Epilepsy Foundation of Colorado

“The organization's 990 was prepared by the outside accountants and reviewed by the executive committee of the foundation, which consists of the foundation officers. The completed 990 was made available to board members at a full board meeting prior to filing with the irs.”

“Each new board member receives a board manual that includes a disclosure document that must be signed in order to serve on the board. The ceo reviews the disclosure document and brings any potential conflict of interest to the attention of the board president. The board president reviews the situation and decides whether a conflict exists and, if so, what measures should be taken. All board members must sign the conflict of interest disclosure statement on an annual basis. Employees of the organization sign a conflict of interest disclosure statement upon hire, and bring potential conflicts to the attention of their supervisor, who will alert the ceo. If the ceo is unable to resolve the situation, it is brought to the attention of the board of directors.”

“Senior management compensation is determined by the board of directors based on performance and market conditions. The ceo meets with the board treasurer, finance committee chair, and an hr expert to discuss staff increases based on statewide compensation survey and benchmark data.”

“The organization's governing documents, conflict of interest policy, and financial statements are available for inspection upon request by phone, website, or other method of communication.”

“Over the past year, the epilepsy foundation of colorado & wyoming has experienced a remarkable improvement in our financial position, largely owing to the extraordinary generosity of our donors and the rebound in the stock market. Through our donors' unwavering support, the foundation has been able to bolster our resources, expand our outreach, and enhance our services for individuals affected by epilepsy.”

“The mission of the epilepsy foundation of colorado & wyoming is to connect, educate and empower the nearly 65,000 individuals in colorado and wyoming diagnosed with epilepsy to live their best lives. With one in 26 people developing epilepsy in his or her lifetime it is our goal to reduce stigma and raise awareness, advocate for better programs and resources, and provide knowledge and support to the community. We are the only organization in colorado and wyoming fighting to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives. For 60 years, the epilepsy foundation of colorado & wyoming has brought hope and opportunities to thousands of children, adults, families, friends and caregivers. Through our programs and services we connect people to healthcare providers, support networks, and to each other. We educate schools, employers, and the community at large, to reduce stigma and raise awareness. We also empower people affected by epilepsy with knowledge, resources, and advocacy. We have extended our reach to the broader community through strong partnerships with community nonprofits, hospitals, pharmaceutical companies and patient and caregiver groups to sponsor educational events to raise awareness and build connections for people with epilepsy. Some examples of our comprehensive programs include: epilepsy education through programs like community training and seizure first aid, spanish- language outreach, and an annual epilepsy connect symposium; information and referral on medications, procedures, physicians, and more; emergency financial assistance for prescription drugs, utilities, and groceries for families in crisis; mental health programs such as project uplift, case management, and art therapy available to assist those with epilepsy who are as much as five times more likely to have depression and anxiety compared to the general population; and school training, summer camps and youth leadership opportunities focusing on advocacy and support for children and teens impacted by epilepsy, which can be an isolating and lonely diagnosis.”