Civic Intelligence

Project 8P Foundation

EIN 83-2545342 • 501(c)3 • New York, NY

Profile

To accelerate the discovery of treatments and quality clinical care for children and adults with chromosome 8p disorders.

787 Seventh Avenue 31st floorNew York, NY 10019

www.project8p.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

41st percentile

0.03x

Higher debt load relative to assets than 41% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

42nd percentile

0.05x

Higher debt load relative to revenue than 42% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

78th percentile

27%

Higher net margin than 78% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

74th percentile

$0

Higher top officer pay than 74% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

76th percentile

18%

Faster asset growth than 76% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

26th percentile

-6.1%

Faster revenue growth than 26% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets41st percentile

Assets

Up

$2,943,272

Up $451,264 (+18%) from 2023

Liabilities

Down

$86,971

Down $101,623 (-54%) from 2023

Net Assets

Up

$2,856,301

Up $552,887 (+24%) from 2023

Operations
Liabilities / Revenue42nd percentileNet Margin78th percentile

Revenue

Down

$1,888,508

Down $122,851 (-6.1%) from 2023

Expenses

Up

$1,387,442

Up $474,133 (+52%) from 2023

Net Income

Down

$501,066

Down $596,984 (-54%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth76th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2018: $0Liabilities 2018: $0Net Assets 2018: $02018Assets 2019: $141,085Liabilities 2019: $0Net Assets 2019: $141,0852019Assets 2020: $881,283Liabilities 2020: $28,334Net Assets 2020: $852,9492020Assets 2021: $973,686Liabilities 2021: $0Net Assets 2021: $973,6862021Assets 2022: $1,162,555Liabilities 2022: $0Net Assets 2022: $1,162,5552022Assets 2023: $2,492,008Liabilities 2023: $188,594Net Assets 2023: $2,303,4142023Assets 2024: $2,943,272Liabilities 2024: $86,971Net Assets 2024: $2,856,3012024

Highlighted filing

2024

Assets$2,943,272
Liabilities$86,971
Net Assets$2,856,301
Open 2024 Filing

Operations Trend

Revenue Growth26th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0Revenue 2019: $222,210Expenses 2019: $81,125Net Income 2019: $141,0852019Revenue 2020: $891,452Expenses 2020: $179,588Net Income 2020: $711,8642020Revenue 2021: $644,022Expenses 2021: $569,741Net Income 2021: $74,2812021Revenue 2022: $611,641Expenses 2022: $301,268Net Income 2022: $310,3732022Revenue 2023: $2,011,359Expenses 2023: $913,309Net Income 2023: $1,098,0502023Revenue 2024: $1,888,508Expenses 2024: $1,387,442Net Income 2024: $501,0662024

Highlighted filing

2024

Revenue$1,888,508
Expenses$1,387,442
Net Income$501,066
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$2,943,272
Liabilities
$86,971
Net assets
$2,856,301
Revenue
$1,888,508
Expenses
$1,387,442
Net income
$501,066
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.94$0.09$2.86$1.89$1.39$0.50
2023Detailed filing. Detailed filing data is available for this year.$2.49$0.19$2.30$2.01$0.91$1.10
2022Detailed filing. Detailed filing data is available for this year.$1.16$0.00$1.16$0.61$0.30$0.31
2021Detailed filing. Detailed filing data is available for this year.$0.97$0.00$0.97$0.64$0.57$0.07
2020Detailed filing. Detailed filing data is available for this year.$0.88$0.03$0.85$0.89$0.18$0.71
2019Detailed filing. Detailed filing data is available for this year.$0.14$0.00$0.14$0.22$0.08$0.14
2018Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 5, 2025
Return Version
2024v5.2
Gross Receipts
$1,888,508
Mission and Program Overview

Mission

To accelerate the discovery of treatments for chromosome 8p disorders with a translational research program and a standard of care to empower meaningful lives in a unified community today.

To empower a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow. Activities include clinical care, research, AI data-driven platform and biorepository, and education and advocacy.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$573,374$1,424,495▲ $851,121
Pledges and Grants Receivable$1,043,892$1,229,117▲ $185,225
Savings and Temporary Cash Investments$874,742$289,660▼ $585,082
Total Assets$2,492,008$2,943,272▲ $451,264
Liabilities
Accounts Payable and Accrued Expenses$188,594$71,422▼ $117,172
Grants Payable-$15,549-
Total Liabilities$188,594$86,971▼ $101,623
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,303,414$1,706,301▲ $402,887
Net Assets With Donor Restrictions$1,000,000$1,150,000▲ $150,000
Total Net Assets Fund Balance$2,303,414$2,856,301▲ $552,887
Total Liabilities and Net Assets / Fund Balance$2,492,008$2,943,272▲ $451,264
Compensation and Service Providers
Top Officer Pay74th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Lauren ChabyExecutive DirectorFT$102,083$102,083

Board Members and Trustees

NameTitle
David JacksonDirector
Jahn Marie SuretteDirector
Wissam NesrDirector
Bina ShahFounderCEOTreasurer
Erica SeaborneSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$1,787,094
Program Service Revenue
$19,288
Investment Income
$53,281
Other Revenue
$28,845
All Other Contributions
$1,787,094
Change in Net Assets
$501,066

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,887,367
Revenue Not Reported on Financial Statements
$1,141
Revenue Not Reported on Form 990
$51,821
Total Revenue per Audited Statements
$1,939,188
Total Revenue per Form 990
$1,888,508
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$647,660
Grants and Similar Amounts Paid$491,099
Salaries, Compensation, and Employee Benefits$248,683
Total Fundraising Expense$51,294
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$425,418--$425,418
Fees for Services Other$363,845$35,891$1,208$400,944
Other Salaries and Wages$70,629$37,507$18,889$127,025
Current Officers, Directors, Trustees, and Key Employees$56,761$30,143$15,179$102,083
Conferences and Meetings$97,962--$97,962
Foreign Grants$63,181--$63,181
Information Technology$35,149$4,348$10,280$49,777
Travel$27,836$5,544$334$33,714
Fees for Services Legal$6,398$13,716$462$20,576
Fees for Services Accounting$6,351$13,615$458$20,424
Payroll Taxes$10,884$5,780$2,911$19,575
Other Expenses$6,614$1,787-$8,401
Office Expenses$2,327$4,312$1,573$8,212
Advertising$4,324$891-$5,215
Grants to Domestic Individuals$2,500--$2,500
Insurance-$1,294-$1,294
Fees for Service Investment Mgmnt Fees-$1,141-$1,141
Total Functional Expenses$1,180,179$155,969$51,294$1,387,442

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$1,387,442
Expenses per Audited Statements$1,386,301
Total Expenses per Audited Statements$1,386,301
Expenses Not Reported on Financial Statements$1,141
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Regents of the Univ of CalOakland, CA501c3Research$220,994
University of ConnecticutStorrs Mansfield, CT501c3Research$79,923
Yale UniversityNew Haven, CT501c3-$79,647
UC SanDiegoLa Jolla, CA501c3Research$49,641
Childrens Hospital ColoradoColorado Springs, CO501c3Clinical Care$20,000
Uplifting AthletesDoylestown, PA501c3Research$10,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$28,845
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 1$28,845$28,845-$28,845
Total Events$28,845$28,845-$28,845
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 governing body review Part VI line 11

“The Final 990 (filed with the IRS) will be available at the next meeting of the board for inspection. In addition, upon request of any board member, a copy will be provided. If there are any material changes, an amended 990 will be filed.”

Conflict of interest policy compliance Part VI line 12C

“The Organization enforces the conflict of interest policy by monitoring known relationships, questionnaires, and noting any changes in disclosed information. Any conflict is reviewed by the board before a decision is made as to whether to approve the transaction.”

Form 990 availability to public Part VI line 18

“These documents are available to the public on its website.”

Governing documents etc available to public Part VI line 19

“These documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Project 8p Foundation
EIN
83-2545342
In Care Of
% Bina Shah
Phone
2122483260
Address
787 Seventh Avenue 31st floor, New York, NY 10019

Signing Officer

Name
Bina Shah
Title
FounderCEOTreasurer
Phone
2122483260
Signed
2025-11-05
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Bina Shah
Formed
2018
Legal Domicile
Ny
Voting Board Members
4
Independent Board Members
4
Employees
3
Volunteers
10

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

List of other fees for services expenses Part IX line 11G

“HR Fees: $3,961Other Prof Fees: $39,975MarCom: $20,424Research Fees: $347,102”

Financial Statement Notes

Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740)

“The Organization follows the Financial Accounting Standards Board Accounting Standards Codification, which provides guidance on accounting for uncertainty in income taxes recognized in The Organizations financial statements, if any. As of year end, The Organization had no unrecognized tax benefits related to uncertain tax positions in its information return that would qualify for either recognition or disclosure in its financial statements. The Organizations policy would be to recognize interest and penalties on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. Through year end, there have been no matters that would have resulted in an accrual for interest and/or penalties.”

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IRS990/ProgSrvcAccomActy2Grp/Desc0Community Outreach & Conferences: Project 8p supported over 200 families with clinical tools, education, and services. We hosted a three-day Family & Science Conference, bringing together researchers, clinicians, and families to foster collaboration and accelerate progress. Through monthly roundtables and ongoing stakeholder education, we promote a team science approach while sharing the latest research, clinical insights, and lived experiences. These efforts strengthen our shared goals and ensure the voices of those affected by 8p remain central to every initiative.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Patient Impact (Clinics & Care): Project 8p advanced its mission to improve clinical care for individuals with chromosome 8p disorders through several key initiatives. We published the first-ever Clinical Care Guidelines for 8p, providing an evidence-informed framework to guide physicians and care teams worldwide. We also launched the Patient Navigator, a free, interactive, online tool that helps families and clinicians understand symptoms across body systemsdrawing on real-world data from our 8p Insights Portal.Additionally, we expanded our Multidisciplinary Hospital Clinic Model, supporting the development of coordinated care hubs that bring together specialists to provide comprehensive, patient-centered services. These efforts mark important strides in reducing diagnostic delays, improving care coordination, and empowering families with accessible, data-driven resources.
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0The Organization follows the Financial Accounting Standards Board Accounting Standards Codification, which provides guidance on accounting for uncertainty in income taxes recognized in The Organizations financial statements, if any. As of year end, The Organization had no unrecognized tax benefits related to uncertain tax positions in its information return that would qualify for either recognition or disclosure in its financial statements. The Organizations policy would be to recognize interest and penalties on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. Through year end, there have been no matters that would have resulted in an accrual for interest and/or penalties.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740)
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IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Clinical Care
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4Research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Childrens Hospital Colorado
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1The Regents of the Univ of Cal
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2University of Connecticut
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3UC SanDiego
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4Uplifting Athletes
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5Yale University
IRS990ScheduleI/RecipientTable/RecipientEIN0840813462
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IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt11111 Franklin St
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2352 Mansfield Rd
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt39500 Gilman Dr
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt48 Atkinson Drive Unit 574
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt5PO Box 208356
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Colorado Springs
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Oakland
IRS990ScheduleI/RecipientTable/USAddress/CityNm2Storrs Mansfield
IRS990ScheduleI/RecipientTable/USAddress/CityNm3La Jolla
IRS990ScheduleI/RecipientTable/USAddress/CityNm4Doylestown
IRS990ScheduleI/RecipientTable/USAddress/CityNm5New Haven
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The Final 990 (filed with the IRS) will be available at the next meeting of the board for inspection. In addition, upon request of any board member, a copy will be provided. If there are any material changes, an amended 990 will be filed.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The Organization enforces the conflict of interest policy by monitoring known relationships, questionnaires, and noting any changes in disclosed information. Any conflict is reviewed by the board before a decision is made as to whether to approve the transaction.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2These documents are available to the public on its website.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3These documents are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4HR Fees: $3,961Other Prof Fees: $39,975MarCom: $20,424Research Fees: $347,102
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990 availability to public Part VI line 18
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4List of other fees for services expenses Part IX line 11g
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