Civic Intelligence

Coalition for Headache and Migraine Patients

EIN 85-3950356 • 501(c)3 • San Rafael, CA

Profile

CHAMP mission is to improve the lives of people with migraine, cluster, and other headache diseases by aligning coalition participants and empowering patient voices.

1001 Lootens Place Suite 200San Rafael, CA 94901

headachemigraine.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

78th percentile

0.09x

Higher debt load relative to assets than 78% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

83rd percentile

0.11x

Higher debt load relative to revenue than 83% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

22nd percentile

-22%

Higher net margin than 22% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

99th percentile

$140,000

Higher top officer pay than 99% of similar nonprofits.

Top officer pay equals 33.9% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

25th percentile

-34%

Faster asset growth than 25% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

12th percentile

-69%

Faster revenue growth than 12% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets78th percentile

Assets

Down

$472,686

Down $243,240 (-34%) from 2023

Liabilities

Down

$44,449

Down $152,319 (-77%) from 2023

Net Assets

Down

$428,237

Down $90,921 (-18%) from 2023

Operations
Liabilities / Revenue83rd percentileNet Margin22nd percentile

Revenue

Down

$413,287

Down $933,224 (-69%) from 2023

Expenses

Down

$504,208

Down $977,869 (-66%) from 2023

Net Income

Up

-$90,921

Up $44,645 (+33%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth25th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$2.0M$1.5M$1.0M$500K$0Assets 2021: $1,163,677Liabilities 2021: $11,153Net Assets 2021: $1,152,5242021Assets 2022: $1,576,320Liabilities 2022: $897,037Net Assets 2022: $679,2832022Assets 2023: $715,926Liabilities 2023: $196,768Net Assets 2023: $519,1582023Assets 2024: $472,686Liabilities 2024: $44,449Net Assets 2024: $428,2372024

Highlighted filing

2024

Assets$472,686
Liabilities$44,449
Net Assets$428,237
Open 2024 Filing

Operations Trend

Revenue Growth12th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2021: $2,095,914Expenses 2021: $1,655,410Net Income 2021: $440,5042021Revenue 2022: $1,333,940Expenses 2022: $1,795,618Net Income 2022: -$461,6782022Revenue 2023: $1,346,511Expenses 2023: $1,482,077Net Income 2023: -$135,5662023Revenue 2024: $413,287Expenses 2024: $504,208Net Income 2024: -$90,9212024

Highlighted filing

2024

Revenue$413,287
Expenses$504,208
Net Income-$90,921
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$472,686
Liabilities
$44,449
Net assets
$428,237
Revenue
$413,287
Expenses
$504,208
Net income
-$90,921
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.47$0.04$0.43$0.41$0.50$0.09
2023Detailed filing. Detailed filing data is available for this year.$0.72$0.20$0.52$1.35$1.48$0.14
2022Detailed filing. Detailed filing data is available for this year.$1.58$0.90$0.68$1.33$1.80$0.46
2021Detailed filing. Detailed filing data is available for this year.$1.16$0.01$1.15$2.10$1.66$0.44
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Sep 12, 2025
Return Version
2024v5.0
Gross Receipts
$413,287
Mission and Program Overview

Mission

CHAMP brings together the most influential patient advocacy organizations and leaders in the area of migraine, cluster, and headache diseases. It enhances communication, coordination, and collaboration to more effectively fight stigma and help people achieve fair access to treatments. Our greatest strength is our members and it is a reflection of how strong people are who live with headache diseases.

CHAMP's mission is to improve the lives of people with migraine, cluster, and other headache diseases by aligning coalition participants and empowering patient voices. CHAMP brings together the most influential patient advocacy organizations and leaders in the area of migraine, cluster and headache diseases. CHAMP enhances communication, coordination, and collaboration to more effectively fight stigma and help people achieve fair access to treatments. Our greatest strength is our coalition participants. They show the strength of people who live with headache diseases.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$633,122$308,303▼ $324,819
Pledges and Grants Receivable-$127,400-
Cash and Non-Interest-Bearing Accounts$73,575$36,983▼ $36,592
Accounts Receivable$5,150--
Prepaid Expenses and Deferred Charges$4,079--
Total Assets$715,926$472,686▼ $243,240
Liabilities
Deferred Revenue$150,000$0▼ $150,000
Accounts Payable and Accrued Expenses$46,768$44,449▼ $2,319
Total Liabilities$196,768$44,449▼ $152,319
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$477,820$303,237▼ $174,583
Net Assets With Donor Restrictions$41,338$125,000▲ $83,662
Total Net Assets Fund Balance$519,158$428,237▼ $90,921
Total Liabilities and Net Assets / Fund Balance$715,926$472,686▼ $243,240
Compensation and Service Providers
Top Officer Pay99th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Susan DoughtyExecutive DirectorFT$140,000$140,000

Board Members and Trustees

NameTitle
William YoungBoard President
Vera GibbBoard Secretary
Isiah LineberryBoard Treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$401,579
Program Service Revenue
$6,215
Investment Income
$181
Other Revenue
$5,312
All Other Contributions
$401,579
Change in Net Assets
$-90,921
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$337,213
Other Expenses$166,995
Total Fundraising Expense$44,625
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$91,543$44,103$6,919$142,565
Current Officers, Directors, Trustees, and Key Employees$70,000$42,000$28,000$140,000
Conferences and Meetings$51,706--$51,706
Fees for Services Accounting-$41,345-$41,345
Other Employee Benefits$19,928$9,154$4,309$33,391
Payroll Taxes$12,883$5,675$2,699$21,257
Information Technology$8,536$7,941$222$16,699
Travel$13,283--$13,283
Office Expenses$686$10,420$37$11,143
Advertising$8,445-$1,599$10,044
Insurance$3,887$1,785$840$6,512
Fees for Services Other$5,120$920-$6,040
All Other Expenses-$5,150-$5,150
Fees for Services Legal-$5,021-$5,021
Payments to Affiliates$52--$52
Total Functional Expenses$286,069$173,514$44,625$504,208
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The Board of Directors reviews Form 990 upon its completion. Once accepted by the board, the return is then filed.”

Form 990, Part VI, Section B, Line 12C

“Conflicts of interest are documented by the board, signed, and reviewed on an annual basis.”

Form 990, Part VI, Section C, Line 19

“Documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Coalition for Headache and Migraine Patients
EIN
85-3950356
Phone
7074693865
Address
1001 Lootens Place Suite 200, San Rafael, CA 94901

Signing Officer

Name
Susan Doughty
Title
Executive Director
Phone
8562616873
Signed
2025-09-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Susan Doughty
Formed
2020
Legal Domicile
CA
Voting Board Members
3
Independent Board Members
3
Employees
4
Volunteers
3

Preparer

Firm
The Charity CFO LLC
Address
1310 Papin Street, Suite 300, Saint Louis, MO 63103
Preparer
Zachary Meyer
Phone
3143901301
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 2

“CHAMP stopped incubation of Migraine at School programming and delivered all program materials to the Danielle Byron Henry Foundation, resulting in a reduction in CHAMP staffing. CHAMP also opted to change the annual in-person Retreat Migraine event to a virtual webinar in an effort to 1) re-evaluate the program for ROI and impact on patient community and 2) recognize shift in funding support for Retreat Migraine programming.”

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IRS990/Form990PartVIISectionAGrp/PersonNm1William Young
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IRS990/ProgSrvcAccomActy2Grp/Desc0In 2024, CHAMP connected more than 80 patients, doctors, advocacy organizations, industry partners and national nonprofit leaders to strategize and partner on headache disease challenges, including diagnosis timeline, barriers to treatment and care, and disease education efforts for patients and healthcare providers. Action items developed out of the 2024 Elevate meetings include plans for headache language into medical exam processes, expanded provider community engagement, and enhanced research engagement and headache representation.
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IRS990/ProgSrvcAccomActy3Grp/Desc0In 2024, Retreat Migraine was produced in a virtual format and continued to be the only conference in the U.S. created by and designed for people living with migraine disease. With a focus on education, advocacy and community-building from the patient-perspective, this experiential event brings together patients and care-givers with leading migraine stakeholders. The event hosted 427 attendees and included 4 patient stories and 5 education sessions.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0The Coalition for Headache and Migraine Patients (CHAMP) engages its 22 coalition leaders in meetings throughout the year to communicate, educate and advocate on behalf of people living with headache diseases. In 2024, we reached an estimated 1.4 million individuals through our collective social media efforts. In addition, the Coalition leveraged Migraine and Headache Awareness Month to continue unified messaging across the headache disease community. The theme, Myth Truth Action, was used to help end myths about headache disease and illuminate the truth of the debilitating symptoms. Outcomes of the campaign included 546 media pickups, 170.3 million audience reach and 45,000 website views.
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IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01346511
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-90921
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt00
IRS990/RentalIncomeOrLossGrp/PersonalAmt00
IRS990/RentalIncomeOrLossGrp/RealAmt00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt06215
IRS990/RoyaltiesRevenueGrp/ExclusionAmt00
IRS990/RoyaltiesRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/RoyaltiesRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0633122
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0308303
IRS990ScheduleA/First5Years170Ind0X
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01310893
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt02068358
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt05082919
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt05493
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0269
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0186
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt02687
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt08635
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt073818
IRS990ScheduleA/OtherIncome170Grp/TotalAmt00
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IRS990ScheduleA/SubstantialContributorsTotAmt03586400
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01310893
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt02068358
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt05082919
IRS990ScheduleA/TotalSupportAmt05091554
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IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0CHAMP stopped incubation of Migraine at School programming and delivered all program materials to the Danielle Byron Henry Foundation, resulting in a reduction in CHAMP staffing. CHAMP also opted to change the annual in-person Retreat Migraine event to a virtual webinar in an effort to 1) re-evaluate the program for ROI and impact on patient community and 2) recognize shift in funding support for Retreat Migraine programming.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The Board of Directors reviews Form 990 upon its completion. Once accepted by the board, the return is then filed.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Conflicts of interest are documented by the board, signed, and reviewed on an annual basis.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Documents are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part III, Line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section C, Line 19
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IRS990/SignificantNewProgramSrvcInd01
IRS990/StatesWhereCopyOfReturnIsFldCd0CA
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IRS990/SubjectToProxyTaxInd00
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IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
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IRS990/TotalEmployeeCnt04
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IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0286069
IRS990/TotalFunctionalExpensesGrp/TotalAmt0504208
IRS990/TotalGrossUBIAmt00
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IRS990/TotalLiabilitiesEOYAmt044449
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IRS990/TotalLiabilitiesGrp/EOYAmt044449
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IRS990/TotalOtherCompensationAmt00
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IRS990/TotalOtherProgSrvcGrantAmt00
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IRS990/TotalVolunteersCnt03
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IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ProgramServicesAmt013283
IRS990/TravelGrp/TotalAmt013283
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt02041 East St
IRS990/USAddress/AddressLine2Txt0PMB 222
IRS990/USAddress/CityNm0Concord
IRS990/USAddress/StateAbbreviationCd0CA
IRS990/USAddress/ZIPCd094520
IRS990/VotingMembersGoverningBodyCnt03
IRS990/VotingMembersIndependentCnt03
IRS990/WebsiteAddressTxt0https://headachemigraine.org/
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0Susan Doughty
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Executive Director
ReturnHeader/BusinessOfficerGrp/PhoneNum08562616873
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-09-12
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0COALITION FOR HEADACHE AND MIGRAINE PATIENTS
ReturnHeader/Filer/BusinessNameControlTxt0COAL

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