Liabilities / Assets
Score unavailable
Liabilities-to-assets requires both liabilities and assets on the latest valid filing.
EIN 83-2757964 • 501(c)3 • Saint Louis, MO
Profile
To promote awareness, research, and support for a rare genetic syndrome discovered in 2016.EBF3-related HADDS generally affects the nervous system, muscle tone, speech, and general development.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
Score unavailable
Liabilities-to-assets requires both liabilities and assets on the latest valid filing.
Liabilities / Revenue
Score unavailable
Liabilities-to-revenue requires both liabilities and revenue on the latest valid filing.
Net Margin
16th percentile
Higher net margin than 16% of similar nonprofits.
Top Officer Pay
84th percentile
Higher top officer pay than 84% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
44th percentile
Faster asset growth than 44% of similar nonprofits.
Revenue Growth
65th percentile
Faster revenue growth than 65% of similar nonprofits.
Assets
Down$94,246
Down $24,921 (-21%) from 2023
Liabilities
-
No earlier filing loaded for comparison.
Net Assets
Down$94,246
Down $24,921 (-21%) from 2023
Revenue
Down$60,541
Down $810 (-1.3%) from 2023
Expenses
Up$85,462
Up $44,119 (+107%) from 2023
Net Income
Down-$24,921
Down $44,929 (-225%) from 2023
Most recent year
2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.
To promote awareness, research, and support for a rare genetic syndrome discovered in 2016.EBF3-related HADDS generally affects the nervous system, muscle tone, speech, and general development.
| Description | Grants | Expenses |
|---|---|---|
| SEE SCHEDULE O | $25,000 | $76,194 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Lindsay Marshall | President | PT | $0 | - | - |
| Mallory Schindler | President-Outgoing | PT | $0 | - | - |
| Fernanda Tuoso | Vice President | PT | $0 | - | - |
| Ivette Matias-Sepersaude | Vice-President-Outgoing | PT | $0 | - | - |
| Chris Headings | Secretary | PT | $0 | - | - |
| Lauren Lynch | Secretary-Outgoing | PT | $0 | - | - |
| Jonathan Dirnbeck | Treasurer | PT | $0 | - | - |
| David Schindler | Treasurer-Outgoing | PT | $0 | - | - |
| James Amos | Board Member | - | $0 | - | - |
| Kristin Barakat | Board Member | - | $0 | - | - |
| Hannah Childers | Board Member | - | $0 | - | - |
| Julia Quam | Board Member | - | $0 | - | - |
“Part III - Statement of Program Service Accomplishments”
“Line 28 - Accomplishments For 2024:”
“EBF3 HADDS Foundation hosted its largest-ever International Conference with 250 global”
“participants joining virtually and in person. Throughout the year, the Foundation awarded $8,500 in travel”
“and medical grants, supported newly diagnosed families by providing research-based information”
“and direct correspondence through email and social media messages, and continued to foster community connection”
“through outreach such as worldwide Valentine mailers. The Foundation”
“received over 36,000 social media views and 15,000 website”
“visits, highlighting the importance and growth of awareness and engagement.”
“EBF3 HADDS Lab at the Jan & Dan Duncan Neurological Research Institute at Baylor Texas Childrens Hospital ; Charitable; Texas Childrens Hospital: 6621 Fannin Street, Houston, TX, 77030; N/A, 25000.”
“Advertising 5904.”
“Awards 637.”
“Bank Charges 211.”
“Bookkeeping 389.”
“Donations 1000.”
“Community Grants 2000.”
“Conferences 19309.”
“Meals 7165.”
“Office Expenses 4650.”
“Other Business Expenses 609.”
“Paypal Fees 240.”
“Reimbursable Expenses 65.”
“Social Clinic 660.”
“Travel Grants 6412.”
“Website 2664.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 9 | Kristin Barakat |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 10 | Hannah Childers |
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| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 0 | President |
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| IRS990EZ/OtherExpensesTotalAmt | 0 | 51915 |
| IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt | 0 | NONE |
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | To promote awareness, research, and support for a rare genetic syndrome discovered in 2016.EBF3-related HADDS generally affects the nervous system, muscle tone, speech, and general development. |
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| IRS990EZ/ProgramServiceRevenueAmt | 0 | 0 |
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| IRS990EZ/WebsiteAddressTxt | 0 | hadds.org |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 5330 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 710 |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Part III - Statement of Program Service Accomplishments |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Line 28 - Accomplishments For 2024: |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | EBF3 HADDS Foundation hosted its largest-ever International Conference with 250 global |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | participants joining virtually and in person. Throughout the year, the Foundation awarded $8,500 in travel |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | and medical grants, supported newly diagnosed families by providing research-based information |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | and direct correspondence through email and social media messages, and continued to foster community connection |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | through outreach such as worldwide Valentine mailers. The Foundation |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 7 | received over 36,000 social media views and 15,000 website |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 8 | visits, highlighting the importance and growth of awareness and engagement. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 9 | EBF3 HADDS Lab at the Jan & Dan Duncan Neurological Research Institute at Baylor Texas Childrens Hospital ; Charitable; Texas Childrens Hospital: 6621 Fannin Street, Houston, TX, 77030; N/A, 25000. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 10 | Advertising 5904. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 11 | Awards 637. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 12 | Bank Charges 211. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 13 | Bookkeeping 389. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 14 | Donations 1000. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 15 | Community Grants 2000. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 16 | Conferences 19309. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 17 | Meals 7165. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 18 | Office Expenses 4650. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 19 | Other Business Expenses 609. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 20 | Paypal Fees 240. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 21 | Reimbursable Expenses 65. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 22 | Social Clinic 660. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 23 | Travel Grants 6412. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 24 | Website 2664. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Other |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Other |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Other |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Other |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Other |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | Other |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | Other |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 7 | Other |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 8 | Other |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 9 | Form 990EZ, Part I, Line 10 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 10 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 11 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 12 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 13 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 14 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 15 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 16 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 17 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 18 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 19 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 20 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 21 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 22 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 23 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 24 | Form 990EZ, Part I, Line 16 |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Jonathan Dirnbeck |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Treasurer |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 3142298854 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-11-08 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | EBF3 HADDS Foundation |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | EBF3 |
| ReturnHeader/Filer/EIN | 0 | 832757964 |
| ReturnHeader/Filer/PhoneNum | 0 | 3142298854 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | P O Box 220052 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Saint Louis |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | MO |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 63122 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | true |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 824912386 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | JUDY L ARFA CPA PLLC |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 4265 SAN FELIPE 1100 |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | HOUSTON |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | TX |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 77027 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 7132403315 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2025-11-13 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | Judy L Arfa CPA |
| ReturnHeader/ReturnTs | 0 | 2025-11-13T07:04:41-08:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
| ReturnHeader/TaxYr | 0 | 2024 |
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