Civic Intelligence

Ctnnb1 Connect and Cure Inc

EIN 83-4541448 • 501(c)3 • Morristown, NJ

Profile

Finding treatments and a cure for CTNNB1 Syndrome to help children live their best lives possible while raising awareness and connecting families.

8 Loantaka Lane NorthMorristown, NJ 07960

www.curectnnb1.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

60th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

62nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

80th percentile

27%

Higher net margin than 80% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

80th percentile

29%

Faster asset growth than 80% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

61st percentile

7.0%

Faster revenue growth than 61% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets60th percentile

Assets

Up

$407,436

Up $91,192 (+29%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$407,436

Up $91,192 (+29%) from 2023

Operations
Liabilities / Revenue62nd percentileNet Margin80th percentile

Revenue

Up

$335,742

Up $21,864 (+7.0%) from 2023

Expenses

Up

$244,550

Up $50,240 (+26%) from 2023

Net Income

Down

$91,192

Down $28,376 (-24%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth80th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2019: $0Net Assets 2019: $02019Assets 2020: $0Net Assets 2020: $02020Assets 2021: $143,099Liabilities 2021: $0Net Assets 2021: $143,0992021Assets 2022: $196,676Net Assets 2022: $196,6762022Assets 2023: $316,244Liabilities 2023: $0Net Assets 2023: $316,2442023Assets 2024: $407,436Liabilities 2024: $0Net Assets 2024: $407,4362024

Highlighted filing

2024

Assets$407,436
Liabilities$0
Net Assets$407,436
Open 2024 Filing

Operations Trend

Revenue Growth61st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$300K$200K$100K$0Revenue 2019: $75,491Expenses 2019: $37,500Net Income 2019: $37,9912019Revenue 2020: $114,360Expenses 2020: $58,526Net Income 2020: $55,8342020Revenue 2021: $117,287Expenses 2021: $68,012Net Income 2021: $49,2752021Revenue 2022: $146,053Expenses 2022: $92,476Net Income 2022: $53,5772022Revenue 2023: $313,878Expenses 2023: $194,310Net Income 2023: $119,5682023Revenue 2024: $335,742Expenses 2024: $244,550Net Income 2024: $91,1922024

Highlighted filing

2024

Revenue$335,742
Expenses$244,550
Net Income$91,192
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$407,436
Liabilities
$0
Net assets
$407,436
Revenue
$335,742
Expenses
$244,550
Net income
$91,192
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$4.07$0.00$4.07$3.36$2.45$0.91
2023Summary only. Only limited summary data is available for this year.$3.16$0.00$3.16$3.14$1.94$1.20
2022Detailed filing. Detailed filing data is available for this year.$1.97$1.97$1.46$0.92$0.54
2021Detailed filing. Detailed filing data is available for this year.$1.43$0.00$1.43$1.17$0.68$0.49
2020Detailed filing. Detailed filing data is available for this year.$0.00$0.00$1.14$0.59$0.56
2019Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.75$0.38$0.38
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 10, 2025
Return Version
2024v5.2
Gross Receipts
$338,945
Mission and Program Overview

Mission

Finding treatments and a cure for CTNNB1 Syndrome to help children live their best lives possible while raising awareness and connecting families.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments-$221,467-
Cash and Non-Interest-Bearing Accounts$316,244$185,969▼ $130,275
Total Assets$316,244$407,436▲ $91,192
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$316,244$400,581▲ $84,337
Net Assets With Donor Restrictions-$6,855-
Total Net Assets Fund Balance$316,244$407,436▲ $91,192
Total Liabilities and Net Assets / Fund Balance$316,244$407,436▲ $91,192
Compensation and Service Providers
Top Officer Pay81st percentile

Board Members and Trustees

NameTitle
Emily AmersonPresident
Bruno RamalhoDirector
Crawford McWilliamsDirector
Effie ParksDirector
Ashley SwiftChief Communications Officer
Sean CochranChief Financial Officer
Ngano Tony King SrChief Research Officer
Alex DashiellSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$326,507
Program Service Revenue
$0
Investment Income
$7,673
Other Revenue
$1,562
All Other Contributions
$326,507
Change in Net Assets
$91,192
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$213,092
Other Expenses$31,458
Total Fundraising Expense$1,992
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$152,225--$152,225
Foreign Grants$60,867--$60,867
Conferences and Meetings$8,539--$8,539
Fees for Services Other$1,759$6,337-$8,096
Travel-$6,803-$6,803
Advertising--$1,992$1,992
Office Expenses-$1,713-$1,713
Insurance-$1,463-$1,463
Information Technology$655--$655
Other Expenses$22$529-$551
Total Functional Expenses$225,533$17,025$1,992$244,550
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Trustees of Tufts CollegeBoston, MA501c3CTNNB1 Research$117,000
Boston Children's HopsitalBoston, MA501c3CTNNB1 Natural History Study$30,000
Trustees of University of PennsylvaniaPhiladelphia, PA501c3CTNNB1 Sponsorship Grant$5,225

International Summary

Spending
$60,867

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe Including Iceland and GreenlandGrants to recipients located in the regionMedical research for CTNNB1 Syndrome--$60,867
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

“The organization has stockholders that members are Board of Directors.”

Form 990, Part VI, Section B, Line 11B

“The organization reviews the 990 form at a board meeting prior to submitting to the IRS.”

Form 990, Part VI, Section B, Line 12C

“The organization enforced compliance with its conflict of interest policy by reviewing it periodically at board meetings.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy, financial statements available to the public upon request as well as on the organziations website.”

Filing and Contact Details

Filer

Filer Name
CTNNB1 Connect and Cure Inc
EIN
83-4541448
Phone
9088036543
Address
8 Loantaka Lane North, Morristown, NJ 07960

Signing Officer

Name
Emily Amerson
Title
President
Phone
9088036543
Signed
2025-11-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Emily Amerson
Formed
2019
Legal Domicile
De
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
10

Preparer

Firm
Foundation Group Inc
Address
2451 Atrium Way Suite 300, Nashville, TN 37214
Preparer
Andrew D Payne EA
Phone
6153619445
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt060867
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0Europe Including Iceland and Greenland
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0Medical research for CTNNB1 Syndrome
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0Grants to recipients located in the region
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantRecordsMaintainedInd0true
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt060862
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0WIRE
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0Gene Therapy - Medical research for CTNNB1 Syndrome
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0Europe Including Iceland and Greenland
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/ValuationMethodUsedDesc0FMV
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SubtotalSpentAmt060867
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0The board of directors reviews proposed recipients to determine needs and proposed uses of grant funds. The recipients are then routinely monitored via financial progress reports, to ensure the funds are being used accordingly to accomplish the proposed purpose.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0Part I Line 2
IRS990ScheduleF/TotalOtherOrgCnt01
IRS990ScheduleF/TotalSpentAmt060867
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt0117000
IRS990ScheduleI/RecipientTable/CashGrantAmt130000
IRS990ScheduleI/RecipientTable/CashGrantAmt25225
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501c3
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0CTNNB1 Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1CTNNB1 Natural History Study
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2CTNNB1 Sponsorship Grant
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Trustees of Tufts College
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1Boston Children's Hopsital
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2Trustees of University of Pennsylvania
IRS990ScheduleI/RecipientTable/RecipientEIN0042103634
IRS990ScheduleI/RecipientTable/RecipientEIN1042774441
IRS990ScheduleI/RecipientTable/RecipientEIN2231352685
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0150 Harrison Ave
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1300 Longwood Ave
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt21 College Hall
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Boston
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Boston
IRS990ScheduleI/RecipientTable/USAddress/CityNm2Philadelphia
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2PA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd002111
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd102115
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd219104
IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc0FMV
IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc1FMV
IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc2FMV
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0The board of directors reviews proposed recipients to determine needs and proposed uses of assistance. The recipients are then routinely moniotred to ensure the assistance is being used accordingly to accomplish the proposed purpose.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Part I Line 2
IRS990ScheduleI/Total501c3OrgCnt03
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The organization has stockholders that members are Board of Directors.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The organization reviews the 990 form at a board meeting prior to submitting to the IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The organization enforced compliance with its conflict of interest policy by reviewing it periodically at board meetings.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The organization makes its governing documents, conflict of interest policy, financial statements available to the public upon request as well as on the organziations website.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, Line 6
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section C, Line 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0MA
IRS990/StatesWhereCopyOfReturnIsFldCd1NJ
IRS990/StatesWhereCopyOfReturnIsFldCd2NY
IRS990/StatesWhereCopyOfReturnIsFldCd3SC
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0316244
IRS990/TotalAssetsEOYAmt0407436
IRS990/TotalAssetsGrp/BOYAmt0316244
IRS990/TotalAssetsGrp/EOYAmt0407436
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0326507
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt01992
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt017025
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0225533
IRS990/TotalFunctionalExpensesGrp/TotalAmt0244550
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0316244
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0407436
IRS990/TotalProgramServiceExpensesAmt0225533
IRS990/TotalRevenueGrp/ExclusionAmt09235
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0335742
IRS990/TotalVolunteersCnt010
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0316244
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0407436
IRS990/TravelGrp/ManagementAndGeneralAmt06803
IRS990/TravelGrp/TotalAmt06803
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt08 Loantaka Lane North
IRS990/USAddress/CityNm0Morristown
IRS990/USAddress/StateAbbreviationCd0NJ
IRS990/USAddress/ZIPCd007960
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt08
IRS990/WebsiteAddressTxt0https://www.curectnnb1.org/
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Emily Amerson

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