Liabilities / Assets
Score unavailable
Liabilities-to-assets requires both liabilities and assets on the latest valid filing.
EIN 85-2782466 • 501(c)3 • Newport Beach, CA
Profile
To promote education community and support for individuals and families impacted by familial Alzheimers disease FAD also known as autosomal dominant Alzheimers disease.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
Score unavailable
Liabilities-to-assets requires both liabilities and assets on the latest valid filing.
Liabilities / Revenue
Score unavailable
Liabilities-to-revenue requires both liabilities and revenue on the latest valid filing.
Net Margin
97th percentile
Higher net margin than 97% of similar nonprofits.
Top Officer Pay
81st percentile
Higher top officer pay than 81% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Assets
$104,527
No earlier filing loaded for comparison.
Liabilities
-
No earlier filing loaded for comparison.
Net Assets
$104,527
No earlier filing loaded for comparison.
Revenue
$75,868
No earlier filing loaded for comparison.
Expenses
$6,982
No earlier filing loaded for comparison.
Net Income
$68,886
No earlier filing loaded for comparison.
Most recent year
2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.
To promote education community and support for individuals and families impacted by familial Alzheimers disease FAD also known as autosomal dominant Alzheimers disease.
| Description | Grants | Expenses |
|---|---|---|
| Community: We hosted a number of community-building events including online workshops with experts about different aspects of the disease such as a Mental Health Managing Grief 3-Part Series and Lifestyle Interventions Q & A with Dr. Rudi Tanzi; 5-40 attendees per online event and co-hosted an in-person event for the Dominantly Inherited Alzheimers Disease Family Conference which convenes ~150 researchers and ~150 FAD family members for a day of research updates and patient stories. The conference was held on July 27 2024 in Philadelphia. We hosted an evening reception for family members to have more time to connect in a more informal setting with 80 in attendance. | $0 | $16,693 |
| Support: We hosted three monthly online support groups for people who are at-risk asymptomatic for developing FAD symptomatic with FAD or caregivers of someone with FAD. We launched a fourth monthly support group for early stage caregivers after getting feedback from the community that they would like a space specifically for caregivers caring for people in the early stages of FAD with 3-15 people in attendance per group. We also hosted an International online support group for all community members in partnership with Rare Dementia UK and Rare Dementia Canada with 65 people in attendance. | $0 | $2,240 |
| Education: We provided a variety of online education and resources for patients and families impacted by FAD including distributing a monthly newsletter 295 recipients with an average open rate of 190 launching an online forum with dedicated disease-specific topic discussion rooms hosting a website with disease information and disease journey guides 18 articles in total along with recordings of interviews with experts 6 in total and community members 4 in total on topics of interest such as genetic testing clinical trial participation legal and financial planning etc.. | $0 | $799 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Lindsay Hohsfield | Founder Executive Director | PT | $0 | - | - |
| Alicia Brasch | Co-Founder | - | $0 | - | - |
| Martin Reiswig | Co-Founder | - | $0 | - | - |
“| Other Expenses:, Amount:| Education Training and Conferences, $63| Insurance, $654| Memberships and subscriptions, $745| Office supplies, $78| Software and apps, $1575| Bank fees and service charges, $75|”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | To promote education community and support for individuals and families impacted by familial Alzheimers disease FAD also known as autosomal dominant Alzheimers disease. |
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| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | Education: We provided a variety of online education and resources for patients and families impacted by FAD including distributing a monthly newsletter 295 recipients with an average open rate of 190 launching an online forum with dedicated disease-specific topic discussion rooms hosting a website with disease information and disease journey guides 18 articles in total along with recordings of interviews with experts 6 in total and community members 4 in total on topics of interest such as genetic testing clinical trial participation legal and financial planning etc.. |
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| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 2 | Support: We hosted three monthly online support groups for people who are at-risk asymptomatic for developing FAD symptomatic with FAD or caregivers of someone with FAD. We launched a fourth monthly support group for early stage caregivers after getting feedback from the community that they would like a space specifically for caregivers caring for people in the early stages of FAD with 3-15 people in attendance per group. We also hosted an International online support group for all community members in partnership with Rare Dementia UK and Rare Dementia Canada with 65 people in attendance. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | | Other Expenses:, Amount:| Education Training and Conferences, $63| Insurance, $654| Memberships and subscriptions, $745| Office supplies, $78| Software and apps, $1575| Bank fees and service charges, $75| |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part I, line 16 |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
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| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Founder Executive Director |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-06-11 |
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| ReturnHeader/Filer/InCareOfNm | 0 | % Lindsay A Hohsfield |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 887 W 15th Street APT A203 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Newport Beach |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | CA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 92663 |
| ReturnHeader/ReturnTs | 0 | 2025-06-10T15:35:26-04:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2023-10-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-09-30 |
| ReturnHeader/TaxYr | 0 | 2023 |
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