Civic Intelligence

Progressive Familial Intrahepatic Cholestasis

EIN 83-1084501 • 501(c)3 • Stanton, KY

Profile

To improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC.

PO Box 551Stanton, KY 40380

www.pfic.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

81st percentile

0.14x

Higher debt load relative to assets than 81% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

82nd percentile

0.09x

Higher debt load relative to revenue than 82% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

16th percentile

-43%

Higher net margin than 16% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

96th percentile

$71,000

Higher top officer pay than 96% of similar nonprofits.

Top officer pay equals 20.1% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

23rd percentile

-40%

Faster asset growth than 23% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

48th percentile

-3.7%

Faster revenue growth than 48% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Assets

Down

$212,778

Down $140,364 (-40%) from 2023

Liabilities

Up

$30,539

Up $9,543 (+45%) from 2023

Net Assets

Down

$182,239

Down $149,907 (-45%) from 2023

Revenue

Down

$352,401

Down $13,425 (-3.7%) from 2023

Expenses

Up

$502,308

Up $32,202 (+6.8%) from 2023

Net Income

Down

-$149,907

Down $45,627 (-44%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2019: $71,752Net Assets 2019: $71,7522019Assets 2020: $99,034Liabilities 2020: $2,848Net Assets 2020: $96,1862020Assets 2021: $718,340Liabilities 2021: $25,852Net Assets 2021: $692,4882021Assets 2022: $487,255Liabilities 2022: $50,829Net Assets 2022: $436,4262022Assets 2023: $353,142Liabilities 2023: $20,996Net Assets 2023: $332,1462023Assets 2024: $212,778Liabilities 2024: $30,539Net Assets 2024: $182,2392024

Highlighted filing

2024

Assets$212,778
Liabilities$30,539
Net Assets$182,239

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2019: $130,613Expenses 2019: $61,906Net Income 2019: $68,7072019Revenue 2020: $101,541Expenses 2020: $77,107Net Income 2020: $24,4342020Revenue 2021: $808,755Expenses 2021: $235,204Net Income 2021: $573,5512021Revenue 2022: $270,986Expenses 2022: $527,048Net Income 2022: -$256,0622022Revenue 2023: $365,826Expenses 2023: $470,106Net Income 2023: -$104,2802023Revenue 2024: $352,401Expenses 2024: $502,308Net Income 2024: -$149,9072024

Highlighted filing

2024

Revenue$352,401
Expenses$502,308
Net Income-$149,907

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jul 10, 2025
Return Version
2024v5.1
Gross Receipts
$376,728
Mission and Program Overview

Mission

To improve the lives of patients and families worldwide affected by progressive familial intrahepatic cholestasis, pfic.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$248,569$133,525▼ $115,044
Pledges and Grants Receivable$104,573$79,253▼ $25,320
Total Assets$353,142$212,778▼ $140,364
Liabilities
Accounts Payable and Accrued Expenses$20,996$30,539▲ $9,543
Total Liabilities$20,996$30,539▲ $9,543
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$115,092$136,914▲ $21,822
Net Assets With Donor Restrictions$217,054$45,325▼ $171,729
Total Net Assets Fund Balance$332,146$182,239▼ $149,907
Total Liabilities and Net Assets / Fund Balance$353,142$212,778▼ $140,364
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Emily VenturaCo-Founder Executive DirectorFT$71,000$71,000

Board Members and Trustees

NameTitle
Walter PerezPresident
Tara KearnsVice-President Co- Founder
Charmaine GravenerDirector
Erik LontokDirector
Erin HoveySecretary
Hayley WattsTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$360,740
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$-8,339
All Other Contributions
$324,789
Change in Net Assets
$-149,907

Audited Revenue Reconciliation

Revenue per Audited Statements
$352,401
Total Revenue per Audited Statements
$352,401
Total Revenue per Form 990
$352,401
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$257,694
Salaries, Compensation, and Employee Benefits$209,495
Total Fundraising Expense$59,456
Grants and Similar Amounts Paid$35,119
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$117,512$18,033$14,173$149,718
Other Salaries and Wages$52,974$36,863$24,309$114,146
Conferences and Meetings$71,354$468$132$71,954
Current Officers, Directors, Trustees, and Key Employees$32,951$22,929$15,120$71,000
Foreign Grants$35,119--$35,119
Payroll Taxes$8,083$4,877$3,141$16,101
Office Expenses$12,704$1,093$512$14,309
Fees for Services Accounting-$9,175-$9,175
Other Employee Benefits-$8,248-$8,248
Information Technology$2,606$2,762$978$6,346
Insurance-$3,401-$3,401
Advertising$920-$751$1,671
Fees for Services Legal$780-$340$1,120
Total Functional Expenses$335,003$107,849$59,456$502,308

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$502,308
Total Expenses per Audited Statements$502,308
Total Expenses per Form 990$502,308
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$22,219
Fundraising Gross Income$8,906
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising$44,857$8,906$22,219$-13,313
Total Events$44,857$8,906$22,219$-13,313
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 governing body review Part VI line 11

The Form 990 is prepared by a Certified Public Accountant. It is reviewed by the Executive Director and full Board before being filed.

Conflict of interest policy compliance Part VI line 12C

The Organization has updated its written conflict of interest policy. Officers and directors are required to report interests that could give rise to conflicts.

CEO executive director top management comp Part VI line 15A

The compensation of the Executive Director is established by the Board, and is part of the budget process.

Governing documents etc available to public Part VI line 19

The Organization makes required documents available upon request, in accordance with IRS guidance.

Filing and Contact Details

Filer

Filer Name
Progressive Familial Intrahepatic Cholestasis
EIN
83-1084501
In Care Of
% Emily Ventura
Phone
4143313316
Address
PO Box 551, Stanton, KY 40380
Doing Business As
contd Advocacy and Resource Ne

Signing Officer

Name
Emily Ventura
Title
Co-Founder Executive Director
Phone
4143313316
Signed
2025-07-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Emily Ventura
Formed
2018
Legal Domicile
Ky
Voting Board Members
7
Independent Board Members
6
Employees
5
Volunteers
30

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

List of other fees for services expenses Part IX line 11G

Other Professional Fees $144,482Professional Fundraising Fees $5,236

Financial Statement Notes

Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740)

PFIC is exempt from federal income taxes under Section 501(c)(3) of the Internal Revenue Code. The accounting standard on accounting for uncertainty in income taxes addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the financial statements. Under that guidance, PFIC may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by taxing authorities based on the technical merits of the position. Examples of tax positions include the tax-exempt status of PFIC and various positions related to the potential sources of unrelated business taxable income (UBIT). The tax benefits recognized in the financial statements from such a position are measured based on the largest benefit that has a greater than 50% likelihood of being realized upon ultimate settlement. There were no unrecognized tax benefits identified or recorded as liabilities for at year end.PFICs policy would be to recognize interest and penalties, if any, on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. No interest and penalties were assessed or recorded during the year then ended. PFICs IRS Forms 990 that have been filed are subject to examination by the Internal Revenue Service, generally for three years after they were filed.

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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0118590
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IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt06915
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt04900
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt0626
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt09086
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0118590
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01878962
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IRS990ScheduleD/ExpensesSubtotalAmt0502308
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/RevenueSubtotalAmt0352401
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0PFIC is exempt from federal income taxes under Section 501(c)(3) of the Internal Revenue Code. The accounting standard on accounting for uncertainty in income taxes addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the financial statements. Under that guidance, PFIC may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by taxing authorities based on the technical merits of the position. Examples of tax positions include the tax-exempt status of PFIC and various positions related to the potential sources of unrelated business taxable income (UBIT). The tax benefits recognized in the financial statements from such a position are measured based on the largest benefit that has a greater than 50% likelihood of being realized upon ultimate settlement. There were no unrecognized tax benefits identified or recorded as liabilities for at year end.PFICs policy would be to recognize interest and penalties, if any, on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. No interest and penalties were assessed or recorded during the year then ended. PFICs IRS Forms 990 that have been filed are subject to examination by the Internal Revenue Service, generally for three years after they were filed.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740)
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IRS990ScheduleD/TotalRevenuePerForm990Amt0352401
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IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0502308
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt035951
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt035951
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt022219
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0Fundraising
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IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt08906
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IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The Form 990 is prepared by a Certified Public Accountant. It is reviewed by the Executive Director and full Board before being filed.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The Organization has updated its written conflict of interest policy. Officers and directors are required to report interests that could give rise to conflicts.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The compensation of the Executive Director is established by the Board, and is part of the budget process.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The Organization makes required documents available upon request, in accordance with IRS guidance.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Other Professional Fees $144,482Professional Fundraising Fees $5,236
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2CEO executive director top management comp Part VI line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4List of other fees for services expenses Part IX line 11g
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IRS990/StatesWhereCopyOfReturnIsFldCd11MI
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IRS990/StatesWhereCopyOfReturnIsFldCd13NJ
IRS990/StatesWhereCopyOfReturnIsFldCd14OH
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IRS990/USAddress/CityNm0Stanton
IRS990/USAddress/StateAbbreviationCd0KY
IRS990/USAddress/ZIPCd040380
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IRS990/WebsiteAddressTxt0www.pfic.org
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0EMILY VENTURA
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Co-Founder Executive Director
ReturnHeader/BusinessOfficerGrp/PhoneNum04143313316
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-07-10
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Progressive Familial Intrahepatic Cholestasis
ReturnHeader/Filer/BusinessNameControlTxt0PROG

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