Liabilities / Assets
18th percentile
Tied with the lowest-debt nonprofits in its peer group.
EIN 84-2748218 • 501(c)3 • Scottsdale, AZ
Profile
funds research for treatment of KCNT-1
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
18th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
19th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
94th percentile
Higher net margin than 94% of similar nonprofits.
Top Officer Pay
Score unavailable
No filing with officer rows is available for this organization yet.
Asset Growth
95th percentile
Faster asset growth than 95% of similar nonprofits.
Revenue Growth
92nd percentile
Faster revenue growth than 92% of similar nonprofits.
Assets
Up$1,006,148
Up $501,009 (+99%) from 2023
Liabilities
Flat$0
Flat from 2023
Net Assets
Up$1,006,148
Up $501,009 (+99%) from 2023
Revenue
Up$719,180
Up $354,923 (+97%) from 2023
Expenses
Up$218,171
Up $96,623 (+79%) from 2023
Net Income
Up$501,009
Up $258,300 (+106%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
| Balance Sheet | Operations | |||||
|---|---|---|---|---|---|---|
| Year | Assets | Liabilities | Net Assets | Revenue | Expenses | Net Income |
| 2024Detailed filing. Detailed filing data is available for this year. | $1.01 | $0.00 | $1.01 | $0.72 | $0.22 | $0.50 |
| 2023Detailed filing. Detailed filing data is available for this year. | $0.51 | $0.00 | $0.51 | $0.36 | $0.12 | $0.24 |
| 2022Detailed filing. Detailed filing data is available for this year. | $0.26 | $0.00 | $0.26 | $0.18 | $0.04 | $0.14 |
funds research for treatment of KCNT-1
Mission: KCNT1 Epilepsy Foundation accelerates the development of better treatments for KCNT1-related epilepsy and a cure by awarding pilot grants, funding research, making research assets available to qualified scientists and clinicians and organizing the community
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $505,139 | $1,006,148 | ▲ $501,009 |
| Total Assets | $505,139 | $1,006,148 | ▲ $501,009 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Net Assets With Donor Restrictions | $505,139 | $1,006,148 | ▲ $501,009 |
| Total Net Assets Fund Balance | $505,139 | $1,006,148 | ▲ $501,009 |
| Total Liabilities and Net Assets / Fund Balance | $505,139 | $1,006,148 | ▲ $501,009 |
| Name | Title |
|---|---|
| Owen Billman | Chairman |
| Justin West | President |
| Samantha MacMechan | Vice Chair |
| Dewey McLin | Director |
| Jason J Kaufman | Director |
| Joseph Riculli | Director |
| Morrisette Royster | Director |
| Sarah Drislane | Executive Director |
| Margot Goodkin | Secretary |
| Norman Metcalfe | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $202,625 |
| Total Fundraising Expense | $26,064 |
| Grants and Similar Amounts Paid | $15,546 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Conferences and Meetings | $20,434 | $731 | $9,747 | $30,912 |
| Grants to Domestic Orgs | $15,546 | - | - | $15,546 |
| Information Technology | - | $13,513 | - | $13,513 |
| Fees for Services Other | - | - | $13,175 | $13,175 |
| Advertising | - | $9,193 | $1,751 | $10,944 |
| Other Expenses | $7,927 | - | - | $7,927 |
| Fees for Services Management | - | $5,884 | - | $5,884 |
| Office Expenses | $357 | $3,716 | $1,391 | $5,464 |
| Fees for Services Accounting | - | $3,753 | - | $3,753 |
| All Other Expenses | $3,250 | - | - | $3,250 |
| Insurance | - | $1,600 | - | $1,600 |
| Travel | - | $1,422 | - | $1,422 |
| Fees for Services Legal | - | $390 | - | $390 |
| Total Functional Expenses | $151,905 | $40,202 | $26,064 | $218,171 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“A copy of the 990 is provided to the board of directors for review and approval prior to filing the return”
“Officers and directors can be contacted at the organizations mailing address”
“The organization has a conflict of interest policy”
“Available upon request”
“Patient support, education and CRM Database”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | Mission: KCNT1 Epilepsy Foundation accelerates the development of better treatments for KCNT1-related epilepsy and a cure by awarding pilot grants, funding research, making research assets available to qualified scientists and clinicians and organizing the community |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 1751 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 9193 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 10944 |
| IRS990/AllOtherContributionsAmt | 0 | 686337 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 3250 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 3250 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Sarah Drislane |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 9492689770 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 32531 N Scottsdale Rd Ste 105-530 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Scottsdale |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | AZ |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 85266 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 505139 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1006148 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 9747 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 731 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 20434 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 30912 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 686337 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 15546 |
| IRS990/CYInvestmentIncomeAmt | 0 | 32843 |
| IRS990/CYOtherExpensesAmt | 0 | 202625 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 501009 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 218171 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 26064 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 719180 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | The KCNT1 Epilepsy Foundation supports the development of treatments and a cure for KCNT1-related epilepsy by funding scientific research and facilitating collaboration across institutions. In 2024, we awarded multiple pilot grants and sponsored research agreements, including a $14,996 installment of a $30,000 grant for a medical record study analyzing KCNT1 patient data. Projects funded focused on gene therapy, disease modeling, and pharmacological screening, with proposals selected through a peer-reviewed process led by our Scientific Advisory Board. We also partnered with the University of Pennsylvania to lead a joint fundraising campaign for KCNT1 research. While the foundation did not directly receive or manage the $38,667 raised, we played a central role in campaign planning, donor engagement, and identifying funding priorities. These funds were matched by a $30,000 grant from Penn and awarded to researchers at the University of California and UC Davis MIND Institute to support translational studies using rodent models of KCNT1-related disorders. In addition to funding, we provided approved researchers with access to key data assets, such as genetic and cellular models, to accelerate discovery. All activities align with our mission to reduce the time to effective treatments for affected children and families. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DoingBusinessAsName/BusinessNameLine1Txt | 0 | KCNT1 SLACK EPILEPSY FOUNDATIO |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 505139 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1006148 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 151905 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 3753 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 3753 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 390 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 390 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 5884 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 5884 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 13175 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 13175 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 60.00 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0.25 |
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| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Sarah Drislane |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Owen Billman |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Jason J Kaufman |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Morrisette Royster |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Joseph Riculli |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Dewey McLin |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Justin West |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Margot Goodkin |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Norman Metcalfe |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Samantha MacMechan |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Vice Chair |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2019 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
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| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
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| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 15546 |
| IRS990/GrantsToIndividualsInd | 0 | false |
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| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1600 |
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| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | Mission: KCNT1 Epilepsy Foundation accelerates the development of better treatments for KCNT1-related epilepsy and a cure by awarding pilot grants, funding research, making research assets available to qualified scientists and clinicians and organizing the community |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
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| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 357 |
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| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | Research and treatment |
| IRS990/OtherExpensesGrp/Desc | 1 | Registry and biobank |
| IRS990/OtherExpensesGrp/Desc | 2 | Patient support and educatio |
| IRS990/OtherExpensesGrp/Desc | 3 | Clinical Trial Readiness |
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| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1252417 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 80719 |
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| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1333136 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1372658 |
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| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | A copy of the 990 is provided to the board of directors for review and approval prior to filing the return |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Officers and directors can be contacted at the organizations mailing address |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | The organization has a conflict of interest policy |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Available upon request |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | Patient support, education and CRM Database |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990 governing body review Part VI line 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Officer director etc mailing address Part VI line 9 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Conflict of interest policy compliance Part VI line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Governing documents etc available to public Part VI line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | List of other expenses Part IX line 24e |
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| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 218171 |
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| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 0 |
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| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 1006148 |
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| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 1006148 |
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| IRS990/TransactionWithControlEntInd | 0 | false |
| IRS990/TravelGrp/ManagementAndGeneralAmt | 0 | 1422 |
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| IRS990/UponRequestInd | 0 | X |
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| IRS990/VotingMembersIndependentCnt | 0 | 9 |
| IRS990/WhistleblowerPolicyInd | 0 | true |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | false |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | JUSTIN WEST |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 9492689771 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-07-28 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | KCNT1 SLACK EPILEPSY FOUNDATION INC |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | KCNT |
| ReturnHeader/Filer/EIN | 0 | 842748218 |
| ReturnHeader/Filer/InCareOfNm | 0 | % Justin West |
| ReturnHeader/Filer/PhoneNum | 0 | 9492689771 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 32531 N Scottsdale Rd 105-530 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Scottsdale |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | AZ |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 85266 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | true |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 208342587 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | Michael Terpening CPA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 5629 Figarden Dr Ste 101 |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | Fresno |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | CA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 93722 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 5592996686 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2025-08-11 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | MICHAEL TERPENING CPA |
| ReturnHeader/PreparerPersonGrp/SelfEmployedInd | 0 | X |
| ReturnHeader/ReturnTs | 0 | 2025-08-11T13:33:02-04:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
| ReturnHeader/TaxYr | 0 | 2024 |
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