Liabilities / Assets
60th percentile
Tied with the lowest-debt nonprofits in its peer group.
EIN 84-2137402 • 501(c)3 • West Roxbury, MA
Profile
To improve the lives and futures of young adults living with rare disease, through education, recreation and peer support.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
60th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
62nd percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
96th percentile
Higher net margin than 96% of similar nonprofits.
Top Officer Pay
81st percentile
Higher top officer pay than 81% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Assets
$107,943
No earlier filing loaded for comparison.
Liabilities
$0
No earlier filing loaded for comparison.
Net Assets
$107,943
No earlier filing loaded for comparison.
Revenue
$121,195
No earlier filing loaded for comparison.
Expenses
$16,592
No earlier filing loaded for comparison.
Net Income
$104,603
No earlier filing loaded for comparison.
Most recent year
2020 • Form 990EZDetailed filing. Detailed filing data is available for this year.
To improve the lives and futures of young adults living with rare disease, through education, recreation and peer support.
| Description | Grants | Expenses |
|---|---|---|
| THE ORGANIZATION CONDUCTED ITS FIRST "ONE RARE EXPERIENCE" PROGRAM IN 2020. DUE TO THE COVID PANDEMIC, THIS EVENT WAS HELD VIRTUALLY. ONE RARE EXPERIENCE WILL BE HELD ANNUALLY, WITH A GOAL TO HAVE THE EVENT OFFERED IN-PERSON AND VIRTUALLY GOING FORWARD. PROGRAMMING WILL FOCUS ON LIFESTYLE AND HEALTH, EXPRESSION, ART, AND EMPLOYMENT AS WELL AS FREE TIME TO NETWORK, BUILD SOCIAL CONNECTIONS, AND FORM FRIENDSHIPS. WE PLAN TO EXPAND SERVICES TO OFFER WEEK LONG EXPERIENCES IN ADDITIONAL LOCATIONS IN-PERSON AND VIRTUAL, AS WELL AS WEEKEND GETAWAYS WITH ADAPTIVE SPORTS AND RECREATION, CAREER TRAINING, AND EDUCATION. | $300 | $16,274 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| JENNIFER MCNARY | President/Asst. Clerk/Director | - | $0 | - | - |
| KARA BONIFACE | Clerk/Director | - | $0 | - | - |
| LORI ANN CORREIA | Treasurer/Director | - | $0 | - | - |
| AUSTIN S LECLAIRE | Director | - | $0 | - | - |
| PAUL KIDWELL | Director | - | $0 | - | - |
“Description: interest of savings account. Amount: 9.”
“Description: state filing fee. Amount: 19. Description: dues & subscriptions. Amount: 224. Description: bank fees. Amount: 32. Description: office expense. Amount: 37. Description: care packages for conference participants. Amount: 4,836. Description: tshirts for conference participants. Amount: 943. Description: honorariums. Amount: 500. Total to form 990-ez, line 16: 6,591.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990EZ/ActivitiesNotPreviouslyRptInd | 0 | 0 |
| IRS990EZ/BooksInCareOfDetail/PersonNm | 0 | LORI CORREIA |
| IRS990EZ/BooksInCareOfDetail/PhoneNum | 0 | 6174351990 |
| IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 3 PLOVER STREET |
| IRS990EZ/BooksInCareOfDetail/USAddress/CityNm | 0 | WEST ROXBURY |
| IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 02132 |
| IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt | 0 | 3340 |
| IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt | 0 | 107943 |
| IRS990EZ/ChgMadeToOrgnzngDocNotRptInd | 0 | 0 |
| IRS990EZ/ContributionsGiftsGrantsEtcAmt | 0 | 121186 |
| IRS990EZ/DirectIndirectPltclExpendAmt | 0 | 0 |
| IRS990EZ/DonorAdvisedFndsInd | 0 | 0 |
| IRS990EZ/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990EZ/ExcessOrDeficitForYearAmt | 0 | 104603 |
| IRS990EZ/FeesAndOtherPymtToIndCntrctAmt | 0 | 8600 |
| IRS990EZ/FiledScheduleAInd | 0 | 1 |
| IRS990EZ/ForeignFinancialAccountInd | 0 | 0 |
| IRS990EZ/ForeignOfficeInd | 0 | 0 |
| IRS990EZ/Form990TotalAssetsGrp/BOYAmt | 0 | 3340 |
| IRS990EZ/Form990TotalAssetsGrp/EOYAmt | 0 | 107943 |
| IRS990EZ/GrantsAndSimilarAmountsPaidAmt | 0 | 300 |
| IRS990EZ/GrossReceiptsAmt | 0 | 121195 |
| IRS990EZ/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990EZ/InfoInScheduleOPartIInd | 0 | X |
| IRS990EZ/InfoInScheduleOPartVInd | 0 | X |
| IRS990EZ/InvestmentIncomeAmt | 0 | 9 |
| IRS990EZ/LobbyingActivitiesInd | 0 | 0 |
| IRS990EZ/MadeLoansToFromOfficersInd | 0 | 0 |
| IRS990EZ/MethodOfAccountingAccrualInd | 0 | X |
| IRS990EZ/NetAssetsOrFundBalancesBOYAmt | 0 | 3340 |
| IRS990EZ/NetAssetsOrFundBalancesEOYAmt | 0 | 107943 |
| IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt | 0 | 3340 |
| IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt | 0 | 107943 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 0 | 1.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 1 | 1.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 2 | 1.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 3 | 1.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 4 | 1.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 1 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 2 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 3 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 4 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 1 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 2 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 3 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 4 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 1 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 2 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 3 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 4 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 0 | JENNIFER MCNARY |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 1 | KARA BONIFACE |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 2 | LORI ANN CORREIA |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 3 | AUSTIN S LECLAIRE |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 4 | PAUL KIDWELL |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 0 | PRESIDENT/ASST. CLERK/DIRECTOR |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 1 | CLERK/DIRECTOR |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 2 | TREASURER/DIRECTOR |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 3 | DIRECTOR |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 4 | DIRECTOR |
| IRS990EZ/OperateHospitalInd | 0 | 0 |
| IRS990EZ/Organization501c3Ind | 0 | X |
| IRS990EZ/OrganizationDissolvedEtcInd | 0 | 0 |
| IRS990EZ/OrganizationHadUBIInd | 0 | 0 |
| IRS990EZ/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990EZ/OtherExpensesTotalAmt | 0 | 6591 |
| IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt | 0 | NONE |
| IRS990EZ/PartVIOfCompOfHghstPdEmplTxt | 0 | NONE |
| IRS990EZ/PoliticalCampaignActyInd | 0 | 0 |
| IRS990EZ/PrimaryExemptPurposeTxt | 0 | TO IMPROVE THE LIVES AND FUTURES OF YOUNG ADULTS LIVING WITH RARE DISEASE, THROUGH EDUCATION, RECREATION AND PEER SUPPORT. |
| IRS990EZ/PrintingPublicationsPostageAmt | 0 | 1101 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | THE ORGANIZATION CONDUCTED ITS FIRST "ONE RARE EXPERIENCE" PROGRAM IN 2020. DUE TO THE COVID PANDEMIC, THIS EVENT WAS HELD VIRTUALLY. ONE RARE EXPERIENCE WILL BE HELD ANNUALLY, WITH A GOAL TO HAVE THE EVENT OFFERED IN-PERSON AND VIRTUALLY GOING FORWARD. PROGRAMMING WILL FOCUS ON LIFESTYLE AND HEALTH, EXPRESSION, ART, AND EMPLOYMENT AS WELL AS FREE TIME TO NETWORK, BUILD SOCIAL CONNECTIONS, AND FORM FRIENDSHIPS. WE PLAN TO EXPAND SERVICES TO OFFER WEEK LONG EXPERIENCES IN ADDITIONAL LOCATIONS IN-PERSON AND VIRTUAL, AS WELL AS WEEKEND GETAWAYS WITH ADAPTIVE SPORTS AND RECREATION, CAREER TRAINING, AND EDUCATION. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 0 | 300 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 0 | 16274 |
| IRS990EZ/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990EZ/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990EZ/SchoolOperatingInd | 0 | 0 |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 0 | MA |
| IRS990EZ/SubjectToProxyTaxInd | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990EZ/TanningServicesProvidedInd | 0 | 0 |
| IRS990EZ/TaxImposedOnOrganizationMgrAmt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4911Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4912Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4955Amt | 0 | 0 |
| IRS990EZ/TaxReimbursedByOrganizationAmt | 0 | 0 |
| IRS990EZ/TotalExpensesAmt | 0 | 16592 |
| IRS990EZ/TotalProgramServiceExpensesAmt | 0 | 16274 |
| IRS990EZ/TotalRevenueAmt | 0 | 121195 |
| IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990EZ/TypeOfOrganizationCorpInd | 0 | X |
| IRS990EZ/WebsiteAddressTxt | 0 | WWW.ONERARE.ORG |
| IRS990ScheduleA/First5Years170Ind | 0 | X |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | THE ORGANIZATION WAS INCORPORATED UNDER THE LAWS OF THE COMMONWEALTH OF MASSACHUSETTS ON MAY 29, 2019. THEREFORE, THE 2019 TAX YEAR (MAY 29, 2019 - DECEMBER 31, 2019) WAS A SHORT YEAR. |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | FORM 990EZ, SCHEDULE A - PUBLIC SUPPORT SHORT YEAR |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 121186 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 3340 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 124526 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 9 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 9 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 11000 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 113526 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 121186 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 3340 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 124526 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 124535 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | DESCRIPTION: INTEREST OF SAVINGS ACCOUNT. AMOUNT: 9. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | DESCRIPTION: STATE FILING FEE. AMOUNT: 19. DESCRIPTION: DUES & SUBSCRIPTIONS. AMOUNT: 224. DESCRIPTION: BANK FEES. AMOUNT: 32. DESCRIPTION: OFFICE EXPENSE. AMOUNT: 37. DESCRIPTION: CARE PACKAGES FOR CONFERENCE PARTICIPANTS. AMOUNT: 4,836. DESCRIPTION: TSHIRTS FOR CONFERENCE PARTICIPANTS. AMOUNT: 943. DESCRIPTION: HONORARIUMS. AMOUNT: 500. TOTAL TO FORM 990-EZ, LINE 16: 6,591. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990-EZ, PART I, LINE 4 - OTHER INVESTMENT INCOME |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES |
| TransferPrsnlBnftContractsDecl/DeclarationDesc | 0 | THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT. |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd | 0 | AAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd | 0 | IAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd | 0 | 0 |
| ReturnHeader/BuildTS | 0 | 2022-09-23 18:48:47Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | 1 |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | LORI CORREIA |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | TREASURER |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 8025797471 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2021-11-11 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | ONE RARE INC |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | ONER |
| ReturnHeader/Filer/EIN | 0 | 842137402 |
| ReturnHeader/Filer/PhoneNum | 0 | 8025797471 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 3 PLOVER STREET |
| ReturnHeader/Filer/USAddress/CityNm | 0 | WEST ROXBURY |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | MA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 02132 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 042442519 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | EDELSTEIN AND COMPANY LLP |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 160 FEDERAL STREET 9TH FLOOR |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | BOSTON |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | MA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 02110 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 6172276161 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2021-11-08 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | EUGENE BORGONZI |
| ReturnHeader/ReturnTs | 0 | 2021-11-12T11:05:30-06:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm | 0 | LORI |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm | 0 | CORREIA |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2020-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2020-12-31 |
| ReturnHeader/TaxYr | 0 | 2020 |
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