National Marrow Donor Program

“Delegation of authority the nmdp bylaws state: "the executive committee shall at all times include the chair of the board, the immediate past chair (when in office), the chair-elect (when in office), the secretary, the chief executive officer, and any government representatives. Any and all additional members of the executive committee shall be voting directors, except the chief executive officer and government representatives, who shall serve as non-voting ex officio members of the committee. The executive committee shall, to the extent allowed by applicable law, have the authority of the board in the oversight of the business of the corporation between meetings of the full board and shall have such other authority and responsibilities as set forth in the executive committee charter." the executive committee charter states: "the executive committee shall, to the extent determined by the board of directors, have the authority of the board in the oversight of the business of the corporation between meetings of the full board. The executive committee shall manage the business of the corporation and direct and coordinate the work activities of committees between meetings of the board. The executive committee shall also review key board-level policies and procedures on a periodic basis and recommend new or modified policies and initiatives. With the board, the executive committee is responsible for oversight of the strategic planning process, developing a calendar for board activities, and providing guidance to the board and corporation staff regarding the appropriate roles of each. The executive committee, in close coordination with the finance committee, shall monitor the financial integrity of operations, including evaluating performance against the corporation's budget and strategic and business plans. In addition, the executive committee shall represent the corporation in its interactions with other organizations, congress, federal agencies, participating centers, constituent groups, professional organizations, and the public."”

“Form 990 review process the organization contracted with the outside public accounting firm, grant thornton llp, to prepare the form 990. Preparing the details and supporting reports for the return is a collaborative effort among a small group of individuals in the financial reporting & compliance area of finance, internal audit and human resources. That work is then reviewed by the senior manager of financial reporting prior to sending to grant thornton llp; the chief legal officer also reviews the governance sections prior to sending to grant thornton llp. Once a draft is received back from grant thornton llp, it is reviewed by the staff that pulled the details together and nmdp chief financial officer. A copy of the return is provided to the organization's audit and finance committee and board of directors prior to filing.”

“Conflict of interest policy monitoring & enforcement the conflict of interest policy states the following: "the existence of an actual or potential conflict of interest turns on the specific facts and circumstances in each case. If a member has an interest which may conflict with those of the organizations, he or she must immediately disclose the matters and discuss them fully and frankly with the applicable organization's full board or its executive committee, as set forth in detail below. A member must not participate in any matter in which that member may have an actual or potential conflict of interest without the express approval of the applicable organization's board of directors or executive committee of the board of directors (executive committee). All members must disclose to the applicable organization's board of directors or executive committee all conflicts of interest and reportable relationships, and must annually complete and submit the conflict of interest questionnaire which is required by this policy. Whenever in the course of events a member's circumstances change such that the member knows or has reason to believe that the member may have an actual or perceived conflict of interest, such member shall promptly disclose the potential conflict to the applicable organization's board of directors or executive committee. For the purposes of this article, a member may formally disclose a conflict or reportable relationship to the chief executive officer (ceo) of nmdp, the btmf executive director and senior vice president (svp) of philanthropy, or the nmdp chief legal officer (clo), as applicable, who shall inform the applicable organization's board of directors or executive committee for resolution. As noted herein, if the potential conflict involves a director or committee member, that director or committee member shall not participate in or vote upon such matters until the question of the existence of the conflict of interest has been resolved in accordance with this policy. Likewise, an officer or key employee may not become substantially involved in decision-making involving any covered litigation, contract or transaction until the resolution of the matter in accordance with this policy."”

“Process for determining compensation the nmdp bylaws state: "the compensation committee shall be comprised only of voting directors and shall include the chair of the board and at least one (1) non-officer board member as voting committee members. The compensation committee shall review and evaluate the overall compensation and benefit structure of the corporation and shall have such other authority and responsibilities as set forth in the compensation committee charter." the compensation committee charter states: "the committee shall review and evaluate the overall compensation and benefit structure of the corporation, and approve and adopt a compensation philosophy and principles consistent with the corporation's non-for-profit status (the compensation philosophy and principles). The committee shall conduct the chief executive officer (ceo) performance evaluation. The committee shall make ceo total compensation and benefit recommendations to the executive committee, consistent with the compensation philosophy and principles. In making compensation and benefit recommendations for the ceo, the committee shall utilize, among other things, comparability data for compliance with irs intermediate sanction provisions so as to allow the corporation to take advantage of the rebuttable presumption of reasonableness. On a periodic basis, the committee shall obtain comparability data from an independent compensation consultant. In addition, the committee shall advise the ceo in his/her evaluation of and decisions regarding the compensation of and benefits for senior corporation employees, as well as the president (or equivalent leader) of any subsidiary of the corporation reporting to the ceo (together, senior leadership). In advising the ceo in making his/her compensation and benefit decisions for senior leadership, the committee shall ensure that such decisions are consistent with the compensation philosophy and principles, and utilize, among other things, comparability data for compliance with irs intermediate sanction provisions. If decisions proposed by the ceo are outside the parameters of the compensation philosophy and principles, the ceo must obtain the committee's approval prior to implementation."”

“How documents are made available to the public the conflict of interest policy, articles of incorporation and consolidated audited financial statements are available to the public upon request. Summary financial statements are also included in our annual report, which is mailed to key stakeholders and posted on our website. Additionally, articles of incorporation are available through the mn office of the secretary of state, and consolidated audited financial statements may be obtained at the mn office of the attorney general.”

“Hours for related organization the hours listed on the 990 part vii are based on a 50 hour week that these individuals devoted to nmdp and btmf in total during the year.”

“Compensation nmdp provided reportable compensation to david porter for consulting services provided as chair of the cibmtr data safety monitoring board meetings during calender year 2020.”

“Be the match is a global leader working every day to save lives through cellular therapy. For people with life-threatening blood cancers - like leukemia and lymphoma - or other blood disorders like sickle cell, a cure exists. Be the match connects patients with a matching donor for a life-saving blood stem cell transplant. The be the match registry is the most diverse registry in the world and includes both adult donors willing to donate to a stranger in need and stored cord blood units. In addition, be the match provides patients and their families one-on-one support, education, and guidance before, during and after transplant. Be the match is also a global leader in research through the cibmtr (center for international blood and marrow transplant research), a collaboration with medical college of wisconsin, investing in and managing research studies that improve patient outcomes and advance the future of care. The be the match foundation supports patients before, during and after transplant by raising funds to: - add new potential donors to the registry - help pay uninsured patient costs associated with transplant - fund life-saving research through the cibmtr. As the world's leading nonprofit organization focused on saving lives through cellular therapy, be the match continues to improve access to transplant by leading efforts to remove barriers to treatment and strengthen our ability to meet the growing need. Through our global network, we connect centers and patients to best cell therapy option - from blood stem cell transplant to a next-generation therapy - and collaborate with cell and gene therapy companies to support therapy development and delivery through be the match biotherapies. The definition for the be the match true north goal of lives equals the number of patients who receive be the match-facilitated cell therapies. As the use of therapies expands, so has be the match's work in unrelated and related donor transplants and biotherapies autologous (donation for self), allogeneic (donation for non-specific patient) and clinical trials. The vision of be the match is for every patient to receive a transplant no matter their ethnic background. Every year, more patients are receiving the life-saving marrow or cord blood transplant they need because of the community of donors, volunteers, health care professionals, researchers and financial supporters.”