Civic Intelligence

Mog Project Inc.

990 • Fiscal year 2023 • EIN 85-0767017

Jan 01, 2023 to Dec 31, 2023 • Filed on Nov 04, 2024

Organization Profilewww.mogproject.org
19414 Haven White CtGaithersburg, MD 20879

(301) 963-5911

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Liabilities / Revenue

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Net Margin

58th percentile

7.5%

Higher net margin than 58% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Top Officer Pay

78th percentile

$0

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Asset Growth

66th percentile

13%

Faster asset growth than 66% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Revenue Growth

90th percentile

99%

Faster revenue growth than 90% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets58th percentile

Assets

Up

$162,470

Up $18,080 (+13%) from 2022

Net Assets

Up

$162,470

Up $18,080 (+13%) from 2022

Liabilities

Flat

$0

Flat from 2022

Revenue And Expenses
Liabilities / Revenue59th percentileNet Margin58th percentile

Revenue

Up

$242,019

Up $120,500 (+99%) from 2022

Expenses

Up

$223,939

Up $179,825 (+408%) from 2022

Net Income

Down

$18,080

Down $59,325 (-77%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth66th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$200K$150K$100K$50K$0Assets 2021: $66,985Liabilities 2021: $0Net Assets 2021: $66,9852021Assets 2022: $144,390Liabilities 2022: $0Net Assets 2022: $144,3902022Assets 2023: $162,470Liabilities 2023: $0Net Assets 2023: $162,4702023Assets 2024: $196,262Liabilities 2024: $53,625Net Assets 2024: $142,6372024

Highlighted filing

2023

Assets$162,470
Liabilities$0
Net Assets$162,470
Open 2023 Filing

Operations Trend

Revenue Growth90th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2021: $73,190Expenses 2021: $9,149Net Income 2021: $64,0412021Revenue 2022: $121,519Expenses 2022: $44,114Net Income 2022: $77,4052022Revenue 2023: $242,019Expenses 2023: $223,939Net Income 2023: $18,0802023Revenue 2024: $223,260Expenses 2024: $223,436Net Income 2024: -$1762024

Highlighted filing

2023

Revenue$242,019
Expenses$223,939
Net Income$18,080
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Nov 4, 2024
Return Version
2023v5.0
Gross Receipts
$242,665
Mission and Program Overview

Mission

To raise awareness, educate doctors, patients and caregivers, advance research through expert collaboration and fundraising, and provide support and advocacy for the MOGAD community.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$144,390$81,889▼ $62,501
Savings and Temporary Cash Investments$0$80,581▲ $80,581
Accounts Receivable$0$0→ $0
Other Notes and Loans Receivable, Net$0$0→ $0
Pledges and Grants Receivable$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Investments in Publicly Traded Securities$0$0→ $0
Land, Buildings, and Equipment, Net$0--
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Prepaid Expenses and Deferred Charges$0$0→ $0
Total Assets$144,390$162,470▲ $18,080
Other Assets Total$0$0→ $0
Liabilities
Accounts Payable and Accrued Expenses$0$0→ $0
Grants Payable$0$0→ $0
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Other Liabilities$0--
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$144,390$162,470▲ $18,080
Net Assets With Donor Restrictions$0$0→ $0
Total Net Assets Fund Balance$144,390$162,470▲ $18,080
Total Liabilities and Net Assets / Fund Balance$144,390$162,470▲ $18,080
Compensation and Service Providers
Top Officer Pay78th percentile

Board Members and Trustees

NameTitle
Amy EdniePresident
Andrea MitchellDirector
Jen GouldDirector
Peter FontanezDirector/Treasurer
Julia LefelarExecutive Director
Revenue and Support

Revenue Composition

Contributions and Grants
$237,314
Program Service Revenue
$0
Investment Income
$4,257
Other Revenue
$448
All Other Contributions
$237,314
Change in Net Assets
$18,080
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$173,922
Grants and Similar Amounts Paid$50,017
Total Fundraising Expense$3,363
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
All Other Expenses$140,141$0$0$140,141
Foreign Grants$25,017--$25,017
Grants to Domestic Orgs$25,000--$25,000
Travel$3,131$12,424$0$15,555
Information Technology$8,904$75-$8,979
Advertising$497$0$3,363$3,860
Conferences and Meetings$2,769$0$0$2,769
Insurance$0$1,310$0$1,310
Office Expenses$0$586$0$586
Other Expenses$200$204$0$404
Total Functional Expenses$205,659$14,917$3,363$223,939
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Northwestern UniversityEvanston, IL-Steven Miller, PhD and team were awarded a grant to do a study to: (1) determine the effects of preventative tolerance induced by the PLG nanoparticles encapsulating the rhMOG protein versus the immunodominant MOG35-55 peptide on clinical rhMOG-EAE and on the resulting MOG-specific autoimmune responses. (2) To determine the effects of therapeutic tolerance induced by PLG nanoparticles encapsulating rhMOG protein versus the immunodominant MOG35-55 peptide on clinical rhMOG-EAE and accompanying MOG-specific immune responses. Future Objective: It is anticipated that the results will propel future human clinical testing of their novel PLG nanoparticle immune tolerance-inducing platform for treatment on MOGAD and other autoimmune disease.$25,000

International Summary

Offices
0
Employees
0
Spending
$195,017

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland and Greenland)FundraisingF-HoffmanN-La Roche gave us sponsorship funding for the MOGAD Summit in Boston in September of 2023. In addition they sponsored 3 podcasts (MOGCasts) in 2023.00$85,000
Europe (including Iceland and Greenland)FundraisingUCB Biopharma sponsored the MOGAD Summit in Boston in September of 2023. In addition, they sponsored 3 of our podcasts (MOGCasts) in 2023.00$85,000
South AsiaGrantmakingFabienne Brilot from University of Sydney, Australia was awarded our Apollo Grant for $25K as part of our Research for Rare Program. This grant paid for a pediatric study to examine the use of the P4-epitope in predicting relapsing MOGAD.00$25,017
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Gaming Direct Expenses$0
Gaming Gross Income$0
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“The President and Executive Director are family members.”

Form 990, Part VI, Section B, Line 11B

“The completed form is is initially reviewed by our Finance Director and Executive Director. Once the review is complete and any changes needed are made, the form is emailed to our President and Treasurer for review. Once that review is completed, the form is submitted.”

Form 990, Part VI, Section C, Line 19

“We provide the forms from each tax year on our website here: https://mogproject.org/donate/ Conflict of interest policy is available upon request by contacting the organization at [email protected]”

Filing and Contact Details

Filer

Filer Name
Mog Project Inc
EIN
85-0767017
Phone
3019635911
Address
19414 Haven White Ct, Gaithersburg, MD 20879
Doing Business As
The MOG Project

Signing Officer

Name
Julia Lefelar
Title
Executive Director
Phone
3019285491
Signed
2024-11-04

Organization Details

Principal Officer
Julia Lefelar
Formed
2020
Legal Domicile
Md
Voting Board Members
5
Independent Board Members
0
Employees
0
Volunteers
40
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 2

“Please see Form 990, Part III, Line 4 for a full description of Program services.”

Form 990, Part IX, Line 24E

“These expenses were related to the MOGAD Summit in Boston as part of our program to devote funding to medical professional education and research collaboration. These epenses also included video production of a Q&A Panel for patient education.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0Education for MOGAD patients/caregivers and medical professionals is one of the pillars of our strategic plan. Not only do we create these resources, but The MOG Project maintains a website providing patients, caregivers and healthcare professionals in the MOGAD community these educational materials vetted by expert medical professionals, access to research studies by medical institutions and The MOG Project itself, clinical trial information, support group information and registration, as well as community outreach information. In order to provide patients with the latest in the continually changing research in MOGAD, we use the website to provide quick access to podcasts from our YouTube channel and links to information from our collaborative partners. The website also supports an online store, providing awareness merchandise for purchase. In addition, the website provides blog space for patient stories, podcast summaries, news, announcements and events. With MOGAD being a rare neuroimmune condition, patients are unlikely to meet another patient in their area. This website is their portal to finding others with the disease for support and learning about the medical professionals who treat the disease aas well as gaining an education on the disorder. We are commited to these patients and plan on maintaining the website for years to come. We benefit over 5000 people who have found our website worldwide, mostly in the US. In 2023, we added a video-based FAQ page and more professional presentations to educate patients. We also did more work on accessibility and website SEO improvements using a professional web developer.
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IRS990/Form990PartVIISectionAGrp/PersonNm2Peter Fontanez
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IRS990/MissionDesc0To raise awareness, educate doctors, patients and caregivers, advance research through expert collaboration and fundraising, and provide support and advocacy for the MOGAD community.
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IRS990/OtherExpensesGrp/Desc0990 Filing and State Filing
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IRS990/PrincipalOfficerNm0Julia Lefelar
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IRS990/ProgSrvcAccomActy2Grp/Desc0We were the major financial sponsor for the 2023 MOGAD Summit in Boston, MA for the Neuroimmunology Clinic and Research Laboratory at Massachusetts General Hospital. This was a medical education and research sharing meeting designed to bring together the MOGAD research community to share and learn about recent findings from each other. This involved, travel, venue, meals and other expenses related to the summit.
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IRS990/ProgSrvcAccomActy3Grp/Desc0The MOG Project provides research grants to centers of excellence in MOGAD research that work on understanding of this rare neuroimmune disorder. The organization does this through the Research for Rare program which consists of two types of grant offerings: The Apollo grant and the Accelerator Grant. The Apollo Grant provides funding to develop hypotheses and gather seed/pilot data to support and strengthen the submission of a future same subject proposal allowing investigators to better secure greater funding from larger organizations. Our grants are intended to support the advancement of medical knowledge and understanding of this rare disease leading to better diagnosis, targeted treatments, and eventually a cure. The Accelerator Grant provides for architecture, infrastructure, and technology funding to be used in support of any future MOGAD research projects. These grants are awarded as part of a vigorous RFA process similar to that done in reputable institutions such as NIH.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0We attend various conferences to learn about MOGAD, get researchers interested in MOGAD research and to teach patients about the disease. There are travel-related costs, conference registration and booth fees associated with these activities.
IRS990/ProgSrvcAccomActyOtherGrp/Desc1We provide awareness gear, printed patient information (brochures and flyers) to MOGAD patients upon request and at all external venues visited. The website also offers MOGAD gear which helps bring our patient community together, raises funds for some of our administrative costs, and brings awareness to the disease. We offer a variety of MOG-related merchandise and ship to customers who order from our website. There is some cost in creative fees for the design of the merchandise as well as all that goes into selling the gear.
IRS990/ProgSrvcAccomActyOtherGrp/Desc2We currently have 3 zoom-based support groups often visited by expert medical professionals in MOGAD. Our support group leaders volunteer their time to help patients connect to the care they need bring MOGAD patients and caregivers together to share advice based on their personal experience with the disease. We do not offer medical advice during these sessions, but patients can learn how to self-advocate to receive the best care possible from their own medical team, including what questions to ask their doctor and about the latest news The MOG Project has to offer concerning research and new findings in the MOGAD Community of researchers. 300 people are regularly signed up for our yearly sessions. Our expert visitations by MOGAD clinicians are on a volunteer basis and occur quarterly throughout the year for all 4 support groups.
IRS990/ProgSrvcAccomActyOtherGrp/Desc3The MOG Project affects research by offering clinicians and researchers patient survey data from MOGAD patient volunteers around the world. These surveys target key areas that ignite ideas and propel research forward. We use an IRB approved survey tool and incur some expenses in creating data for researchers.
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Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$162,470
Liabilities
$0
Net assets
$162,470
Revenue
$242,019
Expenses
$223,939
Net income
$18,080
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.96$0.54$1.43$2.23$2.23$0.00
2023Detailed filing. Detailed filing data is available for this year.$1.62$0.00$1.62$2.42$2.24$0.18
2022Detailed filing. Detailed filing data is available for this year.$1.44$0.00$1.44$1.22$0.44$0.77
2021Detailed filing. Detailed filing data is available for this year.$0.67$0.00$0.67$0.73$0.09$0.64