Civic Intelligence

Alk Positive Inc

EIN 85-2221062 • 501(c)3 • Atlanta, GA

Profile

We are a patient-driven organization seeking a cure and working to improve patients' quality of life and life expectancy worldwide.

6595 Roswell Rd G2310Atlanta, GA 30238

www.alkpositive.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

24th percentile

0.02x

Higher debt load relative to assets than 24% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

20th percentile

0.02x

Higher debt load relative to revenue than 20% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

89th percentile

50%

Higher net margin than 89% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

79th percentile

20%

Faster asset growth than 79% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

84th percentile

43%

Faster revenue growth than 84% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets24th percentile

Assets

Up

$5,617,504

Up $917,266 (+20%) from 2023

Liabilities

Down

$92,939

Down $918,504 (-91%) from 2023

Net Assets

Up

$5,524,565

Up $1,835,770 (+50%) from 2023

Operations
Liabilities / Revenue20th percentileNet Margin89th percentile

Revenue

Up

$3,723,123

Up $1,114,460 (+43%) from 2023

Expenses

Down

$1,878,499

Down $1,515,610 (-45%) from 2023

Net Income

Up

$1,844,624

Up $2,630,070 (+335%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth79th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0Assets 2021: $3,416,376Liabilities 2021: $2,585Net Assets 2021: $3,413,7912021Assets 2022: $4,507,425Liabilities 2022: $33,184Net Assets 2022: $4,474,2412022Assets 2023: $4,700,238Liabilities 2023: $1,011,443Net Assets 2023: $3,688,7952023Assets 2024: $5,617,504Liabilities 2024: $92,939Net Assets 2024: $5,524,5652024

Highlighted filing

2024

Assets$5,617,504
Liabilities$92,939
Net Assets$5,524,565
Open 2024 Filing

Operations Trend

Revenue Growth84th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$4.0M$2.0M$0-$2.0MRevenue 2021: $1,793,039Expenses 2021: $104,914Net Income 2021: $1,688,1252021Revenue 2022: $1,602,191Expenses 2022: $541,741Net Income 2022: $1,060,4502022Revenue 2023: $2,608,663Expenses 2023: $3,394,109Net Income 2023: -$785,4462023Revenue 2024: $3,723,123Expenses 2024: $1,878,499Net Income 2024: $1,844,6242024

Highlighted filing

2024

Revenue$3,723,123
Expenses$1,878,499
Net Income$1,844,624
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,617,504
Liabilities
$92,939
Net assets
$5,524,565
Revenue
$3,723,123
Expenses
$1,878,499
Net income
$1,844,624
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$5.62$0.09$5.52$3.72$1.88$1.84
2023Detailed filing. Detailed filing data is available for this year.$4.70$1.01$3.69$2.61$3.39$0.79
2022Detailed filing. Detailed filing data is available for this year.$4.51$0.03$4.47$1.60$0.54$1.06
2021Detailed filing. Detailed filing data is available for this year.$3.42$0.00$3.41$1.79$0.10$1.69
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jul 23, 2025
Return Version
2024v5.2
Gross Receipts
$3,887,002
Mission and Program Overview

Mission

To improve the life expectancy and quality of life for alk-positive cancer patients worldwide. As an online patient-led orgaization in over 70 countries, we offer patient research, education, resources and awareness.

We are a patient-driven organization seeking a cure and working to (continued on schedule o)improve patients' quality of life and life expectancy worldwide.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$2,721,557$3,005,670▲ $284,113
Cash and Non-Interest-Bearing Accounts$1,431,087$1,547,913▲ $116,826
Pledges and Grants Receivable$146,463$588,902▲ $442,439
Prepaid Expenses and Deferred Charges$26,224$51,071▲ $24,847
Investments in Publicly Traded Securities$24,893$8,766▼ $16,127
Accounts Receivable$2,327$4,000▲ $1,673
Intangible Assets$3,312$3,312→ $0
Total Assets$4,700,238$5,617,504▲ $917,266
Other Assets Total$344,375$407,870▲ $63,495
Liabilities
Grants Payable$875,000--
Accounts Payable and Accrued Expenses$136,443$92,939▼ $43,504
Total Liabilities$1,011,443$92,939▼ $918,504
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,463,997$3,576,304▲ $1,112,307
Net Assets With Donor Restrictions$1,224,798$1,948,261▲ $723,463
Total Net Assets Fund Balance$3,688,795$5,524,565▲ $1,835,770
Total Liabilities and Net Assets / Fund Balance$4,700,238$5,617,504▲ $917,266

Asset Categories

AssetBook ValueDepreciationBasis
Other Assets Org$300,000--
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Ken CulverChief Scientific OfficerFT$197,072$6,095$203,167
Suzanne HoussainyExecutive DirectorFT$85,600$1,050$86,650

Board Members and Trustees

NameTitle
Kirk SmithPresident
Nancee ProsnatiVice President
Amanda Bialack-stewartBoard Member
Duncan PreeceBoard Member
Greg WhenBoard Member
Jeff SturmBoard Member
March MuskavitchBoard Member
Patty SaccentiBoard Member
Summer FarmanBoard Member
Teresa WiantBoard Member
Yvonne DiazBoard Member
Christina WeberSecretary
JOHN O'SULLIVANTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$3,574,743
Program Service Revenue
$8,938
Investment Income
$129,332
Other Revenue
$10,110
All Other Contributions
$3,574,743
Change in Net Assets
$1,844,624

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded7$151,966Fair Market Value
Total Noncash Contributions7$151,966-

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,723,123
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-8,854
Total Revenue per Audited Statements
$3,714,269
Total Revenue per Form 990
$3,723,123
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$852,344
Salaries, Compensation, and Employee Benefits$513,422
Other Expenses$512,733
Total Fundraising Expense$85,950
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$852,344--$852,344
Current Officers, Directors, Trustees, and Key Employees$224,333$20,952$44,532$289,817
Other Salaries and Wages$127,982$11,953$25,405$165,340
Payroll Taxes$37,059$3,461$7,357$47,877
Fees for Services Accounting-$47,457-$47,457
Travel$40,240--$40,240
Fees for Services Other$33,432$4,024$376$37,832
All Other Expenses$22,641$7,281$1,444$31,366
Information Technology$18,889$3,487$4,386$26,762
Other Expenses$8,676$247$253$9,176
Conferences and Meetings$7,557$42-$7,599
Other Employee Benefits$4,332$405$860$5,597
Pension Plan Contributions$3,709$346$736$4,791
Insurance$4,437$217$107$4,761
Interest-$463-$463
Total Functional Expenses$1,662,869$129,680$85,950$1,878,499

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,878,499
Total Expenses per Audited Statements$1,878,499
Total Expenses per Form 990$1,878,499
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Commonwealth Cancer ConsortiumCambridge, MA-Research Agreement$500,000
Ohio State University FoundationColumbus, OH-Research Agreement$274,620
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The board will review the form 990 prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“Board members sign a copy of the conflict of interest form annually.”

Form 990, Part VI, Section B, Line 15A

“Compensation for the executive director was based on research online, committee and board discussions, and discussions with the executive recruiting company.”

Form 990, Part VI, Section C, Line 19

“Governing and financial documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Alk Positive Inc
EIN
85-2221062
Phone
6785769913
Address
6595 ROSWELL RD G2310, ATLANTA, GA 30238

Signing Officer

Name
Kirk Smith
Title
President
Phone
6785769913
Signed
2025-07-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kirk Smith
Formed
2020
Legal Domicile
De
Voting Board Members
12
Independent Board Members
12
Employees
5
Volunteers
56

Preparer

Firm
Ciuni & Panichi Inc
Address
25201 CHAGRIN BLVD 200, CLEVELAND, OH 44122-5683
Preparer
Michael B Klein CPA
Phone
2168317171
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The process has not changed from the prior year.”

Raw XML AppendixShowing 400 of 593 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0WE ARE A PATIENT-DRIVEN ORGANIZATION SEEKING A CURE AND WORKING TO (CONTINUED ON SCHEDULE O)IMPROVE PATIENTS' QUALITY OF LIFE AND LIFE EXPECTANCY WORLDWIDE.
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IRS990/Desc0ALK POSITIVE, INC. IS A PATIENT DRIVEN 501(C)(3) NONPROFIT CORPORATION PROVIDING SUPPORT, EMPATHY, AND RESEARCH FUNDING TO CHANGE THE FUTURE FOR ALK-POSITIVE CANCER PATIENTS. ALK-POSITIVE CANCER IS ESTIMATED TO OCCUR IN APPROXIMATELY 100,000 PATIENTS WORLDWIDE EVERY YEAR. ALTHOUGH THE VAST MAJORITY OF CASES OCCUR AS LUNG CANCER, IT CAN ALSO ORIGINATE IN MANY OTHER ORGANS. THE MEDIAN AGE FOR ALK-POSITIVE PATIENTS AT DIAGNOSIS IS ABOUT 50 YEARS WITH MANY IN THEIR FORTIES, THIRTIES AND EVEN YOUNGER. APPROXIMATELY 55% OF ALK-POSITIVE PATIENTS ARE FEMALE AND THE DISEASE OCCURS WITH PEOPLE OF ALL RACES.(CONTINUED ON SCHEDULE O)IN 2017, SOME ALK-POSITIVE CANCER PATIENTS AND CAREGIVERS FORMED THE OUTREACH MANAGEMENT GROUP TO PARTNER WITH THE LUNGEVITY FOUNDATION IN ORDER TO RAISE FUNDS FOR CANCER RESEARCH. IN 2018, THE PARTNERSHIP WAS FORMALIZED INTO A JOINT FUNDRAISING AND RESEARCH AGREEMENT WITH BOTH LUNGEVITY AND THE GO2 FOUNDATION FOR LUNG CANCER. FROM 2017 TO 2021, THE PARTNERSHIPS GENERATED OVER $4.7M IN CONTRIBUTIONS AND AWAREDED $2.8M IN TRANSLATIONAL RESEARCH GRANTS WITH THE PURPOSE OF IMPROVING ALK-POSITIVE CANCER PATIENT OUTCOMES. BY MARCH 2021, THE OUTREACH MANAGEMENT GROUP HAD INCORPORATED AND WAS RECOGNIZED BY THE IRS AS A 501(C)(3) NON PROFIT ORGANIZATION CALLED ALK POSITIVE INC. DURING 2021-22 ANOTHER $3.4M IN CONTRIBUTIONS WAS GENEROUSLY RAISED WITH RESEARCH GRANTS TOTALING $2.6M AWARDED. ALSO IN 2022, THE FIRST TWO EMPLOYEES WERE HIRED - A DIRECTOR OF RESEARCH AND CLINICAL AFFAIRS AND AN EXECUTIVE DIRECTOR.BY FAR, THE MOST EFFECTIVE TREATMENTS FOR ALK-POSITIVE CANCER ARE THE ROAL ALK TYROSINE KINASE INHIBITORS (TKI'S). THESE ARE NOW FDA APPROVED IN 1ST, 2ND AND 3RD GENERATION VERSIONS, EACH GENERATION MORE EFFECTIVE THAN THE PREVIOUS. HOWEVER, WHILE TKI'S HAVE IMPROVED MEDIAN OVERALL SURVIVAL FROM A FEW MONTHS TO MANY YEARS, ALK-POSITIVE CANCERS INEVITABLY MUTATE AND BECOME RESISTANT TO ALL TKI'S. THE ORGANIZATION CREATED THE RESEARCH REVIEW PANEL (COMMITTEE) COMPRISING VOLUNTEER ALK-POSITIVE CANCER PATIENTS, CAREGIVERS AND WORLD-RENOWNED SCIENTIFIC AND RESEARCH EXPERTS TO HELP REVIEW AND AWARD THE MOST PROMISING ALK-POSITIVE CANCER RESEARCH PROJECTS TO IMPROVE PATIENT OUTCOMES. IN 2022, THIS RESERACH TEAM WAS EXPANDED TO:-RESEARCH ACCELERATION COMMITTEE: ACCELERATE ACADEMIC AND BIOTECH RESEARCH THAT LEADS TO NEW THERAPIES FOR ALK-POSITIVE PATIENTS, INCLUDING IMMUNOTHERAPIES AND COMBINATION THERAPIES, AND NEW CLINICAL TRIALS, VIA COLLABORATION WITH ACADEMIA, INDUSTRY AND VENTURE CAPITAL.-CLINICAL TRIALS COMMITTEE: COLLABORATE WITH ACADEMIA AND INDUSTRY TO DEVELOP NEW FRAMEWORKS FOR CLINICAL TRIALS AND TO ACCELERATE CREATION, EFFECTIVE ENROLLMENT AND SUCCESSFUL READOUTS FOR CLINICAL TRIALS INVOLVING AND BENEFICIAL TO ALK-POSITIVE PATIENTS.-TRANSLATIONAL INVESTIGATIONS GROUP: FRAM AND IMPLEMENT AN INTERNAL ALK-POSITIVE RESEARCH PROGRAM THAT ADDRESSES KEY QUESTIONS FOR WHICH ANSWERS WILL ENABLE THE DEVELOPMENT OF NEW ALK THERAPIES, NIOMARKS OF TREATMENT RESPONSE AND ACCELERATED CLINICAL TRIALS.
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