Civic Intelligence

The Yaya Foundation for 4H Leukodystrophy

EIN 82-3888108 • 501(c)3 • Minneapolis, MN

Profile

Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.

PO Box 80685Minneapolis, MN 55408

www.yayafoundation4hl.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

78th percentile

0.09x

Higher debt load relative to assets than 78% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

83rd percentile

0.11x

Higher debt load relative to revenue than 83% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

15th percentile

-45%

Higher net margin than 15% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

99th percentile

$150,000

Higher top officer pay than 99% of similar nonprofits.

Top officer pay equals 52.8% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

28th percentile

-27%

Faster asset growth than 28% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

79th percentile

35%

Faster revenue growth than 79% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets78th percentile

Assets

Down

$323,449

Down $117,880 (-27%) from 2023

Liabilities

Up

$30,718

Up $8,793 (+40%) from 2023

Net Assets

Down

$292,731

Down $126,673 (-30%) from 2023

Operations
Liabilities / Revenue83rd percentileNet Margin15th percentile

Revenue

Up

$284,117

Up $73,627 (+35%) from 2023

Expenses

Down

$410,790

Down $114,122 (-22%) from 2023

Net Income

Up

-$126,673

Up $187,749 (+60%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth28th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2018: $158,783Liabilities 2018: $0Net Assets 2018: $158,7832018Assets 2019: $216,498Liabilities 2019: $12Net Assets 2019: $216,4862019Assets 2020: $715,342Liabilities 2020: $19,381Net Assets 2020: $695,9612020Assets 2021: $708,156Liabilities 2021: $10,863Net Assets 2021: $697,2932021Assets 2022: $743,023Liabilities 2022: $9,197Net Assets 2022: $733,8262022Assets 2023: $441,329Liabilities 2023: $21,925Net Assets 2023: $419,4042023Assets 2024: $323,449Liabilities 2024: $30,718Net Assets 2024: $292,7312024

Highlighted filing

2024

Assets$323,449
Liabilities$30,718
Net Assets$292,731
Open 2024 Filing

Operations Trend

Revenue Growth79th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2018: $158,783Expenses 2018: $0Net Income 2018: $158,7832018Revenue 2019: $64,673Expenses 2019: $6,970Net Income 2019: $57,7032019Revenue 2020: $612,675Expenses 2020: $133,200Net Income 2020: $479,4752020Revenue 2021: $402,928Expenses 2021: $401,596Net Income 2021: $1,3322021Revenue 2022: $542,579Expenses 2022: $506,046Net Income 2022: $36,5332022Revenue 2023: $210,490Expenses 2023: $524,912Net Income 2023: -$314,4222023Revenue 2024: $284,117Expenses 2024: $410,790Net Income 2024: -$126,6732024

Highlighted filing

2024

Revenue$284,117
Expenses$410,790
Net Income-$126,673
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$323,449
Liabilities
$30,718
Net assets
$292,731
Revenue
$284,117
Expenses
$410,790
Net income
-$126,673
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.23$0.31$2.93$2.84$4.11$1.27
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.41$0.22$4.19$2.10$5.25$3.14
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.43$0.09$7.34$5.43$5.06$0.37
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.08$0.11$6.97$4.03$4.02$0.01
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.15$0.19$6.96$6.13$1.33$4.79
2019Detailed filing. Detailed filing data is available for this year.$2.16$0.00$2.16$0.65$0.07$0.58
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.59$0.00$1.59$1.59$0.00$1.59
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 4, 2025
Return Version
2024v5.2
Gross Receipts
$300,401
Mission and Program Overview

Mission

Support research to better understand 4H Leukodystrophy and develop a cure.

Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$438,174$323,449▼ $114,725
Pledges and Grants Receivable$3,155$0▼ $3,155
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$441,329$323,449▼ $117,880
Other Assets Total-$0-
Liabilities
Other Liabilities$16,925$29,960▲ $13,035
Accounts Payable and Accrued Expenses$5,000$758▼ $4,242
Total Liabilities$21,925$30,718▲ $8,793
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$419,404$292,731▼ $126,673
Total Net Assets Fund Balance$419,404$292,731▼ $126,673
Total Liabilities and Net Assets / Fund Balance$441,329$323,449▼ $117,880
Compensation and Service Providers
Top Officer Pay99th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Benjamin SmithExecutive DirectorFT$150,000$150,000

Board Members and Trustees

NameTitle
Dr Daniel GrossmanChairman
Ron GarberChairman
Chris ClearyDirector
Debbie TriptowDirector
Dr Margo HutchinsonDirector
Gabriel BassinDirector
Jim St JohnDirector
Jude TallmanDirector
Kurt TriptowDirector
Marcie FloresDirector
Solomon LiebermanDirector
Tim ArmourDirector
June Garber ChengSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$255,431
Program Service Revenue
$0
Investment Income
$3,595
Other Revenue
$25,091
All Other Contributions
$255,431
Change in Net Assets
$-126,673
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$248,813
Salaries, Compensation, and Employee Benefits$161,977
Total Fundraising Expense$126,985
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$48,931$47,930$53,139$150,000
Travel$46,355$2,113$39,183$87,651
Other Expenses$25,447$33$18,038$43,518
Information Technology$277$2,833$10,780$13,890
Payroll Taxes$3,985$3,680$4,312$11,977
Advertising$6,011$1,991-$8,002
Office Expenses$599$5,556$1,533$7,688
Fees for Services Accounting-$6,149-$6,149
Occupancy-$6,042-$6,042
Insurance-$2,195-$2,195
Total Functional Expenses$205,283$78,522$126,985$410,790
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$41,375
Fundraising Direct Expenses$16,284
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 1$41,375$41,375$16,284$25,091
Total Events$41,375$41,375$16,284$25,091
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Credit Cards Payable$29,941
Payroll Tax Liabilities$19
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“All directors are furnished with a copy of the form 990 for review.”

Form 990, Part VI, Section C, Line 19

“No documents available to the public.”

Filing and Contact Details

Filer

Filer Name
The Yaya Foundation for 4h Leukodystophy
EIN
82-3888108
Phone
3472687066
Address
PO BOX 80685, MINNEAPOLIS, MN 55408

Signing Officer

Name
Ron Garber
Title
Secretary and Chair
Signed
2025-11-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Gabriel Bassin
Formed
2017
Legal Domicile
Mn
Voting Board Members
13
Independent Board Members
12
Employees
2
Volunteers
12

Preparer

Firm
Rifkin & Company LLP
Address
445 Route 304, Bardonia, NY 10954
Preparer
Daniel Rifkin CPA
Phone
8456233884
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IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0false
IRS990/MinutesOfGoverningBodyInd0false
IRS990/MissionDesc0Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.
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IRS990/MoreThan5000KToOrgInd0false
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IRS990/NetAssetsOrFundBalancesEOYAmt0292731
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IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt025091
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IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
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IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/ManagementAndGeneralAmt06042
IRS990/OccupancyGrp/TotalAmt06042
IRS990/OfficeExpensesGrp/FundraisingAmt01533
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt05556
IRS990/OfficeExpensesGrp/ProgramServicesAmt0599
IRS990/OfficeExpensesGrp/TotalAmt07688
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IRS990/OtherExpensesGrp/TotalAmt143518
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IRS990/PayrollTaxesGrp/FundraisingAmt04312
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03680
IRS990/PayrollTaxesGrp/ProgramServicesAmt03985
IRS990/PayrollTaxesGrp/TotalAmt011977
IRS990/PensionPlanContributionsGrp/TotalAmt00
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IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt05470
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt06771
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IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt016284
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IRS990ScheduleG/SupplementalInformationDetail/ExplanationTxt0Golf Outing
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IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ALL DIRECTORS ARE FURNISHED WITH A COPY OF THE FORM 990 FOR REVIEW.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1No documents available to the public.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section C, Line 19
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