Civic Intelligence

Cmt Research Foundation Inc

EIN 82-5476655 • 501(c)3 • Atlanta, GA

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Profile

With a single focus on funding research, the CMT Research Foundation exclusively funds research leading to the discovery, development, and clinical application of treatments and cures for Charcot-Marie-Tooth (CMT).

4062 Peachtree Road A209Atlanta, GA 30319

cmtrf.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

32nd percentile

0.04x

Higher debt load relative to assets than 32% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Liabilities / Revenue

24th percentile

0.04x

Higher debt load relative to revenue than 24% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Net Margin

88th percentile

47%

Higher net margin than 88% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Top Officer Pay

82nd percentile

$249,886

Higher top officer pay than 82% of similar nonprofits.

Top officer pay equals 2.9% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Asset Growth

95th percentile

86%

Faster asset growth than 95% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2024 to 2025

Revenue Growth

90th percentile

87%

Faster revenue growth than 90% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets32nd percentile

Assets

Up

$8,705,044

Up $4,031,741 (+86%) from 2024

Liabilities

Down

$312,043

Down $43,236 (-12%) from 2024

Net Assets

Up

$8,393,001

Up $4,074,977 (+94%) from 2024

Operations
Liabilities / Revenue24th percentileNet Margin88th percentile

Revenue

Up

$8,662,522

Up $4,038,449 (+87%) from 2024

Expenses

Up

$4,587,545

Up $513,327 (+13%) from 2024

Net Income

Up

$4,074,977

Up $3,525,122 (+641%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth95th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$10M$5.0M$0Assets 2018: $1,397,872Liabilities 2018: $4,519Net Assets 2018: $1,393,3532018Assets 2019: $2,536,074Liabilities 2019: $15,885Net Assets 2019: $2,520,1892019Assets 2020: $2,731,283Liabilities 2020: $5,810Net Assets 2020: $2,725,4732020Assets 2021: $2,372,395Liabilities 2021: $34,486Net Assets 2021: $2,337,9092021Assets 2022: $3,915,699Liabilities 2022: $75,056Net Assets 2022: $3,840,6432022Assets 2023: $4,029,470Liabilities 2023: $261,301Net Assets 2023: $3,768,1692023Assets 2024: $4,673,303Liabilities 2024: $355,279Net Assets 2024: $4,318,0242024Assets 2025: $8,705,044Liabilities 2025: $312,043Net Assets 2025: $8,393,0012025

Highlighted filing

2025

Assets$8,705,044
Liabilities$312,043
Net Assets$8,393,001
Open 2025 Filing

Operations Trend

Revenue Growth90th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2018: $1,495,426Expenses 2018: $102,073Net Income 2018: $1,393,3532018Revenue 2019: $1,529,553Expenses 2019: $402,717Net Income 2019: $1,126,8362019Revenue 2020: $1,687,608Expenses 2020: $1,482,324Net Income 2020: $205,2842020Revenue 2021: $467,004Expenses 2021: $854,568Net Income 2021: -$387,5642021Revenue 2022: $4,352,285Expenses 2022: $2,599,551Net Income 2022: $1,752,7342022Revenue 2023: $3,526,505Expenses 2023: $3,602,656Net Income 2023: -$76,1512023Revenue 2024: $4,624,073Expenses 2024: $4,074,218Net Income 2024: $549,8552024Revenue 2025: $8,662,522Expenses 2025: $4,587,545Net Income 2025: $4,074,9772025

Highlighted filing

2025

Revenue$8,662,522
Expenses$4,587,545
Net Income$4,074,977
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$8,705,044
Liabilities
$312,043
Net assets
$8,393,001
Revenue
$8,662,522
Expenses
$4,587,545
Net income
$4,074,977
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$8.71$0.31$8.39$8.66$4.59$4.07
2024Detailed filing. Detailed filing data is available for this year.$4.67$0.36$4.32$4.62$4.07$0.55
2023Detailed filing. Detailed filing data is available for this year.$4.03$0.26$3.77$3.53$3.60$0.08
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.92$0.08$3.84$4.35$2.60$1.75
2021Detailed filing. Detailed filing data is available for this year.$2.37$0.03$2.34$0.47$0.85$0.39
2020Detailed filing. Detailed filing data is available for this year.$2.73$0.01$2.73$1.69$1.48$0.21
2019Summary only. Only limited summary data is available for this year.$2.54$0.02$2.52$1.53$0.40$1.13
2018Summary only. Only limited summary data is available for this year.$1.40$0.00$1.39$1.50$0.10$1.39
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Feb 10, 2026
Return Version
2024v5.5
Gross Receipts
$8,678,472
Mission and Program Overview

Mission

With a single focus on funding research, the CMT Research Foundation exclusively funds research leading to the discovery, development, and clinical application of treatments and cures for Charcot-Marie-Tooth (CMT).

To fund research which delivers treatments and cures to end Charcot-Marie-Tooth (CMT).

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$1,140,728$5,398,775▲ $4,258,047
Savings and Temporary Cash Investments$3,407,330$3,048,897▼ $358,433
Cash and Non-Interest-Bearing Accounts$37,686$131,374▲ $93,688
Prepaid Expenses and Deferred Charges$87,559$125,998▲ $38,439
Total Assets$4,673,303$8,705,044▲ $4,031,741
Liabilities
Accounts Payable and Accrued Expenses$340,049$300,893▼ $39,156
Deferred Revenue$15,230$11,150▼ $4,080
Total Liabilities$355,279$312,043▼ $43,236
Net Assets / Fund Balance
Net Assets With Donor Restrictions$3,055,669$8,387,937▲ $5,332,268
Net Assets Without Donor Restrictions$1,262,355$5,064▼ $1,257,291
Total Net Assets Fund Balance$4,318,024$8,393,001▲ $4,074,977
Total Liabilities and Net Assets / Fund Balance$4,673,303$8,705,044▲ $4,031,741
Compensation and Service Providers
Top Officer Pay82nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Erich FasnachtChief Operations OfficerFT$240,000$9,886$249,886
Anna PriceVP of PhilanthropyFT$163,132$28,667$191,799
Cleary SimpsonVice-Chair / CEO thru 10/16/24-$183,333-$183,333
Riann EgusquizaDirector of ResearchFT$151,896$8,593$160,489
Laura MacNeillChief Executive OfficerFT$73,613$303$73,916
Susan RuedigerCo-Founder & Chief Mission OfficerPT$38,226$23,531$61,757

Board Members and Trustees

NameTitle
Peter DeSilvaChair
Ann FairchildMember
Arthur SuckowMember
Maximiliano BarrientosMember
Santo CaivanoMember
Thomas SanderMember
William MotleyMember
Susan CanavariSecretary
Adam KauffmanTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Schaner & Lubitz PLLCLegal Services4550 Montgomery Ave Ste 1100N, Bethesda, MD 20814$275,044
Revenue and Support

Revenue Composition

Contributions and Grants
$8,471,921
Program Service Revenue
$83,947
Investment Income
$106,654
Other Revenue
$0
All Other Contributions
$8,401,121
Change in Net Assets
$4,074,977

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded2$1,297,680Avg Trading Value
Total Noncash Contributions2$1,297,680-

Audited Revenue Reconciliation

Revenue per Audited Statements
$8,662,522
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$8,662,522
Total Revenue per Form 990
$8,662,522
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,056,600
Salaries, Compensation, and Employee Benefits$1,389,028
Other Expenses$1,028,377
Total Fundraising Expense$883,449
Professional Fundraising Fees$113,540

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,733,412--$1,733,412
Current Officers, Directors, Trustees, and Key Employees$479,619$163,197$349,396$992,212
Foreign Grants$306,218--$306,218
Other Salaries and Wages$174,500$81,750$30,911$287,161
Advertising$2,574$27,633$195,232$225,439
Travel$112,074$16,430$57,617$186,121
Fees for Services Legal$166,710$37-$166,747
Conferences and Meetings$122,643$1,683$20,000$144,326
Fees for Services Professional Fundraising--$113,540$113,540
Fees for Services Other$27,388$33,778$36,216$97,382
Fees for Services Accounting$9,157$82,416-$91,573
Payroll Taxes$45,253$17,299$23,984$86,536
Office Expenses$4,756$25,968$37,197$67,921
Grants to Domestic Individuals$16,970--$16,970
Other Employee Benefits$6,916$3,598$1,293$11,807
Pension Plan Contributions$6,626$3,447$1,239$11,312
Insurance-$9,845-$9,845
Other Expenses$7,291$12,475$16,824$7,291
Total Functional Expenses$3,224,540$479,556$883,449$4,587,545

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$4,587,545
Total Expenses per Audited Statements$4,587,545
Total Expenses per Form 990$4,587,545
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Alloy Therapeutics IncWaltham, MA-Collaborative research agreement$500,000
Nationwide Children's HospitalColumbus, OH-Collaborative research agreement$392,096
Vanderbilt UniversityNashville, TN-Collaborative research agreement$260,803
ASHA Therapeutics LLCTampa, FL-Collaborative research agreement$209,500
University of Illinois at ChicagoChicago, IL-Collaborative research agreement$207,892
University of MiamiCoral Gables, FL-Collaborative research agreement$142,681
Chicago Association for Research and Education in ScienceHines, TN-Collaborative research agreement$20,440

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$113,540
Fundraising Direct Expenses$15,950
Fundraising Gross Income$15,950

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Ohio What a Night$86,750$15,950$15,950$0
Total Events$86,750$15,950$15,950$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“The draft of the tax return is provided to the Organization's Board of Directors prior to filing. The comments received are addressed by management and the tax return preparer. Once the comments have been addressed, the tax return is signed by an officer of the Organization and filed.”

Form 990, Part VI, Section B, line 12C

“Annually, the Foundation requires officers, directors and key employees to affirm that no conflicts of interest exist. Potential conflicts are addressed on a case by case basis, consistent with the Foundation's written conflict of interest policy.”

Form 990, Part VI, Section B, line 15

“The Foundation's independent Board of Directors determines the CEO's compensation. The CEO and COO determine the salaries of all other staff.”

Form 990, Part VI, Section C, line 19

“The Organization makes its financial statements available on its website and its governing documents and conflict of interest policy available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
CMT Research Foundation Inc
EIN
82-5476655
Phone
4048067180
Address
4062 Peachtree Road A209, Atlanta, GA 30319

Signing Officer

Name
Erich Fasnacht
Title
COO
Phone
4048067180
Signed
2026-02-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Erich Fasnacht
Formed
2018
Legal Domicile
Il
Voting Board Members
12
Independent Board Members
9
Employees
11
Volunteers
50

Preparer

Firm
Jones and Kolb
Address
3475 PIEDMONT ROAD NE SUITE 1500, ATLANTA, GA 30305
Preparer
Ann M Thompson
Phone
4042627920
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/TitleTxt0Chief Executive Officer
IRS990/Form990PartVIISectionAGrp/TitleTxt1Chief Operations Officer
IRS990/Form990PartVIISectionAGrp/TitleTxt2VP of Philanthropy
IRS990/Form990PartVIISectionAGrp/TitleTxt3Vice-Chair / CEO thru 10/16/24
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director of Research
IRS990/Form990PartVIISectionAGrp/TitleTxt5Co-Founder & Chief Mission Officer
IRS990/Form990PartVIISectionAGrp/TitleTxt6Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt7Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt8Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt9Member
IRS990/Form990PartVIISectionAGrp/TitleTxt10Member
IRS990/Form990PartVIISectionAGrp/TitleTxt11Member
IRS990/Form990PartVIISectionAGrp/TitleTxt12Member
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IRS990ScheduleA/TotalSupportAmt021132640
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IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt04587545
IRS990ScheduleF/BoycottCountriesInd00
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IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd01
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt0246349
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt142625
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt217244
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0Wire Transfer
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt1Wire Transfer
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt2Wire Transfer

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