Civic Intelligence

Kabuki Syndrome Foundation

EIN 82-5401904 • 501(c)3 • Northbrook, IL

Profile

To drive research efforts that show promise to treat or cure kabuki syndrome through fundraising, knowledge-sharing, and collaborating with researchers around the world.

PO Box 214Northbrook, IL 60065

www.kabukisyndromefoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

34th percentile

0.01x

Higher debt load relative to assets than 34% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

35th percentile

0.02x

Higher debt load relative to revenue than 35% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

77th percentile

25%

Higher net margin than 77% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

96th percentile

118%

Faster asset growth than 96% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2024

Revenue Growth

91st percentile

85%

Faster revenue growth than 91% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets34th percentile

Assets

Up

$2,302,196

Up $250,764 (+12%) from 2023

Liabilities

Down

$30,090

Down $882 (-2.8%) from 2023

Net Assets

Up

$2,272,106

Up $251,646 (+12%) from 2023

Operations
Liabilities / Revenue35th percentileNet Margin77th percentile

Revenue

Down

$1,238,474

Down $824,244 (-40%) from 2023

Expenses

Up

$928,828

Up $328,338 (+55%) from 2023

Net Income

Down

$309,646

Down $1,152,582 (-79%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth96th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2018: $5,066Liabilities 2018: $0Net Assets 2018: $5,0662018Assets 2019: $4,707Liabilities 2019: $0Net Assets 2019: $4,7072019Assets 2020: $12,208Liabilities 2020: $0Net Assets 2020: $12,2082020Assets 2021: $356,347Liabilities 2021: $0Net Assets 2021: $356,3472021Assets 2022: $482,449Liabilities 2022: $0Net Assets 2022: $482,4492022Assets 2023: $2,051,432Liabilities 2023: $30,972Net Assets 2023: $2,020,4602023Assets 2024: $2,302,196Liabilities 2024: $30,090Net Assets 2024: $2,272,1062024

Highlighted filing

2024

Assets$2,302,196
Liabilities$30,090
Net Assets$2,272,106
Open 2024 Filing

Operations Trend

Revenue Growth91st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2018: $12,655Expenses 2018: $7,589Net Income 2018: $5,0662018Revenue 2019: $4,346Expenses 2019: $4,705Net Income 2019: -$3592019Revenue 2020: $8,961Expenses 2020: $1,460Net Income 2020: $7,5012020Revenue 2021: $412,185Expenses 2021: $68,046Net Income 2021: $344,1392021Revenue 2022: $362,899Expenses 2022: $236,797Net Income 2022: $126,1022022Revenue 2023: $2,062,718Expenses 2023: $600,490Net Income 2023: $1,462,2282023Revenue 2024: $1,238,474Expenses 2024: $928,828Net Income 2024: $309,6462024

Highlighted filing

2024

Revenue$1,238,474
Expenses$928,828
Net Income$309,646
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,302,196
Liabilities
$30,090
Net assets
$2,272,106
Revenue
$1,238,474
Expenses
$928,828
Net income
$309,646
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.30$0.03$2.27$1.24$0.93$0.31
2023Detailed filing. Detailed filing data is available for this year.$2.05$0.03$2.02$2.06$0.60$1.46
2022Detailed filing. Detailed filing data is available for this year.$0.48$0.00$0.48$0.36$0.24$0.13
2021Detailed filing. Detailed filing data is available for this year.$0.36$0.00$0.36$0.41$0.07$0.34
2020Detailed filing. Detailed filing data is available for this year.$0.01$0.00$0.01$0.01$0.00$0.01
2019Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.00$0.00$0.00
2018Detailed filing. Detailed filing data is available for this year.$0.01$0.00$0.01$0.01$0.01$0.01
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 11, 2025
Return Version
2024v5.2
Gross Receipts
$1,749,321
Mission and Program Overview

Mission

Drive research efforts that show promise to treat, prevent or cure kabuki syndrome.

Drive research efforts that show promise to treat or cure kabuki syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,284,874$1,644,186▲ $359,312
Pledges and Grants Receivable$339,493$351,481▲ $11,988
Cash and Non-Interest-Bearing Accounts$321,925$294,057▼ $27,868
Accounts Receivable$100,653$8,765▼ $91,888
Land, Buildings, and Equipment, Net$4,487$3,707▼ $780
Total Assets$2,051,432$2,302,196▲ $250,764
Liabilities
Accounts Payable and Accrued Expenses$30,972$30,090▼ $882
Total Liabilities$30,972$30,090▼ $882
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,416,858$1,687,541▲ $270,683
Net Assets With Donor Restrictions$603,602$584,565▼ $19,037
Total Net Assets Fund Balance$2,020,460$2,272,106▲ $251,646
Total Liabilities and Net Assets / Fund Balance$2,051,432$2,302,196▲ $250,764

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$3,707$1,755$5,462
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
Annie DeanCo-president
Jill Orum DunbarCo-president
Edoardo Zegna Di Monte RubelloVice President
Leila Zegna Di Monte RubelloVice President
Thomas Cingari JrVice President
Jessica McandrewDirector
Patrick DunbarTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,446,792
Program Service Revenue
$0
Investment Income
$53,858
Other Revenue
$-262,176
All Other Contributions
$814,332
Change in Net Assets
$309,646

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded856$210,682Fair Market Value (FMV)
Other Non Cash Contri Table10$56,191Fair Market Value (FMV)
Total Noncash Contributions866$266,873-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,238,474
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$95,007
Total Revenue per Audited Statements
$1,333,481
Total Revenue per Form 990
$1,238,474
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$514,435
Grants and Similar Amounts Paid$414,393
Total Fundraising Expense$54,137
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$240,527$24,619$54,006$319,152
Grants to Domestic Orgs$239,393--$239,393
Foreign Grants$173,500--$173,500
Other Expenses$143,350--$143,350
Office Expenses-$16,779-$16,779
Fees for Services Accounting-$15,962-$15,962
Conferences and Meetings$11,397--$11,397
Travel-$7,015-$7,015
Grants to Domestic Individuals$1,500--$1,500
Depreciation Depletion$589$60$131$780
Total Functional Expenses$810,256$64,435$54,137$928,828

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,023,835
Expenses per Audited Statements$928,828
Total Expenses per Form 990$928,828
Expenses Not Reported on Form 990$95,007
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Kennedy Krieger InstituteBaltimore, MD501(c)3Kabuki Syndrome Research$109,290
Boston Childrens HospitalBoston, MA501(c)3Kabuki Syndrome Research$101,378
SEATTLE CHILDREN'S HOSPITALSeattle, WA501(c)3Kabuki Syndrome Research$28,725

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$301,802
Fundraising Gross Income$35,280
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$667,740$35,280$74,690$-39,410
Total Events$667,740$35,280$301,802$-266,522
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Jill orum dunbar and patrick dunbar are married. Edoardo zegna di monte rubello and leila zegna di monte rubello are married.”

Form 990, Part VI, Section B, Line 11B

“A copy of the 990 was distributed to the board of directors to review and approve before filing.”

Form 990, Part VI, Section C, Line 19

“Governing documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Kabuki Syndrome Foundation
EIN
82-5401904
Phone
8472268237
Address
PO BOX 214, NORTHBROOK, IL 60065

Signing Officer

Name
Jill Orum Dunbar
Title
Co-president
Phone
8472268237
Signed
2025-11-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jill Orum Dunbar
Formed
2018
Legal Domicile
Il
Voting Board Members
7
Independent Board Members
7
Employees
0
Volunteers
6

Preparer

Firm
Legacy Professionals Llp
Address
4 WESTBROOK CORPORATE CTR STE 700, WESTCHESTER, IL 60154
Preparer
Christine V Ernst
Phone
3123680500
Supplemental Narrative

Additional Explanations

Part XI, Line 8

“A prior period adjustment was recorded to correct an error in the recognition of contribution revenue in prior years. The adjustment resulted in an decrease to beginning net assets of $58,000.”

Financial Statement Notes

PART X, LINE 2:

“Accounting principles generally accepted in the united states of america require the organization to evaluate tax positions taken by the organization and recognize a tax liability if the organization has taken an uncertain position that more likely than not would not be sustained upon examination by tax authorities. The organization is subject to routine audits by taxing jurisdictions; however, there are currently no audits for any tax periods in progress. The foundation is an organization described in section 501(c)(3) of the internal revenue code and thus is not subject to tax except on any unrelated business income. The internal revenue service has determined that the foundation is not a private foundation within the meaning of section 509(a) of the internal revenue code. The foundation qualifies under section 170(b)(1)(a) to receive deductible charitable contributions. The foundation's returns are subject to examination by the internal revenue service until the applicable statute of limitations expires.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“In-kind contributions 56,191.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“In-kind contributions 56,191.”

Raw XML AppendixShowing 400 of 491 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0JILL ORUM DUNBAR
IRS990/PriorPeriodAdjustmentsAmt0-58000
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0THE FOUNDATION FUNDS VARIOUS RESEARCH PROJECTS THAT FOLLOW THE "LEAP" STRATEGY: LEARN, ENABLE, ACCELERATE, AND PREPARE. THE RESEARCH PROJECTS ARE THE ROADMAP TO POTENTIAL TREATMENTS FOR KABUKI SYNDROME.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0798859
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0414393
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt02176028
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0280163
IRS990/PYInvestmentIncomeAmt05250
IRS990/PYOtherExpensesAmt0320327
IRS990/PYOtherRevenueAmt0-118560
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt01462228
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0600490
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt02062718
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/ReconcilationRevenueExpnssAmt0309646
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01446792
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt02176028
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0362899
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0401230
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt08961
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt04395910
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt053858
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt06470
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt060328
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0110748
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.56010
IRS990ScheduleA/PublicSupportPY170Pct00.53060
IRS990ScheduleA/PublicSupportTotal170Amt02495731
IRS990ScheduleA/SubstantialContributorsTotAmt01900179
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01446792
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt02176028
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0362899
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0401230
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt08961
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt04395910
IRS990ScheduleA/TotalSupportAmt04456238
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt038816
IRS990ScheduleD/DonatedServicesUseFcltsAmt038816
IRS990ScheduleD/ExpensesNotReportedAmt095007
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0928828
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherExpensesIncludedAmt056191
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt03707
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt01755
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt05462
IRS990ScheduleD/OtherRevenueAmt056191
IRS990ScheduleD/RevenueNotReportedAmt095007
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt01238474
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRE THE ORGANIZATION TO EVALUATE TAX POSITIONS TAKEN BY THE ORGANIZATION AND RECOGNIZE A TAX LIABILITY IF THE ORGANIZATION HAS TAKEN AN UNCERTAIN POSITION THAT MORE LIKELY THAN NOT WOULD NOT BE SUSTAINED UPON EXAMINATION BY TAX AUTHORITIES. THE ORGANIZATION IS SUBJECT TO ROUTINE AUDITS BY TAXING JURISDICTIONS; HOWEVER, THERE ARE CURRENTLY NO AUDITS FOR ANY TAX PERIODS IN PROGRESS. THE FOUNDATION IS AN ORGANIZATION DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND THUS IS NOT SUBJECT TO TAX EXCEPT ON ANY UNRELATED BUSINESS INCOME. THE INTERNAL REVENUE SERVICE HAS DETERMINED THAT THE FOUNDATION IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A) OF THE INTERNAL REVENUE CODE. THE FOUNDATION QUALIFIES UNDER SECTION 170(B)(1)(A) TO RECEIVE DEDUCTIBLE CHARITABLE CONTRIBUTIONS. THE FOUNDATION'S RETURNS ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE UNTIL THE APPLICABLE STATUTE OF LIMITATIONS EXPIRES.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1IN-KIND CONTRIBUTIONS 56,191.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2IN-KIND CONTRIBUTIONS 56,191.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt03707
IRS990ScheduleD/TotalExpensesPerForm990Amt0928828
IRS990ScheduleD/TotalRevenuePerForm990Amt01238474
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt01333481
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt01023835
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt058500
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt1115000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0WIRE TRANSFER
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt1WIRE TRANSFER
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt10
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0KABUKI SYNDROME RESEARCH GRANT
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1KABUKI SYNDROME RESEARCH GRANT
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt1EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt00
IRS990ScheduleF/Total501c3OrgCnt01
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalOtherOrgCnt01
IRS990ScheduleF/TotalSpentAmt00
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0632460
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0632460
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0301802
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt011200
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt011200
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0GALA
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt0113731
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt0113731
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0667740
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0667740
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt035280
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt035280
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-266522
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt074690
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt074690
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt0102181
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt0102181
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt0101378
IRS990ScheduleI/RecipientTable/CashGrantAmt1109290
IRS990ScheduleI/RecipientTable/CashGrantAmt228725
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)3
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501(C)3
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501(C)3
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt20
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0KABUKI SYNDROME RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1KABUKI SYNDROME RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2KABUKI SYNDROME RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0BOSTON CHILDRENS HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1KENNEDY KRIEGER INSTITUTE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2SEATTLE CHILDREN'S HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientEIN0042774441
IRS990ScheduleI/RecipientTable/RecipientEIN1521524965
IRS990ScheduleI/RecipientTable/RecipientEIN2911250116
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0300 LONGWOOD AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1707 N BROADWAY
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt24800 SAND POINT WAY NE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0BOSTON
IRS990ScheduleI/RecipientTable/USAddress/CityNm1BALTIMORE
IRS990ScheduleI/RecipientTable/USAddress/CityNm2SEATTLE
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MD
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2WA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd002115
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd1212051832
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd298105
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE BOARD OF DIRECTORS CAREFULLY REVIEWS ALL REQUESTS FOR DONATIONS AND GRANTS PRIOR TO THEIR APPROVAL AND DISBURSEMENT. APPROVAL IS GRANTED ONLY TO REPUTABLE ORGANIZATIONS AND INDIVIDUALS WHO HAVE SATISFIED THE BOARD'S DUE DILIGENCE. THE BOARD REQUESTS REPORTING OF EXPENSES FOR DISBURSEMENTS FOR ALL KSOC, KABUKI SYNDROME OUTCOME MEASURES AND BIOMARKERS CONSORTIUM, RESEARCH. ALL RECORDS REGARDING DISBURSEMENT OF FUNDS ARE MAINTAINED BY THE ORGANIZATION.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleI/Total501c3OrgCnt03
IRS990ScheduleI/TotalOtherOrgCnt00
IRS990/ScheduleJRequiredInd00
IRS990ScheduleM/AnyPropertyThatMustBeHeldInd00
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt010
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc0AUCTION ITEMS
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt0FMV
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd0X
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt056191
IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd00
IRS990ScheduleM/SecuritiesPubliclyTradedGrp/ContributionCnt0856
IRS990ScheduleM/SecuritiesPubliclyTradedGrp/MethodOfDeterminingRevenuesTxt0FMV
IRS990ScheduleM/SecuritiesPubliclyTradedGrp/NonCashCheckboxInd0X
IRS990ScheduleM/SecuritiesPubliclyTradedGrp/NoncashContributionsRptF990Amt0210682
IRS990ScheduleM/ThirdPartiesUsedInd00

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