Civic Intelligence

Shwachman-Diamond Syndrome Alliance Inc

EIN 84-4654297 • 501(c)3 • Woburn, MA

Profile

Dedicated to building a world where Shwachman-Diamond Syndrome (SDS) is curable.

PO Box 2441Woburn, MA 01888

www.sdsalliance.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

39th percentile

0.00x

Higher debt load relative to assets than 39% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

46th percentile

0.01x

Higher debt load relative to revenue than 46% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

3rd percentile

-168%

Higher net margin than 3% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

96th percentile

$212,500

Higher top officer pay than 96% of similar nonprofits.

Top officer pay equals 159.3% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

11th percentile

-28%

Faster asset growth than 11% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

5th percentile

-54%

Faster revenue growth than 5% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets39th percentile

Assets

Down

$575,441

Down $222,237 (-28%) from 2023

Liabilities

Up

$1,255

Up $1,255 from 2023

Net Assets

Down

$574,186

Down $223,492 (-28%) from 2023

Operations
Liabilities / Revenue46th percentileNet Margin3rd percentile

Revenue

Down

$133,392

Down $155,422 (-54%) from 2023

Expenses

Up

$356,884

Up $230,420 (+182%) from 2023

Net Income

Down

-$223,492

Down $385,842 (-238%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth11th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2021: $401,345Liabilities 2021: $0Net Assets 2021: $401,3452021Assets 2022: $635,328Liabilities 2022: $0Net Assets 2022: $635,3282022Assets 2023: $797,678Liabilities 2023: $0Net Assets 2023: $797,6782023Assets 2024: $575,441Liabilities 2024: $1,255Net Assets 2024: $574,1862024

Highlighted filing

2024

Assets$575,441
Liabilities$1,255
Net Assets$574,186
Open 2024 Filing

Operations Trend

Revenue Growth5th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$200K$0-$200K-$400KRevenue 2021: $387,568Expenses 2021: $1,811Net Income 2021: $385,7572021Revenue 2022: $336,751Expenses 2022: $102,768Net Income 2022: $233,9832022Revenue 2023: $288,814Expenses 2023: $126,464Net Income 2023: $162,3502023Revenue 2024: $133,392Expenses 2024: $356,884Net Income 2024: -$223,4922024

Highlighted filing

2024

Revenue$133,392
Expenses$356,884
Net Income-$223,492
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$575,441
Liabilities
$1,255
Net assets
$574,186
Revenue
$133,392
Expenses
$356,884
Net income
-$223,492
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$5.75$0.01$5.74$1.33$3.57$2.23
2023Detailed filing. Detailed filing data is available for this year.$7.98$0.00$7.98$2.89$1.26$1.62
2022Detailed filing. Detailed filing data is available for this year.$6.35$0.00$6.35$3.37$1.03$2.34
2021Detailed filing. Detailed filing data is available for this year.$4.01$0.00$4.01$3.88$0.02$3.86
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 10, 2025
Return Version
2024v5.2
Gross Receipts
$133,392
Mission and Program Overview

Mission

Dedicated to building a world where Shwachman-Diamond Syndrome (SDS) is curable.

Shwachman-Diamond Syndrome Alliance (SDS Alliance) is a US-based nonprofit organization serving the global SDS community to improve and save the lives of people affected by SDS by focusing on research and therapy development.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$797,414$575,441▼ $221,973
Accounts Receivable$264--
Total Assets$797,678$575,441▼ $222,237
Liabilities
Accounts Payable and Accrued Expenses-$1,255-
Total Liabilities$0$1,255▲ $1,255
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$797,678$574,186▼ $223,492
Total Net Assets Fund Balance$797,678$574,186▼ $223,492
Total Liabilities and Net Assets / Fund Balance$797,678$575,441▼ $222,237
Compensation and Service Providers
Top Officer Pay96th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Eszter HarsCEOFT$170,000$42,500$212,500

Board Members and Trustees

NameTitle
Lotien HuangPresident
Dora ErdosMember
Indrani ChatterjeeMember
Marcelo G DeCastroSecretary
William ChenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$101,213
Program Service Revenue
$0
Investment Income
$32,179
Other Revenue
$0
All Other Contributions
$101,213
Change in Net Assets
$-223,492
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$225,460
Other Expenses$130,228
Total Fundraising Expense$27,496
Grants and Similar Amounts Paid$1,196
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$136,000$17,000$17,000$170,000
Fees for Services Other$64,459$540$2,877$67,876
Pension Plan Contributions$34,000$4,250$4,250$42,500
Information Technology$33,537$1,422$1,511$36,470
Payroll Taxes$10,599$1,036$1,325$12,960
Fees for Services Legal$5,621--$5,621
Conferences and Meetings$5,160--$5,160
Advertising$4,493-$484$4,977
Occupancy-$3,381-$3,381
Fees for Services Accounting-$3,050-$3,050
Office Expenses$612$2,212$49$2,873
Grants to Domestic Individuals$1,196--$1,196
Insurance-$763-$763
Travel-$57-$57
Total Functional Expenses$295,677$33,711$27,496$356,884
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Members or stockholder classes and rights Part VI line 6

“Member(s) have the authority to appoint members of the governing board.”

Member election for additional members Part VI line 7A

“Member(s) have the authority to appoint members of the governing board.”

Form 990 governing body review Part VI line 11

“The 990 is reviewed by the full Board of Directors before it is filed.”

Conflict of interest policy compliance Part VI line 12C

“Board members are required to disclose conflicts of interest as they arise and fill out an annual COI disclosure form.”

CEO executive director top management comp Part VI line 15A

“The approval process includes review and approval by independent persons, comparability data and contemperanous substantiation of the deliberation and decision.”

Governing documents etc available to public Part VI line 19

“Governing documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Shwachman-Diamond Syndrome Alliance Inc
EIN
84-4654297
In Care Of
% Eszter Hars
Phone
6173291838
Address
PO Box 2441, Woburn, MA 01888

Signing Officer

Name
Eszter Hars
Title
CEO
Phone
6173291838
Signed
2025-11-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Eszter Hars
Formed
2020
Legal Domicile
De
Voting Board Members
5
Independent Board Members
5
Employees
1
Volunteers
8

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

List of other fees for services expenses Part IX line 11G

“Technical Fees: $66,086Business: $1,249Payroll: $541”

Raw XML Appendix371 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt01255
IRS990/AccountsReceivableGrp/BOYAmt0264
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0Shwachman-Diamond Syndrome Alliance (SDS Alliance) is a US-based nonprofit organization serving the global SDS community to improve and save the lives of people affected by SDS by focusing on research and therapy development.
IRS990/AdvertisingGrp/FundraisingAmt0484
IRS990/AdvertisingGrp/ProgramServicesAmt04493
IRS990/AdvertisingGrp/TotalAmt04977
IRS990/AllOtherContributionsAmt0101213
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BooksInCareOfDetail/PersonNm0The Organization
IRS990/BooksInCareOfDetail/PhoneNum06173291838
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0PO Box 2441
IRS990/BooksInCareOfDetail/USAddress/CityNm0Woburn
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd001888
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0797414
IRS990/CashNonInterestBearingGrp/EOYAmt0575441
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt017000
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt017000
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0136000
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0170000
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt05160
IRS990/ConferencesMeetingsGrp/TotalAmt05160
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0101213
IRS990/CYGrantsAndSimilarPaidAmt01196
IRS990/CYInvestmentIncomeAmt032179
IRS990/CYOtherExpensesAmt0130228
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-223492
IRS990/CYSalariesCompEmpBnftPaidAmt0225460
IRS990/CYTotalExpensesAmt0356884
IRS990/CYTotalFundraisingExpenseAmt027496
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0133392
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0The SDS Alliance brings together patient families, researchers, clinicians, and other diverse stakeholders to better understand, diagnose, and treat this devastating cancer predisposition genetic disorder. Programs include overlapping efforts in Research & Development (currently focused on research tools, infrastructure, and translation) and Patient Voice (including the collection and communication of patient experiences, unmet needs, and priorities) to support research.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0true
IRS990/EmployeeCnt01
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0295677
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt03050
IRS990/FeesForServicesAccountingGrp/TotalAmt03050
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt05621
IRS990/FeesForServicesLegalGrp/TotalAmt05621
IRS990/FeesForServicesOtherGrp/FundraisingAmt02877
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt0540
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt064459
IRS990/FeesForServicesOtherGrp/TotalAmt067876
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt035.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt042500
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/PersonNm0Eszter Hars
IRS990/Form990PartVIISectionAGrp/PersonNm1Indrani Chatterjee
IRS990/Form990PartVIISectionAGrp/PersonNm2Dora Erdos
IRS990/Form990PartVIISectionAGrp/PersonNm3Marcelo G DeCastro
IRS990/Form990PartVIISectionAGrp/PersonNm4William Chen
IRS990/Form990PartVIISectionAGrp/PersonNm5Lotien Huang
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0170000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1Member
IRS990/Form990PartVIISectionAGrp/TitleTxt2Member
IRS990/Form990PartVIISectionAGrp/TitleTxt3Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt4Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt5President
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02020
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt05
IRS990/GrantAmt01196
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt01196
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt01196
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0133392
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt05
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt01511
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt01422
IRS990/InformationTechnologyGrp/ProgramServicesAmt033537
IRS990/InformationTechnologyGrp/TotalAmt036470
IRS990/InsuranceGrp/ManagementAndGeneralAmt0763
IRS990/InsuranceGrp/TotalAmt0763
IRS990/InvestmentIncomeGrp/ExclusionAmt032179
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt032179
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt06
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0DE
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0true
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0Shwachman-Diamond Syndrome Alliance (SDS Alliance) is a US-based nonprofit organization serving the global SDS community to improve and save the lives of people affected by SDS by focusing on research and therapy development.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0797678
IRS990/NetAssetsOrFundBalancesEOYAmt0574186
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0797678
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0574186
IRS990/NondeductibleContributionsInd0true
IRS990/NondeductibleContriDisclInd0true
IRS990/OccupancyGrp/ManagementAndGeneralAmt03381
IRS990/OccupancyGrp/TotalAmt03381
IRS990/OfficeExpensesGrp/FundraisingAmt049
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02212
IRS990/OfficeExpensesGrp/ProgramServicesAmt0612
IRS990/OfficeExpensesGrp/TotalAmt02873
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt01325
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01036
IRS990/PayrollTaxesGrp/ProgramServicesAmt010599
IRS990/PayrollTaxesGrp/TotalAmt012960
IRS990/PensionPlanContributionsGrp/FundraisingAmt04250
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt04250
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt034000
IRS990/PensionPlanContributionsGrp/TotalAmt042500
IRS990/PoliticalCampaignActyInd0false
IRS990/PrincipalOfficerNm0Eszter Hars
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0270083
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt05000
IRS990/PYInvestmentIncomeAmt018731
IRS990/PYOtherExpensesAmt034684
IRS990/PYRevenuesLessExpensesAmt0162350
IRS990/PYSalariesCompEmpBnftPaidAmt086780
IRS990/PYTotalExpensesAmt0126464
IRS990/PYTotalRevenueAmt0288814
IRS990/QuidProQuoContributionsInd0true
IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-223492
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990ScheduleA/First5Years170Ind0X
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0101213
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0270083
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0336751
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0386094
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt016659
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01110800
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt032179
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt018731
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt050910
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportTotal170Amt01008097
IRS990ScheduleA/SubstantialContributorsTotAmt0102703
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0101213
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0270083
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0336751
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0386094
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt016659
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01110800
IRS990ScheduleA/TotalSupportAmt01161710
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleJ/AnyNonFixedPaymentsInd0false
IRS990ScheduleJ/CompBasedOnRevenueOfFlngOrgInd0false
IRS990ScheduleJ/CompBsdNetEarnsFlngOrgInd0false
IRS990ScheduleJ/CompBsdNetEarnsRltdOrgsInd0false
IRS990ScheduleJ/CompBsdOnRevRelatedOrgsInd0false
IRS990ScheduleJ/EquityBasedCompArrngmInd0false
IRS990ScheduleJ/InitialContractExceptionInd0false
IRS990/ScheduleJRequiredInd0true
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BaseCompensationFilingOrgAmt0170000
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/DeferredCompensationFlngOrgAmt042500
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm0Eszter Hars
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TitleTxt0CEO
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TotalCompensationFilingOrgAmt0212500
IRS990ScheduleJ/SeverancePaymentInd0false
IRS990ScheduleJ/SupplementalNonqualRtrPlanInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Member(s) have the authority to appoint members of the governing board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Member(s) have the authority to appoint members of the governing board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The 990 is reviewed by the full Board of Directors before it is filed.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Board members are required to disclose conflicts of interest as they arise and fill out an annual COI disclosure form.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4The approval process includes review and approval by independent persons, comparability data and contemperanous substantiation of the deliberation and decision.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Governing documents are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6Technical Fees: $66,086Business: $1,249Payroll: $541
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Members or stockholder classes and rights Part VI line 6
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Member election for additional members Part VI line 7a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4CEO executive director top management comp Part VI line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6List of other fees for services expenses Part IX line 11g
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0797678
IRS990/TotalAssetsEOYAmt0575441
IRS990/TotalAssetsGrp/BOYAmt0797678
IRS990/TotalAssetsGrp/EOYAmt0575441
IRS990/TotalCompGreaterThan150KInd0true
IRS990/TotalContributionsAmt0101213
IRS990/TotalEmployeeCnt01
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt027496
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt033711
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0295677
IRS990/TotalFunctionalExpensesGrp/TotalAmt0356884
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt01255
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt01255
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0797678
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0574186
IRS990/TotalOtherCompensationAmt042500
IRS990/TotalProgramServiceExpensesAmt0295677
IRS990/TotalReportableCompFromOrgAmt0170000
IRS990/TotalRevenueGrp/ExclusionAmt032179
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0133392
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt08
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0797678
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0575441
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ManagementAndGeneralAmt057
IRS990/TravelGrp/TotalAmt057
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0PO Box 2441
IRS990/USAddress/CityNm0Woburn
IRS990/USAddress/StateAbbreviationCd0MA
IRS990/USAddress/ZIPCd001888
IRS990/VotingMembersGoverningBodyCnt05
IRS990/VotingMembersIndependentCnt05
IRS990/WebsiteAddressTxt0www.sdsalliance.org/
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0ESZTER HARS
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0CEO
ReturnHeader/BusinessOfficerGrp/PhoneNum06173291838
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-11-10
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Shwachman-Diamond Syndrome Alliance Inc
ReturnHeader/Filer/BusinessNameControlTxt0SHWA
ReturnHeader/Filer/EIN0844654297
ReturnHeader/Filer/InCareOfNm0% Eszter Hars
ReturnHeader/Filer/PhoneNum06173291838
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO Box 2441
ReturnHeader/Filer/USAddress/CityNm0Woburn
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MA
ReturnHeader/Filer/USAddress/ZIPCd001888
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0474306215
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Mullins PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt07625 Wisconsin Avenue
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Bethesda
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd020814
ReturnHeader/PreparerPersonGrp/PhoneNum02027706371
ReturnHeader/PreparerPersonGrp/PreparationDt02025-11-10
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0JOHN MULLINS
ReturnHeader/ReturnTs02025-11-10T12:50:56-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

Document Assets

No mirrored PDF or thumbnail assets are attached yet.