The National Fragile X Foundation

“The draft 990 will be presented to the finance committee. After it is approved by the finance committee it would be presented and approved by the board.”

“Members of the board of directors review all potential conflicts of interest at least annually. The executive director and all board members are required to disclose (in writing) potential conflicts and any related third party affiliations. Loans between the organization and members of management and the board are strictly prohibited. The organization seeks full transparency on all relationships. Any potential conflicts of interest (in fact or appearance) are discussed openly and resolved in accordance with the organization's policies and procedures, which are as follows. Board members are to disclose in writing to the entire board if they, or any member of their immediate families, or any organization with which they are affiliated, presently transact business with the nfxf or might reasonably be expected to do so in the future. An affiliation with an organization will be considered to exist when a board member or a member of his or her immediate family is an officer, director, trustee, partner, employee, or agent of the organization; or owns five percent of the voting stock or a controlling interest in the organization; or has any substantial interest or dealings with the organization. Board members with such relationships will not be eligible to vote on matters directly pertaining to the business to be transacted with the identified person or organization or on issues that may result in any benefit inuring to the benefit of the identifid person or organization. Minutes of appropriate meetings are to reflect that such disclosure was made, that such board member abstained from voting, and that such board member was not counted for the purpose of determining a quorum. The foregoing requirements, however, are not to be construed to prevent a particular board member from briefly stating his/her position on the matter, nor from answering pertinent questions from other directors by reason of the fact that personal knowledge of the matter may be of assistance to the other board members in reaching their decision. Board members maintaining no such relationships will attest to that fact in writing and agree to notify the board about their status change.”

“Members of the board of directors review the compensation of all high-level personnel periodically in accorance with irs rules and regulations. Efforts are made to secure compensation data from industry sources in order to determine competitiveness and appropriateness of salaries and all related benefits. All decisions are then documented in personnel files. Compensation of other high-level personnel and key employees is reviewed periodically by members of management. Efforts are made to secure compensation data from industry sources in order to determine competitiveness and appropriateness of salaries and all related benefits. All decisions are then documented in personnel files.”

“The organization's governing documents and conflict of interest policy are provided upon request. Annual audited financial statements are published on the organization's website.”

“Consulting: program service expenses 519,864. Management and general expenses 10,180. Fundraising expenses 4,960. Total expenses 535,004.”

“This process has not changed from the prior year.”