Civic Intelligence

Dyrk1 a Syndrome Us

EIN 83-3342162 • 501(c)3 • Otsego, MI

Otsego, MI
Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

33rd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

35th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

4th percentile

-103%

Higher net margin than 4% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

55th percentile

$0

Higher top officer pay than 55% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

23rd percentile

-8.6%

Faster asset growth than 23% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

16th percentile

-23%

Faster revenue growth than 16% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets33rd percentile

Assets

Down

$505,384

Down $47,300 (-8.6%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Down

$505,384

Down $47,300 (-8.6%) from 2023

Operations
Liabilities / Revenue35th percentileNet Margin4th percentile

Revenue

Down

$45,794

Down $13,403 (-23%) from 2023

Expenses

Up

$93,094

Up $8,600 (+10%) from 2023

Net Income

Down

-$47,300

Down $22,003 (-87%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth23rd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2021: $441,429Liabilities 2021: $0Net Assets 2021: $441,4292021Assets 2022: $577,981Liabilities 2022: $0Net Assets 2022: $577,9812022Assets 2023: $552,684Liabilities 2023: $0Net Assets 2023: $552,6842023Assets 2024: $505,384Liabilities 2024: $0Net Assets 2024: $505,3842024

Highlighted filing

2024

Assets$505,384
Liabilities$0
Net Assets$505,384
Open 2024 Filing

Operations Trend

Revenue Growth16th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$300K$200K$100K$0-$100KRevenue 2021: $349,922Expenses 2021: $11,270Net Income 2021: $338,6522021Revenue 2022: $187,908Expenses 2022: $51,356Net Income 2022: $136,5522022Revenue 2023: $59,197Expenses 2023: $84,494Net Income 2023: -$25,2972023Revenue 2024: $45,794Expenses 2024: $93,094Net Income 2024: -$47,3002024

Highlighted filing

2024

Revenue$45,794
Expenses$93,094
Net Income-$47,300
Open 2024 Filing

Filings

Most recent year

2024 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.

Open filing
Assets
$505,384
Liabilities
$0
Net assets
$505,384
Revenue
$45,794
Expenses
$93,094
Net income
-$47,300
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.05$0.00$5.05$0.46$0.93$0.47
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.53$0.00$5.53$0.59$0.84$0.25
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.78$0.00$5.78$1.88$0.51$1.37
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.41$0.00$4.41$3.50$0.11$3.39
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 12, 2025
Return Version
2024v5.0
Gross Receipts
$45,794
Mission and Program Overview

Mission

Dyrk1a syndrome us is a non-profit 501(c)3, tax exempt organization with a main purpose of improving the quality of life for those affected by dyrk1a syndrome through support, rducation, research and collaboration

Improving the quality of life for those affected by dyrk1a syndrome through support, education, research and collaboration

Balance Sheet Detail
LineBeginningEndChange
Assets
Pd in Cap Srpls Land Bldg Eqp Fund$552,684$552,684→ $0
Cash and Non-Interest-Bearing Accounts$552,184$505,384▼ $46,800
Prepaid Expenses and Deferred Charges$500--
Rtn Earn Endowment Incm Other Fnds-$-47,300-
Total Assets$552,684$505,384▼ $47,300
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$552,684$505,384▼ $47,300
Total Liabilities and Net Assets / Fund Balance$552,684$505,384▼ $47,300
Compensation and Service Providers
Top Officer Pay55th percentile

Board Members and Trustees

NameTitle
Amy J ClugstonPresident
Ana DowneyDirector
CAROLLE O'NEILDirector
Katie WatsonDirector
Sarah GlassDirector
Adrianne ApodacaSecretary
Priscilla GuzmanTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$44,805
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$989
All Other Contributions
$44,805
Change in Net Assets
$-47,300
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$58,094
Grants and Similar Amounts Paid$35,000
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$38,268--$38,268
Grants to Domestic Orgs$35,000--$35,000
Travel-$5,452-$5,452
Advertising-$4,738-$4,738
Office Expenses-$3,625-$3,625
Fees for Services Legal-$1,645-$1,645
Fees for Services Accounting-$1,171-$1,171
Insurance-$385-$385
Other Expenses-$96-$96
Total Functional Expenses$73,268$19,826$0$93,094
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
N-lorem FoundationPasadena, CA--$35,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$989
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI

“Form 990, part vi, section b, line 11b: the annual form 990 is reviewed annually by the board before filing. Form 990, part vi, section b, line 12c: the policy is reviewed at least annually as a board form 990, part vi, section b, line 15: the organization does not currently provide any compensation, including compensation to officers. Form 990, part vi, section c, line 19: organizational documents are made available upon request.”

Form 990, Page 6, Part VI, Line 11B

“No review was or will be conducted.”

Form 990, Page 6, Part VI, Line 12C

“X”

Form 990, Page 6, Part VI, Line 19

“No documents available to the public”

Filing and Contact Details

Filer

Filer Name
Dyrk1a Syndrome US
EIN
83-3342162
Phone
2694924790
Address
1745 LORNA LANE, OTSEGO, MI 49078
Doing Business As
Dyrk1a Syndrome International US

Signing Officer

Name
Amy J Clugston
Title
President
Phone
2694924790
Signed
2025-05-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Amy J Clugston
Formed
2019
Legal Domicile
Mi
Voting Board Members
7
Independent Board Members
7
Employees
0
Volunteers
20

Preparer

Firm
Tkh Group Pc
Address
900 DIX STREET SUITE 100, OTSEGO, MI 49078
Preparer
Timothy K Hutchens CPA
Phone
2696941810
Supplemental Narrative

Additional Explanations

Form 990, Part III

“Form 990, part iii, line 1, description of organization mission: clinical care for those with dyrk1a syndrome. In doing so we also improve the lives of their caregivers and their families.”

Form 990, Part IX, Line 11G

“Programs: family support 36,778 0 0 research expenses 1,490 0 0 total 38,268 0 0”

Raw XML Appendix338 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
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IRS990/FormationYr02019
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IRS990/FSAuditedInd0false
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IRS990/FundraisingGrossIncomeAmt0989
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt07
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt035000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt035000
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt045794
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IRS990/IndependentVotingMemberCnt07
IRS990/IndoorTanningServicesInd0false
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IRS990/IRPDocumentCnt00
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IRS990/LoanOutstandingInd0false
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IRS990/MoreThan5000KToIndividualsInd0false
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IRS990/OperateHospitalInd0false
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IRS990/OrgDoesNotFollowFASB117Ind0X
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IRS990/OtherExpensesGrp/Desc2TAXES & LICENSES
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FORM 990, PART III, LINE 1, DESCRIPTION OF ORGANIZATION MISSION: CLINICAL CARE FOR THOSE WITH DYRK1A SYNDROME. IN DOING SO WE ALSO IMPROVE THE LIVES OF THEIR CAREGIVERS AND THEIR FAMILIES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1FORM 990, PART VI, SECTION B, LINE 11B: THE ANNUAL FORM 990 IS REVIEWED ANNUALLY BY THE BOARD BEFORE FILING. FORM 990, PART VI, SECTION B, LINE 12C: THE POLICY IS REVIEWED AT LEAST ANNUALLY AS A BOARD FORM 990, PART VI, SECTION B, LINE 15: THE ORGANIZATION DOES NOT CURRENTLY PROVIDE ANY COMPENSATION, INCLUDING COMPENSATION TO OFFICERS. FORM 990, PART VI, SECTION C, LINE 19: ORGANIZATIONAL DOCUMENTS ARE MADE AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2NO REVIEW WAS OR WILL BE CONDUCTED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3X
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4NO DOCUMENTS AVAILABLE TO THE PUBLIC
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5PROGRAMS: FAMILY SUPPORT 36,778 0 0 RESEARCH EXPENSES 1,490 0 0 TOTAL 38,268 0 0
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART III
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART IX, LINE 11G
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ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0AMY J CLUGSTON
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
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ReturnHeader/BusinessOfficerGrp/SignatureDt02025-05-12
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0OTSEGO
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd049078
ReturnHeader/PreparerPersonGrp/PhoneNum02696941810
ReturnHeader/PreparerPersonGrp/PreparationDt02025-05-12
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0TIMOTHY K HUTCHENS CPA
ReturnHeader/ReturnTs02025-05-15T09:01:20-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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