Liabilities / Assets
80th percentile
Higher debt load relative to assets than 80% of similar nonprofits.
EIN 83-1200789 • 501(c)3 • San Diego, CA
Profile
Improve the quality of life of SynGap-1 patients through the research and development of treatments, therapies and support systems.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
80th percentile
Higher debt load relative to assets than 80% of similar nonprofits.
Liabilities / Revenue
83rd percentile
Higher debt load relative to revenue than 83% of similar nonprofits.
Net Margin
61st percentile
Higher net margin than 61% of similar nonprofits.
Top Officer Pay
40th percentile
Higher top officer pay than 40% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
67th percentile
Faster asset growth than 67% of similar nonprofits.
Revenue Growth
50th percentile
Faster revenue growth than 50% of similar nonprofits.
Assets
Up$2,800,485
Up $269,052 (+11%) from 2023
Liabilities
Up$1,207,699
Up $38,438 (+3.3%) from 2023
Net Assets
Up$1,592,786
Up $230,614 (+17%) from 2023
Revenue
Up$1,996,806
Up $137,133 (+7.4%) from 2023
Expenses
Down$1,782,917
Down $369,079 (-17%) from 2023
Net Income
Up$213,889
Up $506,212 (+173%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
Improve the quality of life of SynGap-1 patients through the research and development of treatments, therapies and support systems.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $2,159,216 | $1,381,500 | ▼ $777,716 |
| Cash and Non-Interest-Bearing Accounts | $118,788 | $1,144,889 | ▲ $1,026,101 |
| Pledges and Grants Receivable | $250,000 | $274,096 | ▲ $24,096 |
| Inventories for Sale or Use | $3,429 | $0 | ▼ $3,429 |
| Savings and Temporary Cash Investments | - | $0 | - |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Prepaid Expenses and Deferred Charges | - | $0 | - |
| Total Assets | $2,531,433 | $2,800,485 | ▲ $269,052 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Grants Payable | $1,162,405 | $1,132,322 | ▼ $30,083 |
| Accounts Payable and Accrued Expenses | $6,856 | $75,377 | ▲ $68,521 |
| Total Liabilities | $1,169,261 | $1,207,699 | ▲ $38,438 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,362,172 | $1,592,786 | ▲ $230,614 |
| Total Net Assets Fund Balance | $1,362,172 | $1,592,786 | ▲ $230,614 |
| Total Liabilities and Net Assets / Fund Balance | $2,531,433 | $2,800,485 | ▲ $269,052 |
| Name | Title |
|---|---|
| Suzanne Jones | Chair Person |
| Stefanie Decker | CFO |
| J Mike Graglia | Managing Direct |
| Aaron Harding | Member |
| Eric Moulton | Member |
| Jess Fares | Member |
| John Hill | Member |
| Julie Miles | Member |
| Lindsay Wieczorek | Member |
| Marta Caceres Dahiya | Member |
| Pavel Gerovich | Member |
| Peter Halliburton | Member |
| Stella Tavilla | Member |
| Sydney Stelmaszek | Member |
| Emily Barnes | Secretary |
| Michael Langen | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $1,492,904 |
| Other Expenses | $290,013 |
| Total Fundraising Expense | $22,546 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $1,046,646 | - | - | $1,046,646 |
| Foreign Grants | $419,254 | - | - | $419,254 |
| Fees for Services Other | $115,809 | - | - | $115,809 |
| Travel | $28,621 | - | - | $28,621 |
| Grants to Domestic Individuals | $27,004 | - | - | $27,004 |
| Advertising | - | - | $19,486 | $19,486 |
| Fees for Services Management | - | $17,939 | - | $17,939 |
| Conferences and Meetings | $10,739 | - | - | $10,739 |
| Fees for Services Accounting | - | $10,250 | - | $10,250 |
| Other Expenses | $37,539 | $46,570 | $3,060 | $3,060 |
| Total Functional Expenses | $1,685,612 | $74,759 | $22,546 | $1,782,917 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $1,869,736 |
| Expenses per Audited Statements | $1,782,917 |
| Total Expenses per Form 990 | $1,782,917 |
| Expenses Not Reported on Form 990 | $86,819 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Childrens Hospital Colorado | Aurora, CO | 501(c)(3) | Scientific Research | $289,321 |
| 4M Therapeutics Inc | Skillman, NJ | 501(c)(3) | Scientific Research | $240,000 |
| Univesity of California SF | San Francisco, CA | - | Scientific Research | $130,000 |
| Baylor College of Medicine | Houston, TX | 501(c)(3) | Scientific Research | $96,197 |
| Unravel Biosciences Inc | Medford, MA | - | Scientific Research | $90,500 |
| University of Miami | Coral Gables, FL | Govt Organization | Scientific Research | $65,000 |
| New York University | New York, NY | 501(c)(3) | Scientific Research | $50,000 |
| Combined Brain | Brenwood, TN | 501(c)(3) | Scientific Research | $29,628 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $86,819 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Fundraising | $183,412 | - | $86,819 | - |
| Total Events | $183,412 | - | $86,819 | $-86,819 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Board will have five business days to exercise questions or concerns before finalizing.”
“Organization has a Conflict of Interest Disclosure Form. Each Board Member is responsible to self report any conflicts.”
“No documents available to the public.”
“For 2023 Form 990, nonprofit began having an audit prior to filing. To report consist with audit report, changing to accrual basis.”
“Fundraising Expenditures $86819”
“Fundraising Expenditures $86819”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990/GoverningBodyVotingMembersCnt | 0 | 16 |
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| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 359306 |
| IRS990/GrossReceiptsAmt | 0 | 2083625 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 16 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 0 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/BOYAmt | 0 | 3429 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 82597 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 82597 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 2159216 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1381500 |
| IRS990/IRPDocumentCnt | 0 | 7 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | Improve the quality of life of SynGap-1 patients through the research and development of treatments, therapies and support systems. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1362172 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1592786 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 359306 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 359306 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -86819 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -86819 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 16725 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1362172 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1592786 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NoncashContributionsAmt | 0 | 9979 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/TotalAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 0 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | Other Expense |
| IRS990/OtherExpensesGrp/Desc | 1 | Postage and Shipping |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 3060 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 46570 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 37539 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 84109 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 3060 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 0 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 250000 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 274096 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | Stefanie Decker |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Printful |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | Round Table |
| IRS990/ProgramServiceRevenueGrp/Desc | 2 | Speaking Engagement |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 1190 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 1 | 5000 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 2 | 1017 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 1190 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 5000 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 2 | 1017 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | Family assistance provided to 21 individuals. Both domestic and foreign. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 27005 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 27005 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | Community engagement, awareness, and education. |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 1983831 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 1773399 |
| IRS990/PYInvestmentIncomeAmt | 0 | 5602 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 378597 |
| IRS990/PYOtherRevenueAmt | 0 | -148997 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 19237 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -292323 |
| IRS990/PYTotalExpensesAmt | 0 | 2151996 |
| IRS990/PYTotalRevenueAmt | 0 | 1859673 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 213889 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1634515 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1983831 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2144228 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1364391 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 590087 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 7717052 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 82597 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 808 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 4889 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 13 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 88307 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 7207 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 19327 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 6913 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 650 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 34097 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.98440 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.99500 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 7717052 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1634515 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1983831 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2144228 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1364391 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 590087 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 7717052 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 7839456 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 0 |
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