Treasurer. Once the draft is complete, it is reviewed internally by at least one other member of the board, for accuracy and completeness. The draft Form 990 is then circulated to all members of the governing board for review prior to filing. Board members are given the opportunity to ask questions and provide feedback. The Form 990 is filed with the IRS thereafter.”
“Governance documents and the conflict of interest policy are available upon request per the organization's Donor Confidence web page: https://www.curechd2.org/p/donor-confidence. The Form 990 is available via the web site.”
“Contracted Executive Director Laura Marks”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990/Desc | 0 | Coalition to Cure CHD2 hosted a 3 day conference that brought together 25+ participants from the US and Europe, including PhD researchers and clinicians, to collaborate on research and priorities. These events are crucial for enabling scientists to work together and their understanding of the CHD2 gene. |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Co-President and Director |
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| IRS990/FormationYr | 0 | 2020 |
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| IRS990/MissionDesc | 0 | The Coalition to Cure CHD2 (CCC)'s mission is to improve the lives of those affected by CHD2-related disorders by increasing education, building a community, and accelerating research to uncover a cure. |
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| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | Part of the mission of Coalition to Cure CHD2 is to provide patient community education, advocacy and development of the research community. The organization contracted with an Executive Director consultant to work on these initiatives. |
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| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | Other science related collaboration and travel, such as attendance at the American Epilepsy Society conference, Ultragenyx Bootcamp, and Global Genes Rare Drug Development Symposium. The relationships forged at these events enables Coalition to Cure CHD2 to advance our mission of finding a cure. |
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| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 161888 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 193480 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 53635 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 160 |
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| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
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| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
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| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Contracted Executive Director Laura Marks |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The organization's Form 990 is prepared by the Treasurer. Once the draft is complete, it is reviewed internally by at least one other member of the board, for accuracy and completeness. The draft Form 990 is then circulated to all members of the governing board for review prior to filing. Board members are given the opportunity to ask questions and provide feedback. The Form 990 is filed with the IRS thereafter. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Governance documents and the conflict of interest policy are available upon request per the organization's Donor Confidence web page: https://www.curechd2.org/p/donor-confidence. The Form 990 is available via the web site. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part III, Line 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Section B, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Section C, Line 19 |
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| IRS990/SubjectToProxyTaxInd | 0 | 0 |
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| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
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| IRS990/TotalAssetsEOYAmt | 0 | 269857 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 209561 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 269857 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
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| IRS990/TotalEmployeeCnt | 0 | 0 |
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| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 40230 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 88221 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 162303 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 55000 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 27543 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 55000 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 27543 |
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| IRS990/TotalOtherProgSrvcExpenseAmt | 0 | 5000 |
| IRS990/TotalOtherProgSrvcGrantAmt | 0 | 5000 |
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| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/TotalVolunteersCnt | 0 | 26 |
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| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 269857 |
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| IRS990/TravelGrp/TotalAmt | 0 | 41876 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | 0 |
| IRS990/USAddress/AddressLine1Txt | 0 | 302 EAST OGDEN AVENUE |
| IRS990/USAddress/CityNm | 0 | NAPERVILLE |
| IRS990/USAddress/StateAbbreviationCd | 0 | IL |
| IRS990/USAddress/ZIPCd | 0 | 60563 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 7 |
| IRS990/VotingMembersIndependentCnt | 0 | 7 |
| IRS990/WebsiteAddressTxt | 0 | www.curechd2.org |
| IRS990/WhistleblowerPolicyInd | 0 | 0 |
| ReasonableCauseExplanation/ExplanationTxt | 0 | Extension was filed. Missed filing deadlines due to unfamiliarity with IRS requirements. |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Christopher Huff |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Treasurer |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 3129090257 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-10-25 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | COALITION TO CURE CHD2 INC |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | COAL |
| ReturnHeader/Filer/EIN | 0 | 854057370 |
| ReturnHeader/Filer/PhoneNum | 0 | 2143565925 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 302 EAST OGDEN AVENUE |
| ReturnHeader/Filer/USAddress/CityNm | 0 | NAPERVILLE |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | IL |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 60563 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | 1 |
| ReturnHeader/ReturnTs | 0 | 2025-11-05T21:08:37-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
| ReturnHeader/TaxYr | 0 | 2024 |
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