Liabilities / Assets
81st percentile
Higher debt load relative to assets than 81% of similar nonprofits.
EIN 83-1084501 • 501(c)3 • Stanton, KY
Profile
To improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
81st percentile
Higher debt load relative to assets than 81% of similar nonprofits.
Liabilities / Revenue
82nd percentile
Higher debt load relative to revenue than 82% of similar nonprofits.
Net Margin
16th percentile
Higher net margin than 16% of similar nonprofits.
Top Officer Pay
96th percentile
Higher top officer pay than 96% of similar nonprofits.
Top officer pay equals 20.1% of source-year revenue.
Asset Growth
23rd percentile
Faster asset growth than 23% of similar nonprofits.
Revenue Growth
48th percentile
Faster revenue growth than 48% of similar nonprofits.
Assets
Down$212,778
Down $140,364 (-40%) from 2023
Liabilities
Up$30,539
Up $9,543 (+45%) from 2023
Net Assets
Down$182,239
Down $149,907 (-45%) from 2023
Revenue
Down$352,401
Down $13,425 (-3.7%) from 2023
Expenses
Up$502,308
Up $32,202 (+6.8%) from 2023
Net Income
Down-$149,907
Down $45,627 (-44%) from 2023
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
To improve the lives of patients and families worldwide affected by progressive familial intrahepatic cholestasis, pfic.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $248,569 | $133,525 | ▼ $115,044 |
| Pledges and Grants Receivable | $104,573 | $79,253 | ▼ $25,320 |
| Total Assets | $353,142 | $212,778 | ▼ $140,364 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $20,996 | $30,539 | ▲ $9,543 |
| Total Liabilities | $20,996 | $30,539 | ▲ $9,543 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $115,092 | $136,914 | ▲ $21,822 |
| Net Assets With Donor Restrictions | $217,054 | $45,325 | ▼ $171,729 |
| Total Net Assets Fund Balance | $332,146 | $182,239 | ▼ $149,907 |
| Total Liabilities and Net Assets / Fund Balance | $353,142 | $212,778 | ▼ $140,364 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Emily Ventura | Co-Founder Executive Director | FT | $71,000 | $71,000 |
| Name | Title |
|---|---|
| Walter Perez | President |
| Tara Kearns | Vice-President Co- Founder |
| Charmaine Gravener | Director |
| Erik Lontok | Director |
| Erin Hovey | Secretary |
| Hayley Watts | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $257,694 |
| Salaries, Compensation, and Employee Benefits | $209,495 |
| Total Fundraising Expense | $59,456 |
| Grants and Similar Amounts Paid | $35,119 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $117,512 | $18,033 | $14,173 | $149,718 |
| Other Salaries and Wages | $52,974 | $36,863 | $24,309 | $114,146 |
| Conferences and Meetings | $71,354 | $468 | $132 | $71,954 |
| Current Officers, Directors, Trustees, and Key Employees | $32,951 | $22,929 | $15,120 | $71,000 |
| Foreign Grants | $35,119 | - | - | $35,119 |
| Payroll Taxes | $8,083 | $4,877 | $3,141 | $16,101 |
| Office Expenses | $12,704 | $1,093 | $512 | $14,309 |
| Fees for Services Accounting | - | $9,175 | - | $9,175 |
| Other Employee Benefits | - | $8,248 | - | $8,248 |
| Information Technology | $2,606 | $2,762 | $978 | $6,346 |
| Insurance | - | $3,401 | - | $3,401 |
| Advertising | $920 | - | $751 | $1,671 |
| Fees for Services Legal | $780 | - | $340 | $1,120 |
| Total Functional Expenses | $335,003 | $107,849 | $59,456 | $502,308 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $502,308 |
| Total Expenses per Audited Statements | $502,308 |
| Total Expenses per Form 990 | $502,308 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $22,219 |
| Fundraising Gross Income | $8,906 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Fundraising | $44,857 | $8,906 | $22,219 | $-13,313 |
| Total Events | $44,857 | $8,906 | $22,219 | $-13,313 |
“The Form 990 is prepared by a Certified Public Accountant. It is reviewed by the Executive Director and full Board before being filed.”
“The Organization has updated its written conflict of interest policy. Officers and directors are required to report interests that could give rise to conflicts.”
“The compensation of the Executive Director is established by the Board, and is part of the budget process.”
“The Organization makes required documents available upon request, in accordance with IRS guidance.”
“Other Professional Fees $144,482Professional Fundraising Fees $5,236”
“PFIC is exempt from federal income taxes under Section 501(c)(3) of the Internal Revenue Code. The accounting standard on accounting for uncertainty in income taxes addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the financial statements. Under that guidance, PFIC may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by taxing authorities based on the technical merits of the position. Examples of tax positions include the tax-exempt status of PFIC and various positions related to the potential sources of unrelated business taxable income (UBIT). The tax benefits recognized in the financial statements from such a position are measured based on the largest benefit that has a greater than 50% likelihood of being realized upon ultimate settlement. There were no unrecognized tax benefits identified or recorded as liabilities for at year end.PFICs policy would be to recognize interest and penalties, if any, on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. No interest and penalties were assessed or recorded during the year then ended. PFICs IRS Forms 990 that have been filed are subject to examination by the Internal Revenue Service, generally for three years after they were filed.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 20996 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 30539 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | To improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 751 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 920 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 1671 |
| IRS990/AllOtherContributionsAmt | 0 | 324789 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Organization |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 4143313316 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | PO Box 551 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Stanton |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | KY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 40380 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 248569 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 133525 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 15120 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 22929 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 32951 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 71000 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 132 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 468 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 71354 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 71954 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 35951 |
| IRS990/CostOfGoodsSoldAmt | 0 | 2108 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 360740 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 35119 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 257694 |
| IRS990/CYOtherRevenueAmt | 0 | -8339 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -149907 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 209495 |
| IRS990/CYTotalExpensesAmt | 0 | 502308 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 59456 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 352401 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | In 2024, PFIC Network provided program services in the areas of peer support, education, outreach, advocacy and research to further our mission of improving the lives of patients and families affected by PFIC worldwide. We also continued to offer Zoom support groups, 1:1 coaching sessions, financial assistance and care packages to PFIC patients and families in need. In April, we hosted our largest PFIC Family and Scientific Conference yet, with over 130 people attending in person and 60+ attending virtually. The conference brings PFIC researchers, clinicians and industry stakeholders together with PFIC patients and families to discuss unmet needs of the patient community and to provide updates about ongoing PFIC research. This year, we hosted the conference in partnership with Cincinnati Childrens Hospital and Medical Center, allowing us to offer continuing education credits for the first time and to broaden our reach to a wider network of clinicians and researchers. One of our biggest research initiatives for the year was the completion of year one of Project IMPACT (Identifying research targets by Merging Patient And Clinician Treatment information.) The goal of the project is to prepare the PFIC community for patient-centered outcomes research. This two year project runs from July 2023-July 2025 and is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award (EASO-30455). Our patient registry is now fully translated into Italian, Spanish and Polish and we were able to share initial data collected at a poster presentation at the North American Society For Pediatric Gastroenterology, Hepatology & Nutrition Annual Meeting. We also awarded our second Small Research Grant, a $30,000 funding opportunity for PFIC research. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DoingBusinessAsName/BusinessNameLine1Txt | 0 | contd Advocacy and Resource Ne |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 217054 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 45325 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 335003 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 9175 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 9175 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 340 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 780 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 1120 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 14173 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 18033 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 117512 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 149718 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 35119 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 35119 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Emily Ventura |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Charmaine Gravener |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Erik Lontok |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Walter Perez |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Tara Kearns |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Hayley Watts |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Erin Hovey |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 71000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Co-Founder Executive Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Vice-President Co- Founder |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Secretary |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2018 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 35951 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 22219 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 8906 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 7 |
| IRS990/GrantAmt | 0 | 35119 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 376728 |
| IRS990/GrossSalesOfInventoryAmt | 0 | 7082 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 978 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 2762 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 2606 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 6346 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 3401 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 3401 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 8 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | KY |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 332146 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 182239 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -13313 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -13313 |
| IRS990/NetIncomeOrLossGrp/ExclusionAmt | 0 | 4974 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 4974 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 115092 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 136914 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 512 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1093 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 12704 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 14309 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 8248 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 8248 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 24309 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 36863 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 52974 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 114146 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 3141 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 4877 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 8083 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 16101 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 104573 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 79253 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | Emily Ventura |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 361368 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 5565 |
| IRS990/PYOtherExpensesAmt | 0 | 257324 |
| IRS990/PYOtherRevenueAmt | 0 | 4458 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -104280 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 207217 |
| IRS990/PYTotalExpensesAmt | 0 | 470106 |
| IRS990/PYTotalRevenueAmt | 0 | 365826 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -149907 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 324789 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 361368 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 266086 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 808129 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 118590 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1878962 |
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| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | PFIC is exempt from federal income taxes under Section 501(c)(3) of the Internal Revenue Code. The accounting standard on accounting for uncertainty in income taxes addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the financial statements. Under that guidance, PFIC may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by taxing authorities based on the technical merits of the position. Examples of tax positions include the tax-exempt status of PFIC and various positions related to the potential sources of unrelated business taxable income (UBIT). The tax benefits recognized in the financial statements from such a position are measured based on the largest benefit that has a greater than 50% likelihood of being realized upon ultimate settlement. There were no unrecognized tax benefits identified or recorded as liabilities for at year end.PFICs policy would be to recognize interest and penalties, if any, on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. No interest and penalties were assessed or recorded during the year then ended. PFICs IRS Forms 990 that have been filed are subject to examination by the Internal Revenue Service, generally for three years after they were filed. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740) |
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| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | Fundraising |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | The Form 990 is prepared by a Certified Public Accountant. It is reviewed by the Executive Director and full Board before being filed. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The Organization has updated its written conflict of interest policy. Officers and directors are required to report interests that could give rise to conflicts. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | The compensation of the Executive Director is established by the Board, and is part of the budget process. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | The Organization makes required documents available upon request, in accordance with IRS guidance. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | Other Professional Fees $144,482Professional Fundraising Fees $5,236 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990 governing body review Part VI line 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Conflict of interest policy compliance Part VI line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | CEO executive director top management comp Part VI line 15a |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Governing documents etc available to public Part VI line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | List of other fees for services expenses Part IX line 11g |
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| IRS990/StatesWhereCopyOfReturnIsFldCd | 3 | FL |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 4 | GA |
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| IRS990/StatesWhereCopyOfReturnIsFldCd | 6 | IL |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 7 | KS |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 8 | KY |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 9 | MA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 10 | MD |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 11 | MI |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 12 | NC |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 13 | NJ |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 14 | OH |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 15 | PA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 16 | SC |
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| IRS990/StatesWhereCopyOfReturnIsFldCd | 19 | VA |
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| IRS990/StatesWhereCopyOfReturnIsFldCd | 21 | WV |
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| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
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| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | EMILY VENTURA |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Co-Founder Executive Director |
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| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-07-10 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | Progressive Familial Intrahepatic Cholestasis |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | PROG |
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