Civic Intelligence

Slc6A1 Connect

EIN 83-1415567 • 501(c)3 • Frisco, TX

Profile

Slc6a1 connect is a patient advocacy group dedicated to improving the lives of children and families affected by the slc6a1 mutation. Our focus is to raise awareness and fundraising to advance scientific research that will ultimately result in a cure.

1939 Temperence Hill DriveFrisco, TX 75034

www.slc6a1connect.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

58th percentile

0.11x

Higher debt load relative to assets than 58% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

77th percentile

0.38x

Higher debt load relative to revenue than 77% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

52nd percentile

5.2%

Higher net margin than 52% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

52nd percentile

4.6%

Faster asset growth than 52% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

48th percentile

5.9%

Faster revenue growth than 48% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Up

$2,404,524

Up $105,255 (+4.6%) from 2023

Liabilities

Up

$274,092

Up $55,968 (+26%) from 2023

Net Assets

Up

$2,130,432

Up $49,287 (+2.4%) from 2023

Revenue

Up

$716,694

Up $40,065 (+5.9%) from 2023

Expenses

Down

$679,506

Down $585,036 (-46%) from 2023

Net Income

Up

$37,188

Up $625,101 (+106%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2018: $69,526Liabilities 2018: $02018Assets 2019: $2,224,812Liabilities 2019: $50,000Net Assets 2019: $2,174,8122019Assets 2020: $2,212,220Liabilities 2020: $50,605Net Assets 2020: $2,161,6152020Assets 2021: $2,783,114Liabilities 2021: $120,000Net Assets 2021: $2,663,1142021Assets 2022: $2,802,564Liabilities 2022: $120,000Net Assets 2022: $2,682,5642022Assets 2023: $2,299,269Liabilities 2023: $218,124Net Assets 2023: $2,081,1452023Assets 2024: $2,404,524Liabilities 2024: $274,092Net Assets 2024: $2,130,4322024

Highlighted filing

2024

Assets$2,404,524
Liabilities$274,092
Net Assets$2,130,432

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2018: $114,184Expenses 2018: $44,658Net Income 2018: $69,5262018Revenue 2019: $2,176,855Expenses 2019: $71,569Net Income 2019: $2,105,2862019Revenue 2020: $800,954Expenses 2020: $714,151Net Income 2020: $86,8032020Revenue 2021: $984,255Expenses 2021: $482,756Net Income 2021: $501,4992021Revenue 2022: $944,773Expenses 2022: $957,076Net Income 2022: -$12,3032022Revenue 2023: $676,629Expenses 2023: $1,264,542Net Income 2023: -$587,9132023Revenue 2024: $716,694Expenses 2024: $679,506Net Income 2024: $37,1882024

Highlighted filing

2024

Revenue$716,694
Expenses$679,506
Net Income$37,188

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Aug 29, 2025
Return Version
2024v5.2
Gross Receipts
$716,694
Mission and Program Overview

Mission

Slc6a1 connect is a patient advocacy group dedicated to improving the lives of children and families affected by the slc6a1 mutation. Our focus is to raise awareness and fundraising to advance scientific research that will ultimately result in a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$2,174,788$2,130,527▼ $44,261
Cash and Non-Interest-Bearing Accounts$124,481$272,803▲ $148,322
Loans From Officers Directors$30,000$30,000→ $0
Accounts Receivable$0$1,194▲ $1,194
Total Assets$2,299,269$2,404,524▲ $105,255
Liabilities
Accounts Payable and Accrued Expenses$98,124$154,092▲ $55,968
Unsecured Notes Loans Payable$90,000$90,000→ $0
Total Liabilities$218,124$274,092▲ $55,968
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,081,145$2,130,432▲ $49,287
Total Net Assets Fund Balance$2,081,145$2,130,432▲ $49,287
Total Liabilities and Net Assets / Fund Balance$2,299,269$2,404,524▲ $105,255

Asset Categories

AssetBook ValueDepreciationBasis
Other Securities$2,130,527--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Amber FreedFounder/CEOFT$99,999$99,999

Board Members and Trustees

NameTitle
Gretchen McalisterFundraising Co-chair
Kimberly FryVice President
Angela MelkaAdvisor
Dr Angela MazurAdvisor
Michaella GallinaAdvisor
Chantal PittmanPatient Advocate
Kelsey PiroSecretary/treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$556,360
Program Service Revenue
$65,834
Investment Income
$94,500
Other Revenue
$0
All Other Contributions
$556,360
Change in Net Assets
$37,188
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$305,411
Grants and Similar Amounts Paid$266,446
Salaries, Compensation, and Employee Benefits$107,649
Total Fundraising Expense$53,518
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$266,446--$266,446
Conferences and Meetings$152,084--$152,084
Current Officers, Directors, Trustees, and Key Employees$99,999--$99,999
Office Expenses$1,179$7,508$3,558$12,245
Travel--$12,177$12,177
Fees for Services Accounting-$8,457-$8,457
Payroll Taxes$7,650--$7,650
Information Technology-$4,407$2,624$7,031
Other Expenses$5,910-$30,862$5,910
Advertising--$4,297$4,297
Fees for Service Investment Mgmnt Fees-$3,507-$3,507
Insurance-$2,026-$2,026
Total Functional Expenses$600,083$25,905$53,518$679,506
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of ColoradoAurora, CO501(c)(3)The Purpose of the Grants Are to Advance Scientific and Clinical Efforts to Advance the Cure of Slc6a1.$106,740
NATIONWIDE CHILDREN'S HOSPITALColumbus, OH501(c)(3)The Purpose of the Grants Are to Advance Scientific and Clinical Efforts to Advance the Cure of Slc6a1.$50,255
American Society of Gene & Cell TherapyWaukesha, WI501(c)(3)The Purpose of the Grants Are to Advance Scientific and Clinical Efforts to Advance the Cure of Slc6a1.$33,334
University of Texas SouthwesternDallas, TX501(c)(3)The Purpose of the Grants Are to Advance Scientific and Clinical Efforts to Advance the Cure of Slc6a1.$26,384
Combinedbrian IncBrentwood, TN501(c)(3)The Purpose of the Grants Are to Advance Scientific and Clinical Efforts to Advance the Cure of Slc6a1.$25,417
University of AlabamaTuscaloosa, AL501(c)(3)The Purpose of the Grants Are to Advance Scientific and Clinical Efforts to Advance the Cure of Slc6a1.$11,935
The Epilepsy FoundationBowie, MD501(c)(3)The Purpose of the Grants Are to Advance Scientific and Clinical Efforts to Advance the Cure of Slc6a1.$10,215
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$30,000$30,000→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

AMBER FREED, CO-FOUNDER

Form 990, Part VI, Section B, Line 11B

The organization's ceo and board of directors review the tax return prior to filing.

Form 990, Part VI, Section C, Line 19

The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Slc6a1 Connect
EIN
83-1415567
Phone
3039078038
Address
1939 TEMPERENCE HILL DRIVE, FRISCO, TX 75034

Signing Officer

Name
Amber Freed
Title
CEO
Phone
3039078038
Signed
2025-08-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Amber Freed
Formed
2018
Legal Domicile
TX
Voting Board Members
8
Independent Board Members
7
Employees
1
Volunteers
15

Preparer

Firm
Whitley Penn Llp
Address
5908 HEADQUARTERS DRIVE STE 300, PLANO, TX 75024
Preparer
Curtis Maxfield
Phone
4697763610
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IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0793
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt08135
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0154489
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.96200
IRS990ScheduleA/PublicSupportPY170Pct00.98130
IRS990ScheduleA/PublicSupportTotal170Amt03913851
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0556360
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0663787
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0917577
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0983212
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0792915
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt03913851
IRS990ScheduleA/TotalSupportAmt04068340
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt02130527
IRS990ScheduleD/OtherSecuritiesGrp/Desc0JPMORGAN CHASE
IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd0F
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalBookValueSecuritiesAmt02130527
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt050255
IRS990ScheduleI/RecipientTable/CashGrantAmt111935
IRS990ScheduleI/RecipientTable/CashGrantAmt226384
IRS990ScheduleI/RecipientTable/CashGrantAmt333334
IRS990ScheduleI/RecipientTable/CashGrantAmt425417
IRS990ScheduleI/RecipientTable/CashGrantAmt510215
IRS990ScheduleI/RecipientTable/CashGrantAmt6106740
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc3501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc4501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc5501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc6501(C)(3)
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt20
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt30
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt40
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt50
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt60
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt6THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1.
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0NATIONWIDE CHILDREN'S HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1UNIVERSITY OF ALABAMA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2UNIVERSITY OF TEXAS SOUTHWESTERN
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3AMERICAN SOCIETY OF GENE & CELL THERAPY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4COMBINEDBRIAN INC
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5THE EPILEPSY FOUNDATION
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt6UNIVERSITY OF COLORADO
IRS990ScheduleI/RecipientTable/RecipientEIN0010782751
IRS990ScheduleI/RecipientTable/RecipientEIN1636001138
IRS990ScheduleI/RecipientTable/RecipientEIN2752556007
IRS990ScheduleI/RecipientTable/RecipientEIN3911766321
IRS990ScheduleI/RecipientTable/RecipientEIN4831825692
IRS990ScheduleI/RecipientTable/RecipientEIN5520856660
IRS990ScheduleI/RecipientTable/RecipientEIN6010782751
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0700 CHILDRENS DRIVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1500 UNIVERSITY BOULEVARD EAST
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt25323 HARRY HINES BLVD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt320800 SWENSON DR STE 300
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt4510 OLD HICKORY BLVD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt53540 CRAIN HIGHWAY STE 675
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt613123 E 16TH AVE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0COLUMBUS
IRS990ScheduleI/RecipientTable/USAddress/CityNm1TUSCALOOSA
IRS990ScheduleI/RecipientTable/USAddress/CityNm2DALLAS
IRS990ScheduleI/RecipientTable/USAddress/CityNm3WAUKESHA
IRS990ScheduleI/RecipientTable/USAddress/CityNm4BRENTWOOD
IRS990ScheduleI/RecipientTable/USAddress/CityNm5BOWIE
IRS990ScheduleI/RecipientTable/USAddress/CityNm6AURORA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0OH
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1AL
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2TX
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3WI
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd4TN
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd5MD
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd6CO
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd043205
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd135401
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd275390
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd353186
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd437027
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd520716
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd680045
IRS990ScheduleI/Total501c3OrgCnt08
IRS990ScheduleI/TotalOtherOrgCnt08
IRS990/ScheduleJRequiredInd00
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt020000
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt110000
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd01
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd11
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BusinessName/BusinessNameLine1Txt0AMBER FREED
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BusinessName/BusinessNameLine1Txt1KIMBERLY FRY
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd00
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd10
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt0OPERATIONS
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt1OPERATIONS
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanToOrganizationInd0X
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanToOrganizationInd1X
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt020000
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt110000
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt0CEO
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt1VICE-PRESIDENT
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/WrittenAgreementInd00
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/WrittenAgreementInd10
IRS990ScheduleL/TotalBalanceDueAmt030000
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0AMBER FREED, CO-FOUNDER
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION'S CEO AND BOARD OF DIRECTORS REVIEW THE TAX RETURN PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION A, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt02299269
IRS990/TotalAssetsEOYAmt02404524
IRS990/TotalAssetsGrp/BOYAmt02299269

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