Civic Intelligence

Livelikelou Foundation

EIN 82-3524872 • 501(c)3 • Oxford, OH

Profile

The Live Like Lou Foundation's mission is to create and connect communities to stimulate emerging ALS research and uniquely support families affected by Lou Gehrig's disease. Named in honor of MLB Hall of Famer Lou Gehrig, our vision is to leave ALS better than we found it by supporting families affected by Lou Gehrig's disease, funding emerging researchers seeking meaningful treatments and cures for ALS, and helping generate awareness of Lou Gehrig's disease for the more than 30,000 people currently living with ALS in North America. In the face of his diagnosis with amyotrophic lateral sclerosis ALS Lou continued to live his life with courage, determination, and gratitude. This is what it means to live like Lou.

2 South Campus AvenueOxford, OH 45056

livelikelou.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

40th percentile

0.07x

Higher debt load relative to assets than 40% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

48th percentile

0.14x

Higher debt load relative to revenue than 48% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

8th percentile

-42%

Higher net margin than 8% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

6th percentile

-20%

Faster asset growth than 6% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

5th percentile

-48%

Faster revenue growth than 5% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets40th percentile

Assets

Down

$3,186,629

Down $779,227 (-20%) from 2023

Liabilities

Down

$214,297

Down $226,737 (-51%) from 2023

Net Assets

Down

$2,972,332

Down $552,490 (-16%) from 2023

Operations
Liabilities / Revenue48th percentileNet Margin8th percentile

Revenue

Down

$1,520,640

Down $1,406,554 (-48%) from 2023

Expenses

Up

$2,151,844

Up $252,687 (+13%) from 2023

Net Income

Down

-$631,204

Down $1,659,241 (-161%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth6th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$4.0M$3.0M$2.0M$1.0M$0Assets 2017: $19,829Liabilities 2017: $1,0532017Assets 2018: $321,710Liabilities 2018: $99,510Net Assets 2018: $222,2002018Assets 2019: $1,091,122Liabilities 2019: $105,242Net Assets 2019: $985,8802019Assets 2020: $1,122,996Liabilities 2020: $128,471Net Assets 2020: $994,5252020Assets 2021: $1,647,060Liabilities 2021: $173,233Net Assets 2021: $1,473,8272021Assets 2022: $2,871,754Liabilities 2022: $463,770Net Assets 2022: $2,407,9842022Assets 2023: $3,965,856Liabilities 2023: $441,034Net Assets 2023: $3,524,8222023Assets 2024: $3,186,629Liabilities 2024: $214,297Net Assets 2024: $2,972,3322024

Highlighted filing

2024

Assets$3,186,629
Liabilities$214,297
Net Assets$2,972,332
Open 2024 Filing

Operations Trend

Revenue Growth5th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2017: $19,829Expenses 2017: $1,053Net Income 2017: $18,7762017Revenue 2018: $579,989Expenses 2018: $363,952Net Income 2018: $216,0372018Revenue 2019: $1,280,474Expenses 2019: $517,201Net Income 2019: $763,2732019Revenue 2020: $531,954Expenses 2020: $570,480Net Income 2020: -$38,5262020Revenue 2021: $1,064,974Expenses 2021: $642,639Net Income 2021: $422,3352021Revenue 2022: $2,796,333Expenses 2022: $1,727,639Net Income 2022: $1,068,6942022Revenue 2023: $2,927,194Expenses 2023: $1,899,157Net Income 2023: $1,028,0372023Revenue 2024: $1,520,640Expenses 2024: $2,151,844Net Income 2024: -$631,2042024

Highlighted filing

2024

Revenue$1,520,640
Expenses$2,151,844
Net Income-$631,204
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,186,629
Liabilities
$214,297
Net assets
$2,972,332
Revenue
$1,520,640
Expenses
$2,151,844
Net income
-$631,204
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.19$0.21$2.97$1.52$2.15$0.63
2023Detailed filing. Detailed filing data is available for this year.$3.97$0.44$3.52$2.93$1.90$1.03
2022Detailed filing. Detailed filing data is available for this year.$2.87$0.46$2.41$2.80$1.73$1.07
2021Detailed filing. Detailed filing data is available for this year.$1.65$0.17$1.47$1.06$0.64$0.42
2020Detailed filing. Detailed filing data is available for this year.$1.12$0.13$0.99$0.53$0.57$0.04
2019Summary only. Only limited summary data is available for this year.$1.09$0.11$0.99$1.28$0.52$0.76
2018Summary only. Only limited summary data is available for this year.$0.32$0.10$0.22$0.58$0.36$0.22
2017Summary only. Only limited summary data is available for this year.$0.02$0.00$0.02$0.00$0.02
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.2
Gross Receipts
$5,667,239
Mission and Program Overview

Mission

The LiveLikeLou Foundation is a national non-profit organization committed to the cause of Amyotrophic Lateral Sclerosis ("ALS") and our purpose to Leave ALS Better Than We Found It. We do this work in honor of our namesake, baseball Hall of Famer and Luckiest Man Lou Gehrig, and the more than 16,000 people living with this 100% fatal disease each day across North America. We achieve our mission through three impact areas: 1) Raising awareness for the cause of ALS, by inspiring, educating and engaging ALS advocates 2) Supporting ALS Research to find a treatment or a cure, by supporting emerging ALS researchers and encouraging novel and pre-clinical scientific collaborations 3) Supporting ALS Patients and their Families by complementing other patient care organzaitions with unique offerings such as a nationaide volunteer service program, scholarships and enrichment opportunities for children of ALs families. We impact on the cause of ALS through the philanthropic dedication of Phi Delta

The live like lou foundation's mission is to create and connect communities to stimulate emerging als research and uniquely support families affected by lou gehrig's disease. Named in honor of mlb hall of famer lou gehrig, our vision is to leave als better than we found it by supporting families affected by lou gehrig's disease, funding emerging researchers seeking meaningful treatments and cures for als, and helping generate awareness of lou gehrig's disease for the more than 30,000 people currently living with als in north america. In the face of his diagnosis with amyotrophic lateral sclerosis als lou continued to live his life with courage, determination, and gratitude. This is what it means to live like lou.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,074,323$2,508,274▲ $433,951
Pledges and Grants Receivable$419,325$337,805▼ $81,520
Cash and Non-Interest-Bearing Accounts$1,462,532$288,390▼ $1,174,142
Inventories for Sale or Use-$42,391-
Prepaid Expenses and Deferred Charges$9,676$9,769▲ $93
Savings and Temporary Cash Investments-$0-
Total Assets$3,965,856$3,186,629▼ $779,227
Liabilities
Accounts Payable and Accrued Expenses$189,487$164,297▼ $25,190
Grants Payable$251,547$50,000▼ $201,547
Total Liabilities$441,034$214,297▼ $226,737
Net Assets / Fund Balance
Net Assets With Donor Restrictions$2,646,737$2,136,473▼ $510,264
Net Assets Without Donor Restrictions$878,085$835,859▼ $42,226
Total Net Assets Fund Balance$3,524,822$2,972,332▼ $552,490
Total Liabilities and Net Assets / Fund Balance$3,965,856$3,186,629▼ $779,227

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$376,052$82,889▲ $11,973-$458,899
2023$95,000$293,359▲ $4,638-$381,052
2022$0$100,000--$95,000
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeOtherTotal
-Executive DirectorFT$178,596$178,596

Board Members and Trustees

NameTitle
Wendy FaustChairman
-Past Chairman
-Vice Chairman
Wendy FaustExecutive Director
-Trustee
-Trustee Through Early 2024
-Treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,375,075
Program Service Revenue
$0
Investment Income
$136,780
Other Revenue
$8,785
All Other Contributions
$1,375,075
Change in Net Assets
$-631,204

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,520,620
Revenue Not Reported on Financial Statements
$20
Revenue Not Reported on Form 990
$78,714
Total Revenue per Audited Statements
$1,599,334
Total Revenue per Form 990
$1,520,640
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,375,006
Other Expenses$768,838
Total Fundraising Expense$137,287
Professional Fundraising Fees$8,000
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,039,421--$1,039,421
Fees for Services Management$113,565$295,053$82,155$490,773
Grants to Domestic Individuals$181,325--$181,325
Foreign Grants$154,260--$154,260
Travel$12,736$30,507$8,492$51,735
Office Expenses$11,465$29,787$8,294$49,546
Fees for Services Other$11,107$28,859$8,034$48,000
Advertising$9,154$23,784$7,556$40,494
Fees for Services Legal$6,080$15,795$4,398$26,273
Information Technology$5,003$12,999$3,620$21,622
Fees for Services Accounting$4,397$11,423$3,180$19,000
Occupancy$3,833$9,959$2,773$16,565
Fees for Services Professional Fundraising--$8,000$8,000
Other Expenses$965$2,534$679$4,178
Insurance$146$380$106$632
Fees for Service Investment Mgmnt Fees-$20-$20
Total Functional Expenses$1,553,457$461,100$137,287$2,151,844

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$2,151,844
Expenses per Audited Statements$2,151,824
Total Expenses per Audited Statements$2,151,824
Expenses Not Reported on Financial Statements$20
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Vanderbilt University Medical CenterNashville, TN501(c)(3)Als Research$570,000
Emory UniversityAtlanta, GA501(c)(3)Als Research$100,000
The Regents of the University of California SfOakland, CA501(c)(3)Als Research$75,000
University of Southern CaliforniaLos Angeles, CA501(c)(3)Als Research$75,000
The Regents of the University of MichiganAnn Arbor, MI501(c)(3)Als Research$51,950
Permobil FoundationLebanon, TN501(c)(3)Wheelchairs for People With Als$19,000

International Summary

Offices
0
Employees
0
Spending
$154,260

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Grants to RecipientsMedical Research00$150,000
North AmericaGrants to RecipientsScholarhips00$4,260
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$8,000
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Members of the board of trustees examine a copy of the form 990 prior to filing with the internal revenue service.”

Form 990, Part VI, Section B, Line 12C

“The organization prohibits conflicts of interest with its board members and other personnel. Conflicts of interest disclosure statements are reviewed annually and any conflicts are resolved immediately.”

Form 990, Part VI, Section B, Line 15

“The organization shares employees with phi delta theta fraternity and phi delta theta foundation. Compensation is determined at that level.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents available to interested parties upon request.”

Filing and Contact Details

Filer

Filer Name
Livelikelou Foundation
EIN
82-3524872
Phone
5135236345
Address
2 SOUTH CAMPUS AVENUE, OXFORD, OH 45056

Signing Officer

Name
Wendy Faust
Title
Executive Director
Phone
5135236345
Signed
2025-11-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Wendy Faust
Formed
2017
Legal Domicile
Oh
Voting Board Members
14
Independent Board Members
14
Employees
0
Volunteers
728

Preparer

Firm
Blue & Co LLC
Address
12800 N MERIDIAN ST STE 400, CARMEL, IN 46032
Preparer
Angela N Crawford CPA
Phone
3178488920
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The process has not changed from the prior year.”

Financial Statement Notes

PART V, LINE 4:

“The foundation uses an endowment spending-rate formula to determine the maximum amount to spend from the endowment, including those endowments deemed to be underwater, each year. The rate, determined and adjusted from time to time by the board of trustees, is applied to the average fair value of the endowment investments for the prior three years at december 31 of each year to determine the spending amount for the upcoming year. During 2024 and 2023, the spending rate was set at no more than 4%. Additionally, the board has established a policy whereby a 10% administrative charge on all new restricted contributions is assessed to offset the costs of fundraising and other administrative expenses incurred. In establishing this policy, the foundation considered the long-term expected return of the endowment and set the rate with the objective of maintaining the purchasing power of the endowment over time.”

PART X, LINE 2:

“The foundation is organized as a not-for-profit corporation that is exempt from income taxes under section 501(c)(3) of the united states internal revenue code and similar state law. As such, the foundation is generally exempt from income taxes. However, the foundation is required to file federal form 990 return of organization exempt from income tax and a corresponding state return, which are informational returns only. The foundation is subject to routine audits by taxing jurisdictions. However, as of the date the financial statements were available to be issued, there were no audits for any tax periods in progress. Accounting principles generally accepted in the united states of america require management to evaluate tax positions taken by the foundation and recognize a tax liability if the foundation has taken an uncertain position that more likely than not would not be sustained upon examination by various federal and state taxing authorities. Management has analyzed the tax positions taken by the foundation, and has concluded that as of december 31, 2024 and 2023, there are no uncertain positions taken or expected to be taken that would require recognition of a liability or disclosure in the accompanying financial statements.”

Raw XML AppendixShowing 400 of 734 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE LIVE LIKE LOU FOUNDATION'S MISSION IS TO CREATE AND CONNECT COMMUNITIES TO STIMULATE EMERGING ALS RESEARCH AND UNIQUELY SUPPORT FAMILIES AFFECTED BY LOU GEHRIG'S DISEASE. NAMED IN HONOR OF MLB HALL OF FAMER LOU GEHRIG, OUR VISION IS TO LEAVE ALS BETTER THAN WE FOUND IT BY SUPPORTING FAMILIES AFFECTED BY LOU GEHRIG'S DISEASE, FUNDING EMERGING RESEARCHERS SEEKING MEANINGFUL TREATMENTS AND CURES FOR ALS, AND HELPING GENERATE AWARENESS OF LOU GEHRIG'S DISEASE FOR THE MORE THAN 30,000 PEOPLE CURRENTLY LIVING WITH ALS IN NORTH AMERICA. IN THE FACE OF HIS DIAGNOSIS WITH AMYOTROPHIC LATERAL SCLEROSIS ALS LOU CONTINUED TO LIVE HIS LIFE WITH COURAGE, DETERMINATION, AND GRATITUDE. THIS IS WHAT IT MEANS TO LIVE LIKE LOU.
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1414950
IRS990/Form990PartVIISectionAGrp/PersonNm0WENDY FAUST
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt14163646
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3PAST CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt4TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt5TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt6TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt7TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt8TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt9TRUSTEE THROUGH EARLY 2024
IRS990/Form990PartVIISectionAGrp/TitleTxt10TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt11TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt12TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt13TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt14EXECUTIVE DIRECTOR
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IRS990/FormationYr02017
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IRS990/FSAuditedInd01
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IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt014
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IRS990/GrantsPayableGrp/BOYAmt0251547
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IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01039421
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01039421
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt04155988
IRS990/GrossReceiptsAmt05667239
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
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IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
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IRS990/InformationTechnologyGrp/FundraisingAmt03620
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt012999
IRS990/InformationTechnologyGrp/ProgramServicesAmt05003
IRS990/InformationTechnologyGrp/TotalAmt021622
IRS990/InsuranceGrp/FundraisingAmt0106
IRS990/InsuranceGrp/ManagementAndGeneralAmt0380
IRS990/InsuranceGrp/ProgramServicesAmt0146
IRS990/InsuranceGrp/TotalAmt0632
IRS990/InventoriesForSaleOrUseGrp/EOYAmt042391
IRS990/InvestmentIncomeGrp/ExclusionAmt0127391
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0127391
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt02074323
IRS990/InvestmentsPubTradedSecGrp/EOYAmt02508274
IRS990/IRPDocumentCnt09
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0OH
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt04146599
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE LIVE LIKE LOU FOUNDATION'S MISSION IS TO CREATE AND CONNECT COMMUNITIES TO STIMULATE EMERGING ALS RESEARCH AND UNIQUELY SUPPORT FAMILIES AFFECTED BY LOU GEHRIG'S DISEASE. NAMED IN HONOR OF MLB HALL OF FAMER LOU GEHRIG, OUR VISION IS TO LEAVE ALS BETTER THAN WE FOUND IT BY SUPPORTING FAMILIES AFFECTED BY LOU GEHRIG'S DISEASE, FUNDING EMERGING RESEARCHERS SEEKING MEANINGFUL TREATMENTS AND CURES FOR ALS, AND HELPING GENERATE AWARENESS OF LOU GEHRIG'S DISEASE FOR THE MORE THAN 30,000 PEOPLE CURRENTLY LIVING WITH ALS IN NORTH AMERICA. IN THE FACE OF HIS DIAGNOSIS WITH AMYOTROPHIC LATERAL SCLEROSIS ALS LOU CONTINUED TO LIVE HIS LIFE WITH COURAGE, DETERMINATION, AND GRATITUDE. THIS IS WHAT IT MEANS TO LIVE LIKE LOU.
IRS990/MoreThan5000KToIndividualsInd01
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt03524822
IRS990/NetAssetsOrFundBalancesEOYAmt02972332
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt09389
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt09389
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt078714
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0878085
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0835859
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt02773
IRS990/OccupancyGrp/ManagementAndGeneralAmt09959
IRS990/OccupancyGrp/ProgramServicesAmt03833
IRS990/OccupancyGrp/TotalAmt016565
IRS990/OfficeExpensesGrp/FundraisingAmt08294
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt029787
IRS990/OfficeExpensesGrp/ProgramServicesAmt011465
IRS990/OfficeExpensesGrp/TotalAmt049546
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0OTHER EXPENSES
IRS990/OtherExpensesGrp/FundraisingAmt0679
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02534
IRS990/OtherExpensesGrp/ProgramServicesAmt0965
IRS990/OtherExpensesGrp/TotalAmt04178
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0419325
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0337805
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt09676
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt09769
IRS990/PrincipalOfficerNm0WENDY FAUST
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0PROVIDED TUITION SUPPORT FOR DEPENDENTS OF ALS FAMILIES TO ATTEND POST-SECONDARY EDUCATIONAL INSTITUTIONS. DEVELOPED AND OPERATED VOLUNTEER PROGRAMS THAT SERVE ALS FAMILIES ACROSS NORTH AMERICA. PROVIDED RESPITE GRANTS TO FAMILIES LIVING WITH ALS. PROVIDED HOME MODIFICATION GRANTS TO FAMILIES TO PROVIDE CARE FOR A FAMILY MEMBERAFFECTED BY ALS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0300041
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0204585
IRS990/ProgSrvcAccomActy3Grp/Desc0PROMOTE AWARENESS OF ALS AND ITS EFFECT ON INDIVIDUALS DIAGNOSED WITH ALS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt045467
IRS990/ProgSrvcAccomActy3Grp/GrantAmt010000
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt02852761
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01133405
IRS990/PYInvestmentIncomeAmt072602
IRS990/PYOtherExpensesAmt0685752
IRS990/PYOtherRevenueAmt01831
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt01028037
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt01899157
IRS990/PYTotalProfFndrsngExpnsAmt080000
IRS990/PYTotalRevenueAmt02927194
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-631204
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RoyaltiesRevenueGrp/ExclusionAmt08785
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt08785
IRS990/SavingsAndTempCashInvstGrp/EOYAmt00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01375075
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt02852761
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt02797769
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01055296
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0543999
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt08624900
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0136176
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt089356
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt010813
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt07769
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt04667
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0248781
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt0550
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt01000
IRS990ScheduleA/OtherIncome170Grp/TotalAmt01550
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.97180
IRS990ScheduleA/PublicSupportPY170Pct00.98660
IRS990ScheduleA/PublicSupportTotal170Amt08624900
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01375075
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt02852761
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt02797769
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01055296
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0543999
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt08624900
IRS990ScheduleA/TotalSupportAmt08875231
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/BoardDesignatedBalanceEOYPct00.11760
IRS990ScheduleD/CYEndwmtFundGrp/AdministrativeExpensesAmt02900
IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt0376052
IRS990ScheduleD/CYEndwmtFundGrp/ContributionsAmt082889
IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt0458899
IRS990ScheduleD/CYEndwmtFundGrp/GrantsOrScholarshipsAmt09115
IRS990ScheduleD/CYEndwmtFundGrp/InvestmentEarningsOrLossesAmt011973
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/AdministrativeExpensesAmt02900
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt095000
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/ContributionsAmt0293359
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt0381052
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/GrantsOrScholarshipsAmt09045
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt04638
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/BeginningYearBalanceAmt00
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/ContributionsAmt0100000
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt095000
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/GrantsOrScholarshipsAmt05000
IRS990ScheduleD/EndowmentsHeldRelatedOrgInd00
IRS990ScheduleD/EndowmentsHeldUnrelatedOrgInd00
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt020
IRS990ScheduleD/ExpensesSubtotalAmt02151824
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/InvestmentExpensesNotIncld2Amt020
IRS990ScheduleD/InvestmentExpensesNotIncldAmt020
IRS990ScheduleD/NetUnrealizedGainsInvstAmt078714
IRS990ScheduleD/RevenueNotReportedAmt078714
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt020
IRS990ScheduleD/RevenueSubtotalAmt01520620
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION USES AN ENDOWMENT SPENDING-RATE FORMULA TO DETERMINE THE MAXIMUM AMOUNT TO SPEND FROM THE ENDOWMENT, INCLUDING THOSE ENDOWMENTS DEEMED TO BE UNDERWATER, EACH YEAR. THE RATE, DETERMINED AND ADJUSTED FROM TIME TO TIME BY THE BOARD OF TRUSTEES, IS APPLIED TO THE AVERAGE FAIR VALUE OF THE ENDOWMENT INVESTMENTS FOR THE PRIOR THREE YEARS AT DECEMBER 31 OF EACH YEAR TO DETERMINE THE SPENDING AMOUNT FOR THE UPCOMING YEAR. DURING 2024 AND 2023, THE SPENDING RATE WAS SET AT NO MORE THAN 4%. ADDITIONALLY, THE BOARD HAS ESTABLISHED A POLICY WHEREBY A 10% ADMINISTRATIVE CHARGE ON ALL NEW RESTRICTED CONTRIBUTIONS IS ASSESSED TO OFFSET THE COSTS OF FUNDRAISING AND OTHER ADMINISTRATIVE EXPENSES INCURRED. IN ESTABLISHING THIS POLICY, THE FOUNDATION CONSIDERED THE LONG-TERM EXPECTED RETURN OF THE ENDOWMENT AND SET THE RATE WITH THE OBJECTIVE OF MAINTAINING THE PURCHASING POWER OF THE ENDOWMENT OVER TIME.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1THE FOUNDATION IS ORGANIZED AS A NOT-FOR-PROFIT CORPORATION THAT IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE UNITED STATES INTERNAL REVENUE CODE AND SIMILAR STATE LAW. AS SUCH, THE FOUNDATION IS GENERALLY EXEMPT FROM INCOME TAXES. HOWEVER, THE FOUNDATION IS REQUIRED TO FILE FEDERAL FORM 990 RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX AND A CORRESPONDING STATE RETURN, WHICH ARE INFORMATIONAL RETURNS ONLY. THE FOUNDATION IS SUBJECT TO ROUTINE AUDITS BY TAXING JURISDICTIONS. HOWEVER, AS OF THE DATE THE FINANCIAL STATEMENTS WERE AVAILABLE TO BE ISSUED, THERE WERE NO AUDITS FOR ANY TAX PERIODS IN PROGRESS. ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRE MANAGEMENT TO EVALUATE TAX POSITIONS TAKEN BY THE FOUNDATION AND RECOGNIZE A TAX LIABILITY IF THE FOUNDATION HAS TAKEN AN UNCERTAIN POSITION THAT MORE LIKELY THAN NOT WOULD NOT BE SUSTAINED UPON EXAMINATION BY VARIOUS FEDERAL AND STATE TAXING AUTHORITIES. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE FOUNDATION, AND HAS CONCLUDED THAT AS OF DECEMBER 31, 2024 AND 2023, THERE ARE NO UNCERTAIN POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY OR DISCLOSURE IN THE ACCOMPANYING FINANCIAL STATEMENTS.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART V, LINE 4:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART X, LINE 2:
IRS990ScheduleD/TermEndowmentBalanceEOYPct00.88240
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalExpensesPerForm990Amt02151844
IRS990ScheduleD/TotalRevenuePerForm990Amt01520640
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt01599334
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt02151824

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