Civic Intelligence

Superficial Siderosis Research Alliance

EIN 84-2515094 • 501(c)3 • Waukesha, WI

Profile

Patient advocacy organization for the benefit of the superficial siderosis rare disorder community, supporting clinical research and education.

W238n1645 Rockwood Dr AWaukesha, WI 53188

ssra.livingwithss.com

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on the latest valid filing.

Source year 2024

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on the latest valid filing.

Source year 2024

Net Margin

96th percentile

82%

Higher net margin than 96% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

81st percentile

31%

Faster asset growth than 81% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

22nd percentile

-41%

Faster revenue growth than 22% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Up

$208,463

Up $48,886 (+31%) from 2023

Liabilities

-

No earlier filing loaded for comparison.

Net Assets

$208,463

No earlier filing loaded for comparison.

Operations
Liabilities / RevenueScore unavailableNet Margin96th percentile

Revenue

Down

$59,882

Down $41,071 (-41%) from 2023

Expenses

Down

$10,996

Down $17,542 (-61%) from 2023

Net Income

Down

$48,886

Down $23,529 (-32%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth81st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$300K$200K$100K$0Assets 2021: $62,061Net Assets 2021: $62,0612021Assets 2022: $87,162Liabilities 2022: $02022Assets 2023: $159,577Liabilities 2023: $02023Assets 2024: $208,463Net Assets 2024: $208,4632024

Highlighted filing

2024

Assets$208,463
Liabilities-
Net Assets$208,463
Open 2024 Filing

Operations Trend

Revenue Growth22nd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$150K$100K$50K$0-$50KRevenue 2021: $40,734Expenses 2021: $41,535Net Income 2021: -$8012021Revenue 2022: $73,648Expenses 2022: $48,547Net Income 2022: $25,1012022Revenue 2023: $100,953Expenses 2023: $28,538Net Income 2023: $72,4152023Revenue 2024: $59,882Expenses 2024: $10,996Net Income 2024: $48,8862024

Highlighted filing

2024

Revenue$59,882
Expenses$10,996
Net Income$48,886
Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$208,463
Liabilities
-
Net assets
$208,463
Revenue
$59,882
Expenses
$10,996
Net income
$48,886
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.08$2.08$0.60$0.11$0.49
2023Summary only. Only limited summary data is available for this year.$1.60$0.00$1.01$0.29$0.72
2022Summary only. Only limited summary data is available for this year.$0.87$0.00$0.74$0.49$0.25
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.62$0.62$0.41$0.42$0.01
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 13, 2025
Return Version
2024v5.1
Gross Receipts
$59,882
Mission and Program Overview

Mission

Patient advocacy organization for the benefit of the superficial siderosis rare disorder community, supporting clinical research and education.

Program Services

DescriptionGrantsExpenses
PATIENT RESEARCH PROGRAMS & FINANCIAL SUPPORT OF THE SUPERFICIAL SIDEROSIS CLINIC AND RESEARCH LABORATORY-$7,239
ADVOCACY, EDUCATION, AND FUNDRAISING.-$3,985
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
KYLE DEMPSEYPresidentPT$0--
SUSAN DEMPSEYSecretaryPT$0--
LLOYD GLEISNERTreasurerPT$0--
RORI-SUZANNE DANEILExecutive DirectorFT$0--
Filing and Contact Details

Filer

Filer Name
Superficial Siderosis Research Alliance
EIN
84-2515094
Address
W238N1645 ROCKWOOD DR A, WAUKESHA, WI 53188

Signing Officer

Name
Kyle Dempsey
Title
President
Signed
2025-05-13
Discuss with paid preparer
Yes

Preparer

Firm
Charter Capital Management LLC
Address
13805 W BURLEIGH RD, BROOKFIELD, WI 53005
Preparer
Samuel P Verhulst
Phone
4142573700
Supplemental Narrative

Additional Explanations

Other Expenses.1001

“Advertising and Promotion $1402”

Other Expenses.1003

“Information Technology $460”

Other Expenses.1005

“Travel $231”

Other Expenses.1012

“Insurance $214”

Other Expenses.1

“OPERATIONS $7239”

Other Expenses.2

“FUNDRAISING COSTS $950”

Raw XML Appendix144 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990EZ/ActivitiesNotPreviouslyRptInd0false
IRS990EZ/BooksInCareOfDetail/PersonNm0LLOYD GLEISNER
IRS990EZ/BooksInCareOfDetail/PhoneNum09207281578
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IRS990EZ/BooksInCareOfDetail/USAddress/CityNm0JEFFERSON
IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd0WI
IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd0535492814
IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt0159577
IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt0208463
IRS990EZ/ChgMadeToOrgnzngDocNotRptInd0false
IRS990EZ/ContributionsGiftsGrantsEtcAmt055934
IRS990EZ/CostOfGoodsSoldAmt00
IRS990EZ/CostOrOtherBasisExpenseSaleAmt00
IRS990EZ/DonorAdvisedFndsInd0false
IRS990EZ/EngagedInExcessBenefitTransInd0false
IRS990EZ/ExcessOrDeficitForYearAmt048886
IRS990EZ/FeesAndOtherPymtToIndCntrctAmt0500
IRS990EZ/FiledScheduleAInd0true
IRS990EZ/ForeignFinancialAccountInd0false
IRS990EZ/ForeignOfficeInd0false
IRS990EZ/Form1120PolFiledInd0false
IRS990EZ/Form990TotalAssetsGrp/BOYAmt0159577
IRS990EZ/Form990TotalAssetsGrp/EOYAmt0208463
IRS990EZ/FundraisingGrossIncomeAmt00
IRS990EZ/GrossReceiptsAmt059882
IRS990EZ/InfoInScheduleOPartIInd0X
IRS990EZ/InvestmentIncomeAmt03948
IRS990EZ/LobbyingActivitiesInd0false
IRS990EZ/MadeLoansToFromOfficersInd0false
IRS990EZ/MethodOfAccountingCashInd0X
IRS990EZ/NetAssetsOrFundBalancesBOYAmt0159577
IRS990EZ/NetAssetsOrFundBalancesEOYAmt0208463
IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt0159577
IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt0208463
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt015.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt110.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt215.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt340.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt10
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt20
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt30
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0KYLE DEMPSEY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1SUSAN DEMPSEY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2LLOYD GLEISNER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm3RORI-SUZANNE DANEIL
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0President
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1Secretary
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2Treasurer
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3Executive Dir.
IRS990EZ/OperateHospitalInd0false
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd0false
IRS990EZ/OrganizationHadUBIInd0false
IRS990EZ/OtherExpensesTotalAmt010496
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd0false
IRS990EZ/PrimaryExemptPurposeTxt0PATIENT ADVOCACY ORGANIZATION FOR THE BENEFIT OF THE SUPERFICIAL SIDEROSIS RARE DISORDER COMMUNITY, SUPPORTING CLINICAL RESEARCH AND EDUCATION.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0PATIENT RESEARCH PROGRAMS & FINANCIAL SUPPORT OF THE SUPERFICIAL SIDEROSIS CLINIC AND RESEARCH LABORATORY
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1ADVOCACY, EDUCATION, AND FUNDRAISING.
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt07239
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt13985
IRS990EZ/ProhibitedTaxShelterTransInd0false
IRS990EZ/RelatedOrganizationCtrlEntInd0false
IRS990EZ/ScheduleBNotRequiredInd0X
IRS990EZ/SchoolOperatingInd0false
IRS990EZ/SpecialEventsDirectExpensesAmt00
IRS990EZ/SubjectToProxyTaxInd0false
IRS990EZ/TanningServicesProvidedInd0false
IRS990EZ/TaxImposedOnOrganizationMgrAmt00
IRS990EZ/TaxImposedUnderIRC4911Amt00
IRS990EZ/TaxImposedUnderIRC4912Amt00
IRS990EZ/TaxImposedUnderIRC4955Amt00
IRS990EZ/TaxReimbursedByOrganizationAmt00
IRS990EZ/TotalExpensesAmt010996
IRS990EZ/TotalProgramServiceExpensesAmt011224
IRS990EZ/TotalRevenueAmt059882
IRS990EZ/TransactionWithControlEntInd0false
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990EZ/WebsiteAddressTxt0SSRA.LIVINGWITHSS.COM
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt055934
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt099767
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt073648
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt040734
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt070371
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt0340454
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt00
IRS990ScheduleA/OtherIncome170Grp/TotalAmt00
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct01.00000
IRS990ScheduleA/PublicSupportPY170Pct01.00000
IRS990ScheduleA/PublicSupportTotal170Amt0340454
IRS990ScheduleA/SubstantialContributorsTotAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt055934
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt099767
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt073648
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt040734
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt070371
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0340454
IRS990ScheduleA/TotalSupportAmt0340454
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Advertising and Promotion $1402
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Information Technology $460
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Travel $231
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Insurance $214
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4OPERATIONS $7239
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5FUNDRAISING COSTS $950
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Other Expenses.1001
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Other Expenses.1003
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Other Expenses.1005
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Other Expenses.1012
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Other Expenses.1
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Other Expenses.2
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0KYLE DEMPSEY
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-05-13
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0SUPERFICIAL SIDEROSIS RESEARCH ALLIANCE
ReturnHeader/Filer/BusinessNameControlTxt0SUPE
ReturnHeader/Filer/EIN0842515094
ReturnHeader/Filer/USAddress/AddressLine1Txt0W238N1645 ROCKWOOD DR A
ReturnHeader/Filer/USAddress/CityNm0WAUKESHA
ReturnHeader/Filer/USAddress/StateAbbreviationCd0WI
ReturnHeader/Filer/USAddress/ZIPCd053188
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0334061684
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0CHARTER CAPITAL MANAGEMENT LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt013805 W BURLEIGH RD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0BROOKFIELD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0WI
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd053005
ReturnHeader/PreparerPersonGrp/PhoneNum04142573700
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0SAMUEL P VERHULST
ReturnHeader/ReturnTs02025-05-13T09:56:56-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 501(c)3 • <$500k nonprofits