Civic Intelligence

Rare Village Foundation

EIN 83-4699994 • 501(c)3 • Mckinney, TX

Pub. 78 Eligible

Profile

To fight for cures for rare diseases and empower individuals with rare diseases to live their best lives through local community education, inspiring advocacy, and timely connection to critical research that leads to cures

6808 Old Glory CTMckinney, TX 75071

rarevillage.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

19th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

20th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

60th percentile

10.0%

Higher net margin than 60% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

40th percentile

$0

Higher top officer pay than 40% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

79th percentile

21%

Faster asset growth than 79% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

76th percentile

33%

Faster revenue growth than 76% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Up

$2,029,704

Up $348,228 (+21%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$2,029,704

Up $348,228 (+21%) from 2023

Revenue

Up

$3,496,194

Up $870,004 (+33%) from 2023

Expenses

Up

$3,147,966

Up $1,000,761 (+47%) from 2023

Net Income

Down

$348,228

Down $130,757 (-27%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2019: $65,218Liabilities 2019: $02019Assets 2020: $84,368Liabilities 2020: $0Net Assets 2020: $84,3682020Assets 2021: $958,533Liabilities 2021: $0Net Assets 2021: $958,5332021Assets 2022: $1,202,491Liabilities 2022: $0Net Assets 2022: $1,202,4912022Assets 2023: $1,681,476Liabilities 2023: $0Net Assets 2023: $1,681,4762023Assets 2024: $2,029,704Liabilities 2024: $0Net Assets 2024: $2,029,7042024

Highlighted filing

2024

Assets$2,029,704
Liabilities$0
Net Assets$2,029,704

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MRevenue 2019: $100,025Expenses 2019: $61,598Net Income 2019: $38,4272019Revenue 2020: $38,873Expenses 2020: $42,932Net Income 2020: -$4,0592020Revenue 2021: $2,314,057Expenses 2021: $1,389,893Net Income 2021: $924,1642021Revenue 2022: $1,374,746Expenses 2022: $1,130,788Net Income 2022: $243,9582022Revenue 2023: $2,626,190Expenses 2023: $2,147,205Net Income 2023: $478,9852023Revenue 2024: $3,496,194Expenses 2024: $3,147,966Net Income 2024: $348,2282024

Highlighted filing

2024

Revenue$3,496,194
Expenses$3,147,966
Net Income$348,228

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Sep 29, 2025
Return Version
2024v5.2
Gross Receipts
$3,496,194
Mission and Program Overview

Mission

To fight for cures for rare diseases and empower individuals with rare diseases to live their best lives through local community education, inspiring advocacy, and timely connection to critical research that leads to cures

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,681,476$2,029,704▲ $348,228
Cap Stk Tr Prin Current Funds$1,681,476$2,029,704▲ $348,228
Total Assets$1,681,476$2,029,704▲ $348,228
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$1,681,476$2,029,704▲ $348,228
Total Liabilities and Net Assets / Fund Balance$1,681,476$2,029,704▲ $348,228
Compensation and Service Providers

Board Members and Trustees

NameTitle
Kasey WollebenPresident Director
Gina HannVice President Secretary Director
Amber FreedDirector
Amy SowellTreasurer Director
Revenue and Support

Revenue Composition

Contributions and Grants
$3,496,019
Program Service Revenue
$0
Investment Income
$175
Other Revenue
$0
All Other Contributions
$3,450,732
Change in Net Assets
$348,228
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$3,015,227
Other Expenses$132,739
Total Fundraising Expense$38,293
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$3,015,227--$3,015,227
Advertising--$38,293$38,293
Fees for Services Legal-$26,486-$26,486
Information Technology-$25,512-$25,512
Office Expenses$9,049$10,001-$19,050
Travel$15,376--$15,376
Other Expenses-$359-$359
Total Functional Expenses$3,039,652$70,021$38,293$3,147,966
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
For Henry AhcNew York, NY-Research$842,626
Andelyn BiosciencesColumbus, OH-Research$599,152
Charles River Discovery ResearchReading, MA, Fr-Research$304,722
Evrlum BioAustin, TX-Research$291,521
Sonshine FoundationEvanston, IL-Research$161,526
Perlara PbcSouth San Francisco, CA, It-Research$130,727
Unravel BioscienceMedford, MA-Research$120,550
Northwestern UniversityNew York, NY-Research$109,091
Rarebasetranscripta BioSan Diego, CA-Research$105,288
University of MissouriPalo Alto, CA-Research$91,488
La Jolla LabsEl Cajon, CA-Research$75,831
Seattle Childrens HospitalFramingham, MA-Research$50,000
Ichan School of MedicineSeattle, WA-Research$38,000
Universit of PennColchester, VT-Research$35,027
IxcellsPhiladelphia, PA-Research$27,621
University of StrasburgSeattle, WA-Research$18,046
Canopy Life SciencesDanbury, CT, Si501c3Research$11,238
Ospedale San Raffale--Research$11,237
Ctnnb1 FoundationEl Paso, TX-Research$11,153
Boston Childrens HospitalBoston, MA-Research$10,000
Childrens HospitalPleasantville, NY-Research$5,936
Talus Bioscience--Research$5,000
St John Regional HospitalOxnard, CA-Research$3,980
VariantyxEl Paso, TX-Research$3,700
Atxpc FoundationColumbia, MO-Research$3,400
Ch Neurology--Research$2,289
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Tshirts$45,287$45,287$38,293$6,994
Total Events$45,287$45,287$38,293$6,994
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 governing body review Part VI line 11

Governing body has reviwed 990 prior to filing and the president has signed the return govening body did not do review

Conflict of interest policy compliance Part VI line 12C

Governing body and board routinely checks complinace in regards to conflict of interest by voting on all expenditures and making sure no related party is benefiting from expenditures

CEO executive director top management comp Part VI line 15A

All members of the governing body are unpaid, there is no compensation for any members of governing body

Other officer or key employee compensation Part VI line 15B

No employees exist in the non profit, no member of officer receives any compensation for work perfomed in the charity

Governing documents etc available to public Part VI line 19

All data and information including bookkeeping and filing of 990 is available upon request by email to governing body president

Filing and Contact Details

Filer

Filer Name
Rare Village Foundation
EIN
83-4699994
In Care Of
% KASEY WOLLEBEN
Phone
2145700700
Address
6808 OLD GLORY CT, MCKINNEY, TX 75071

Signing Officer

Name
Kasey Wolleben Officer
Title
President Director
Phone
2145700700
Signed
2025-09-29
Discuss with paid preparer
No

Organization Details

Principal Officer
Kasey Wolleben Officer
Formed
2019
Legal Domicile
TX
Voting Board Members
4
Independent Board Members
0
Employees
0

Preparer

Firm
Tax Busters Inc
Address
7310 REMCON CIR STE B, El Paso, TX 79912
Preparer
Kenneth J Croucher Jr
Phone
9158338299
Supplemental Narrative

Additional Explanations

Part III response or note to any other line in Part III

To fight for cures for rare diseases and empower individuals with rare diseases to live their best lives through local community education, inspiring advocacy, and timely connection to critical research that leads to cures

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IRS990ScheduleI/RecipientTable/ForeignAddress/CityNm2MILAN
IRS990ScheduleI/RecipientTable/ForeignAddress/CountryCd0SI
IRS990ScheduleI/RecipientTable/ForeignAddress/CountryCd1FR
IRS990ScheduleI/RecipientTable/ForeignAddress/CountryCd2IT
IRS990ScheduleI/RecipientTable/ForeignAddress/ForeignPostalCd0510000
IRS990ScheduleI/RecipientTable/ForeignAddress/ForeignPostalCd167081
IRS990ScheduleI/RecipientTable/ForeignAddress/ForeignPostalCd220132
IRS990ScheduleI/RecipientTable/ForeignAddress/ProvinceOrStateNm0LLULBANA
IRS990ScheduleI/RecipientTable/ForeignAddress/ProvinceOrStateNm1STRASBOURG
IRS990ScheduleI/RecipientTable/ForeignAddress/ProvinceOrStateNm2MILAN
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501C3
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt6RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt7RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt8RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt9RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt10RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt11RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt12RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt13RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt14RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt15RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt16RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt17RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt18RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt19RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt20RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt21RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt22RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt23RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt24RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt25RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0CANOPY LIFE SCIENCES
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1CHARLES RIVER DISCOVERY RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2PERLARA PBC
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3BOSTON CHILDRENS HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4EVRLUM BIO
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5LA JOLLA LABS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt6ANDELYN BIOSCIENCES
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt7ST JOHN REGIONAL HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt8UNRAVEL BIOSCIENCE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt9CTNNB1 FOUNDATION
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt10CHILDRENS HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt11ATXPC FOUNDATION
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt12UNIVERSITY OF MISSOURI
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt13RAREBASETRANSCRIPTA BIO
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt14IXCELLS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt15UNIVERSIT OF PENN
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt16FOR HENRY AHC
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt17SONSHINE FOUNDATION
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt18UNIVERSITY OF STRASBURG
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt19NORTHWESTERN UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt20SEATTLE CHILDRENS HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt21ICHAN SCHOOL OF MEDICINE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt22VARIANTYX
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt23OSPEDALE SAN RAFFALE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt24TALUS BIOSCIENCE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt25CH NEUROLOGY
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt04 MOUNTAIN VIEW TERRACE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1251 BALLARDVALE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt26000 SHORELINE CT
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3300 LONGWOOD AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt46101 HIGHLAND CAMPUS DR
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt51825 GILLESPIE WAY
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt61180 ARTHUR E ADAMS DR
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt71600 N ROSE AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt8196 BOSTON AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt94845 ALAMEDA
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1049 ORCHARD ST
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt11325 JESSE HALL
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt122882 GREER RD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1310101 WILLOW CREEK
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1419104
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt15PO BOX 181
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt161040 6TH AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt17633 CLARK ST
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt184800 SANDPOINT WAY
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt191 GUSTAVE LEVY PL
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt201671 WORCESTER RD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt21550 17TH AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt224801 ALNBERTA AVE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0DANBURY
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Reading
IRS990ScheduleI/RecipientTable/USAddress/CityNm2South San Francisco
IRS990ScheduleI/RecipientTable/USAddress/CityNm3Boston
IRS990ScheduleI/RecipientTable/USAddress/CityNm4Austin
IRS990ScheduleI/RecipientTable/USAddress/CityNm5El Cajon
IRS990ScheduleI/RecipientTable/USAddress/CityNm6COLUMBUS
IRS990ScheduleI/RecipientTable/USAddress/CityNm7OXNARD
IRS990ScheduleI/RecipientTable/USAddress/CityNm8Medford
IRS990ScheduleI/RecipientTable/USAddress/CityNm9EL PASO
IRS990ScheduleI/RecipientTable/USAddress/CityNm10PLEASANTVILLE
IRS990ScheduleI/RecipientTable/USAddress/CityNm11COLUMBIA
IRS990ScheduleI/RecipientTable/USAddress/CityNm12PALO ALTO
IRS990ScheduleI/RecipientTable/USAddress/CityNm13SAN DIEGO
IRS990ScheduleI/RecipientTable/USAddress/CityNm14PHILADELPHIA
IRS990ScheduleI/RecipientTable/USAddress/CityNm15COLCHESTER
IRS990ScheduleI/RecipientTable/USAddress/CityNm16NEW YORK
IRS990ScheduleI/RecipientTable/USAddress/CityNm17EVANSTON
IRS990ScheduleI/RecipientTable/USAddress/CityNm18SEATTLE
IRS990ScheduleI/RecipientTable/USAddress/CityNm19NEW YORK
IRS990ScheduleI/RecipientTable/USAddress/CityNm20Framingham
IRS990ScheduleI/RecipientTable/USAddress/CityNm21Seattle
IRS990ScheduleI/RecipientTable/USAddress/CityNm22El Paso
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0CT
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd4TX
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd5CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd6OH
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd7CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd8MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd9TX
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd10NY
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd11MO
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd12CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd13CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd14PA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd15VT
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd16NY
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd17IL
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd18WA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd19NY
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd20MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd21WA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd22TX
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd006810
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd101867

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