Civic Intelligence

Myhre Syndrome Foundation

EIN 83-4086943 • 501(c)3 • Richardson, TX

Profile

Funding research and patient advocacy

25 Creekwood CirRichardson, TX 75080

www.myhresyndrome.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

18th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Liabilities / Revenue

19th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Net Margin

94th percentile

67%

Higher net margin than 94% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

98th percentile

247%

Faster asset growth than 98% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2025

Revenue Growth

95th percentile

148%

Faster revenue growth than 95% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2025

Balance Sheet
Liabilities / Assets18th percentile

Assets

Up

$2,036,989

Up $1,155,450 (+131%) from 2024

Liabilities

Flat

$0

Flat from 2024

Net Assets

Up

$2,036,989

Up $1,155,450 (+131%) from 2024

Operations
Liabilities / Revenue19th percentileNet Margin94th percentile

Revenue

Up

$1,722,681

Up $868,812 (+102%) from 2024

Expenses

Up

$567,231

Up $464,107 (+450%) from 2024

Net Income

Up

$1,155,450

Up $404,705 (+54%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth98th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2020: $23,301Liabilities 2020: $0Net Assets 2020: $23,3012020Assets 2021: $117,699Liabilities 2021: $02021Assets 2022: $48,766Liabilities 2022: $0Net Assets 2022: $48,7662022Assets 2023: $125,334Liabilities 2023: $0Net Assets 2023: $125,3342023Assets 2024: $881,539Liabilities 2024: $0Net Assets 2024: $881,5392024Assets 2025: $2,036,989Liabilities 2025: $0Net Assets 2025: $2,036,9892025

Highlighted filing

2025

Assets$2,036,989
Liabilities$0
Net Assets$2,036,989
Open 2025 Filing

Operations Trend

Revenue Growth95th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KRevenue 2020: $49,157Expenses 2020: $25,856Net Income 2020: $23,3012020Revenue 2021: $105,626Expenses 2021: $8,215Net Income 2021: $97,4112021Revenue 2022: $112,578Expenses 2022: $181,511Net Income 2022: -$68,9332022Revenue 2023: $136,487Expenses 2023: $59,919Net Income 2023: $76,5682023Revenue 2024: $853,869Expenses 2024: $103,124Net Income 2024: $750,7452024Revenue 2025: $1,722,681Expenses 2025: $567,231Net Income 2025: $1,155,4502025

Highlighted filing

2025

Revenue$1,722,681
Expenses$567,231
Net Income$1,155,450
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$2,036,989
Liabilities
$0
Net assets
$2,036,989
Revenue
$1,722,681
Expenses
$567,231
Net income
$1,155,450
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.04$0.00$2.04$1.72$0.57$1.16
2024Detailed filing. Detailed filing data is available for this year.$0.88$0.00$0.88$0.85$0.10$0.75
2023Detailed filing. Detailed filing data is available for this year.$0.13$0.00$0.13$0.14$0.06$0.08
2022Detailed filing. Detailed filing data is available for this year.$0.05$0.00$0.05$0.11$0.18$0.07
2021Summary only. Only limited summary data is available for this year.$0.12$0.00$0.11$0.01$0.10
2020Detailed filing. Detailed filing data is available for this year.$0.02$0.00$0.02$0.05$0.03$0.02
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Nov 13, 2025
Return Version
2024v5.2
Gross Receipts
$1,722,681
Mission and Program Overview

Mission

Funding research and advocacy

Myhre Syndrome Foundation is a Funding research and patient advocacy organization dedicated providing hope and improving the lives of those impacted by Myhre syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$755,833$1,906,609▲ $1,150,776
Cash and Non-Interest-Bearing Accounts$125,706$130,380▲ $4,674
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$881,539$2,036,989▲ $1,155,450
Other Assets Total-$0-
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$881,539$2,036,989▲ $1,155,450
Total Net Assets Fund Balance$881,539$2,036,989▲ $1,155,450
Total Liabilities and Net Assets / Fund Balance$881,539$2,036,989▲ $1,155,450
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Armelle pindonChief Scientific OfficerFT$120,000$120,000
Kate WearsExecutive DirectorPT$64,921$64,921

Board Members and Trustees

NameTitle
Ines WhitePresident
Don ClarkVice President
Betsy CoxDirector
Jessica SimkinsDirector
Kathy YoungDirector
Mary YoungDirector
Matthew KantorDirector
Michelle SmithDirector
Susan MurphyDirector
Zac BurnsDirector
Justin SmithTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,671,904
Program Service Revenue
$0
Investment Income
$50,777
Other Revenue
$0
All Other Contributions
$1,671,904
Change in Net Assets
$1,155,450
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$351,654
Salaries, Compensation, and Employee Benefits$215,577
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$125,708--$125,708
Current Officers, Directors, Trustees, and Key Employees$72,753--$72,753
Conferences and Meetings$51,599--$51,599
Fees for Services Other$26,085--$26,085
Payroll Taxes$17,116--$17,116
Fees for Services Legal$4,350--$4,350
Fees for Services Accounting$4,200--$4,200
Other Expenses$1,917--$1,917
All Other Expenses$1,658--$1,658
Insurance$770--$770
Office Expenses$391--$391
Total Functional Expenses$567,231$0$0$567,231
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Board members Justin Smith and Michelle Smith are married. Both serve as voting members of the board. Board member Mary Young is daughter of Kathy Young who is co-founder & Director of the organization.Both serve as voting members of the board.”

Form 990, Part VI, Section B, Line 11B

“No review was or will be conducted.”

Form 990, Part VI, Section C, Line 19

“No documents available to the public.”

Filing and Contact Details

Filer

Filer Name
Myhre Syndrome Foundation
EIN
83-4086943
Phone
5024579012
Address
25 CREEKWOOD CIR, RICHARDSON, TX 75080

Signing Officer

Name
Justin Smith
Title
Treasurer
Signed
2025-11-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Justin Smith
Formed
2019
Legal Domicile
TX
Voting Board Members
10
Independent Board Members
0
Employees
3

Preparer

Firm
Fox & Associates
Address
397 Ray Street, Pleasanton, CA 94566
Preparer
Hetal AmarsedaCPA
Phone
9258465913
Supplemental Narrative

Additional Explanations

Organization'S rogram service accomplishments

“Beside ongoing supports of patients and families through education and connection, this year we:1.Established our preclinical platform with Neucyte2.Expanded our clinical support to 3 clinics across the US (Mass General, Texas Children's, and Stanford)3.Initiated our Disease Model Concept study4.Granted Emory money to do a NEO-PPI study5.Granted Genethon money for their FAP CAR-T study6.Tested gene repair therapy in our pre-clinical platform”

Raw XML AppendixShowing 400 of 432 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Board members Justin Smith and Michelle Smith are married. Both serve as voting members of the board. Board member Mary Young is daughter of Kathy Young who is co-founder & Director of the organization.Both serve as voting members of the board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1No review was or will be conducted.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2No documents available to the public.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Beside ongoing supports of patients and families through education and connection, this year we:1.Established our preclinical platform with Neucyte2.Expanded our clinical support to 3 clinics across the US (Mass General, Texas Children's, and Stanford)3.Initiated our Disease Model Concept study4.Granted Emory money to do a NEO-PPI study5.Granted Genethon money for their FAP CAR-T study6.Tested gene repair therapy in our pre-clinical platform
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, Line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section C, Line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Organization's rogram service accomplishments
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