Civic Intelligence

Ehlers-Danlos Research Foundation Inc

EIN 84-4482546 • 501(c)3 • Pikesville, MD

Profile

Promote and increase research of the ehlers-danlos syndromes

1829 Reisterstown Rd 100Pikesville, MD 21208

www.edsrf.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

60th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

62nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

10th percentile

-98%

Higher net margin than 10% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

27th percentile

-29%

Faster asset growth than 27% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

16th percentile

-57%

Faster revenue growth than 16% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets60th percentile

Assets

Down

$293,252

Down $118,267 (-29%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Down

$293,252

Down $118,267 (-29%) from 2023

Operations
Liabilities / Revenue62nd percentileNet Margin10th percentile

Revenue

Down

$120,676

Down $160,465 (-57%) from 2023

Expenses

Down

$238,943

Down $96,699 (-29%) from 2023

Net Income

Down

-$118,267

Down $63,766 (-117%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth27th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2020: $97,416Liabilities 2020: $743Net Assets 2020: $96,6732020Assets 2021: $320,805Liabilities 2021: $0Net Assets 2021: $320,8052021Assets 2022: $466,020Liabilities 2022: $0Net Assets 2022: $466,0202022Assets 2023: $411,519Liabilities 2023: $0Net Assets 2023: $411,5192023Assets 2024: $293,252Liabilities 2024: $0Net Assets 2024: $293,2522024

Highlighted filing

2024

Assets$293,252
Liabilities$0
Net Assets$293,252
Open 2024 Filing

Operations Trend

Revenue Growth16th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$200K$0-$200KRevenue 2020: $109,431Expenses 2020: $12,758Net Income 2020: $96,6732020Revenue 2021: $301,721Expenses 2021: $77,590Net Income 2021: $224,1312021Revenue 2022: $213,055Expenses 2022: $67,840Net Income 2022: $145,2152022Revenue 2023: $281,141Expenses 2023: $335,642Net Income 2023: -$54,5012023Revenue 2024: $120,676Expenses 2024: $238,943Net Income 2024: -$118,2672024

Highlighted filing

2024

Revenue$120,676
Expenses$238,943
Net Income-$118,267
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$293,252
Liabilities
$0
Net assets
$293,252
Revenue
$120,676
Expenses
$238,943
Net income
-$118,267
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.93$0.00$2.93$1.21$2.39$1.18
2023Detailed filing. Detailed filing data is available for this year.$4.12$0.00$4.12$2.81$3.36$0.55
2022Detailed filing. Detailed filing data is available for this year.$4.66$0.00$4.66$2.13$0.68$1.45
2021Detailed filing. Detailed filing data is available for this year.$3.21$0.00$3.21$3.02$0.78$2.24
2020Detailed filing. Detailed filing data is available for this year.$0.97$0.01$0.97$1.09$0.13$0.97
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 19, 2025
Return Version
2024v5.1
Gross Receipts
$120,676
Mission and Program Overview

Mission

Promote and increase research of the ehlers-danlos syndromes

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$411,519$293,252▼ $118,267
Rtn Earn Endowment Incm Other Fnds$411,519$293,252▼ $118,267
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$411,519$293,252▼ $118,267
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$411,519$293,252▼ $118,267
Total Liabilities and Net Assets / Fund Balance$411,519$293,252▼ $118,267
Compensation and Service Providers
Top Officer Pay81st percentile

Board Members and Trustees

NameTitle
Jennifer Spiegel BermanPresident
Ilene RuhoyDirector
Misia Van ArsdaleDirector
Jessika AuerbachFundraising Director
Dr Alissa ZingmanMedical Director
Sharon YohDonor Relations
Jayne GavrityTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$120,676
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$120,676
Change in Net Assets
$-118,267
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$109,279
Other Expenses$80,384
Salaries, Compensation, and Employee Benefits$49,280
Total Fundraising Expense$3,263
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$99,279--$99,279
Fees for Services Other$65,961$1,742$3,180$70,883
Other Salaries and Wages-$45,754-$45,754
Foreign Grants$10,000--$10,000
Payroll Taxes-$3,526-$3,526
Insurance-$2,127-$2,127
Conferences and Meetings-$1,839-$1,839
Fees for Services Accounting-$250-$250
Other Expenses-$643$83$83
Total Functional Expenses$175,240$60,440$3,263$238,943
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Hugo W Moser Research Institute at Kennedy Krieger IncBaltimore, MD-To Support Research Studies to Improve Therapies for Ehlers-danlos Syndrome$99,279

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The board members will receive an e-mailed copy”

Form 990, Part VI, Section C, Line 19

“Documents are available upon request”

Filing and Contact Details

Filer

Filer Name
Ehlers-danlos Research Foundation Inc
EIN
84-4482546
Phone
3126220642
Address
1829 REISTERSTOWN RD 100, PIKESVILLE, MD 21208

Signing Officer

Name
Jayne Gavrity
Title
Treasurer
Phone
5186100415
Signed
2025-05-19
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jayne Gavrity
Formed
2020
Legal Domicile
Md
Voting Board Members
7
Independent Board Members
7
Employees
1
Volunteers
7

Preparer

Firm
Uhy Advisors Mid-atlantic Inc
Address
705 YORK ROAD, TOWSON, MD 21204
Preparer
Amie M Kahler
Phone
4108281961
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Research contract: program service expenses 65,961. Management and general expenses 0. Fundraising expenses 0. Total expenses 65,961. Network for good annual fee: program service expenses 0. Management and general expenses 0. Fundraising expenses 3,180. Total expenses 3,180. Other professional services: program service expenses 0. Management and general expenses 1,742. Fundraising expenses 0. Total expenses 1,742.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0GRANTS WERE PROVIDED IN PARTIAL PAYMENTS. STUDY TEAMS PROVIDED INTERIM UPDATES TO THE FOUNDATION. UPDATES WERE REVIEWED BY THE MEDICAL BOARD AND EXECUTIVE BOARD TO ENSURE THE MONEY WAS BEING USED FOR THE STATED PURPOSE AND EXPECTED PROGRESS WAS BEING MADE.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleI/Total501c3OrgCnt01
IRS990ScheduleI/TotalOtherOrgCnt00
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE BOARD MEMBERS WILL RECEIVE AN E-MAILED COPY
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1DOCUMENTS ARE AVAILABLE UPON REQUEST
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2RESEARCH CONTRACT: PROGRAM SERVICE EXPENSES 65,961. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 65,961. NETWORK FOR GOOD ANNUAL FEE: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 3,180. TOTAL EXPENSES 3,180. OTHER PROFESSIONAL SERVICES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 1,742. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 1,742.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART IX, LINE 11G
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0MD
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0411519
IRS990/TotalAssetsEOYAmt0293252
IRS990/TotalAssetsGrp/BOYAmt0411519
IRS990/TotalAssetsGrp/EOYAmt0293252
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0120676
IRS990/TotalEmployeeCnt01
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt03263
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt060440
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0175240
IRS990/TotalFunctionalExpensesGrp/TotalAmt0238943
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0411519
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0293252
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0175240
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0120676
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt07
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0411519
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0293252
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt01829 REISTERSTOWN RD STE 100
IRS990/USAddress/CityNm0PIKESVILLE
IRS990/USAddress/StateAbbreviationCd0MD
IRS990/USAddress/ZIPCd021208
IRS990/VotingMembersGoverningBodyCnt07
IRS990/VotingMembersIndependentCnt07
IRS990/WebsiteAddressTxt0WWW.EDSRF.ORG
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0JAYNE GAVRITY
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0TREASURER
ReturnHeader/BusinessOfficerGrp/PhoneNum05186100415
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-05-19
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0EHLERS-DANLOS RESEARCH FOUNDATION INC
ReturnHeader/Filer/BusinessNameControlTxt0EHLE
ReturnHeader/Filer/EIN0844482546
ReturnHeader/Filer/PhoneNum03126220642
ReturnHeader/Filer/USAddress/AddressLine1Txt01829 REISTERSTOWN RD 100
ReturnHeader/Filer/USAddress/CityNm0PIKESVILLE
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MD
ReturnHeader/Filer/USAddress/ZIPCd021208
ReturnHeader/IRSResponsiblePrtyInfoCurrInd01
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0260794367
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0UHY ADVISORS MID-ATLANTIC INC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0705 YORK ROAD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0TOWSON
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd021204
ReturnHeader/PreparerPersonGrp/PhoneNum04108281961
ReturnHeader/PreparerPersonGrp/PreparationDt02025-05-19
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0AMIE M KAHLER
ReturnHeader/ReturnTs02025-05-19T17:47:50-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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